Workwell Foundation: Difference between revisions

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==Notable studies==
==Notable studies==
*2013, [http://ptjournal.apta.org/content/early/2013/06/26/ptj.20110368.short Discriminative validity of metabolic and workload measurements to identify individuals with Chronic Fatigue Syndrome]<ref name="Snell2013"/>
*2013, [http://ptjournal.apta.org/content/early/2013/06/26/ptj.20110368.short Discriminative validity of metabolic and workload measurements to identify individuals with Chronic Fatigue Syndrome]<ref name="Snell2013" />
*2011, [http://www.ncbi.nlm.nih.gov/pubmed/21208154 Diagnostic accuracy of symptoms characterising chronic fatigue syndrome]<ref name="Davenport2011"/>
*2011, [http://www.ncbi.nlm.nih.gov/pubmed/21208154 Diagnostic accuracy of symptoms characterising chronic fatigue syndrome]<ref name="Davenport2011" />
*2010, [http://www.ncbi.nlm.nih.gov/pubmed/20095909 Post-exertional malaise in women with chronic fatigue syndrome]<ref name="VanNess2010"/>
*2010, [http://www.ncbi.nlm.nih.gov/pubmed/20095909 Post-exertional malaise in women with chronic fatigue syndrome]<ref name="VanNess2010" />
*2010, [http://ptjournal.apta.org/content/90/4/602.full Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]<ref name="Davenport2010"/>
*2010, [http://ptjournal.apta.org/content/90/4/602.full Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]<ref name="Davenport2010" />
*2005,[http://iv.iiarjournals.org/content/19/2/387.full.pdf Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)]<ref name="Snell2005"/>
*2005,[http://iv.iiarjournals.org/content/19/2/387.full.pdf Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)]<ref name="Snell2005" />


==Exercise recommendations for [[ME/CFS]]==
==Exercise recommendations for [[ME/CFS]]==
Workwell Foundation recommends short periods (eg: 30 seconds) of analeptic exercise, with periods of rest which are 3-6 times longer than the period of exercise. The amount of exercise that the individual undertakes should be guided by VO2 max testing (or a safe heart rate threshold (generally 60% of maximum heart rate)), and the use of a heart rate monitor (both during exercise and to help with [[pacing]]) is recommended to ensure that the individual doesn't exceed their capacity. The Foundation also advises against aerobic exercise for people with [[ME/CFS]].<ref name="Workwell201404rae"/><ref name="Workwell201404wwodwo"/><ref name="Workwell201512foar"/>
Workwell Foundation recommends short periods (eg: 30 seconds) of analeptic exercise, with periods of rest which are 3-6 times longer than the period of exercise. The amount of exercise that the individual undertakes should be guided by VO2 max testing (or a safe heart rate threshold (generally 60% of maximum heart rate)), and the use of a heart rate monitor (both during exercise and to help with [[pacing]]) is recommended to ensure that the individual doesn't exceed their capacity. The Foundation also advises against aerobic exercise for people with [[ME/CFS]].<ref name="Workwell201404rae" /><ref name="Workwell201404wwodwo" /><ref name="Workwell201512foar" />


This approach to exercise differs from [[Graded Exercise Therapy]] ([[GET]]) in several important ways:
This approach to exercise differs from [[Graded Exercise Therapy]] ([[GET]]) in several important ways:
*There is no claim that the exercise program will cure the condition. The aim is to increase functional strength and flexibility, and to improve quality of life<ref name="Workwell201404wwodwo"/>
*There is no claim that the exercise program will cure the condition. The aim is to increase functional strength and flexibility, and to improve quality of life<ref name="Workwell201404wwodwo" />
*This program is based on a deep understanding of [[Post-exertional malaise]] ([[PEM]]), and the importance of staying within the [[energy envelope]] in order to not trigger [[PEM]]<ref name="Workwell201404rae"/>
*This program is based on a deep understanding of [[Post-exertional malaise]] ([[PEM]]), and the importance of staying within the [[energy envelope]] in order to not trigger [[PEM]]<ref name="Workwell201404rae" />
*There is a recognition that any approach to exercise with people with [[ME/CFS]] must be carefully tailored to the individual. There is no one-size fits all<ref name="Workwell201404wwodwo"/>
*There is a recognition that any approach to exercise with people with [[ME/CFS]] must be carefully tailored to the individual. There is no one-size fits all<ref name="Workwell201404wwodwo" />
*This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual<ref name="Workwell201512foar"/>
*This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual<ref name="Workwell201512foar" />




2018, [http://www.workwellfoundation.org/wp-content/uploads/2018/05/MECFS-GET-Letter-to-Health-Care-Providers-v4-30-2.pdf The Workwell Foundation release an open letter to healthcare providers, detailing their concerns about GET.]
2018, [https://www.meassociation.org.uk/2018/05/me-awareness-week-workwell-foundation-graded-exercise-for-me-cfs-is-detrimental-to-the-health-of-patients-and-should-not-be-recommended-07-may-2018/ The Workwell Foundation release an open letter to healthcare providers, detailing their concerns about GET.]


