MEpedia:Contents
 | This article needs cleanup to meet MEpedia's guidelines. The reason given is: Help us figure out how to organize content better (see discussion page) (November 2015) |
Welcome to MEpedia
We are co-creating a knowledge base on the history, science and medicine of ME and CFS. MEpedia.org is a project of #MEAction and the patient community.
Please Contribute[edit | edit source]
You can create pages, write content, add links/citations, fact-check, or even just fix typos. Get involved and help the patient community identify all of the best and most important resources for our disease and its research, treatment and history. Start now, read How To Contribute. Please also join our group of authors and editors.
A note on ME v. CFS[edit | edit source]
We have separate pages for Myalgic Encephalomyelitis, ME/CFS and Chronic Fatigue Syndrome as well as SEID. The convention is that the terminology used in an ME-pedia article should match the terminology used in the underlying source. Where there is a tension between the term used in the source and the definition (e.g., ME defined by the Oxford criteria or CFS defined by the Canadian Consensus Criteria), it may be useful for clarity to mention the definition used.
The Disease[edit | edit source]
Infectious agents: Babesia, Bartonella, Borna Disease Virus, Coxsackie A, Coxsackie B, cytomegalovirus, enterovirus, Epstein barr virus, H1N1, Herpesvirus, HHV-6, HHV-7, HSV-1, HSV-2, influenza, Parvovirus B-19, Q Fever, Ross River Virus
Triggers and risk factors: Viral onset Trauma Pregnancy Menstrual cycle Stress Vaccine Toxic exposure Candidiasis Mold Epidemiology
Signs and symptoms: Orthostatic intolerance Ataxia Cognitive dysfunction Postural orthostatic tachycardia Neurally mediated hypotension Sleep disturbance Fatigue Post-exertional malaise Nonepileptic seizure Seizure Migraine Muscle fatigability Food intolerance Optical dysfunction
Medical hypotheses: Methylation cycle hypothesis Amygdala hypothesis Hygiene hypothesis Viral onset hypothesis Microbiome hypothesis Fatty acid hypothesis Patricia Kane protocol Ken Lassesen's model Autoimmunity Hypothesis
Body systems: Nervous system HPA axis Brain Spinal cord Neuroinflammation Microglia Leaky brain Glutamate excitotoxicity Central sensitization Gastrointestinal system Microbiome Leaky gut Immune system Mucosal immune system B cell Natural killer cell Macrophage Cytokines IL-2 interferon IL-10 IL-1 IL-18 IL-17 Tumor necrosis factors Ribonuclease L Antibody Autoantibody Cardiovascular system Blood
Tests: Cardiopulmonary exercise test Two day exercise test Erythrocyte sedimentation rate C reactive protein Brain imaging MRI qEEG SPECT Exercise Tilt Table CellTrend Diagnostic Test
Citizen science: 23andMe UBiome American Gut Mendus Any Treatment Phoenix Rising
Biochemistry and cell biology: Methylation cycle Citric acid cycle Mitochondria D lactate Lactic acid Nitric oxide Glutathione glucocorticoid endocannabinoid Histamine Tyrosine Phenylalanine
Nutrients: Vitamin D Vitamin C Copper Folate B12 B6 B2 Deadlock quartet TMG Sam-e L-carnitine Zinc Magnesium
Neurotransmitters and hormones: Neurotransmitters Serotonin Acetylcholine Dopamine Norepinephrine Epinephrine Melatonin Histamine Oxytocin Vasopressin Glutamate Hormones Cortisol Prostaglandins glucocorticoid progesterone estrogen testosterone estriadol calicitriol calcidiol
Names & Definitions[edit | edit source]
Names: Myalgic Encephalomyelitis Chronic Fatigue Syndrome ME/CFS Systemic Exertion Intolerance Disease Chronic Fatigue Immune Deficiency Syndrome Chronic epstein barr Neuro-Inflammatory and Oxidative Fatigue
Related conditions: Chronic lyme disease Mold illness Biotoxin illness Environmental illness Multiple Chemical Sensitivity Gulf War Illness Mast cell activation disorder Mastocytosis Ehlers Danlos Syndrome Fibromyalgia Small intestine bacterial overgrowth Lactic acidosis Autoimmune disease Cancer Thyroid disease Non-Hodgkin's lymphoma Multiple Sclerosis Dysautonomia
Definitions: Definitions of ME and CFS Canadian Consensus Criteria International Consensus Criteria Oxford criteria Fukuda criteria Holmes criteria Ramsay definition London criteria Nightingale definition
Treatment[edit | edit source]
Supplements: Probiotics AHCC CoQ10 MitoQ PrescriptAssist Mutaflor GcMAF Colostrum Transfer factors Fish oil EPA DHA
Antivirals: Valgancyclovir Famciclovir Valaciclovir Acyclovir
Immunomodulators and immunostimulants: Ampligen Low dose naltrexone Equilibrant Intravenous immunoglobulin Staphylococcal vaccine Immunovir medicinal mushrooms
Anti-inflammatory drugs:
Other drug treatments: Rituximab Prednisone
Diets: Vegan diet Vegetarian diet Paleo diet Ketogenic diet GAPS diet Specific carbohydrate diet
Uncategorized interventions: Mold avoidance Fasting Chelation Fecal matter transplant Helminth therapy Pacing Energy envelope Dark chocolate Medical marijuana Hyperbaric oxygen Ozone Altitude Coffee enema Exercise Faecal bacteriotherapy
