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=== Review, remove or revise NICE guidelines === Patients and patient advocacy groups are not in favor of the NICE guidelines and on June 25th 2014 the [[Forward-ME]] Group met with Prof Mark Baker, Director of the Centre for Clinical Practice at the National Institute for Health and Clinical Excellence (NICE)]. Professor Baker that the [[ME/CFS]] Guideline did not meet patient needs nor those of NICE. He said the Guideline did not promote innovation and only a "passive" intervention such as CBT and Graded Exercise. "There was not much of an evidence base to go on, and in NICE it was evidence that drove guidance."<ref>[http://wames.org.uk/cms-english/2014/07/nice-admits-cfsme-guideline-does-not-meet-the-need/ On June 25th 2014 the Forward ME Group met with Prof Mark Baker, Director of the Centre for Clinical Practice at the National Institute for Health and Clinical Excellence (NICE).]</ref> [[Margaret Williams]] noted: "Research that directly impinges on the safety of the NICE recommendations for graded exercise (which was available to the GDG) was also excluded from consideration and / or ignored. This was a serious omission." The recommendation of GET should be incrementally increased to Aerobic exercise was in direct contradiction to ME/CFS experts. [[Paul Cheney]] explained “The most important thing about exercise is not to have them do aerobic exercise. I believe that even progressive aerobic exercise, especially in phase one and possibly in other phases, is counter-productive. If you have a defect in the mitochondrial function and you push the mitochondria by exercise, you kill the DNA” (Lecture given in Orlando, Florida, February 1999, at the International Congress of Bioenergetic Medicine).<ref>[http://www.meactionuk.org.uk/Comments_on_the_NICE_Guidelines.htm Comments on the NICE Guideline on “CFS/ME” Margaret Williams - 29th August 2007]</ref> [[Doctor Speedy]] weighs in with [http://niceguidelines.blogspot.com/2007/09/is-it-nice-guidelines-or-nonsense.html Is it NICE guidelines or NONSENSE guidelines?] and the [[ME Association]]'s Dr. [[Charles Shepherd]] pointed out during a meeting with Dr. Martin McShane of [[NHS]] England "that graded exercise therapy was causing harm to patients and that if a drug was causing harm, guidelines would be reviewed immediately."<ref>[http://www.meaction.net/2015/10/10/forward-me-turn-up-the-heat-on-the-mecfs-nice-guideline/ Push to change ME/CFS NICE guideline - MEAction - Oct 10, 2015]</ref>
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