Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
United States
(section)
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit
Edit source
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
==Access to care== Although clinicians (see "Clinicians" heading below) are those known to be on the cutting edge of [[chronic fatigue syndrome|CFS]] care, they are still limited by the fact there are no approved drugs, therapies or reliable treatments. As of April of 2016, [[Ampligen]] is provided by only a few doctors and the FDA is limiting the number of patients receiving this treatment to 100.<ref>[http://beforeitsnews.com/press-releases/2013/02/hunger-striker-decries-fda-denial-of-only-medicine-for-chronic-fatigue-syndrome-day-8-2735262.html Hunger Striker Decries FDA Denial of Only Medicine for Chronic Fatigue Syndrome, Day 8 - Before It's News]</ref> A patient needs to live near or move to any doctor that provides the intravenous treatment. The cost is $75 per vial two times a week administered weekly. This does not include the intravenous cost. Costs ''may'' be covered under a recovery program previously known as "compassionate care". The price may go to $200 a vial.<ref>[http://www.meaction.net/2015/08/10/ampligen-price-increases-substantially-available-soon-in-europe/ Ampligen price more than doubles, available soon in Europe - MEAction By: Jen Brea]</ref> Ask your Primary, Rheumatologist or Neurologist to recommend a doctor who specializes in CFS or you can look online for the many lists by state for those doctors who will care for ME/CFS patients. Most will not treat with Ampligen or Rituximab but will treat sleep disorders, [[Orthostatic intolerance]], [[Postural orthostatic tachycardia syndrome|POTS]] and the many symptoms and co-morbids of ME/CFS.
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
This page is a member of a hidden category:
Category:Pages using DynamicPageList
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs