ME/CFS: Difference between revisions

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* [[Severe and very severe ME]]
* [[Severe and very severe ME]]
'''Case definitions for ME/CFS'''
'''Case definitions for ME/CFS'''
*[[Canadian Consensus Criteria]] (CCC)<ref name="Carruthers, 2003">{{Citation | last  = Carruthers  | first1 = Bruce M. | authorlink1 = Bruce Carruthers  | last2 = Jain | first2 = Anil Kumar  | authorlink2 = Anil Kumar Jain | last3 = De Meirleir | first3 = Kenny L. | authorlink3 = Kenny De Meirleir | last4 = Peterson  | first4 = Daniel L. | authorlink4 = Daniel Peterson | last5 =  Klimas  | first5 = Nancy G. | authorlink5 = Nancy Klimas | last6 = Lerner  | first6 = A. Martin | authorlink6 = Martin Lerner | last7 =Bested  | first7 = Alison C. | authorlink7 = Alison Bested | last8 =Flor-Henry  | first8 = Pierre | authorlink8 = Pierre Flor-Henry  | last9 = Joshi | first9 = Pradip | authorlink9 = Pradip Joshi | last10  = Powles | first10 = A C Peter | authorlink10 = A C Peter Powles | last11  = Sherkey  | first11 = Jeffrey A. | authorlink11 = Jeffrey Sherkey | last12  = van de Sande  | first12 = Marjorie I.  | authorlink12 = Marjorie van de Sande | title = Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols | journal = Journal of Chronic Fatigue Syndrome | volume = 11 | issue = 2 | page = 7-115 | date = 2003 |pmid = | doi = 10.1300/J092v11n01_02 | url = http://phoenixrising.me/wp-content/uploads/Canadian-definition.pdf }}</ref>  A diagnosis of moderate and severe forms of ME/CFS are accurately made using this criterion. Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.
*[[Canadian Consensus Criteria]] (CCC)<ref name="Carruthers, 2003">{{Citation | last  = Carruthers  | first1 = Bruce M. | authorlink1 = Bruce Carruthers  | last2 = Jain | first2 = Anil Kumar  | authorlink2 = Anil Kumar Jain | last3 = De Meirleir | first3 = Kenny L. | authorlink3 = Kenny De Meirleir | last4 = Peterson  | first4 = Daniel L. | authorlink4 = Daniel Peterson | last5 =  Klimas  | first5 = Nancy G. | authorlink5 = Nancy Klimas | last6 = Lerner  | first6 = A. Martin | authorlink6 = Martin Lerner | last7 =Bested  | first7 = Alison C. | authorlink7 = Alison Bested | last8 =Flor-Henry  | first8 = Pierre | authorlink8 = Pierre Flor-Henry  | last9 = Joshi | first9 = Pradip | authorlink9 = Pradip Joshi | last10  = Powles | first10 = AC Peter | authorlink10 = AC Peter Powles | last11  = Sherkey  | first11 = Jeffrey A. | authorlink11 = Jeffrey Sherkey | last12  = van de Sande  | first12 = Marjorie I.  | authorlink12 = Marjorie van de Sande | title = Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols | journal = Journal of Chronic Fatigue Syndrome | volume = 11 | issue = 2 | page = 7-115 | date = 2003 |pmid = | doi = 10.1300/J092v11n01_02 | url = http://phoenixrising.me/wp-content/uploads/Canadian-definition.pdf }}</ref>  A diagnosis of moderate and severe forms of ME/CFS are accurately made using this criterion. Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.


