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Lydia Neilson
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[[File:Lydia Neilson.png|200px|thumb|right|Source:Unheard Voices]] '''Lydia Neilson''' has been the Founder and Chief Executive Officer at the [[National ME/FM Action Network]], Ottawa, Canada, since June 1993. She was instrumental in hosting the 10th [[International IACFS/ME Research and Clinical Conference]] held on September 22-25, 2011 in Ottawa, Ontario, Canada. She serves as the editor of ''Quest'', the ME/FM Action Network newsletter.<ref>https://www.linkedin.com/in/lydia-neilson-199b5737/</ref> Ms Neilson developed ME/CFS after an [[Epstein-Barr virus]] infection in December 1985, which left her housebound for several years. As she recovered she put her limited energy into advocacy, eventually establishing the National ME/FM Action Network, an organization dedicated to the support, advocacy, education and research of [[Myalgic Encephalomyelitis]], [[Chronic Fatigue Syndrome]], and [[Fibromyalgia]]. Ms Neilson spearheaded the development of the ME and FM Clinical Definitions and Guidelines for Practitioners which has become known as The Canadian Definitions worldwide. ==Awards== *2011, [[IACFS/ME]] Special Service Award - for outstanding personal effort and contribution to the CFS/ME community<ref>{{Cite web|url=https://www.iacfsme.org/iacfs-me-awardees | title = IACFS/ME Awardees|website= IACFS/ME|access-date=2020-04-23}}</ref></ref> *2011, Governor General's Meritorious Service Medal, Civil Division, in recognition of her achievements that brought benefit or honour to Canada<ref>https://www.linkedin.com/in/lydia-neilson-199b5737/</ref> ==Talks and interviews== *Sep 2011, [https://vimeo.com/35786666 - "Advocacy (ME/FM Action Network) - Lydia Neilson"] at the 10th International [[IACFSME]] Conference, Patient Agenda ==Online presence== *[https://www.linkedin.com/in/lydia-neilson-199b5737/ LinkedIn] *[https://www.mefmaction.com/ ME/FM Action Network Website] *[http://unheardvoices.mefmaction.com/ Unheard Voices Blog] == See also == ==Learn more== * [http://www.mefmaction.com/index.php?option=com_content&view=article&id=215&Itemid=262 ME/FM Consensus Documents] ==References== {{Reflist}} [[Category:People with ME, CFS, and/or FMS]] [[Category:Advocates or allies]] [[Category:Canadian advocates or allies]]
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