Ronald Davis: Difference between revisions

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===ME/CFS Common Data Element (CDE) Project===
===ME/CFS Common Data Element (CDE) Project===
Member of the [[Biomarkers]] Working Group of the [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]] Common Data Element (CDE) Project sponsored by the [[National Institute of Neurological Disorders and Stroke]] and the [[Centers for Disease Control and Prevention]].<ref>{{Cite web|url=https://www.commondataelements.ninds.nih.gov/Myalgic%20Encephalomyelitis/Chronic%20Fatigue%20Syndrome#pane-138|title=Complete Myalgic Encephalomyelitis/Chronic Fatigue Syndrome CDE Roster | last=|first=|authorlink=|date=|website=NIH|archive-url=|archive-date=|url-status=|access-date=2019-10-11}}</ref>  
Member of the [[Biomarkers]] Working Group of the [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]] Common Data Element (CDE) Project sponsored by the [[National Institute of Neurological Disorders and Stroke]] and the [[Centers for Disease Control and Prevention]].<ref>{{Cite web|url=https://www.commondataelements.ninds.nih.gov/Myalgic%20Encephalomyelitis/Chronic%20Fatigue%20Syndrome#pane-138|title=Complete Myalgic Encephalomyelitis/Chronic Fatigue Syndrome CDE Roster | last= | first = |authorlink=|date=|website=NIH|archive-url=|archive-date=|url-status=|access-date=2019-10-11}}</ref>  
== Advocacy ==
== Advocacy ==
===Open Letters===
===Open Letters===
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'''2018'''
'''2018'''
* 3-5 May 2018, [[ME/CFS Canadian Collaborative Team Conference]] - Speech titles: ''The Future of ME/CFS Research in the Multiomic and Big Data Era'' and ''An Integrative, Molecular, Data and Technology-Driven Approach to ME/CFS''<ref>{{Cite web|url=https://fourwaves-sots.s3.amazonaws.com/static/media/uploads/5FFGG5h0kBRlJTgexdugaQ%3D%3D/2018/04/24/me_cfs_final-program.pdf|title=ME/CFS Canadian Collaborative Team Conference program|last=|first=|authorlink=|date=|website=|archive-url=|archive-date=|url-status=|access-date=2019-03-06}}</ref>
* 3-5 May 2018, [[ME/CFS Canadian Collaborative Team Conference]] - Speech titles: ''The Future of ME/CFS Research in the Multiomic and Big Data Era'' and ''An Integrative, Molecular, Data and Technology-Driven Approach to ME/CFS''<ref>{{Cite web|url=https://fourwaves-sots.s3.amazonaws.com/static/media/uploads/5FFGG5h0kBRlJTgexdugaQ%3D%3D/2018/04/24/me_cfs_final-program.pdf|title=ME/CFS Canadian Collaborative Team Conference program|last= | first = |authorlink=|date=|website=|archive-url=|archive-date=|url-status=|access-date=2019-03-06}}</ref>
* 3 Jun 2018, Speaker at the 13th [[Invest in ME International ME Conference|Invest in ME Conference]] 2018; Speech title: ''Establishing new mechanistic and diagnostic paradigms for ME/CFS''<ref>{{Cite web|url=http://www.investinme.org/IIMEC13.shtml|title=Invest in ME Research - IIMEC13 International ME Conference 2018 | website = [[Invest in ME Research]]|access-date=2020-02-26}}</ref> ''-'' [https://www.youtube.com/watch?v=OjcGZ_qyAKw (Video)]
* 3 Jun 2018, Speaker at the 13th [[Invest in ME International ME Conference|Invest in ME Conference]] 2018; Speech title: ''Establishing new mechanistic and diagnostic paradigms for ME/CFS''<ref>{{Cite web|url=http://www.investinme.org/IIMEC13.shtml|title=Invest in ME Research - IIMEC13 International ME Conference 2018 | website = [[Invest in ME Research]]|access-date=2020-02-26}}</ref> ''-'' [https://www.youtube.com/watch?v=OjcGZ_qyAKw (Video)]


