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NICE guidelines
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===Criticism and controversy=== Charities and patient groups condemned the guidelines as "unfit for purpose". The submissions were from: ====[[Invest in ME]] Submission==== *[http://www.investinme.org/IIME%20Campaigning-NICE-Clinical-Guidelines.shtml IIME Response to draft guidelines November 2006] *[http://www.investinme.org/Documents/PDFdocuments/Invest%20in%20ME%20-%20CFSME%20Consultation%20Stakeholder%20Comments%20Form%20-%20Official%20IiME%20Response.pdf IIME Stakeholder Submission Response to full Guidelines] *[http://www.investinme.org/Documents/PDFdocuments/IiME%20Official%20Response%20Final%20to%20CG53%20Full%20Guidance.pdf IIME Respone to Final August 2007 NICE Guidelines CG53] ==== [[ME Association]] Submission==== *[http://www.meassociation.org.uk/2007/01/nice-guideline-mea-response/ MEA Submission on draft NICE guidelines] *[http://www.meassociation.org.uk/2007/09/nice-guideline-on-mecfs-mea-statement/ MEA August 2007 Comments] ====[[25 Percent ME Group]] Submission==== *[http://www.25megroup.org/Campaignging/ME%2520TOPICS/NICE/NICE%2520draft%2520Response%25202.10.06.doc 25% ME Group Response to NICE] ====[[Tymes Trust]] Submission==== Tymes Trust [http://www.tymestrust.org/txt/view200611nicesubmission.txt November 2006 Submission] ====[[Action for ME]] Submission==== ====Agreed statement from all ME Charities==== An agreed statement was also put out by all ME Charities.<ref>{{Cite web|url=http://www.25megroup.org/Campaignging/ME%20TOPICS/NICE/Consultation/NICE%20Guidelines%20Agreed%20Statement%20by%20Charities.doc | title = NICE Guidelines Agreed Statement by Charities|website=[[25 Percent ME Group]]|url-status=dead}}</ref> ====Criticism of the York Review by Professor Hooper==== The NICE guidelines were based on the evidence presented by the 2005 [[York Review]], produced by the [[Centre for Reviews and Dissemination]] (CRD). Prof. [[Malcolm Hooper]] submitted written criticism of the York Review to UK Parliament, stating that this supposedly independent review was strongly influenced by the [[Wessely school]]'s [[biopsychosocial model]]. Hooper & Reid published an analysis of the failings in the York Review. Professor Hooper also submitted written evidence to the House of Commons Select Committee on NICE and the CFS/ME guidelines.<ref name="hooperparliament">{{Cite web | title = Select Committee on Health Written Evidence {{!}} Evidence submitted by Professor Malcolm Hooper (NICE 07) | date = 2007 | url=https://publications.parliament.uk/pa/cm200607/cmselect/cmhealth/503/503we79.htm | website = Parliament UK}}</ref> ====MEActionUK Submission and Reports==== [[MEActionUK]] published their ''Concerns and Submission'' about the draft NICE guidelines in October 2006.<ref name="Concerns2006">{{Cite web | date = 2006 | url-status=dead|website=MEActionUK | title = Concerns re: NICE|url=http://www.meactionuk.org.uk/MW/2006/concerns-re-nice.pdf}}</ref> MEActionUK also published comment on the final draft of the August 2007 guidelines.<ref name="comments2007">{{Cite web | date = 2007 | url-status=dead|website=MEActionUK | title = Comments on the NICE guidelines|url=http://www.meactionuk.org.uk/MW/2007/comments-on-nice-guidelines.pdf}}</ref> The failure by NICE to fulfil its remit and the biomedical evidence that NICE ignored in its production is also investigated and reported on.<ref name="GETfacts">{{Cite web | date = 2008|url-status=dead|website=MEActionUK | title = Facts re: GET|url=http://www.meactionuk.org.uk/MW/2008/facts-re-get.pdf}}</ref><ref>{{Cite web | date = 2008|url-status=dead|website=MEActionUK | title = Immunological and Neuroendocrine evidence|url=http://www.meactionuk.org.uk/MW/2008/immunol-and-neuroendo.pdf}}</ref> MEAction UK have published a number of other reports into the criticism of the NICE guidelines on their website.
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