Science for ME: Difference between revisions

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
(Changed some wording to make less emotive, removed someone who is no longer a member and added new researcher interaction.)
(previously featured "members" were not, in fact, involved in running the website in any way)
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S4ME reported that its forum had reached 400 members on 18th November 2017,<ref>https://www.facebook.com/sci4me/posts/488450984874649</ref> and 500 members on December 17th 2017.<ref>https://www.s4me.info/index.php?threads/science-for-me-gains-its-500th-member.1557/#post-26245</ref>
S4ME reported that its forum had reached 400 members on 18th November 2017,<ref>https://www.facebook.com/sci4me/posts/488450984874649</ref> and 500 members on December 17th 2017.<ref>https://www.s4me.info/index.php?threads/science-for-me-gains-its-500th-member.1557/#post-26245</ref>


 
== Website Owners ==
== Notable Members ==
*Patricia A. Davis ("Trish")
*[[Jonathan Edwards]]
*Andrew Devereux-Cooke ("Andy")
*[[Tom Kindlon]]
*[[Simon McGrath]]
*[[Carolyn Wilshire]]


== Researcher Interaction ==
== Researcher Interaction ==

Revision as of 00:06, December 10, 2020

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Science for ME (S4ME) is a British website which states that it is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."[1]

S4ME reported that its forum had reached 400 members on 18th November 2017,[2] and 500 members on December 17th 2017.[3]

Website Owners[edit | edit source]

  • Patricia A. Davis ("Trish")
  • Andrew Devereux-Cooke ("Andy")

Researcher Interaction[edit | edit source]

Forum Member Advocacy Projects[edit | edit source]

  • Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire [8]
  • Open letter to NICE concerning the Guideline Committee for ME/CFS [9]
  • Briefing document - The PACE Trial Controversy: A Summary [10]

Publicly Visible Forums[edit | edit source]

Online presence[edit | edit source]

References[edit | edit source]