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Susan Kreutzer
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[[File:Susan Kreutzer.png|right]] '''Susan Kreutzer''', is a former attorney who has lived with [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] (ME/CFS) since coming down with the [[Influenza|flu]] in 1991.<ref>http://www.sfgate.com/health/article/Findings-of-brain-anomalies-may-shed-light-on-5851844.php</ref> In 2013, she organized a petition drive with other [[ME/CFS]] activists to demand the [[U.S. Department of Health and Human Services]] (HHS) increase funding for research into [[ME/CFS]], to adopt the [[Canadian Consensus Criteria]] (CCC) to define the illness, to cancel the [[IOM]] ([[Institute of Medicine]]) contract to define ME/CFS, and to officially drop the misleading name β[[chronic fatigue syndrome]]β in favor of the term used by the [[World Health Organization]], [[myalgic encephalomyelitis]] (ME).<ref>http://www.prohealth.com/library/showarticle.cfm?libid=18533</ref> On Monday, December 9, 2013, Kreutzer and a small group of [[ME/CFS]] activists gathered in front of the San Francisco Federal Building to protest the [[IOM]] contract. Jeff Kreutzer, and [[Ed Burmeister]] displayed a seven foot by six foot banner with 3,000 signatures. A second petition also with nearly 3,000 signatures, started last summer by [[Mary Dimmock]] was on display, as well as a flag display which Susan arranged representing the home states and countries of those who had signed the petitions β all 50 states, the District of Columbia, Puerto Rico, and 34 countries spanning the globe.<ref>http://www.prohealth.com/library/showarticle.cfm?libid=18533</ref> The next day, Kreutzer went to Washington, DC, despite a snow storm, to present the petitions to the [[HHS]] Secretary. She also delivered the the copies of the petitions to several Comgressman.<ref>http://www.prohealth.com/library/showarticle.cfm?libid=18541</ref> ==Quotes== βFor people who are in bed, and who canβt get out here, we are going to find a way for you to have a voice.β βWe will speak our truth.β<ref>http://www.prohealth.com/library/showarticle.cfm?libid=18541</ref> ==CFSAC Testimony== *June 2012, [http://www.hhs.gov/advcomcfs/meetings/presentations/kreutzer_061312.pdf Public Testimony at CFSAC meeting] ==Online presence== *2013, [https://www.youtube.com/watch?v=F65I1DSXcFY Video of Susan Kreutzer delivering petition with nearly 6,000 signatures to HHS] *2013, [http://www.prohealth.com/library/showarticle.cfm?libid=18541 Article about Susan Kreutzer delivering her petition to HHS] *2014, [http://www.sfgate.com/health/article/Findings-of-brain-anomalies-may-shed-light-on-5851844.php San Francisco Gate newspaper features Kreutzer - Findings of brain anomalies may shed light on chronic fatigue] == References == {{Reflist}} [[Category:People with ME, CFS, and/or FMS]] [[Category:Advocates or allies]] [[Category:American advocates or allies]] [[Category:Attorneys]]
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