MEpedia:Contents: Difference between revisions
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'''Psychological paradigm, mind-body approaches and related interventions:''' [[FINE trial]], [[PACE trial]], [[Graded exercise therapy|Graded Exercise Therapy]], [[cognitive behavioral therapy|Cognitive Behavioral Therapy]], [[biopsychosocial]], [[Deconditioning]], [[Mickel therapy]], [[Lightning process]], [[Psychoneuroimmunology]], [[Meditation]], [[Bodily distress syndrome]], [[Functional somatic syndrome]], [[Psychosomatic illness]], [[Neurasthenia]], [[Medically unexplained symptoms]] | '''Psychological paradigm, mind-body approaches and related interventions:''' [[FINE trial]], [[PACE trial]], [[Graded exercise therapy|Graded Exercise Therapy]], [[cognitive behavioral therapy|Cognitive Behavioral Therapy]], [[biopsychosocial]], [[Deconditioning]], [[Mickel therapy]], [[Lightning process]], [[Gupta programme]], [[Psychoneuroimmunology]], [[Meditation]], [[Bodily distress syndrome]], [[Functional somatic syndrome]], [[Psychosomatic illness]], [[Neurasthenia]], [[Medically unexplained symptoms]] | ||
'''Psychological paradigm proponents:''' [[Simon Wessely]], [[Michael Sharpe]], [[Peter White]], [[Trudie Chalder]], [[Rona Moss-Morris]], [[Jessica Bavinton]], [[Esther Crawley]], [[Anthony Cleare]], [[Ben Goldacre]], [[Peter Manu]], [[Brian Walitt]] | '''Psychological paradigm proponents:''' [[Simon Wessely]], [[Michael Sharpe]], [[Peter White]], [[Trudie Chalder]], [[Rona Moss-Morris]], [[Jessica Bavinton]], [[Esther Crawley]], [[Anthony Cleare]], [[Ben Goldacre]], [[Peter Manu]], [[Brian Walitt]] |
Revision as of 06:38, March 18, 2016
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Five minute tasks[edit | edit source]
Only have a five minute spoon to give? Here is a list of small tasks you can help us with in roughly one to ten minutes of time.
Priority pages for expansion[edit | edit source]
Science: Methylation cycle hypothesis, Citric acid cycle, Mitochondria, Exercise, Ampligen, Natural killer cell, Central nervous system, Nitric oxide hypothesis, Brain, Brain imaging
History and politics:
A note on ME v. CFS[edit | edit source]
We have separate pages for Myalgic Encephalomyelitis, ME/CFS and Chronic Fatigue Syndrome as well as SEID. The convention is that the terminology used in an ME-pedia article should match the terminology used in the underlying source. Where there is a tension between the term used in the source and the definition (e.g., ME defined by the Oxford criteria or CFS defined by the Canadian Consensus Criteria), it may be useful for clarity to mention the definition used.
The Disease[edit | edit source]
Infectious agents: Borrelia, Babesia, Bartonella, Borna Disease Virus, Chlamydia pneumoniae, Coxsackie A, Coxsackie B, cytomegalovirus, Ebola virus, echovirus, enterovirus, Epstein-Barr virus, H1N1, Herpesvirus, HHV-6, HHV-7, HSV-1, HSV-2, influenza, parvovirus B19, Q Fever, Ross River Virus, Chlamydia Pneumonia, Mycoplasma Pneumonia
Triggers and risk factors: Blood donation, Candidiasis, Causes of death, Epidemiology, Genetics, Menstrual cycle, Mold, Pediatric, Pregnancy, Stress, Toxic exposure, Trauma, Vaccine, Viral onset
Signs and symptoms: Ataxia, Cognitive dysfunction, Fatigue, Food intolerance, Irritable bowel syndrome, Migraine, Muscle fatigability, Neurally mediated hypotension, Nonepileptic seizure, Optical dysfunction, Orthostatic intolerance, Post-exertional malaise, Postural orthostatic tachycardia, Seizure, Sleep disturbance