*[[Systemic Exertion Intolerance Disease]] (SEID)<ref>{{Cite web|url=http://iom.nationalacademies.org/~/media/Files/Report%20Files/2015/MECFS/MECFScliniciansguide.pdf | title=Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining an Illness|last = Clayton | first = Ellen Wright | date = 2015 | website = National Academies|archive-url=|archive-date=|url-status=|access-date=|authorlink=Ellen Wright Clayton | last2 = Alegria | first2 = Margarita | authorlink2 = Margarita Alegria | authorlink3 = Lucinda Bateman | authorlink4 = Lily Chu | authorlink5 = Charles Cleeland | authorlink6 = Ronald Davis  | authorlink7 = Betty Diamond | authorlink8 = Theodore Ganiats |authorlink9=Betsy Keller | last3 = Bateman |  first3 = Lucinda | last4 = Chu | first4 = Lily | last5 = Cleeland | first5 = Charles | last6 = Davis | first6 = Ronald | last7 = Diamond | first7 = Betty | last8 = Ganiats | first8 = Theodore | last9 = Keller | first9 = Betsy | last10 = Klimas | first10 = Nancy |authorlink10=Nancy Klimas | last11 = Lerner | first11 = A Martin|authorlink11=Martin Lerner | last12 = Mulrow | first12 = Cynthia|authorlink12=Cynthia Mulrow | last13 = Natelson | first13 = Benjamin | authorlink13 = Benjamin Natelson | last14 = Rowe | first14 = Peter |authorlink14=Peter Rowe | last15 = Shelanski  | first15 = Michael|authorlink15=Michael Shelanski}}</ref> ME/CFS ([[Systemic Exertion Intolerance Disease|SEID]]) is accurately diagnosed when the [[Systemic Exertion Intolerance Disease#Diagnostic criteria|core symptoms]] are met. The [[Institute of Medicine report]] as a whole is a comprehensive review of the medical literature available at time of publication (2015). Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.
*[[Systemic Exertion Intolerance Disease]] (SEID)<ref>{{Cite web|url=http://iom.nationalacademies.org/~/media/Files/Report%20Files/2015/MECFS/MECFScliniciansguide.pdf | title=Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining an Illness|last = Clayton | first = Ellen Wright | date = 2015 | website = National Academies|archive-url=|archive-date=|url-status=|access-date=|authorlink=Ellen Wright Clayton | last2 = Alegria | first2 = Margarita | authorlink2 = Margarita Alegria | authorlink3 = Lucinda Bateman | authorlink4 = Lily Chu | authorlink5 = Charles Cleeland | authorlink6 = Ronald Davis  | authorlink7 = Betty Diamond | authorlink8 = Theodore Ganiats |authorlink9=Betsy Keller | last3 = Bateman |  first3 = Lucinda | last4 = Chu | first4 = Lily | last5 = Cleeland | first5 = Charles | last6 = Davis | first6 = Ronald | last7 = Diamond | first7 = Betty | last8 = Ganiats | first8 = Theodore | last9 = Keller | first9 = Betsy | last10 = Klimas | first10 = Nancy |authorlink10=Nancy Klimas | last11 = Lerner | first11 = A Martin | authorlink11=Martin Lerner | last12 = Mulrow | first12 = Cynthia | authorlink12=Cynthia Mulrow | last13 = Natelson | first13 = Benjamin | authorlink13 = Benjamin Natelson | last14 = Rowe | first14 = Peter |authorlink14=Peter Rowe | last15 = Shelanski  | first15 = Michael | authorlink15=Michael Shelanski}}</ref> ME/CFS ([[Systemic Exertion Intolerance Disease|SEID]]) is accurately diagnosed when the [[Systemic Exertion Intolerance Disease#Diagnostic criteria|core symptoms]] are met. The [[Institute of Medicine report]] as a whole is a comprehensive review of the medical literature available at time of publication (2015). Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.


'''Case definition for ME'''
'''Case definition for ME'''
*[[International Consensus Criteria]] (ICC)<ref>{{Cite journal|last = Carruthers | first = Bruce M.|author-link=Bruce Carruthers | last2 = van de Sande | first2 = Marjorie I.|authorlink2 = Marjorie van de Sande | last3 = De Meirleir | first3=Kenny L. | authorlink3 = Kenny De Meirleir | last4 = Klimas | first4 = Nancy G. | author-link4 = Nancy Klimas | last5 = Broderick | first5 = Gordon | author-link5 = Gordon Broderick | last6 = Mitchell | first6 = Terry | author-link6 = Terry Mitchell | last7 = Staines | first7 = Donald | author-link7 = Donald  Staines | last8 = Powles | first8 = A. C. Peter  | authorlink8 = A C Peter Powles | last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight | last10 = Vallings | first10 = Rosamund | authorlink10 = Rosamund Vallings | last11 = Bateman | first11 = Lucinda | authorlink11 = Lucinda Bateman | last12 = Baumgarten-Austrheim | first12 = Barbara | authorlink12 = Barbara Baumgarten-Austrheim | last13 = Bell | first13 = David|author-link13=David Bell | last14 = Carlo-Stella | first14 = Nicoletta|author-link14=Nicoletta Carlo-Stella | last15 = Chia | first15 = John|author-link15=John Chia | last16 = Darragh | first16 = Austin|author-link16=Austin Darragh | last17 = Jo | first17 = Daehyun|author-link17=Daehyun Jo | last18 = Lewis | first18 = Donald|author-link18=Donald Lewis | last19 = Light | first19 = Alan | author-link19 = Alan Light | last20 = Marshall-Gradisnik | first20 = Sonya | author-link20 = Sonya Marshall-Gradisnik | last21 = Mena | first21 = Ismael | author-link21 = Ismael Mena | last22 = Mikovits | first22 = Judy | author-link22 = Judy Mikovits | last23 = Miwa | first23 = Kunihisa | author-link23 = Kunihisa Miwa | last24 = Murovska | first24 = Modra | author-link24 = Modra Murovska | last25 = Pall | first25 = Martin | author-link25 = Martin Pall | last26 = Stevens | first26 = Staci | author-link26 = Staci Stevens | date = 2011-08-22 | title=Myalgic encephalomyelitis: International Consensus Criteria|url=https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1365-2796.2011.02428.x|journal=Journal of Internal Medicine|language=en|volume=270|issue=4 | pages = 327–338|doi=10.1111/j.1365-2796.2011.02428.x|issn=0954-6820|pmc=3427890|pmid=21777306|via=}}</ref>  This criterion will accurately diagnose [[myalgic encephalomyelitis]] (ME). There is no requirement that the individual have symptoms for a specified period of time for diagnosis.
*[[International Consensus Criteria]] (ICC)<ref>{{Cite journal|last = Carruthers | first = Bruce M. | authorlinklink=Bruce Carruthers | last2 = van de Sande | first2 = Marjorie I.|authorlink2 = Marjorie van de Sande | last3 = De Meirleir | first3=Kenny L. | authorlink3 = Kenny De Meirleir | last4 = Klimas | first4 = Nancy G. | author-link4 = Nancy Klimas | last5 = Broderick | first5 = Gordon | author-link5 = Gordon Broderick | last6 = Mitchell | first6 = Terry | author-link6 = Terry Mitchell | last7 = Staines | first7 = Donald | author-link7 = Donald  Staines | last8 = Powles | first8 = A.C. Peter  | authorlink8 = AC Peter Powles | last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight | last10 = Vallings | first10 = Rosamund | authorlink10 = Rosamund Vallings | last11 = Bateman | first11 = Lucinda | authorlink11 = Lucinda Bateman | last12 = Baumgarten-Austrheim | first12 = Barbara | authorlink12 = Barbara Baumgarten-Austrheim | last13 = Bell | first13 = David | author-link13=David Bell | last14 = Carlo-Stella | first14 = Nicoletta | author-link14=Nicoletta Carlo-Stella | last15 = Chia | first15 = John | author-link15=John Chia | last16 = Darragh | first16 = Austin | author-link16=Austin Darragh | last17 = Jo | first17 = Daehyun | author-link17=Daehyun Jo | last18 = Lewis | first18 = Donald | author-link18=Donald Lewis | last19 = Light | first19 = Alan | author-link19 = Alan Light | last20 = Marshall-Gradisnik | first20 = Sonya | author-link20 = Sonya Marshall-Gradisnik | last21 = Mena | first21 = Ismael | author-link21 = Ismael Mena | last22 = Mikovits | first22 = Judy | author-link22 = Judy Mikovits | last23 = Miwa | first23 = Kunihisa | author-link23 = Kunihisa Miwa | last24 = Murovska | first24 = Modra | author-link24 = Modra Murovska | last25 = Pall | first25 = Martin | author-link25 = Martin Pall | last26 = Stevens | first26 = Staci | author-link26 = Staci Stevens | date = 2011-08-22 | title=Myalgic encephalomyelitis: International Consensus Criteria|url=https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1365-2796.2011.02428.x|journal=Journal of Internal Medicine|language=en|volume=270|issue=4 | pages = 327–338|doi=10.1111/j.1365-2796.2011.02428.x|issn=0954-6820|pmc=3427890|pmid=21777306|via=}}</ref>  This criterion will accurately diagnose [[myalgic encephalomyelitis]] (ME). There is no requirement that the individual have symptoms for a specified period of time for diagnosis.


== Learn more ==
== Learn more ==

Revision as of 13:39, November 30, 2022

What is ME/CFS By Open Medicine Foundation - OMF. Linda Tannenbaum, Founder & CEO/President, talks about ME/CFS and how OMF is leading research and delivering hope (2018)

The acronym ME/CFS is may be used to describe myalgic encephalomyelitis. Different names may be used to indicate which of several sets of diagnostic criteria are being described. The disease defined by the Canadian Consensus Criteria (CCC) or Institute of Medicine Criteria is often described as ME/CFS, whereas the ICC criteria (ICC) is often described as myalgic encephalomyelitis, and the Fukuda criteria connotates 'chronic fatigue syndrome'. Some people living with ME prefer that the 'CFS' be left off of the disease name.

