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Naomi Whittingham
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[[File:Naomi Whittingham .png|thumb|Naomi is [[Severe and very severe ME|severely ill with ME]]]] '''Naomi Whittingham''' lives in the [[United Kingdom|UK]] with a [[Severe and very severe ME|severe]] case of [[myalgic encephalomyelitis]] (ME). She became ill [[Pediatric myalgic encephalomyelitis and chronic fatigue syndrome|at age 12]] with a routine [[Flu-like illness|flu-like virus]]<ref>{{Cite web|url=https://www.bbc.co.uk/radio/play/p02w3d9d | title = Naomi's story | last = Darvall | first = John | date = Jul 2, 2015 | website = bbc.co.uk|at=00:53|language=en-GB|archive-url=|archive-date=|url-status=|access-date=2018-10-15}}</ref> and never recovered. == Media coverage == '''Emily didn't 'only' have ME''' ''The Telegraph'' - By: Naomi Whittingham "Her life was claimed by an illness that, at its most severe, has been compared to Aids and terminal cancer, yet which is trivialised far too often. Right to the end, Emily had to fight against the belief that she 'only' had ME."<ref>{{Cite news | url=https://www.telegraph.co.uk/news/health/10137694/Emily-didnt-only-have-ME.html | title = Emily didn’t 'only’ have ME | last = Whittingham | first = Naomi | date = 2013-06-23|access-date=2018-10-15|language=en-GB|issn=0307-1235}}</ref> '''What it's like to live with severe ME''' ''The Telegraph'' - By: Naomi Whittingham "Ordinarily, illness is measured in days or weeks; and for the unfortunate months or even years. Then there are those of us for whom illness, pain and suffering is measured in decades. This is my twenty-fifth year of being ill: a quarter of a century spent mostly in housebound, bed-bound isolation."<ref>{{Cite news | url=https://www.telegraph.co.uk/women/womens-health/11018709/What-its-like-to-live-with-severe-ME.html | title = What it's like to live with severe ME | last = Whittingham | first = Naomi | date = 2014-08-08|access-date=2018-10-15|language=en-GB|issn=0307-1235}}</ref> '''Severe ME left me in a world of pain and darkness. 26 years on, why is it still so poorly understood?''' ''Open Democracy'' - By: Naomi Whittingham "We need to draw attention not only to the illness itself, but the political neglect that allows it to continue destroying lives."<ref>{{Cite web|url=https://www.opendemocracy.net/naomi-whittingham/severe-me-left-me-in-world-of-pain-and-darkness-26-years-on-why-is-it-still-poorly-understood | title = Severe ME left me in a world of pain and darkness. 26 years on, why is it still so poorly understood? | last = Whittingham | first = Naomi | date = 2016-12-19 | website = openDemocracy|language=en|archive-url=|archive-date=|url-status=|access-date=2018-10-15}}</ref> '''Naomi's story''' ''BBC Radio Bristol'' - Interview By: [https://www.facebook.com/johndarvalljurno John Darvall] "Naomi from Hanham was diagnosed with ME when she was just 12, a condition that for Naomi has controlled her life for the last 25 years. John Darvall has been to see Naomi and her family to find out the impact it's had."<ref>{{Cite web|url=https://www.bbc.co.uk/programmes/p02w3d9d | title = Naomi's story, Living with ME | last = Darvall | first = John | date = Jul 2, 2015 | website = BBC|language=en-GB|archive-url=|archive-date=|url-status=|access-date=2018-10-15|publisher=BBC Radio Bristol}}</ref> '''What M.E?''' ''John Darvall Blog'' "When I knocked on the door to interview Naomi I knew little about [[myalgic encephalomyelitis|ME]] other than its dodgy reputation and the questions about whether it was actually a real illness. When I left Naomi’s parents home where she lives, having spoken to her, her mother and brother for an hour I cried."<ref>{{Cite news | url=http://johndarvallblog.com/2015/07/11/what-m-e/ | title = What M.E? | last = Darvall | first = John | date = 2015-07-11|work=Not Mid Morning Matters|access-date=2018-10-15|archive-url=|archive-date=|url-status=|language=en-US}}</ref> == Documentary appearance == Naomi appeared in the documentary [[Voices from the Shadows]]. == Advocacy == Besides her own interviews and writing about her disease, Naomi supports her brother, [[Tom Whittingham]], with his Marathon fundraising for [[ME Research UK]].<ref>{{Cite news | url=http://www.meaction.net/2015/06/02/update-marathon-for-myalgic-encephalomyelitis/ | title = Update: Marathon for Myalgic Encephalomyelitis - #MEAction | date = 2015-06-02|work=#MEAction|access-date=2018-10-15|language=en-US}}</ref> She writes the blog [[A Life Hidden]] which is dedicated to those suffering from [[Severe and very severe ME|severe ME]]. == Online presence == *[https://www.facebook.com/naomi.whittingham?fref=ts Facebook] *[https://twitter.com/NaomiWhitt Twitter] *[https://alifehidden.com Website] ==See also== * [[A Life Hidden]] (Naomi's blog) * [[Myalgic encephalomyelitis]] * [[Pediatric myalgic encephalomyelitis and chronic fatigue syndrome]] * [[Severe and very severe ME]] *[[Tom Whittingham]] == References == {{Reflist}} [[Category:People with ME, CFS, and/or FMS]] [[Category:British famous people with ME, CFS, and/or FMS]]
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