==Funding==
==Funding==


==Talks and Interviews==
==Talks and Interviews==
*[http://youtu.be/XFz4CK0Js1M Video: Post-exertional malaise: How to do more with less], ''Staci Stevens, Vancouver BC Canada, May 2015''<ref name="Stevens20150524video"/>
*[http://youtu.be/XFz4CK0Js1M Video: Post-exertional malaise: How to do more with less], ''Staci Stevens, Vancouver BC Canada, May 2015''<ref name="Stevens20150524video" />
*[http://youtu.be/q_cnva7zyKM Video: A Realistic Approach to Exercise and Rehabilitation in ME/CFS], ''Mark VanNess, Bristol UK, Feb 2014''<ref name="VanNess20140205video"/>
*[http://youtu.be/q_cnva7zyKM Video: A Realistic Approach to Exercise and Rehabilitation in ME/CFS], ''Mark VanNess, Bristol UK, Feb 2014''<ref name="VanNess20140205video" />
*[http://youtu.be/xIDFahiCySw Video: Cardio-Pulmonary Exercise Test (CPET)], ''Workwell Foundation, Mar 2014''<ref name="Workwell20140317video"/>
*[http://youtu.be/xIDFahiCySw Video: Cardio-Pulmonary Exercise Test (CPET)], ''Workwell Foundation, Mar 2014''<ref name="Workwell20140317video" />




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==Learn more==
==Learn more==
*[http://www.cortjohnson.org/blog/2013/07/30/busted-exercise-study-finds-energy-production-system-is-broken-in-chronic-fatigue-syndrome/ Busted! Exercise study finds exercise production system is broken in Chronic Fatigue Syndrome], ''Cort Johnson, Jul 2013''<ref name="JohnsonC20130730busted"/>
*[http://www.cortjohnson.org/blog/2013/07/30/busted-exercise-study-finds-energy-production-system-is-broken-in-chronic-fatigue-syndrome/ Busted! Exercise study finds exercise production system is broken in Chronic Fatigue Syndrome], ''Cort Johnson, Jul 2013''<ref name="JohnsonC20130730busted" />
*[http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf Functional outcomes of anaerobic rehabilitation in a patient with Chronic Fatigue Syndrome: Case report with 1-year follow up], ''Workwell Foundation, Dec 2015''<ref name="Workwell201512foar"/>
*[http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf Functional outcomes of anaerobic rehabilitation in a patient with Chronic Fatigue Syndrome: Case report with 1-year follow up], ''Workwell Foundation, Dec 2015''<ref name="Workwell201512foar" />
*[http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf When working out doesn't work out], ''Workwell Foundation, Apr 2014''<ref name="Workwell201404wwodwo"/>
*[http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf When working out doesn't work out], ''Workwell Foundation, Apr 2014''<ref name="Workwell201404wwodwo" />
*[http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf A realistic approach to exercise for CFS patients], ''Workwell Foundation, Apr 2014''<ref name="Workwell201404rae"/>
*[http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf A realistic approach to exercise for CFS patients], ''Workwell Foundation, Apr 2014''<ref name="Workwell201404rae" />


==See also==
==See also==
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==References==
==References==
<references>
<references>
<ref name="Davenport2010">{{citation
<ref name="Davenport2010">{{citation
| last1  = Davenport | first1 = Todd E        | authorlink1 = Todd Davenport
| last1  = Davenport | first1 = Todd E        | authorlink1 = Todd Davenport
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| url    = http://ptjournal.apta.org/content/90/4/602.full  
| url    = http://ptjournal.apta.org/content/90/4/602.full  
}}</ref>
}}</ref>
<ref name="Davenport2011">{{citation
<ref name="Davenport2011">{{citation
| last1  = Davenport        | first1 = Todd E            | authorlink1 = Todd Davenport
| last1  = Davenport        | first1 = Todd E            | authorlink1 = Todd Davenport
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| url    = http://www.tandfonline.com/doi/abs/10.3109/09638288.2010.546936
| url    = http://www.tandfonline.com/doi/abs/10.3109/09638288.2010.546936
}}</ref>
}}</ref>
<ref name="JohnsonC20130730busted">{{citation
<ref name="JohnsonC20130730busted">{{citation
| last1  = Johnson          | first1 = Cort              | authorlink1 = Cort Johnson
| last1  = Johnson          | first1 = Cort              | authorlink1 = Cort Johnson
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| url    = http://www.cortjohnson.org/blog/2013/07/30/busted-exercise-study-finds-energy-production-system-is-broken-in-chronic-fatigue-syndrome/   
| url    = http://www.cortjohnson.org/blog/2013/07/30/busted-exercise-study-finds-energy-production-system-is-broken-in-chronic-fatigue-syndrome/   
}}</ref>
}}</ref>
<ref name="Snell2005">{{citation
<ref name="Snell2005">{{citation
| last1  = Snell            | first1 = Christopher R      | authorlink1 = Christopher Snell
| last1  = Snell            | first1 = Christopher R      | authorlink1 = Christopher Snell
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| url    = http://iv.iiarjournals.org/content/19/2/387.full.pdf  
| url    = http://iv.iiarjournals.org/content/19/2/387.full.pdf  
}}</ref>
}}</ref>
<ref name="Snell2013">{{citation
<ref name="Snell2013">{{citation
| last1  = Snell            | first1 = Christopher R      | authorlink1 = Christopher Snell
| last1  = Snell            | first1 = Christopher R      | authorlink1 = Christopher Snell
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| url    = http://ptjournal.apta.org/content/93/11/1484
| url    = http://ptjournal.apta.org/content/93/11/1484
}}</ref>
}}</ref>
<ref name="Stevens20150524video">{{citation
<ref name="Stevens20150524video">{{citation
| last1  = Stevens          | first1 = Staci R            | authorlink1 = Staci Stevens
| last1  = Stevens          | first1 = Staci R            | authorlink1 = Staci Stevens
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| url    = http://youtu.be/XFz4CK0Js1M  
| url    = http://youtu.be/XFz4CK0Js1M  
}}</ref>
}}</ref>
<ref name="VanNess2010">{{citation
<ref name="VanNess2010">{{citation
| last1  = VanNess        | first1 = J Mark            | authorlink1 = Mark VanNess
| last1  = VanNess        | first1 = J Mark            | authorlink1 = Mark VanNess
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| url    = http://online.liebertpub.com/doi/abs/10.1089/jwh.2009.1507
| url    = http://online.liebertpub.com/doi/abs/10.1089/jwh.2009.1507
}}</ref>
}}</ref>
<ref name="VanNess20140205video">{{citation
<ref name="VanNess20140205video">{{citation
| last1  = VanNess        | first1 = J Mark            | authorlink1 = Mark VanNess
| last1  = VanNess        | first1 = J Mark            | authorlink1 = Mark VanNess
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| url    = https://www.youtube.com/watch?v=q_cnva7zyKM
| url    = https://www.youtube.com/watch?v=q_cnva7zyKM
}}</ref>
}}</ref>
<ref name="Workwell20140317video">{{citation
<ref name="Workwell20140317video">{{citation
| author  = Workwell Foundation
| author  = Workwell Foundation
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| url    = http://youtu.be/xIDFahiCySw  
| url    = http://youtu.be/xIDFahiCySw  
}}</ref>
}}</ref>
<ref name="Workwell201404rae">{{citation
<ref name="Workwell201404rae">{{citation
| last1  = VanNess        | first1 = J Mark            | authorlink1 = Mark VanNess
| last1  = VanNess        | first1 = J Mark            | authorlink1 = Mark VanNess
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| url    = http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf
| url    = http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf
}}</ref>
}}</ref>
<ref name="Workwell201404wwodwo">{{citation
<ref name="Workwell201404wwodwo">{{citation
| last1  = Snell            | first1 = Christopher R      | authorlink1 = Christopher Snell
| last1  = Snell            | first1 = Christopher R      | authorlink1 = Christopher Snell
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| url    = http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf
| url    = http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf
}}</ref>
}}</ref>
<ref name="Workwell201512foar">{{citation
<ref name="Workwell201512foar">{{citation
| last1  = Stevens          | first1 = Staci R            | authorlink1 = Staci Stevens
| last1  = Stevens          | first1 = Staci R            | authorlink1 = Staci Stevens

Revision as of 13:23, August 23, 2019

Workwell Foundation was founded by Staci Stevens and is based in Ripon, California, US. It specialises in two-day cardiopulmonary exercise testing (CPET) for people with ME/CFS, Fibromyalgia and other fatiguing illnesses.

