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UK ME/CFS Biobank
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{{stub}} {{NeedsImage}} The '''UK ME/CFS biobank''' or '''UKMEB''' is a disease-specific biobank that collects biological samples from [[ME/CFS]] patients in the [[UK]] for use in biomedical research into ME/CFS.<ref>{{Cite web|url=https://cureme.lshtm.ac.uk/the-uk-mecfs-biobank/ | title = The UK ME/CFS Biobank β CureMe | last = | first = | author-link =| date = |website=[[London School of Hygiene and Tropical Medicine]]|language=en|archive-url=|archive-date=|url-status=|access-date=2021-09-07}}</ref><ref name="PMC6288193" /> ==History == The UK ME/CFS Biobank was established in 2011 with joint grant from the UK charities [[ME Association]], [[ME Research UK]], and [[Action for ME]], plus private donors. The ME Association's Ramsay Research Fund provides ongoing funding, with MEB aiming be financially self-sustaining by 2021.<ref name="MEA-projects">{{Cite web|url=https://meassociation.org.uk/research/research-projects/ | title = Research Projects | last = | first = | author-link =| date = 2015-11-17 | website = [[The ME Association]]|language=en-GB|archive-url=|archive-date=|url-status=|access-date=2021-09-07}}</ref><ref name="PMC6288193" /> By 2018, the UK ME/CFS Biobank held samples from 600 donors classified into the following groups: * 350 patients with [[myalgic encephalomyelitis]] * Patients with [[multiple sclerosis]], acting as a comparison group * Healthy controls<ref name="PMC6288193">{{Cite journal | last =Lacerda | first=Eliana M. | author-link = Eliana Lacerda | last2 = Mudie | first2 = Kathleen|author-link2 = | last3 = Kingdon | first3=Caroline C. | author-link3 = Caroline Kingdon | last4 = Butterworth | first4 = Jack D. | authorlink4 = Jack Butterworth | last5 = O'Boyle | first5 = Shennae | authorlink5 = | last6 = Nacul | first6 = Luis | authorlink6 = Luis Nacul | date = 2018-12-04 | title = The UK ME/CFS Biobank: A Disease-Specific Biobank for Advancing Clinical Research Into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6288193/|journal=Frontiers in Neurology|volume=9|issue=|pages=|doi=10.3389/fneur.2018.01026|issn=1664-2295|pmc=6288193|pmid=30564186|access-date=|quote=|via=}}</ref> ==Severely ill patients == Patients with [[Severe and very severe ME|severe and very severe ME]] can receive home visits from UKMEB staff in order to donate samples to the biobank, but must live in England close to the biobank. ==UK Biobank== The UK ME/CFS Biobank should not be confused with the much larger '''UK Biobank''' or '''UKB''', which is not focused on ME/CFS and was established by the UK's [[Medical Research Council]] and the Wellcome Trust.<ref name="UKB">{{Cite web|url=https://www.ukbiobank.ac.uk/learn-more-about-uk-biobank/about-us | title = About us | last = | first = | author-link =| date = |website=UK Biobank|archive-url=|archive-date=|url-status=|access-date=2021-12-18}}</ref> ==Notable studies == ==Online presence== *Twitter *Facebook *[https://cureme.lshtm.ac.uk/the-uk-mecfs-biobank/ Website] *YouTube ==See also == * [[Luis Nacul]] * [[Karl Morten]] * [[CureME]] * [[London School of Hygiene and Tropical Medicine]] (LSHTM) ==Learn more == *[https://cureme.lshtm.ac.uk/the-uk-mecfs-biobank/ The UK ME/CFS Biobank] *[https://meassociation.org.uk/research/research-projects/uk-mecfs-biobank/ The ME Biobank] - The ME Association ==References == {{Reflist}} [[Category:Biobanks & patient registries]]
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