Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
MEpedia talk:Science guidelines
(section)
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Project page
Discussion
More
More
Page actions
Read
Edit source
New topic
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
===Re: Sources to avoid -- [[User:JaimeS|JaimeS]] ([[User talk:JaimeS|talk]]) 11:42, July 15, 2019 (EDT)=== : Hmm. : Rather than saying we can never use a doctor's website, I think it's more appropriate to say that PRIMARY sources are always, always preferable to SECONDARY sources. If a doctor cites a statistic and doesn't say where it's from, and you can't find the PRIMARY source, you shouldn't cite it. In fact, I'm surprised that this adjuration doesn't already exist somewhere. It's kind of vital to citation prioritization! The same goes for Wikipedia: it's a good place to hunt down PRIMARY sources. One wouldn't cite Wikipedia itself, and that should have been clear in the guidelines' original incarnation. : We can also clarify the citation of facts versus opinions or theories. For example, let's say someone wants to reference Myhill's theories. She hasn't published often, but she's influenced a great number of patients' ideas about the disease, and treated a great number of patients; and anyway, we'd be citing her work as theory, not fact. "Many researchers have found mitochondrial dysfunction" <-- cites Myhill's site [NOPE] "Some clinicians, such as Dr Myhill, have treated people with ME with supplements geared to augment mitochondrial dysfunction" <-- cites Myhill's site [YES] : I do agree we should talk about any changes on policy pages before implementing them. :::I should have discussed here first. My apologizes. Dr Myhill may be very popular but she has had complaints to the GMC and been forced to change her website to a degree as a result, not so much about ME but her anti-vaccine statements. What about changing the doctor one to:<br > "Information from a doctor's website must be verified for accuracy (read the original sources used), or presented as a minority opinion only, and not used for the introduction or symptom lists" :::Re: Types of sources. Primary / secondary / tiertary are confusing teens to many. Wikipedia relies on tertiary eg systematic reviews like Cochrane or encyclopedia. We have very few and they are typically biased in ME or CFS Research. We actually prefer primary (eg peer reviewed articles) and secondary (Consensus statements, guidelines, etc). I find many charity websites to be very accurate, if articles are referenced. I think it would be better to talk about '''verifiable sources''' and '''academic sources'''. Perhaps with unreferenced articles from doctors/physios/etc considered one of the lowest quality of sources, only to cited as Dr X claims / believes / views that ... :::I think it would be a positive to have an outright ban on using perhaps up to 5 extremely low quality websites that rank highly, including Wikipedia, but allow them under "learn more" or "articles and blogs" links since many explain patient experiences or different minority but valuable views. A few websites could be included due to being inaccessible in outside the country of origin - [[User:Pyrrhus]] has raised this before. :::Feedback would also be welcome on proposed changes to the [[Template_talk:Cleanup|Cleanup template]] including links to scientific guidelines and being able to pick a default message to add to. [[User:Notjusttired|notjusttired]] ([[User talk:Notjusttired|talk]]) 12:10, July 15, 2019 (EDT)
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs