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Severe and very severe ME
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==Notable studies== * 2021, Back to the Future? Immunoglobulin Therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome<ref name="Brownlie2021">{{Cite journal | title = Back to the Future? Immunoglobulin Therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | date = 2021-11-12|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8623195|journal=Healthcare|volume=9|issue=11|pages=1546 | last = Brownlie | first = Helen | authorlink = | last2 = Speight | first2 = Nigel | author-link2 = Nigel Speight|doi=10.3390/healthcare9111546|pmc=PMC8623195|pmid=34828592|access-date=|issn=2227-9032|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8623195 (Full text)] ::IV Immunoglobulin G may be effective for some with severe ME *2021, Life-Threatening Malnutrition in Very Severe ME/CFS<ref name="malnutrition2021">{{Cite journal | last = Baxter | first=Helen | authorlink = | last2 = Speight | first2 = Nigel | author-link2 = Nigel Speight | last3 = Weir | first3 = William | authorlink3 = William Weir| date = Apr 2021 | title = Life-Threatening Malnutrition in Very Severe ME/CFS|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8070213|journal=Healthcare|language=en|volume=9|issue=4 | pages = 459|doi=10.3390/healthcare9040459|pmc=PMC8070213|pmid=33919671|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8070213 (Full text)] *2021, Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome<ref name="Montoya2021">{{Cite journal | title = Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | date = 2021-10-06|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8544443|journal=Healthcare|volume=9|issue=10|pages=1331 | last = Montoya | first=Jose | authorlink = Jose Montoya | last2 = Dowell | first2 = Theresa | author-link2 = | last3 = Mooney | first3 = Amy | author-link3 = | last4 = Dimmock | first4 = Mary | author-link4 = Mary Dimmock | last5 = Chu | first5 = Lily | authorlink5 = Lily Chu|doi=10.3390/healthcare9101331|pmc=PMC8544443|pmid=34683011|access-date=|issn=2227-9032|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8544443 (Full text)] * 2021, Comprehensive Examination of Severely Ill ME/CFS Patients<ref name="Chang2021-Ex">{{Cite journal | last = Chang | first = Chia-Jung | authorlink = | last2 = Hung | first2 = Li-Yuan | authorlink2 = | last3 = Kogelnik | first3 = Andreas M. | authorlink3 = Andreas Kogelnik | last4 = Kaufman | first4 = David | author-link4 = David Kaufman | last5 = Aiyar | first5 = Raeka S. | authorlink5 = | last6 = Chu | first6 = Angela M. | authorlink6 = | last7 = Wilhelmy | first7 = Julie | last8 = Li | first8 = Peng | last9 = Tannenbaum | first9 = Linda | date = Oct 2021 | title = A Comprehensive Examination of Severely Ill ME/CFS Patients|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8535418|journal=Healthcare|language=en|volume=9|issue=10|pages=1290|doi=10.3390/healthcare9101290|pmc=PMC8535418|pmid=34682970|access-date=|quote=|via= | authorlink9 = Linda Tannenbaum | authorlink7 = Julie Wilhelmy}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8535418 (Full text)] * 2021, The Impact of Severe ME/CFS on Student Learning and K–12 Educational Limitations<ref name="Newton2021">{{Cite journal | last = Newton | first = Faith R. | author-link = | date = Jun 2021 | title = The Impact of Severe ME/CFS on Student Learning and K–12 Educational Limitations|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8225090|journal=Healthcare|language=en|volume=9|issue=6 | pages = 627|doi=10.3390/healthcare9060627|pmc=PMC8225090|pmid=34070286|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8225090 (Full text)] *2021, Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected<ref name="Fennell2021">{{Cite journal | title = Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected| date = 2021-05-09|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8150911|journal=Healthcare (Basel, Switzerland)|volume=9|issue=5|pages=553 | last = Fennell | first = Patricia A. | author-link = Patricia Fennell | last2 = Dorr | first2 = Nancy | author-link2 = | last3 = George | first3 = Shane S. | authorlink3 = |doi=10.3390/healthcare9050553|pmc=PMC8150911|pmid=34065069|access-date=|issn=2227-9032|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8150911 (Full text)] *2021, CFS patients remain severely disabled after specialist treatment with CBT in the UK<ref name="Vink2021-CBT">{{Cite journal | title = CFS patients remain severely disabled after specialist treatment with CBT in the UK| date = 2021-05-27|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8212546|journal=Journal of the Royal Society of Medicine|volume=114|issue=6|pages=284–284 | last = Vink | first = Mark | authorlink = Mark Vink | last2 = Vink-Niese | first2 = Alexandra | author-link2 = |doi=10.1177/01410768211013447|pmc=PMC8212546|pmid=34042529|access-date=|issn=0141-0768|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8212546 (Full text)] *2021, Systematic Review of Sleep Characteristics in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome<ref name="Maksoud2021">{{Cite journal | last = Maksoud | first = Rebekah | authorlink = | last2 = Eaton-Fitch | first2 = Natalie | authorlink2 = Natalie Eaton-Fitch | last3 = Matula | first3 = Michael | authorlink3 = | last4 = Cabanas | first4 = Hélène | authorlink4 = Hélène Cabanas | last5 = Staines | first5 = Donald | authorlink5 = Donald Staines | last6 = Marshall-Gradisnik | first6 = Sonya | authorlink6 = Sonya Marshall-Gradisnik| date = May 2021 | title = Systematic Review of Sleep Characteristics in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome|url=https://www.ncbi.nlm.nih.gov/pmc/articles/pmc8150292/|journal=Healthcare|language=en|volume=9|issue=5|pages=568|doi=10.3390/healthcare9050568|pmc=PMC8150292|pmid=34065013|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/pmc8150292/ (Full text)] *2021, Experiences of Living with Severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis<ref name="Strassheim2021">{{Cite journal | title = Experiences of Living with Severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis| date = 2021-02-05|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7914910/|journal=Healthcare|volume=9|issue=2|pages=168 | last = Strassheim | first = Victoria | authorlink = Victoria Strassheim | last2 = Newton | first2 = Julia L. | authorlink2 = Julia Newton | last3 = Collins | first3 = Tracy | author-link3 = |doi=10.3390/healthcare9020168|pmc=7914910|pmid=33562474|access-date=|issn=2227-9032|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7914910/ (Full text)] *2020, Two-Day Cardiopulmonary Exercise Testing in Females with a Severe Grade of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Comparison with Patients with Mild and Moderate Disease<ref name="Campen2020-mms">{{Cite journal | title = Two-Day Cardiopulmonary Exercise Testing in Females with a Severe Grade of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Comparison with Patients with Mild and Moderate Disease | date = 2020-06-30|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7551790|journal=Healthcare|volume=8|issue=3|pages=192 | last = van Campen | first = C (Linda) M.C. | authorlink = Linda van Campen | last2 = Rowe | first2 = Peter C. | authorlink2 = Peter Rowe | last3 = Visser | first3 = Frans C. | authorlink3 = Frans Visser|doi=10.3390/healthcare8030192|pmc=PMC7551790|pmid=32629923|access-date=|issn=2227-9032|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7551790 (Full text)] * 2020, Severe ME in children<ref name="Speight2020">{{Cite journal | last = Speight | first = Nigel | authorlink = Nigel Speight | date = Sep 2020 | title = Severe ME in Children|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7551866|journal=Healthcare|language=en|volume=8|issue=3|pages=211|doi=10.3390/healthcare8030211|pmc=PMC7551866|pmid=32674263|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7551866/ (Full text)] *2020, Reductions in Cerebral Blood Flow Can Be Provoked by Sitting in Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients<ref name="SittingvanCampen2020">{{Cite journal | last = van Campen | first = C. (Linda) MC | authorlink = Linda van Campen | last2 = Rowe | first2 = Peter C. | authorlink2 = Peter Rowe | last3 = Visser | first3 = Frans C. | authorlink3 = Frans Visser| date = 2020-10-12 | title = Reductions in Cerebral Blood Flow Can Be Provoked by Sitting in Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7712289|journal=Healthcare|language=en|volume=8|issue=4|pages=394|doi=10.3390/healthcare8040394|pmc=PMC7712289|pmid=33050553|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7712289 (Full text)] *2020, Cardiac Dimensions and Function are Not Altered among Females with the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome<ref name="Iversen2021">{{Cite journal | last = Iversen | first=Per Ole | authorlink = | last2 = Lueder | first2 = Thomas Gero von | authorlink2 = | last3 = Kardel | first3 = Kristin Reimers | authorlink3 = | last4 = Lien | first4 = Katarina | author-link4 = | date = Dec 2020 | title = Cardiac Dimensions and Function are Not Altered among Females with the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7712104|journal=Healthcare|language=en|volume=8|issue=4 | pages = 406|doi=10.3390/healthcare8040406|pmc=PMC7712104|pmid=33081294|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7712104 (Full text)] *2020, The Lonely, Isolating, and Alienating Implications of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome<ref name="Boulazreg2021">{{Cite journal | last = Boulazreg | first = Samir | authorlink = | last2 = Rokach | first2 = Ami | author-link2 = | date = Dec 2020 | title = The Lonely, Isolating, and Alienating Implications of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7711762|journal=Healthcare|language=en|volume=8|issue=4 | pages = 413|doi=10.3390/healthcare8040413|pmc=PMC7711762|pmid=33092097|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7711762 (Full text)] * 2020, Validation of the Severity of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Other Measures than History: Activity Bracelet, Cardiopulmonary Exercise Testing and a Validated Activity Questionnaire: SF-36<ref>{{Cite journal | last = van Campen | first = C. (Linda) M.C. | authorlink = Linda van Campen | last2 = Rowe | first2 = Peter C. | authorlink2 = Peter Rowe | last3 = Visser | first3 = Frans C. | authorlink3 = Frans Visser| date = Sep 2020 | title = Validation of the Severity of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Other Measures than History: Activity Bracelet, Cardiopulmonary Exercise Testing and a Validated Activity Questionnaire: SF-36|url=https://www.ncbi.nlm.nih.gov/pmc/articles/pmc7551321/|journal=Healthcare|language=en|volume=8|issue=3|pages=273|doi=10.3390/healthcare8030273|pmc=PMC7551321|pmid=32823979|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/pmc7551321/ (Full text)] *2021, Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS<ref name="Kingdon2020">{{Cite journal | last = Kingdon | first = Caroline | authorlink = Caroline Kingdon | last2 = Giotas | first2 = Dionysius | authorlink2 = Dionysius Giotas | last3 = Nacul | first3 = Luis | authorlink3 = Luis Nacul | last4 = Lacerda | first4 = Eliana | author-link4 = Eliana Lacerda | date = Sep 2020 | title = Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7551603|journal=Healthcare|language=en|volume=8|issue=3|pages=197|doi=10.3390/healthcare8030197|pmc=PMC7551603|pmid=32635535|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7551603 (Full text)] *2021, Homebound versus Homebound versus Bedridden Status among Those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome<ref name="Conroy2021">{{Cite journal | last = Conroy | first = Karl | authorlink = | last2 = Bhatia | first2 = Shaun | authorlink2 = | last3 = Islam | first3 = Mohammed | authorlink3 = | last4 = Jason | first4 = Leonard A. | authorlink4 = Leonard Jason | date = Feb 2021 | title = Homebound versus Bedridden Status among Those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7909520|journal=Healthcare|language=en|volume=9|issue=2|pages=106|doi=10.3390/healthcare9020106|pmc=PMC7909520|pmid=33498489|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7909520 (Full text)] *2021, Three Cases of Severe ME/CFS in Adults<ref name="Williams2021">{{Cite journal | last = Williams | first = Leah R. | author-link = | last2 = Isaacson-Barash | first2 = Carol | author-link2 = | date = Feb 2021 | title = Three Cases of Severe ME/CFS in Adults|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7920463|journal=Healthcare|language=en|volume=9|issue=2|pages=215|doi=10.3390/healthcare9020215|pmc=PMC7920463|pmid=33669438|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7920463 (Full text)] *2021, Extremely Severe ME/CFS—A Personal Account<ref name="Dafoe2021">{{Cite journal | last = Dafoe | first = Whitney | authorlink = Whitney Dafoe | date = May 2021 | title = Extremely Severe ME/CFS—A Personal