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Severe and very severe ME
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==News articles and interviews== * 2022, [https://eu.northjersey.com/story/news/health/2022/02/06/epstein-barr-chronic-fatigue-syndrome-montclair-nj/9291538002/ Epstein-Barr derails NJ man's life; he's pushing for better care: "Trapped in the dark: How chronic fatigue syndrome derailed a NJ musician's life"] * 2021, [https://eu.northjersey.com/story/news/health/2022/02/06/epstein-barr-chronic-fatigue-syndrome-montclair-nj/9291538002/ ME has left me bedbound for eight years – I feel forgotten by the world], North Jersey * 2020, [https://www.dailymail.co.uk/health/article-7886679/Three-patients-reveal-daily-struggle-crippling-condition.html Three ME patients reveal their daily struggle with the crippling condition], Daily Mail Online * 2020, [https://meassociation.org.uk/2020/08/how-it-feels-to-have-very-severe-m-e-by-ruth-braham/ How it feels to have Very Severe M.E.] by Ruth Braham, via The ME Association * 2020, [https://www.bbc.co.uk/news/uk-england-derbyshire-53648296 Kara Jane Spencer: Musicians help severely ill singer finish album], BBC News * 2019, [https://www.meaction.net/2019/07/24/uk-teenager-with-severe-me-threatened-with-forced-institutionalized/ UK Teenager with Severe ME Threatened with Forced Institutionalization], #MEAction Network” * 2019, [https://meassociation.org.uk/2019/08/severe-me-day-life-in-a-nursing-home-light-sensitivity-and-very-severe-m-e-by-eira-stuart-08-august-2019 Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E.] by Eira Stuart, via The ME Association * 2018, [https://www.dailymail.co.uk/news/article-6281435/Woman-33-living-dementia-ward-FIVE-years.html Woman, 33, has been living in a dementia ward for FIVE years after falling ill with crippling condition], Daily Mail<ref name="DailyMailOct2018">{{Cite news | url=https://www.dailymail.co.uk/news/article-6281435/Woman-33-living-dementia-ward-FIVE-years.html | title = Woman, 33, has been living on a dementia ward for FIVE years | last = Rolfe | first = Brooke | date = Oct 16, 2018|work=Mail Online|access-date=2018-10-17|archive-url=|archive-date=|url-status=}}</ref> * 2018, [https://www.mirror.co.uk/news/real-life-stories/chronic-fatigue-syndrome-left-bedbound-13091318 "I can barely walk and I'm bed-bound 23 hours a day - M.E. nearly killed me"] - positive story of partial recovery from very severe ME by [[Jessica Taylor-Bearman]], Mirror Online * 2017, [https://www.thescottishsun.co.uk/news/1445538/singer-amanda-hendrie-me-battle/ Bed-bound singer living in silence opens up about how ME stripped her of her voice just weeks after her mum died], The Scottish Sun * February 27, 2012, [https://meassociation.org.uk/2012/02/tragic-tale-of-woman-with-chronic-fatigue-syndrome-too-tired-to-eat-derby-telegraph-27-february-2012/ Tragic tale of woman with chronic fatigue syndrome 'too tired' to eat], Derby Telegraph * 2012, [https://www.theguardian.com/commentisfree/2012/mar/30/me-emily-collingridge-chronic-fatigue-syndrome ME is often dismissed – but sufferers like Emily Collingridge], The Guardian<ref name="Guardian30Mar2012">{{Cite news | url=https://www.theguardian.com/commentisfree/2012/mar/30/me-emily-collingridge-chronic-fatigue-syndrome | title = ME is often dismissed – but sufferers like Emily Collingridge are dying | first = Scott Jordan | last = Harris|publisher=The Guardian | date = Mar 30, 2012|access-date=2022-03-17}}</ref> * 2010, [https://www.dailymail.co.uk/health/article-1093016/Ive-seen-patients-paralysed-dying-Aids-victims-starving-children--Ive-seen-ill-Lynn.html I've seen patients paralysed, dying Aids victims, starving children... but I've never seen anyone as ill as Lynn], Daily Mail
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