Science for ME: Difference between revisions

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[https://www.s4me.info/ Science for ME] (S4ME) is a British website that claims to be "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."<ref>https://www.facebook.com/pg/sci4me/about/</ref>
[https://www.s4me.info/ Science for ME] (S4ME) is a British website which states that it is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."<ref>https://www.facebook.com/pg/sci4me/about/</ref>


S4ME reported that its forum had reached 400 members on 18th November 2017,<ref>https://www.facebook.com/sci4me/posts/488450984874649</ref> and 500 members on December 17th 2017.<ref>https://www.s4me.info/index.php?threads/science-for-me-gains-its-500th-member.1557/#post-26245</ref>
S4ME reported that its forum had reached 400 members on 18th November 2017,<ref>https://www.facebook.com/sci4me/posts/488450984874649</ref> and 500 members on December 17th 2017.<ref>https://www.s4me.info/index.php?threads/science-for-me-gains-its-500th-member.1557/#post-26245</ref>
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*[[Jonathan Edwards]]
*[[Jonathan Edwards]]
*[[Tom Kindlon]]
*[[Tom Kindlon]]
*[[Carly Maryhew]] (Left the website under protest)
*[[Simon McGrath]]
*[[Simon McGrath]]
*[[Carolyn Wilshire]]
*[[Carolyn Wilshire]]


== Researcher Interaction ==
== Researcher Interaction ==
*Video Q&A with Dr [[Sadie Whittaker]] from [[Solve ME/CFS Initiative]], May 2019.<ref>https://youtu.be/eIMDoRvE2yA</ref>
*Written Q&A with Professor [[Chris Ponting]], June 2018.<ref>https://www.s4me.info/threads/science-for-me-written-q-a-with-prof-chris-ponting.4743/</ref>
*Written Q&A with Professor [[Chris Ponting]], June 2018.<ref>https://www.s4me.info/threads/science-for-me-written-q-a-with-prof-chris-ponting.4743/</ref>
*Science for ME video Q&A with Dr [[Jose Montoya]], January 2018 <ref>https://youtu.be/FarVtTHmKLc</ref>
*Science for ME video Q&A with Dr [[Jose Montoya]], January 2018 <ref>https://youtu.be/FarVtTHmKLc</ref>

Revision as of 13:46, May 10, 2019

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Science for ME (S4ME) is a British website which states that it is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."[1]

S4ME reported that its forum had reached 400 members on 18th November 2017,[2] and 500 members on December 17th 2017.[3]


Notable Members[edit | edit source]

Researcher Interaction[edit | edit source]

Forum Member Advocacy Projects[edit | edit source]

  • Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire [8]
  • Open letter to NICE concerning the Guideline Committee for ME/CFS [9]
  • Briefing document - The PACE Trial Controversy: A Summary [10]

Publicly Visible Forums[edit | edit source]

Online presence[edit | edit source]

References[edit | edit source]

  1. ↑ https://www.facebook.com/pg/sci4me/about/
  2. ↑ https://www.facebook.com/sci4me/posts/488450984874649
  3. ↑ https://www.s4me.info/index.php?threads/science-for-me-gains-its-500th-member.1557/#post-26245
  4. ↑ https://youtu.be/eIMDoRvE2yA
  5. ↑ https://www.s4me.info/threads/science-for-me-written-q-a-with-prof-chris-ponting.4743/
  6. ↑ https://youtu.be/FarVtTHmKLc
  7. ↑ https://www.s4me.info/index.php?threads/uk-me-cfs-biobank-ask-me-anything-thread-thursday-14th-december-2017-2-30-to-3-30pm-gmt-utc.1458/
  8. ↑ https://www.s4me.info/threads/s4me-submission-to-the-public-review-on-common-data-elements-for-me-cfs-problems-with-the-chalder-fatigue-questionnaire.2065/
  9. ↑ https://www.s4me.info/threads/grahams-finalised-letter-to-nice-january-2018.1885/
  10. ↑ https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/

PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.

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