Robin Brown: Difference between revisions

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'''Dr. K.N. Hng''', also known as '''Robin Brown''', is a [[United Kingdom|British]] physician with [[ME/CFS]].  Dr. Hng authored the book, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]], which chronicles her experience as a Gastroenterology trainee who developed [[ME/CFS]].  The book has a twin, Doctor with M.E.: My journey with "Chronic Fatigue Syndrome".  Identical on the inside, the different name and cover may appeal to a different audience.
'''Dr. K.N. Hng''', also known as '''Robin Brown''', is a [[United Kingdom|British]] physician with [[ME/CFS]].  Dr. Hng authored the book, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]], which chronicles her experience as a Gastroenterology trainee who developed [[ME/CFS]].  The book has a twin, Doctor with M.E.: My journey with "Chronic Fatigue Syndrome".  Identical on the inside, the different name and cover may appeal to a different audience.


Dr. Hng's book is written with both the busy clinician and the brain fogged patient in mind.  Pocket sized and double spaced, it is an easy read.  Her personal story is followed up with much useful information.  In particular, educational resources are attractively presented and summarised.  This book serves beautifully as a starting point for clinicians learning about ME.  It is also a useful way for patients to easily explain their problems to friends and family who do not understand.  
Dr. Hng's book is written with both the busy clinician and the brain fogged patient in mind.  Pocket sized and double spaced, it is an easy read.  Her compelling personal story is followed up with much useful information.  In particular, educational resources are attractively presented and summarised.  This book serves as the ideal starting point for clinicians learning about ME.  It is also a useful way for patients to easily explain their problems to friends and family who do not understand.  


In addition to the book, Dr. Hng has produced many other resources which she regularly posts on Facebook.  These resources are continually updated, and many are also available in multiple languages.  Translation work is ongoing so watch this space!
In addition to the book, Dr. Hng has produced many other resources which she regularly posts on Facebook.  These resources are continually updated, and many are also available in multiple languages.  Translation work is ongoing so watch this space!
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'''Doctors’ knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom 2018'''
'''Audit study: Doctors’ knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom 2018'''


https://bit.ly/2yFAtY8      https://bit.ly/DocKnME2018-French
https://bit.ly/2yFAtY8      https://bit.ly/DocKnME2018-French

Revision as of 10:35, February 25, 2021

Robin Brown.jpg

Dr. K.N. Hng, also known as Robin Brown, is a British physician with ME/CFS. Dr. Hng authored the book, M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome, which chronicles her experience as a Gastroenterology trainee who developed ME/CFS. The book has a twin, Doctor with M.E.: My journey with "Chronic Fatigue Syndrome". Identical on the inside, the different name and cover may appeal to a different audience.

Dr. Hng's book is written with both the busy clinician and the brain fogged patient in mind. Pocket sized and double spaced, it is an easy read. Her compelling personal story is followed up with much useful information. In particular, educational resources are attractively presented and summarised. This book serves as the ideal starting point for clinicians learning about ME. It is also a useful way for patients to easily explain their problems to friends and family who do not understand.

In addition to the book, Dr. Hng has produced many other resources which she regularly posts on Facebook. These resources are continually updated, and many are also available in multiple languages. Translation work is ongoing so watch this space!

Books, Research and NICE guideline[edit | edit source]

M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome

Amazon UK Amazon US Amazon Canada Amazon Japan

Amazon Germany Amazon France Amazon Italy Amazon Spain

M.E. and Me book cover

Doctor with M.E.: My journey with "Chronic Fatigue Syndrome"

Amazon UK Amazon US Amazon Canada Amazon Japan

Amazon Germany Amazon France Amazon Italy Amazon Spain

Audit study: Doctors’ knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom 2018

https://bit.ly/2yFAtY8 https://bit.ly/DocKnME2018-French

NICE ME/CFS guideline consultation, group submission.

Signatories include Dr. Nina Muirhead, Dr. Nigel Speight, Dr. Jonathan Kerr, Prof. Malcolm Hooper, Dr. Sarah Myhill, Dr. Karl Morten, Natalie Boulton, Millions Missing France. Dec 2020. Dr. Hng Group Submission ME/CFS guideline

Petition to NICE: Stop harming ME/CFS patients - take CBT/GET out of NICE guidelines NOW.

Petition page at: http://chng.it/rY7BJX7c

Progress chronicled at: http://bit.ly/NICEstopCBTGETnow

Other Resources[edit | edit source]

Accompanying letter. Give with the book to your doctor.

Letter in English Letter in French Letter in Polish Letter in Italian

A free handout, "An Introduction to Myalgic Encephalomyelitis"

Handout in English Handout in French Handout in Polish Handout in Italian Handout in Russian

Photos: A picture says a thousand words!

Dr. Hng's Photos

Doctor with M.E. book cover

Protect yourself if you are being forced to undergo Graded Exercise Therapy, or CBT to correct your "erroneous illness beliefs":

http://bit.ly/ProtectYrself-1

Additional (third party) links for Long Covid patients who suffer Post-Exertional Malaise:

https://longcovid.physio/exercise NICE statement on exercise for Covid-19

Ill Health Retirement (IHR):

Case Example

Literature review on Work Rehabilitation and Medical Retirement by Mark Vink

Example symptoms list for IHR, insurance or social welfare applications. Modify for your own use. http://bit.ly/ExampleMEsymptoms

Find me at:[edit | edit source]

Facebook (Robin Brown)

Facebook group

Dr. Hng's Facebook Page

Twitter (group contribution by patient community)

See also[edit | edit source]

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

NICE guidelines Clinical guidelines used in the UK.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

cognitive behavioral therapy (CBT) - A type of psychotherapy geared toward modifying alleged unhealthy thinking, behaviors or illness beliefs. One of the treatment arms used in the controversial PACE trial.

graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

NICE guidelines Clinical guidelines used in the UK.

graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

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