User talk:Notjusttired

Renaming?

I renamed this page to use the US spelling, as per the Manual of Style. User:kmdenmark But should the category be renamed to British Organizations? This would be easier to browse from because the country make would be first and the name is shorter. The same issue is there for Universities. This would also fit with the Standard MEpedia country categories eg Category:British research initiatives. I've created a temporary MEpedia Page Outlines for both Universities and Organizations but would welcome input / Ch changes from others. notjusttired (talk) 18:14, 20 February 2019 (EST)

The changes are fine with me. I have no attachment to either way. I think "Organizations based in the United Kingdom" is a bit long and awkward but it's the category title that Wikipedia uses. (Wikipedia page for "Organizations based in the United Kingdom") Kmdenmark (talk) 19:03, 21 February 2019 (EST)

Old messages

Categories for UK politicians

Hi. Can you avoid removing politicians from the categories for political parties? This is crucial information for advocacy and not held elsewhere. Labour/Co-op members are considered members of both parties so need to be in more than one category. Keeping them as categories allows someone to look for UK adbocates, then use the subcategories to find just politicians for political parties or fod which committee they are on - one committee is investigating the PACE trial Parties cover both MPs and the unelected House of Lords.

Thank you for explaining the need for categories for politicians. I see your point and will not delete them anymore. Kmdenmark (talk) 14:29, 11 February 2019 (EST)

Thanks notjusttired (talk) 19:01, 11 February 2019 (EST)

Also please don't mark redirects for deletion - they are there to help from the correctly spelled page - searching the incorrect name means MEpedia then find the correct page name too. notjusttired (talk) 13:06, 7 February 2019 (EST)

Re: misspellings - I don't think misspellings should be honored with redirects. It is impossible to conceive of every misspelling that someone could use. I think the misspellings clutter the drop down menu in our search engine and make articles harder to find rather than easier. I support using redirects for alternative spellings, but not misspellings. If you can give me an example of one of the redirects you want to stay, it would help me understand your reasoning. I, also, eliminated some redirects where pages were not medically the same and to keep them as such would be inaccurate. A better way to link similar but different pages would be with links in the 'See also' section. (I don't know if you were the author of those redirects, but I wanted to explain why I eliminated those redirects, also.) My best, Kmdenmark (talk) 14:29, 11 February 2019 (EST)

It depends on the reason for the mispelling and how common it is. Eg if you delete the redirect for Intestinal permiability and type of into a search the correct page name won't come up - there's no results. Delete redirects for different spacing in page names and that search phrase may not work any more (eg The M.E. Society vs The ME Society). There's also a few unexpected UK vs US spellings (diarrhoea), and a few researchers with names that are commonly mispelled or have very similar spellings, which sometimes means their research is under several different names (AT Anbu vs Theo Anbu). When it comes to linking redirects have a link icon next to the page name, so it's easy to pick the right one - although perhaps there is a hidden property that can be used.

I'm fine with trying it your way. Let's watch how the redirects work and see if we get other feedback from users.

A couple specific points: Sometimes the search engine is extra slow or temporary not working; that may explain why the correct spelling for Intestinal permeability didn't come up when you originally searched. I tested it and it came up every time I searched this morning.

Re: British spelling. I wholeheartedly agree that redirects for British spellings should have redirects. The main title is to be in American spelling as per MEpedia manual of style. My best, Kmdenmark (talk) 12:01, 12 February 2019 (EST)

Thanks User:Kmdenmark - I've noticed performance problems but that has been loading pages rather than on searches. Maybe there's something else going on.

With making redirects for deletion, they need any pages using them to be updated first. The Contents page (which I can't edit) has a non-standard List of Quotes link, so deleting to use the correct capitalization breaks the link on the Contents page.

Messages I've seen

RE: Csn the Mike Beadsworth page be the main one, with Michael Beadsworth the redirect? Professionally he uses the name Mike far more.

Njt

notjusttired (talk) 13:58, 23 January 2019 (EST)

Sure, sounds good. Kmdenmark (talk) 17:19, 23 January 2019 (EST)

---

Just FYI: On the Pathogen page, you have left the following typo: "_Chia_201dorferi_paper.png"

I can't fix the typo since I'm not sure what it was meant to say...

Best, Pyrrhus

Pyrrhus (talk) 20:36, 10 February 2019 (EST)

Thank you Pyrrhus - I'm not sure what image it was supposed to be so I added an alternative and fixed the problem. notjusttired (talk) 09:07, 11 February 2019 (EST)

Priorities

• Image copyrights to organize
• Check copyrights on ICC and other files
• Better symptom photos e.g. malaise, levels of fatigue and disability, symptoms
• Infographics template - XMP CC info, large size, site name only in corner (font as wiki?)
• Infographic & poster creation
• Dark / large skin option? As per migraine websites

Brain fog tasks

• Articles that need an image or photo
• Add source and copyright to existing images

Tips

• Science Guidelines
• Using the source_code editor
• Power user/editor tips

Welcome to MEpedia!