Medical hypotheses: Amygdala hypothesis, Autoimmune hypothesis, Fatty acid hypothesis, Hygiene hypothesis, Infectious disease hypothesis, Ken Lassesen's model, Methylation cycle hypothesis, Microbiome hypothesis, Mold hypothesis, Patricia Kane protocol, Vagus nerve hypothesis, Viral onset hypothesis Hypercoagulation hypothesis
Body systems: Antibody, Autoantibody, Blood, Brain, B cell, Central sensitization, Cytokine, Chemokine, Cardiovascular system, Gastrointestinal system, Glutamate excitotoxicity, HPA axis, Immune system, IL-1, IL-2, IL-6, IL-8, IL-10, IL-16, IL-17, IL-18, interferon, Leaky brain, Leaky gut, Macrophage, Microglia, Microbiome, Mucosal immune system, Nervous system, Natural killer cell, Neuroinflammation, Ribonuclease L, Spinal cord, Tumor necrosis factors, VEGF, T cell
Tests: Brain imaging, Cardiopulmonary exercise test, CellTrend diagnostic test, C reactive protein, EEG, Erythrocyte sedimentation rate, Exercise, NCNED Griffith University diagnostic test, MRI, Orosomucoid, qEEG, SF-36, SPECT, Tilt Table, Two day exercise test
Citizen science: 23andMe, American Gut, Any Treatment, Mendus, Phoenix Rising, UBiome, Know Your Genetics: Dr. Amy Yasko, WellnessFX, CH3Nutrigenomics; Dr. Amy Yasko, MTHFR.net, Genetic Genie, LiveWello
Biochemistry and cell biology: ATP, Cellular respiration, Citric acid cycle, D lactate, Endocannabinoid, Glucocorticoid, Glutathione, Histamine, Methylation cycle, Mitochondria, Nitric oxide, Oxidative phosphorylation, Phenylalanine, Tyrosine
Nutrients: Copper, Deadlock quartet, Folate, L-carnitine, Magnesium, Sam-e, TMG, Vitamin B2, Vitamin B6, Vitamin B12, Vitamin C, Vitamin D, Zinc
Neurotransmitters and hormones: Acetylcholine, Alpha-Melanocyte-stimulating hormone, Calicitriol, Calcidiol, Cortisol, Dopamine, Estriadol, Epinephrine, Estrogen, Glucocorticoid, Glutamate, Histamine, Hormones, Melatonin, Neurotransmitters, Norepinephrine, Oxytocin, Progesterone, Prolactin, Prostaglandins, Serotonin, Testosterone, Vasopressin
Names & Definitions[edit | edit source]
Names: Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, Systemic Exertion Intolerance Disease, Chronic Fatigue Immune Deficiency Syndrome, Chronic epstein barr, Neuro-Inflammatory and Oxidative Fatigue, Yuppie Flu, Neurasthenia, Chronic Fatigue
Related conditions: Chronic lyme disease, Mold illness, Biotoxin illness, Environmental illness, Multiple Chemical Sensitivity, Gulf War Illness, Mast cell activation disorder, Mastocytosis, Ehlers Danlos Syndrome, Fibromyalgia, Small intestine bacterial overgrowth, Lactic acidosis, Autoimmune disease, Cancer, Thyroid disease, Non-Hodgkin's lymphoma, Multiple Sclerosis, Dysautonomia, Mitochondrial disorders, Chronic Epstein Barr, Raynaud's Syndrome
Definitions: Definitions of ME and CFS, Canadian Consensus Criteria, International Consensus Criteria, Oxford criteria, Fukuda criteria, Holmes criteria, Empirical definition, Ramsay definition, London criteria, Nightingale definition, Reeves criteria
Acronyms: List of acronyms
Potential treatments[edit | edit source]
Category page: Potential treatments
