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ME/CFS Canadian Collaborative Team Conference
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=== Day 2 Speakers === * [[Byron Hyde]], M.D., [[Nightingale Research Foundation]], Ottawa, Canada - ''A Short History of ME and CFS'' * [[Ronald Davis]], PhD, Director, Stanford Genome Center, Stanford University, Palo Alto, US - ''The Future of ME/CFS Research in the Multiomic and Big Data Era'' ==== Session 1a - Genetics, Genomics and Epigenetics ==== * [[Wilfred de Vega]], PhD, University of Toronto, Canada - ''The Epigenetic Landscape of ME/CFS: Deciphering Complex Phenotypes'' * [[Ronald Davis]], PhD, Director, Stanford Genome Center, Stanford University, Palo Alto, US - ''An Integrative, Molecular, Data and Technology-Driven Approach to ME/CFS'' * [[Alain Moreau]], Professor, University of Montreal, Canada - ''Genetic and Nutriepigenetic Regulation of Plasma Homocysteine Levels in ME/CFS'' * Alexis Goth, M.D., and Tara Sampalli, PhD, Integrated Chronic Care Service in Primary Health Care at the Nova Scotia Health Authority, Canada - ''Cultivating Change: Leveraging Epigenetics via Lifestyle Modification: An Integrative Multidisciplinary Treatment Model in ME/CFS'' ==== Session 2a - Biochemistry, Metabolomics and Proteomics ==== * [[Maureen Hanson]], M.D., Cornell University, Ithaca, US - ''Metabolism in ME/CFS'' * [[Jonas Bergquist]], M.D., PhD, Uppsala University, Sweden - ''The Biochemistry to Support the Evidence of Neuroinflammatory Involvement in ME/CFS'' * [[Cara Tomas]], PhD candidate, Institute of Cellular Medicine, Newcastle University, UK - ''Cellular Bioenergetics is Impaired in Patients with ME/CFS'' * [[Peter Rowe|Peter C. Rowe]], M.D., Director, Children’s Center Chronic Fatigue Clinic, John-Hopkins University, Baltimore, US - ''Connective Tissue Laxity and Adverse Neural Tension in ME/CFS'' ==== Session 3a - Infection, Immunity and Clinical Research ==== * [[Amir Landi]], M.D., PhD, University of Alberta, Edmonton, Canada - ''Diagnosis of ME/CFS: Can Immune Modulators Play a Role?'' * [[Luis Nacul]], M.D., PhD, Faculty of Infectious and Tropical Diseases, CURE-ME Team, London School of Hygiene and Tropical Medicine Disability and Eye Health Group, UK - ''Epidemiological and Clinical Research in ME/CFS: How Can They Support Hypothesis Generation and Testing?'' * [[Carmen Scheibenbogen]], M.D., Professor and Deputy Chair, Institute of Medical Immunology, [[Charité Berlin|Charité]] – Universitätsmedizin, Berlin, Germany - ''Clinical Trial on Immunoadsorption in ME/CFS'' * [[Derya Unutmaz]], M.D., The Jackson Laboratory, Farmington, US - ''Fine-Tuned Interaction Between Human Immune System and Gut Microbiota: Potential Impact on ME/CFS'' ===== Session 4a - Biomarkers, Biobanking, and Clinical Trials ===== * [[Carmen Scheibenbogen]], M.D., Professor and Deputy Chair, Institute of Medical Immunology, [[Charité Berlin|Charité]] – Universitätsmedizin, Berlin, Germany - ''The [[EUROMENE]] Biomarker Project'' * [[Roland Staud]], M.D., Professor of Medicine, University of Florida, US - ''Cerebral Blood Flow and Functional Connectivity in ME/CFS'' * [[Luis Nacul]], M.D., PhD, Faculty of Infectious and Tropical Diseases, CURE-ME Team, [[London School of Hygiene and Tropical Medicine]] Disability and Eye Health Group, UK - ''[[CureME|UK ME/CFS Biobank]]: A Resource for International