• How to contribute
• If you need ideas of improvements to make to MEpedia, See suggestions
• MEpedia Contents

• To create new page, use one an outline: [MEpedia_article_outlines]

To see your contributions history, click Contributions in the top-right corner. To see recent contributions by others, click Recent Changes on the left. Not ready to edit pages, but want to suggest a change? On the page, just click Discussion, and write your suggestion there for others to see.|realName=Anonymous|name=Notjusttired}}

Random code

Chronic Fatigue Syndrome: Common Symptoms
Symptom				%
Fatigue: persistent or relapsing			100
Symptoms last over 6 months			100
Significant reduction in activities			100
Post-exertional malaise			96
Memory & concentration probs			98
Unrefreshing sleep			99
Headaches - new or different			100
Muscle pain (myalgia)			96
Sore throat			81
Joint pain (arthalgia)			86
Lymph node pain			81
Source: Jason et al.

‎

Common Symptoms in Chronic Fatigue Syndrome

Symptom	Mild to Severe Symptom %	Moderate to Severe Symptom %
Fatigue - persist or relapsing*	100	95
Significant reduction in activities*	100	100
Symptoms last over 6 months*	100	100
Post-exertional malaise	96	86
Memory & concentration probs	98	80
Unrefreshing sleep	99	92
Headaches - new or different	90	50
Muscle pain (myalgia)	96	73
Sore throat	81	31
Source: Jason et al.

Messages =

Notjustired: Severe and very severe ME Chronological order goes from earliest to latest. Citations are not placed under the study and instead, they are cited. If details like pages are necessary, they can be entered into the citation. --MEcfsFMS (talk) 09:51, 20 October 2018 (EDT)

Hi. Is that somewhere in the editorial standards? I don't remember reading it. I think it's important to add doi to citations of they aren't already in there. I will look at adding author links to the citations too. I created a talk page for the Severe ME image to discuss ideas. notjusttired (talk) 10:15, 20 October 2018 (EDT)

I put doi in and the PMID? But PMC causes an error and I don't think they have figured out why yet. Authors links don't get created and I thought they were in the "Reference" area.--MEcfsFMS (talk) 10:39, 20 October 2018 (EDT)

I see, if the citation automatically creates the citation, authors internal links are created. If they have to be manually input then it does not seem to create them.

That makes sense. I thought people had been spending ages manually adding them or copying and pasting the code for the most common ones. I normally automatically generate a citation, if it doesn't work I use another link or the doi, then replace the finished link with a full text link if necessary. Links from investinme and researchgate normally don't generate automatically so I use a PubMed link and overwrite the link only after the citation is generated.

Could you update the Manual of style with anything else that isn't in there? I'll go back sort the citations I changed. notjusttired (talk) 10:53, 20 October 2018 (EDT)

MOS - Dates

Hi Notjusttired:

Somewhere at some point early on, I remember the date format was to be US, Jun 10, 2016, and not 10 Jun 2016. I can't remember where or when I read this but a few of us started changing dates in UK format and going forward we used US format. I think Jen had posted about it but I'm not sure. Also, we were to change any UK spellings to the US spelling unless it was a quote.--MEcfsFMS (talk) 14:26, 31 October 2018 (EDT)

ty for letting me know, can you fix what I wrote on MOS - does the same apply to date in citations? Sometimes they cause an error so I presume I put them in as Jun, 28 2018 now?

Yes, that is how I write in the citations, but move the comma so it is Jun 28, 2018 or Jun 2018. I will change MOS.--MEcfsFMS (talk) 14:43, 31 October 2018 (EDT)

- Will do, do you know about fixing the citation template error at all? Dates generated in the form 2018-06 always give an error when you generate a citation from a link - I presume it's possible to fix this? notjusttired (talk) 14:49, 31 October 2018 (EDT)

Fibromyaliga Page

Please be careful where information is added on the Fibromyalgia page. The blood test information you added should go on the Fibromyalgia notable studies page as it is not an accepted blood test yet. I moved the EpicGenetics blood test under the subheading "Blood tests" under "United States" and put the study you had added on the Fibromyalgia discussion page. You can post this research on the Fibromyalgia notable studies page.

I created and edited most of these pages starting with the username DxCFS. I lost my PW when FF crashed and could not get it back using the PW retrieval as there is something wrong with MEpedia carrying out this task. I have had many usernames because I am really bad with remembering my usernames and usually just use a VPN now.--77.111.245.10 12:07, 25 March 2019 (EDT)

Also, the Fibromyalgia page became too long to use the "Edit" tab and the "Edit source" tab is not an option due to citations and that is why I broke Notable studies off. There is an area at the bottom of the Fibromyalgia page to post news articles about research as people usually want to read about research by media and bloggers and not the hard research.--77.111.245.10 12:13, 25 March 2019 (EDT)

PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

International Consensus Criteria (ICC) - A set of diagnostic criteria, based on the Canadian Consensus Criteria, that argued for the abandonment of the term "chronic fatigue syndrome" and encouraged the sole use of the term "myalgic encephalomyelitis".

post-exertional malaise (PEM) - A notable exacerbation of symptoms brought on by small physical or cognitive exertions. PEM may be referred to as a "crash" or "collapse" and can last for days or weeks. Symptoms can include cognitive impairments, muscle pain, trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, and others.