Supplements: Probiotics, AHCC, CoQ10, L-carnitine, MitoQ, NADH, PrescriptAssist, Mutaflor, GcMAF, Colostrum, Transfer factors, Fish oil, EPA, DHA, Taurine, L-Glutamine, Glutathione, Niacinamide, B Vitamin Complex, Adaptogens (Eleuthro, Ginseng, Ashwaganda, Rhodiola, Licorice), Mangosteen, Vegan/non-whey Protein Powders with Amino Acid Complex, Greens Powders, D-Ribose, Quercetin, Nexavir, 5-Hydroxytryptophan, Melatonin
Supplement Sources: Pure Formulas, Be Well By Dr Frank Lipman, Seeking Health, MITOQ, Aloha, ProHealth, Thrive Marketplace, HolisticHeal, Vitacost.com
Foods: Cocoa (Dark chocolate)
Herbs: Medical marijuana
Diets: GAPS diet, Ketogenic diet, Low FODMAP Diet, Low Histamine Diet, Paleo diet, RPAH Elimination Diet, Specific carbohydrate diet, Vegan diet, Vegetarian diet
Antivirals: Valgancyclovir, Famciclovir, Valaciclovir, Acyclovir
Immunomodulators and immunostimulants: Ampligen, Low dose naltrexone, Equilibrant, Intravenous immunoglobulin, Staphylococcal vaccine, Immunovir, Medicinal mushrooms, Interferon
Anti-inflammatory drugs:
Other drug treatments: Chelation, Cyclophosphamide, Prednisone, Rituximab, Trazodone
Toxin avoidance/removal: Fasting, Mold avoidance, Coffee enema
Uncategorized interventions: Traditional Chinese medicine, Cold immersion, Fecal matter transplant/Faecal bacteriotherapy, Helminthic therapy, Pacing, Energy envelope, Hyperbaric oxygen, Ozone, Altitude, Exercise, Vagus nerve stimulation
Doctors[edit | edit source]
Clinical Doctors, USA: Lucinda Bateman (UT) Derek Enlander; Susan Levine (NY) Nancy Klimas (FL) Courtney Craig; Daniel Peterson (NV) Phillipe Bottello; John Chia; OMI Clinic: David Kaufman and Andy Kogelnick (CA) Jacob Teitelbaum; Richard Podell (NJ) Laura Black (NC); Amy Yasko; Jose Montoya (CA)
Clinical Doctors, UK: Sarah Myhill, William Weir, Nigel Speight, Peter Behan, Charles Shepherd, Gabrielle Murphy, Amolak Bansal
Clinical Doctors, Germany: Anna Dorothea Hoeck, Carmen Scheibenbogen
Clinical Doctors, Belgium: Kenny de Meirleir, Annemie Uyttersprot (GP)
Clinical Doctors, South Africa: Cecile Jadin
Clinical Doctors, Sweden: Carl-Gerhard Gottfries
Clinical Doctors, Italy: Umberto Tirelli, Lorenzo Lorusso, Eligio Pizzigallo
Clinical Doctors, Australia: Donald P Lewis (VIC), John Whiting, Rashmi Cabena (VIC), Richard Schloeffel (NSW)
Research[edit | edit source]
Research initiatives USA: Open Medicine Foundation, Chronic Fatigue Initiative, Stanford ME/CFS Initiative, Microbe Discovery Project, Bateman Horne Center, Workwell Foundation, Center for Infection & Immunity, Solve ME/CFS Initiative, Simmaron Research, Treatment Center for CFS
Researchers USA: Ronald Davis, Jarred Younger, Alan Light, Kathleen Light, Andreas Kogelnik, Jose Montoya, David Bell, Mady Hornig, Eric Schadt, Ian Lipkin, John Chia, Rosemary Underhill, Suzanne Vernon, David Berg, Nancy Klimas, Dane Cook, Staci Stevens, Mark VanNess, Christopher Snell, Zaher Nahle, Rich Van Konyenburg, Judy Mikovits, Paul Cheney, Michael Van ElZakker, Zaher Nahle, Michael Zeineh, Anthony Komaroff, A Martin Lerner
Research initiatives Europe: ME Research UK, Cure ME (UK), Invest in ME (UK), UK CFS/ME Collaborative, Invest in ME Conference (UK), Ramsay Research Fund (UK), European ME Research Group, Charité Berlin (Germany), Wake-Up Call (Belgium)
Research initiatives Australia: National Centre for Neuroimmunology and Emerging Diseases, Victoria University
Research initiatives Canada: Nightingale Research Foundation