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*[https://en.wikipedia.org/wiki/Ronald_W._Davis Wikipedia - Ronald Davis]
*[https://en.wikipedia.org/wiki/Ronald_W._Davis Wikipedia - Ronald Davis]
*2016, [https://www.youtube.com/watch?v=Tc0tf-Hb_wE&feature=youtu.be Happy 75th Birthday to Scientist Ronald W. Davis, PhD]<ref>{{Cite web|url=https://www.youtube.com/watch?v=Tc0tf-Hb_wE&feature=youtu.be|title=Happy 75th Birthday to Scientist Ronald W. Davis, PhD|last=Davis | first = Ronald|date=Jul 12, 2016 | website = YouTube|publisher=Open Medicine Foundation - OMF|archive-url=|archive-date=|url-status=|access-date=}}</ref>
*2016, [https://www.youtube.com/watch?v=Tc0tf-Hb_wE&feature=youtu.be Happy 75th Birthday to Scientist Ronald W. Davis, PhD]<ref>{{Cite web|url=https://www.youtube.com/watch?v=Tc0tf-Hb_wE&feature=youtu.be|title=Happy 75th Birthday to Scientist Ronald W. Davis, PhD|last=Davis | first = Ronald|date=Jul 12, 2016 | website = YouTube|publisher=Open Medicine Foundation - OMF|archive-url=|archive-date=|url-status=|access-date=}}</ref>
*2016, [http://www.stanforddaily.com/2016/01/05/tackling-chronic-fatigue-syndrome/ Tackling chronic fatigue syndrome]<ref>{{Cite news|url=https://www.stanforddaily.com/2016/01/05/tackling-chronic-fatigue-syndrome/|title=Tackling Chronic Fatigue Syndrome|last=Gu|first=Katie | date = 2016-01-04|work=The Stanford Daily|access-date=2018-09-17|archive-url=|archive-date=|url-status=|language=en-US}}</ref>
*2016, [http://www.stanforddaily.com/2016/01/05/tackling-chronic-fatigue-syndrome/ Tackling chronic fatigue syndrome]<ref>{{Cite news|url=https://www.stanforddaily.com/2016/01/05/tackling-chronic-fatigue-syndrome/|title=Tackling Chronic Fatigue Syndrome|last=Gu | first = Katie | date = 2016-01-04|work=The Stanford Daily|access-date=2018-09-17|archive-url=|archive-date=|url-status=|language=en-US}}</ref>
*2016, [http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html The puzzle solver: A researcher changes course to help his son]<ref>{{Cite web|url=http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html|title=The puzzle solver | last=White | first = Tracie | date = |website=Stanford Medicine|language=en|archive-url=|archive-date=|url-status=|access-date=2018-09-17}}</ref>
*2016, [http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html The puzzle solver: A researcher changes course to help his son]<ref>{{Cite web|url=http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html|title=The puzzle solver | last=White | first = Tracie | date = |website=Stanford Medicine|language=en|archive-url=|archive-date=|url-status=|access-date=2018-09-17}}</ref>



Revision as of 19:50, November 29, 2022

RonaldDavis.jpeg

Ronald Wayne Davis, PhD., or Ron Davis, is a Professor of Biochemistry & Genetics and the Director of the Stanford Genome Technology Center at Stanford University. In 1983, he was bestowed the honor of being elected a member of the National Academy of Sciences.[1]

Ron Davis' son, Whitney Dafoe, is severely ill with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Professor Davis leads the End ME/CFS Project with the Open Medicine Foundation whose first project was the ME/CFS Severely Ill, Big Data Study.[2]

Committees and boards[edit | edit source]

Open Medicine Foundation[edit | edit source]

Director of the Scientific Advisory Board at Open Medicine Foundation, which is committed to research for ME/CFS and related chronic complex diseases.[3]

Institute of Medicine report[edit | edit source]

Dr. Davis was one of the experts on the "Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" that was convened as per US government request for the 2015 Institute of Medicine.[4] The Institute of Medicine has since changed its name to the National Academy of Medicine.[5]

ME/CFS Common Data Element (CDE) Project[edit | edit source]

Member of the Biomarkers Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the National Institute of Neurological Disorders and Stroke and the Centers for Disease Control and Prevention.[6]

Advocacy[edit | edit source]

Open Letters[edit | edit source]

Millions Missing protest[edit | edit source]

Dr. Ron Davis and his wife, Dr. Janet Dafoe, protested with #MillionsMissing at the San Francisco satellite protest on May 25, 2016.[11] Dr. Davis gave a speech about the challenges ME patients face, and his hopes for the future of ME research.[12]

ME/CFS research summary[edit | edit source]

As director of the Scientific Advisory Board at Open Medicine Foundation, a charity he founded to research ME/CFS and related chronic complex diseases, Ron Davis has led a number of high profile medical research projects for ME/CFS.[3]

  • Apr 2019,  A nanoelectronics-blood-based diagnostic biomarker for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)[13] - (Full text)
  • Feb 2019, Red blood cell deformability is diminished in patients with Chronic Fatigue Syndrome[14] - (Full text)
  • Nov 2018, Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome[15]
  • June 2018, Dr. Davis and the Stanford Genome Center received a grant award for the research study 'Molecular and Single-cell Immunology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome' "to investigate the immunological basis of ME/CFS using cutting-edge technologies to understand the role of infection and autoimmunity in the behavior of single immune cells from patients – offering precise insights into how this complex illness originates and persists that may lead to new strategies for treatment."[16] This is a five-year study that will receive $745,000 a year.[17]

Notable studies[edit | edit source]

Talks and interviews[edit | edit source]

2016

2017

YouTube video
Transcript
Mendelspod podcast
Transcript

2018

2019

Book[edit | edit source]

Alternative title: Waiting For Superman: One Family's Struggle to Survive - and Cure - Chronic Fatigue Syndrome