United States (US) government bodies now use the acronym ME/CFS,[1] as does the US Clinician's Coalition.[2] The US Centers for Disease Control and Prevention's (CDC) website page is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).[3] The acronym CFS/ME is used by the National Health Service (NHS) in the United Kingdom.[4] The CDC recognizes ME/CFS as a "disabling and complex disease"[5]

"The most common overlapping condition with ME/CFS is fibromyalgia."[6][7] While some have posited ME/CFS and fibromyalgia are variants of the same illness, Benjamin Natelson, MD summoned considerable amounts of data that suggest the two illnesses differ with different pathophysiologic processes leading to different treatments.[8]

See also[edit | edit source]

Case definitions for ME/CFS

  • Canadian Consensus Criteria (CCC)[9] A diagnosis of moderate and severe forms of ME/CFS are accurately made using this criterion. Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.

Case definition for ME

Learn more[edit | edit source]

Persons living with ME/CFS

References[edit | edit source]

  1. "Biomarker Research Advances in 'Chronic Fatigue Syndrome". Medscape.com. November 8, 2016. Retrieved February 7, 2019. The condition, now called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) by US government bodies,
  2. "U.S. ME/CFS Clinician Coalition". U.S. ME/CFS Clinicians Coalition. Retrieved January 11, 2021.
  3. "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". Centers for Disease Control and Prevention. July 3, 2018. Retrieved September 7, 2018.
  4. "Chronic fatigue syndrome (CFS/ME)". National Health Service. Retrieved August 13, 2018.
  5. "What is ME/CFS? | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". Centers for Disease Control and Prevention. January 18, 2019. Retrieved April 12, 2019.
  6. "Overlapping Conditions - American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society". ammes.org. Retrieved August 12, 2018.
  7. Jason, Leonard; Taylor, R.R.; Kennedy, C.L.; Song, S; Johnson, D; Torres, S.R. (January 1, 2001). "Chronic fatigue syndrome: Comorbidity with fibromyalgia and psychiatric illness". Medicine and Psychiatry. 4: 29–34.
  8. Natelson, Benjamin H. (February 19, 2019). "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences". Clinical Therapeutics. 41 (4): 612. doi:10.1016/j.clinthera.2018.12.016. ISSN 0149-2918. PMID 30795933.
  9. Carruthers, Bruce M.; Jain, Anil Kumar; De Meirleir, Kenny L.; Peterson, Daniel L.; Klimas, Nancy G.; Lerner, A. Martin; Bested, Alison C.; Flor-Henry, Pierre; Joshi, Pradip; Powles, AC Peter; Sherkey, Jeffrey A.; van de Sande, Marjorie I. (2003), "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols" (PDF), Journal of Chronic Fatigue Syndrome, 11 (2): 7-115, doi:10.1300/J092v11n01_02
  10. Clayton, Ellen Wright; Alegria, Margarita; Bateman, Lucinda; Chu, Lily; Cleeland, Charles; Davis, Ronald; Diamond, Betty; Ganiats, Theodore; Keller, Betsy; Klimas, Nancy; Lerner, A Martin; Mulrow, Cynthia; Natelson, Benjamin; Rowe, Peter; Shelanski, Michael (2015). "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining an Illness" (PDF). National Academies.
  11. Carruthers, Bruce M.; van de Sande, Marjorie I.; De Meirleir, Kenny L.; Klimas, Nancy G.; Broderick, Gordon; Mitchell, Terry; Staines, Donald; Powles, A.C. Peter; Speight, Nigel; Vallings, Rosamund; Bateman, Lucinda; Baumgarten-Austrheim, Barbara; Bell, David; Carlo-Stella, Nicoletta; Chia, John; Darragh, Austin; Jo, Daehyun; Lewis, Donald; Light, Alan; Marshall-Gradisnik, Sonya; Mena, Ismael; Mikovits, Judy; Miwa, Kunihisa; Murovska, Modra; Pall, Martin; Stevens, Staci (August 22, 2011). "Myalgic encephalomyelitis: International Consensus Criteria". Journal of Internal Medicine. 270 (4): 327–338. doi:10.1111/j.1365-2796.2011.02428.x. ISSN 0954-6820. PMC 3427890. PMID 21777306. Unknown parameter |authorlinklink= ignored (help)