Researchers UK: Melvin Ramsay, Donald Acheson, Gordon Parish, Jonathan Kerr, Amolak Bansal, Julia Newton, Elizabeth Dowsett, Simon Carding, James Mowbray, John Richardson, Luis Nacul, Derek Pheby, Jonathan Edwards, Geraldine Cambridge, George Davey Smith
Researchers Australia: Amy Wallis, Donald P Lewis, Donald Staines, Dorothy Bruck, Elaine DeFreitas, Henry Butt, Melinda L Jackson, Michael Maes, Sonya Marshall-Gradisnik
Researchers Germany: Carmen Scheibenbogen
Researchers Norway: Olav Mella, Øystein Fluge
Researchers Canada: Byron Hyde, Patrick O. McGowan
Researchers Japan:
Biobanks & patient registries: CURE ME (UK), OMI OpenMedNet (US), CFI CFS BioBank (US), SolveCFS BioBank (US), Simmaron Research BioBank (US)
Researcher mailing lists: CureME mailing list
Psychological Paradigm[edit | edit source]
Psychological paradigm, mind-body approaches and related interventions: FINE trial, PACE trial, Graded Exercise Therapy, Cognitive Behavioral Therapy, biopsychosocial, Deconditioning, Mickel therapy, Lightning process, Gupta programme, Psychoneuroimmunology, Meditation, Bodily distress syndrome, Functional somatic syndrome, Psychosomatic illness, Neurasthenia, Medically unexplained symptoms
Psychological paradigm proponents: Simon Wessely, Michael Sharpe, Peter White, Trudie Chalder, Rona Moss-Morris, Jessica Bavinton, Esther Crawley, Anthony Cleare, Ben Goldacre, Peter Manu, Brian Walitt
Psychological paradigm critics: James Coyne, Keith Laws, David Tuller, Ronald Davis, Bruce Levin, Arthur Reingold, Jonathan Edwards, Leonard Jason, Ellen Goudsmit, Angela Kennedy
Primers[edit | edit source]
- Primer for doctors and researchers
- Primer for patients
- Primer for family, friends and care providers
- Primer for science journalists
- Primer for the public
Around the world[edit | edit source]
- Asia: China, India, Indonesia, Israel, Japan, Russia
- Africa: Kenya, Nigeria
- Europe: Austria, Belgium, Bulgaria, Czech Republic, Denmark, Finland, France Germany, Greece, Hungary, Ireland, Italy, Netherlands, Norway, Poland, Romania, Slovakia, Slovenia, Spain, Sweden, Ukraine, United Kingdom
- North America: Canada, Mexico, United States
- South America: Argentina, Brazil
- Australia & New Zealand: Australia, New Zealand
History[edit | edit source]
Historical records: Osler's Web, Thirty Years of Disdain
Outbreaks: Outbreaks: Incline village, Lyndonville, Akureyri, Los Angeles, Royal Free Hospital outbreak, Dalston, Adelaide, Ayrshire
Deceased patients: Sophia Mirza, Thomas Hennessy, Jr., Vanessa Li, Lynn Gilderdale, Emily Collingridge, Chardale Dotson Irvine, Oliver Coles, Brynmor John, Victoria Elsbury-Legg, Memorial Lists
Major developments/controversies: PACE trial, XMRV
Patient Advocacy[edit | edit source]
Patient Groups Australia: Emerge Australia, ME/CFS Australia (SA) Inc, ME/CFS Society of Western Australia, ME/CFS Society of NSW, ME/CFS Society of ACT
Patient Groups Belgium: Wake Up Call Beweging
Patient Groups Canada: National ME/FM Action Network, May12th.org, Action CIND
Patient Groups Ireland: Irish ME/CFS Association, Irish ME Trust
Patient Groups Italy: Associazione Malati CFS onlus, CFS Associazione Italiana onlus, CFS Italia
Patient Groups Netherlands: ME Vereniging Nederland
Patient Groups New Zealand: Associated New Zealand ME Society (ANZMES)
Patient Groups Norway: ME-Forskning
Patient Groups Sweden: Riksföreningen för ME-patienter