Notable people[edit | edit source]

Notable studies[edit | edit source]

Exercise recommendations for ME/CFS[edit | edit source]

Workwell Foundation recommends short periods (eg: 30 seconds) of analeptic exercise, with periods of rest which are 3-6 times longer than the period of exercise. The amount of exercise that the individual undertakes should be guided by VO2 max testing (or a safe heart rate threshold (generally 60% of maximum heart rate)), and the use of a heart rate monitor (both during exercise and to help with pacing) is recommended to ensure that the individual doesn't exceed their capacity. The Foundation also advises against aerobic exercise for people with ME/CFS.[6][7][8]

This approach to exercise differs from Graded Exercise Therapy (GET) in several important ways:

  • There is no claim that the exercise program will cure the condition. The aim is to increase functional strength and flexibility, and to improve quality of life[7]
  • This program is based on a deep understanding of Post-exertional malaise (PEM), and the importance of staying within the energy envelope in order to not trigger PEM[6]
  • There is a recognition that any approach to exercise with people with ME/CFS must be carefully tailored to the individual. There is no one-size fits all[7]
  • This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual[8]


2018, The Workwell Foundation release an open letter to healthcare providers, detailing their concerns about GET.

Funding[edit | edit source]

Talks and Interviews[edit | edit source]


Online presence[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. Snell, Christopher R; Stevens, Staci R; Davenport, Todd E; VanNess, J Mark (October 31, 2013), "Discriminative Validity of Metabolic and Workload Measurements for Identifying People With Chronic Fatigue Syndrome", Physical Therapy (APTA), 93 (11): 1484-1492, doi:10.2522/ptj.20110368, PMID 23813081
  2. Davenport, Todd E; Stevens, Staci R; Baroni, Katie; VanNess, J Mark; Snell, Christopher R (January 6, 2011), "Diagnostic accuracy of symptoms characterising chronic fatigue syndrome", Disabil Rehabil, 2011, 33 (19–20): 1768-75, doi:10.3109/09638288.2010.546936, PMID 21208154
  3. VanNess, J Mark; Stevens, Staci R; Bateman, Lucinda; Stiles, Travis L; Snell, Christopher R (January 4, 2010), "Post-exertional malaise in women with chronic fatigue syndrome", J Womens Health (Larchmt), 2010 Feb, 19 (2): 239-44, doi:10.1089/jwh.2009.1507, PMID 20095909
  4. Davenport, Todd E; Stevens, Staci R; VanNess, J Mark; Snell, Christopher R; Little, Tamara (March 31, 2010), "Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis", Physical Therapy (APTA), 90 (4): 602-614, doi:10.2522/ptj.20090047, PMID 20185614
  5. Snell, Christopher R; VanNess, J Mark; Strayer, David R; Stevens, Staci R (2005), "Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)" (PDF), In Vivo, 19: 387-390, PMID 15796202
  6. 6.0 6.1 6.2 VanNess, J Mark; Snell, Christopher R; Stevens, Staci R (April 2014), "A Realistic Approach to Exercise for CFS Patients" (PDF), The CFS Research Review
  7. 7.0 7.1 7.2 7.3 Snell, Christopher R; VanNess, J Mark; Stevens, Staci R (2004), "When Working Out Doesn't Work Out" (PDF), The CFIDS Chronicle
  8. 8.0 8.1 8.2 Stevens, Staci R; Davenport, Todd E (2010), "Functional Outcomes of Anaerobic Rehabilitation in a Patient with Chronic Fatigue Syndrome: case report with 1-year follow-up" (PDF), Bulletin of the IACFS/ME, 2010, 18 (3): 93-98
  9. Stevens, Staci R; ME/FM Society of British Columbia (Canada) (May 24, 2015), Video: Post-exertional malaise: How to do more with less, Vancouver, BC, Canada
  10. VanNess, J Mark (February 5, 2014), Video: A Realistic Approach to Exercise and Rehabilitation in ME/CFS, Bristol Watershed, UK
  11. Workwell Foundation (March 17, 2014), Video: Cardio-Pulmonary Exercise Test (CPET)
  12. Johnson, Cort (July 30, 2013), Busted! Exercise Study Finds Energy Production System is Broken in Chronic Fatigue Syndrome