Clinical Doctors, USA: Lucinda Bateman Derek Enlander Nancy Klimas Courtney Craig Daniel Peterson Phillipe Bottello John Chia Jacob Teitelbaum
Clinical Doctors, UK: Sarah Myhill William Weir Nigel Speight Peter Behan Charles Shepherd Gabrielle Murphy Amolak Bansal
Clinical Doctors, Germany: Anna Dorothea Hoeck Carmen Scheibenbogen
Clinical Doctors, Belgium: Kenny de Meirleir
Clinical Doctors, South Africa: Cecile Jadin
Clinical Doctors, Sweden: Carl-Gerhard Gottfries
Research[edit | edit source]
Research initiatives USA: Open Medicine Foundation Chronic Fatigue Initiative Stanford ME/CFS Initiative Solve ME/CFS Microbe Discovery Project Bateman Horne Center Workwell Foundation Center for Infection & Immunity
Researchers USA: Ronald Davis Jarred Younger Alan Light Andreas Kogelnik Jose Montoya David Bell Mady Hornig Eric Schadt Ian Lipkin John Chia Rosemary Underhill Suzanne Vernon David Berg Nancy Klimas Dane Cook Staci Stevens Mark VanNess Christopher Snell Zaher Nahle Rich Van Konyenburg Judy Mikovits Paul Cheney
Research initiatives Europe: ME Research UK Cure ME Invest in ME UK CFS/ME Collaborative Invest in ME Conference Ramsay Research Fund European ME Research Group
Researchers UK: Melvin Ramsay Donald Acheson Gordon Parish Jonathan Kerr Amolak Bansal Julia Newton Elizabeth Dowsett Simon Carding James Mowbray John Richardson Luis Nacul Derek Pheby Jonathan Edwards Geraldine Cambridge
Researchers Australia: Elaine DeFreitas Sonya Marshall-Gradisnik Donald Staines Michael Maes
Researchers Germany: Carmen Scheibenbogen
Researchers Norway: Olav Mella Øystein Fluge
Researchers Canada: Byron Hyde
Psychological Paradigm[edit | edit source]
Psychological paradigm, mind-body approaches and related interventions: PACE trial graded exercise therapy cognitive behavioral therapy biopsychosocial deconditioning Mickel therapy Lightning process Gupta programme Psychoneuroimmunology Meditation Bodily distress syndrome Functional somatic syndrome Psychosomatic illness Neurasthenia Medically unexplained symptoms
Psychological paradigm proponents: Simon Wessely Michael Sharpe Peter White Trudie Chalder Rona Moss-Morris Jessica Bavinton Esther Crawley
Psychological paradigm critics: James Coyne Keith Laws David Tuller Ronald Davis Bruce Levin Arthur Reingold Jonathan Edwards Leonard Jason Ellen Goudsmit
Politics, Government & Insurance[edit | edit source]
United States: Institute of Medicine report Pathways to prevention report Trans-NIH Working Group National Institutes of Health Centers for Disease Control & Prevention UNUM
United Kingdom: National Institute for Health and Care Excellence National Health Service Science Media Centre UNUM
ME Around the World Belgium France Germany Spain Italy United Kingdom Ireland Norway Denmark Sweden Finland United States Canada
History[edit | edit source]
Outbreaks: List of outbreaks Incline village Lyndonville Akureryi Los Angeles Royal Free Hospital Dalston Adelaide
Deceased patients: Sophia Mirza Vanessa Li Lynn Gilderdale Emily Collingridge Chardale Dotson Irvine
Patient Advocacy[edit | edit source]
Patient Groups: #MEAction ME Association Tymes Trust Irish ME/CFS Association ME Advocacy Change For M.E. Change For Us MEActionUK
Notable patients: Karina Hansen Joanne Sophia Mirza Lynn Gilderdale Emily Collingridge Whitney Dafoe Tom Kindlon Graham McPhee Jennie Spotila Laura Hillenbrand Martine McCutcheon Naomi Whittingham Jane Colby Countess of Mar Brian Vastag Jennifer Brea Ryan Prior Hillary Johnson Julie Rehmeyer Leonard Jason Charles Shepherd Nasim Marie Jafry Ken Lassesen Cort Johnson Valerie Eliot Smith Doctor Speedy Tanya Marlow Deborah Waroff Beth Mazur Catherine Hale Stuart Murdoch Mary Schweitzer Toni Bernhard Frank Twisk
Notable healthy advocates: Angela Kennedy Mary Dimmock Greg Crowhurst Malcolm Hooper Nicole Castillo Llewellyn King
Notable Quotes: Quotes
Journals, TV, Articles, Books, Film, Interviews, Blogs, Discussion Forums[edit | edit source]
Journals: The Lancet Lancet Psychiatry The BMJ
TV: Sick and Tired Toxic Tiredness
Articles: List of news articles on ME and CFS
Books: Plague The State of Me Love and Fatigue in America Osler's Web America's Biggest Cover-Up Authors of our own misfortune Reviving the Broken Marionette
Film: What About ME I Remember Me Forgotten Plague Canary in a Coal Mine The Last Great Medical Cover Up Invisible Illness - Stories of Chronic Fatigue Syndrome Voices From the Shadows
Interviews: ME/CFS Alert Science for Patients Unbroken' author's personal story of courage and resilience
Blogs: Health Rising Occupy CFS MEAction ME Advocacy Courtney Craig Cell Fatigue CFS Patient Advocate Constant F****** S*** ME Association Onward Through the Fog Nice Guidelines Valerie Eliot Smith Blog CFS Remission About.com Health FMS/ME/CFS
Discussion Forums: Phoenix Rising
Open Letters[edit | edit source]
List of open letters from researchers List of open letters from patient advocates and advocacy organizations