Online presence[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. http://www.nasonline.org, National Academy of Sciences -. "Ronald Davis". nasonline.org. Retrieved August 16, 2018.
  2. "End ME/CFS Project | Open Medicine Foundation". Open Medicine Foundation. Retrieved August 16, 2018.
  3. 3.0 3.1 "Scientific Advisory Board | Open Medicine Foundation". Open Medicine Foundation. Retrieved August 16, 2018.
  4. Syndrome, Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue; Populations, Board on the Health of Select; Medicine, Institute of (February 10, 2015). Biographical Sketches of Committee Members, Consultants, and Staff. National Academies Press (US).
  5. "Home - National Academy of Medicine". National Academy of Medicine. Retrieved August 16, 2018.
  6. "Complete Myalgic Encephalomyelitis/Chronic Fatigue Syndrome CDE Roster". NIH. Retrieved October 11, 2019.
  7. "An open letter to Dr. Richard Horton and The Lancet". Virology blog. Retrieved August 18, 2018.
  8. "An open letter to The Lancet, again". Virology blog. Retrieved August 18, 2018.
  9. "Trial By Error: An Open Letter to The Lancet, Two Years On". Virology blog. Retrieved August 18, 2018.
  10. "An open letter to Psychological Medicine about "recovery" and the PACE trial". Virology blog. Retrieved August 18, 2018.
  11. "#MillionsMissing - #MillionsMissing". millionsmissing.meaction.net. Retrieved August 16, 2018.
  12. "Speeches from the Front Lines of #MillionsMissing: Ron Davis | #MEAction". The MEAction Network. Retrieved August 16, 2018.
  13. Esfandyarpour, R.; Kashi, A.; Nemat-Gorgani, M.; Wilhelmy, J.; Davis, R. W. (May 21, 2019). "A nanoelectronics-blood-based diagnostic biomarker for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)". Proceedings of the National Academy of Sciences. 116 (21): 10250–10257. doi:10.1073/pnas.1901274116. ISSN 0027-8424.
  14. Saha, Amit K.; Schmidt, Brendan R.; Wilhelmy, Julie; Nguyen, Vy; Abugherir, Abed; Do, Justin K.; Nemat-Gorgani, Mohsen; Davis, Ronald W.; Ramasubramanian, Anand K. (February 23, 2019). "Red blood cell deformability is diminished in patients with Chronic Fatigue Syndrome". Clinical Hemorheology and Microcirculation. 71 (1): 113–116. doi:10.3233/CH-180469.
  15. Saha, Amit K; Schmidt, Brendan R; Wilhelmy, Julie; Nguyen, Vy; Do, Justin; Suja, Vineeth C; Nemat-Gorgani, Mohsen; Ramasubramanian, Anand K; Davis, Ronald W (November 2018). "Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome". Blood (132): 4874. doi:10.1182/blood-2018-99-117260.
  16. Molecular and Single-cell Immunology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - NIH RePORT Project Number 1R01AI139550-01
  17. HealthRising: Ron Davis (Finally) Gets His Big Grant! by Cort Johnson via Open Medicine Foundation
  18. An Update on ME/CFS Research with Dr. Ronald W. Davis, retrieved September 12, 2019
  19. "End ME/CFS Severe Patient Study Turns to the Mitochondria". Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums. Retrieved September 12, 2019.
  20. Davis Family (May 21, 2016). "Short Story of a Family's Struggle with ME/CFS". YouTube.
  21. Davis, Ronald; Tannenbaum, Linda (December 13, 2016). "Getting Answers to ME/CFS Faster through Collaboration and Openness". YouTube. Open Medicine Foundation - OMF.
  22. Davis, Ronald (February 3, 2017). "Scientist Ron Davis Tells How We Are "Fast-Tracking" ME/CFS Research". YouTube. Open Medicine Foundation - OMF.
  23. Davis, Ronald (March 7, 2017). "Q&A on ME/CFS Research with Dr. Ron Davis". YouTube. Open Medicine Foundation - OMF.
  24. Davis, Ronald (June 20, 2017). "Ron Davis is optimistic at the 2017 Invest in ME Research Conference". YouTube. Open Medicine Foundation - OMF.
  25. "Invest in ME Research - International ME Conferences and Colloquiums Home Page". investinme.org. Retrieved September 12, 2019.
  26. Davis, Ronald (September 28, 2017). "Ronald Davis, PhD, Speaking on ME/CFS Research Approach". YouTube. Open Medicine Foundation - OMF.
  27. "ME/CFS Canadian Collaborative Team Conference program" (PDF). Retrieved March 6, 2019.
  28. "Invest in ME Research - IIMEC13 International ME Conference 2018". Invest in ME Research. Retrieved February 26, 2020.
  29. Davis, Ronald (September 17, 2018). "Dr. Ron Davis Presents ME/CFS Research at the 2018 IIMEC Conference". YouTube. Open Medicine Foundation - OMF.
  30. White, Tracie; Davis, Ronald W. (January 5, 2021). The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole His Son (1st ed.). New York: Hachette Books. ISBN 9781549177545.
  31. Davis, Ronald (July 12, 2016). "Happy 75th Birthday to Scientist Ronald W. Davis, PhD". YouTube. Open Medicine Foundation - OMF.
  32. Gu, Katie (January 4, 2016). "Tackling Chronic Fatigue Syndrome". The Stanford Daily. Retrieved September 17, 2018.
  33. White, Tracie. "The puzzle solver". Stanford Medicine. Retrieved September 17, 2018.