Patient Groups UK: Action for ME, Invest in ME, Change For M.E. Change For Us, Norfolk & Suffolk ME, ME Association, Tymes Trust, MEActionUK, Forward-ME, Hope 4 ME & Fibro NI, Welsh Association of ME & CFS Support, Sussex & Kent ME/CFS Society, Association of Young People with ME, Tyne & Wear ME/CFS Support Group, Edinburgh MESH, Leeds ME Network, The York ME Community, 25 Percent ME Group
Patient Groups USA: #MEAction, MEadvocacy, National Alliance for Myalgic Encephalomyelitis, Massachusetts CFIDS/ME & FM Association May12.org
Advocacy/Fundraising Initiatives: Chilli ME Challenge, ME Foggy Dog
Famous patients: Laura Hillenbrand, Martine McCutcheon, Stuart Murdoch, Charles Darwin, Florence Nightingale
Notable patients: Karina Hansen, Joanne, Sophia Mirza, Thomas (Tom) Hennessy, Vanessa Li, Lynn Gilderdale, Emily Collingridge, Whitney Dafoe, Tom Kindlon, Graham McPhee, Jennie Spotila, Naomi Whittingham, Jane Colby, Countess of Mar, Brian Vastag, Jennifer Brea, Ryan Prior, Hillary Johnson, Julie Rehmeyer, Leonard Jason, Charles Shepherd, Nasim Marie Jafry, Ken Lassesen, Cort Johnson, Valerie Eliot Smith, Doctor Speedy, Tanya Marlow, Deborah Waroff, Beth Mazur, Catherine Hale, Mary Schweitzer, Toni Bernhard, Guido den Broeder, Frank Twisk, Steven Lubet, Giada Da Ros, Roberta Pelletta, Carol Head, Ean Proctor, Jessica Taylor, Clark Ellis, Alem Matthews, Peter Kemp, Mindy Kitei Jeanette Burmeister, Giles Meehan, Erik Johnson, Lisa Petrison, Mary Ann Kindel, Gabby Klein, Eileen Holderman, Susan Kreutzer, Maryann Spurgin Wendy Boutiler
Notable healthy advocates: Angela Kennedy, Mary Dimmock, Greg Crowhurst, Malcolm Hooper, Nicole Castillo, Llewellyn King, Erica Verrillo, Tom Whittingham, Mike Harley, Ian Gibson, Scott Ludlam, Linda and Don Tannenbaum, Jon Campling
Notable Quotes: List of Quotes, Individual Quotes
Journals, TV, Articles, Books, Film, Interviews, Blogs, Discussion Forums[edit | edit source]
Journals: The Lancet Lancet Psychiatry The BMJ Journal of Chronic Fatigue Syndrome
TV: Sick and Tired (US), Sick and Tired - BBC (UK), Toxic Tiredness, I Remember Me, BBC Documentary on life with severe ME/Chronic Fatigue Syndrome (UK)
Articles: List of news articles on ME and CFS
Books: Plague, The State of Me, Love and Fatigue in America, Osler's Web, America's Biggest Cover-Up, Reviving the Broken Marionette, Why ME?, Stanchi: Vivere con la Sindrome da Fatica Cronica, Stanchi si diventa, Frammenti di ME, Encounters with the Invisible, Chronic Fatigue Syndrome: A Treatment Guide, Chronic Fatigue Syndrome: A Treatment Guide - 2nd Edition, Severe ME/CFS: A Guide to Living, Severe ME - Featuring: "Justice for Karina Hansen", Severe ME: Notes for Carers, One Last Goodbye, Authors of our Own Misfortune? The Problems with Psychogenic Explanations for Physical Illnesses.
Film: What About ME, I Remember Me, Forgotten Plague, Canary in a Coal Mine, The Last Great Medical Cover Up, Invisible Illness - Stories of Chronic Fatigue Syndrome, Voices from the Shadows
Interviews: ME/CFS Alert, Science for Patients
Blogs: Health Rising, Occupy CFS, MEAction, ME Advocacy, Courtney Craig, Cell Fatigue, CFS Patient Advocate, Constant F****** S***, ME Association, Onward Through the Fog, Nice Guidelines, Valerie Eliot Smith Blog, CFS Remission, About.com Health FMS/ME/CFS, Just ME, ME/CFS Ghost
Discussion Forums: Phoenix Rising, CFSItalia, MDJunction