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Talk:Pediatric myalgic encephalomyelitis/chronic fatigue syndrome
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==People with pediatric ME/CFS == All the examples are very severely ill people who died or didn't recover, which is not typical. Examples of some who are less severely affected, and perhaps a graph on severity would make this page far less depressing (and more accurate) [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 14:43, 17 February 2019 (EST) :I can't find examples of people that onset as children that only have SEID, but if you can then reference them. Everyone we have examples of on MEpedia are very sick.--[[Special:Contributions/77.111.245.208|77.111.245.208]] 10:11, 25 February 2019 (EST) ==Not child friendly == MEpedia's main audience won't be children but it would be nice to have a bit more visual appeal on this page, as well as breaking up any large chunks of text for easy reading. Is it worth having a page on ME/CFS aimed at young people? I've noticed that the Tymes Trust has done useful leaflets, perhaps a one page primer? [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 14:43, 17 February 2019 (EST) :Start the Primer based on Tymes Trust information.--[[Special:Contributions/77.111.245.208|77.111.245.208]] 10:11, 25 February 2019 (EST) ==Adding videos and images == I think this would help readability and appeal to younger people reading. It may be worth setting up a YouTube Playlist on MEAction's YouTube channel about this. Some millions missing photos involving children or their shoes too. Is consent needed for children's photos if they are not identified by name? [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 14:43, 17 February 2019 (EST) :I have looked for images and can't locate any of children. There is one child on the PEM page that you might want to post.--[[Special:Contributions/77.111.245.208|77.111.245.208]] 10:11, 25 February 2019 (EST) ==Avoid referencing MEpedia itself== Please link to the relevant page instead of using a reference (eg for those with ME), or visit the page and find copy the reference used instead. MEpedia should try and avoid referencing itself, especially because it then becomes difficult to find where the original info came from if it's factual. [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 14:43, 17 February 2019 (EST) :I guess you should go to the page and get the reference and post it.--[[Special:Contributions/77.111.245.208|77.111.245.208]] 10:11, 25 February 2019 (EST) ==Rimes study == Not cited in page, is it [https://www.ncbi.nlm.nih.gov/pubmed/17332180/ Rimes 2007?] Issues with prevalence by Rimes described in Jason et al (2015) *2015, Issues in Estimating Rates of Pediatric Chronic Fatigue Syndrome and Myalgic Encephalomyelitis in a Community-based Sample<ref name ="Jason2015">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5336218/</ref > [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5336218/ (Full text)] "One problem with population based efforts (e.g., Rimes et al., 2007) is that the small number of identified patients with CFS resulted in very wide confidence intervals around the prevalence estimates. For example, in the Rimes et al. (2007) study of British general practitioners, the point prevalence of pediatric CFS was 0.5%, but the 95% confidence interval around this ranged from 0.01 to 0.9, which would result in estimates of anywhere between 10 and 900 per 100,000. Thus, the true prevalence rate is unclear. Also, physician samples tend to be biased, generally under- estimating the true prevalence rate." [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 06:46, 25 February 2019 (EST) :Post it.--[[Special:Contributions/77.111.245.208|77.111.245.208]] 10:11, 25 February 2019 (EST) ==References == <ref name="Shi, 2018">{{Cite journal | last1 = Shi | first1 = J. | authorlink1 = | last2 = Shen | first2 = J. | authorlink2 = | last3 = Xie | first3 = J. | authorlink3 = | last4 = Zhi | first4 = J. | authorlink4 = | last5 = Xu | first5 = Y. | authorlink5 = | title = Chronic fatigue syndrome in Chinese middle-school students | journal = Medicine | volume = 97 | issue = 4 | page = e9716 | date = 2018 | pmid = | doi = 10.1097/MD.0000000000009716 }}</ref> <ref name="Rowe, et al, 2017">{{Cite journal | last1 = Rowe | first1 = Peter C. | authorlink1 = Peter Rowe | last2 = Underhill | first2 = Rosemary A. | authorlink2 = Rosemary Underhill | last3 = Friedman | first3 = Kenneth J. | authorlink3 = Kenneth Friedman | last4 = Gurwitt | first4 = Alan | authorlink4 = Alan Gurwitt | last5 = Medow | first5 = Marvin S. | authorlink5 = Marvin Medow | last6 = Schwartz | first6 = Malcolm S. | authorlink6 = Malcolm Schwartz | last7 = Speight | first7 = Nigel | authorlink7 = Nigel Speight | last8 = Stewart | first8 = Julian M. | authorlink8 = Julian Stewart | last9 = Vallings | first9 = Rosamund | authorlink9 = Rosamund Vallings | last10 = Rowe | first10 = Katherine S. | authorlink10 = Katherine Rowe | title = Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer | journal = Frontiers in Pediatrics | volume = 5 | issue = 121 | page = | date = 2017 | pmid = | doi = 10.3389/fped.2017.00121 }}</ref> <ref name="Bakken, 2016">{{Cite journal | last1 = Bakken | first1 = IJ | authorlink1 = | last2 = Tveito | first2 = K | authorlink2 = | last3 = Aaberg | first3 = KM | authorlink3 = | last4 = Ghaderi | first4 = S | authorlink4 = | last5 = Gunnes | first5 = N | authorlink5 = | last6 = Trogstad | first6 = L | authorlink6 = | last7 = Magnus | first7 = P | authorlink7 = | last8 = Stoltenberg | first8 = C | authorlink8 = | last9 = Haberg | first9 = SE | authorlink9 = | title = Comorbidities treated in primary care in children with chronic fatigue syndrome/myalgic encephalomyelitis: A nationwide registry linkage study from Norway | journal = BMC Family Practice | volume = 17 | issue = 1 | page = 128 | date = 2016 | pmid = 27590471 | doi = 10.1186/s12875-016-0527-7 }}</ref> References not needed as citations were created through the wizard
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