Account|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8145314|journal=Healthcare|language=en|volume=9|issue=5|pages=504|doi=10.3390/healthcare9050504|pmc=PMC8145314|pmid=33925566|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8145314 (Full text)] * 2020, Cerebral Blood Flow Is Reduced in Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients During Mild Orthostatic Stress Testing: An Exploratory Study at 20 Degrees of Head-Up Tilt Testing<ref name="CBF2020">{{Cite journal | last = van Campen | first = C. (Linda) M.C. | authorlink = Linda van Campen | last2 = Rowe | first2 = Peter C. | authorlink2 = Peter Rowe | last3 = Visser | first3 = Frans C. | authorlink3 = Frans Visser| date = Jun 2020 | title = Cerebral Blood Flow Is Reduced in Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients During Mild Orthostatic Stress Testing: An Exploratory Study at 20 Degrees of Head-Up Tilt Testing | url =https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7349207|journal=Healthcare|language=en|volume=8|issue=2|pages=169|doi=10.3390/healthcare8020169|pmc=PMC7349207|pmid=32545797|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7349207 (Full text)] * 2020, [https://www.mdpi.com/journal/healthcare/special_issues/me_cfs_issue Special Issue: "ME/CFS: The Severely and Very Severely Affected" Healthcare]<ref name="specialissue2020">{{Cite web|url=https://www.mdpi.com/journal/healthcare/special_issues/me_cfs_issue | title = Special Issue: ME/CFS ― The Severely and Very Severely Affected | last = Healthcare | first = | author-link =| date = 2021 | website = Healthcare|language=en|archive-url=|archive-date=|url-status=|access-date=2021-02-19}}</ref> *2020, The effect of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) severity on cellular bioenergetic function<ref name="Tomas2020">{{Cite journal | last = Tomas | first = Cara | authorlink = Cara Tomas | first2 = Joanna L. | last2 = Elson | authorlink2 = Joanna Elson | last3 = Newton | first3 = Julia L. | authorlink3 = Julia Newton | last4 = Strassheim | first4 = Victoria | author-link4 = Victoria Strassheim | last5 = Walker | first5 = Mark | authorlink5 = Mark Walker| date = 2020-04-10 | title = The effect of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) severity on cellular bioenergetic function|url=https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0231136 |journal=PLoS ONE |language=en|volume=15|issue=4| pages = e0231136|doi=10.1371/journal.pone.0231136|issn=|quote=|via=}}</ref> - [https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0231136 (Full text)] * 2018, Improvement of severe ME/CFS symptoms following surgical treatment of cervical spinal stenosis<ref name="Rowe2018">{{Cite journal | last = Rowe | first = Peter C. | author-link = Peter Rowe | last2 = Marden | first2 = Colleen L. | authorlink2 = Colleen Marden | last3 = Heinlein | first3 = Scott | author-link3 = Scott Heinlein | last4 = Edwards | first4 = Charles C. | authorlink4 = Charles Edwards | authorlink5 = | date = 2018-02-02 | title = Improvement of severe myalgic encephalomyelitis/chronic fatigue syndrome symptoms following surgical treatment of cervical spinal stenosis|url=https://www.ncbi.nlm.nih.gov/pmc/articles/5796598|journal=Journal of Translational Medicine|language=en|volume=16|issue=1|pages=21|doi=10.1186/s12967-018-1397-7|issn=1479-5876|pmc=5796598|pmid=29391028|quote=|via=}}</ref> - [https://link.springer.com/article/10.1186/s12967-018-1397-7 (Full text)] * 2018, Defining the prevalence and symptom burden of those with self-reported severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a two-phase community pilot study in the North East of England.<ref name="northeast">{{Cite journal|url=https://bmjopen.bmj.com/content/bmjopen/8/9/e020775.full.pdf | title = Defining the prevalence and symptom burden of those with self-reported severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a two-phase community pilot study in the North East of England | last = Strassheim | first = Victoria Jane | last2 = Sunquist | first2 = Madison | date = 2018 | journal=BMJ open|volume=8|issue=9| pages = e020775|archive-url=|archive-date=|url-status=|access-date= | last3 = Jason | first3 = Leonard A | last4 = Newton | first4 = Julia|doi=10.1136/bmjopen-2017-020775|authorlink=Victoria Strassheim | authorlink2 = Madison Sunnquist | authorlink3 = Leonard Jason | authorlink4 = Julia Newton}}</ref> - [https://link.springer.com/article/10.1186/s12967-018-1397-7 (Full text)] * 2017, What is known about