Research'' * [[Christopher Armstrong|Chris Armstrong]], BSc, Researcher, University of Melbourne, Bio21 Molecular Science and Biotechnology Institute, Department of Biochemistry and Molecular Biology, Melbourne, Australia - ''Australian ME/CFS Databases and Biobanks: The Down Under Experiences'' * [[Nancy Klimas]], M.D., [[Institute for Neuro Immune Medicine]], Dr Kiran C. Patel College of Osteopathic Medicine, Nova Southeastern University and Director of Environmental Medicine, Miami VA Medical Center, US - ''From Biomarkers and Modeling to Implemented Targeted Clinical Trials: Comparison Between Gulf War Illness and ME/CFS'' * [[Vicky Whittemore|Vicky Holets Whittemore]], PhD, [[National Institute of Neurological Disorders and Stroke]], [[National Institutes of Health]], Bethesda, US - ''The Future of Research on ME/CFS'' * [[Linda Tannenbaum]], CEO/President, [[Open Medicine Foundation]], Los Angeles, US ==== Session 1b - What We Know and Still Don’t Know About ME/CFS Etiology and Pathomechanism ==== * [[Alison Bested|Alison C. Bested]], M.D., FRCP(C), Clinical Director, [[Institute for Neuro Immune Medicine]], Nova Southeastern University, Fort Lauderdale, US- ''Pathophysiological Mechanisms in ME/CFS'' * [[Lucinda Bateman]], M.D., Founder and Medical Director, [[Bateman Horne Center]], Salt Lake City, US - ''Objective Diagnosis of ME/CFS'' * [[Eleanor Stein]], M.D., FRCP(C), Calgary, Canada - ''ME/CFS: Could Neuroplasticity Play a Role?'' ==== Session 2b - Advancing ME/CFS Research and Treatments ==== * Margaret Parlor, President of the National ME/FM Action Network, Ottawa, Canada - ''ME/CFS Research Landscape in Canada: How Can Science/Innovation Address Unmet Needs?'' * [[Betsy Keller]], PhD, Professor, Department of Exercise and Sport Sciences at Ithaca College, Ithaca, US - ''Is Heart Rate a Valid Exertional Index in ME/CFS?'' * [[Eleanor Stein]], MD, FRCP(C), Calgary, Canada and Judy-Anne Wilson, representative of Edmonton ME Society and Alison Rae, Board Chair and CEO, [[Action CIND]] - ''Alberta Healthy Living Program: The Role of ME/CFS Education'' ==== Session 3b - Panel Discussion 1: Meet the Experts ==== * Kevin Mejo, BPharm - ''Medication and ME'' * Valérie Marcil, PhD, DtP - ''Nutrition and ME'' * Alexis Goth, MD, CCFP(C) - ''Genetics and ME'' ==== Session 4b - Panel Discussion 2: Creating a Transformative Research Agenda for ME/CFS ==== Panellists / Experts: Diane Ching, President, ME Society of Edmonton; Kati Debelic, Board Member, ME/FM Myalgic Encephalomyelitis and Fibromyalgia Society of BC, Canada; Barbara Fifield, Co-founder, Millions Missing Canada; Bev Friesen, Chairperson of the Board, Manitoba ME/CFS Support Group, Canada, Gloria Gray, President, M.E. Victoria Association, BC, Canada, [[Carol Head]], Solve ME/CFS Initiative; [[Kimberly Hicks]], Board Member and Treasurer, [[Open Medicine Foundation]], Los Angeles, US; Valérie Miller, General Coordinator of [[Association Québécoise de l’Encéphalomyélite Myalgique (AQEM)]], Canada; Margaret Parlor, President, [[National ME/FM Action Network|The National ME/FM Action Network]], ON, Canada; Alison Rae, Board Chair and CEO, [[Action CIND]], ON, Canada; Elizabeth Sanchez, President, ME/FM Myalgic Encephalomyelitis and Fibromyalgia Society of BC, Canada; [[Linda Tannenbaum]], CEO/President, [[Open Medicine Foundation]], Los Angeles, US
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