severe and very severe chronic fatigue syndrome: A scoping review<ref name="StrassheimLambson2017">{{Cite journal | last = Strassheim | first = Victoria | last2 = Lambson | first2 = Rebecca | last3 = Hackett | first3 = Katie L. | last4 = Newton | first4 = Julia L. | date = 2017-06-19 | title = What is known about severe and very severe chronic fatigue syndrome? A scoping review | url =https://www.tandfonline.com/doi/full/10.1080/21641846.2017.1333185|journal = Fatigue: Biomedicine, Health & Behavior |language=en|volume=5|issue=3|pages=167–183|doi=10.1080/21641846.2017.1333185|issn=2164-1846|quote= | author-link = Victoria Strassheim | authorlink2 = Rebecca Lambson | authorlink3 = Katie Hackett | author-link4 = Julia Newton | authorlink5 = |via=}}</ref> - [https://www.tandfonline.com/doi/full/10.1080/21641846.2017.1333185 (Full text)] * 2017, Understanding severely affected chronic fatigue syndrome: CFS the gravity of the situation<ref name="Strassheim2017a">{{Cite journal|url=https://www.tandfonline.com/doi/full/10.1080/10833196.2017.1327131|journal=Physical Therapy Reviews | title = Understanding severely affected chronic fatigue syndrome (CFS): the gravity of the situation | last = Strassheim | first = Victoria Jane | last2 = Lambson | first2 = Rebecca | date = 2017 | volume=22|issue=3-4|language=en|archive-url=|archive-date=|url-status=|access-date=2018-10-20 | last3 = Hackett | first3 = Katie | last4 = Newton | first4 = Julia L|pages=197-201|doi=10.1080/10833196.2017.1327131|authorlink=Victoria Strassheim | authorlink2 = Rebecca Lambson | authorlink3 = Katie Hackett | authorlink4 = Julia Newton}}</ref> - [https://www.tandfonline.com/doi/full/10.1080/10833196.2017.1327131 (Full text)] *2016, Housebound versus nonhousebound patients with myalgic encephalomyelitis and chronic fatigue syndrome<ref name="Pendergrast2016">{{Cite journal | last = Pendergrast | first=Tricia | authorlink = Tricia Pendergrast | last2 = Brown | first2 = Abigail | author-link2 = Abigail Brown | last3 = Sunnquist | first3 = Madison | authorlink3 = Madison Sunnquist | last4 = Jantke | first4 = Rachel | author-link4 = Rachel Jantke | last5 = Newton | first5 = Julia L | authorlink5 = Julia Newton | last6 = Strand | first6 = Elin Bolle | authorlink6 = Elin Strand | last7 = Jason | first7 = Leonard A | authorlink7 = Leonard Jason | date = Dec 2016 | title = Housebound versus nonhousebound patients with myalgic encephalomyelitis and chronic fatigue syndrome|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5464362/|journal=Chronic illness|volume=12|issue=4|pages=292–307|doi=10.1177/1742395316644770|issn=1742-3953|pmc=5464362|pmid=27127189|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5464362/ (Full text)] * 2016, Caring for People with Severe Myalgic Encephalomyelitis: An Interpretative Phenomenological Analysis of Parents' Experiences<ref name="Mihelicova2016">{{Cite journal | last = Mihelicova | first = Martina | authorlink = Martina Mihelicova | last2 = Siegel | first2 = Zachary | author-link2 = Zachary Siegel | last3 = Evans | first3 = Meredyth | authorlink3 = Meredyth Evans | last4 = Brown | first4 = Abigail | author-link4 = Abigail Brown | last5 = Jason | first5 = Leonard | authorlink5 = Leonard Jason | date = Dec 2016 | title = Caring for People with Severe Myalgic Encephalomyelitis: An Interpretative Phenomenological Analysis of Parents' Experiences|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4675701/|journal=Journal of health psychology|volume=21|issue=12|pages=2824–2837|doi=10.1177/1359105315587137|issn=1359-1053|pmc=4675701|pmid=26063209|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4675701/ (Full text)] *2014, What is the current NHS service provision for patients severely affected by chronic fatigue syndrome/myalgic encephalomyelitis? A national scoping exercise<ref name="McDermott2014">{{Cite journal | last = McDermott | first = Clare | authorlink = | last2 = Al Haddabi | first2 = Atheer | authorlink2 = | last3 = Akagi | first3 = Hiroko | authorlink3 = | last4 = Selby | first4 = Michelle | authorlink4 = | last5 = Cox | first5 = Diane | authorlink5 = Diane Cox | last6 = Lewith | first6 = George | authorlink6 = | date = 2014-06-19 | title = What is the current NHS service provision for patients severely affected by chronic fatigue syndrome/myalgic encephalomyelitis? 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