List of scientific and media response to release of PACE trial data: Difference between revisions

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
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* Aug 10, 2017 - Meg Allen and Helen Spandler published  [https://link.springer.com/article/10.1057/s41285-017-0047-0 'Contesting the psychiatric framing of ME/CFS'] in Social Theory and Health (examined the PACE Trial authors psychiatrisation of ME/CFS and responsibility for epistemic injustice and  [[discrimination]] of sufferers).
* Aug 10, 2017 - Meg Allen and Helen Spandler published  [https://link.springer.com/article/10.1057/s41285-017-0047-0 'Contesting the psychiatric framing of ME/CFS'] in Social Theory and Health (examined the PACE Trial authors psychiatrisation of ME/CFS and responsibility for epistemic injustice and  [[discrimination]] of sufferers).
* Sep 8, 2017 - [http://www.oatext.com/the-effects-of-therapies-for-myalgic-encephalomyelitis-and-chronic-fatigue-syndrome-should-be-assessed-using-objective-measures.php 'The effects of therapies for Myalgic Encephalomyelitis and chronic fatigue syndrome should be assessed using objective measures']
* Sep 8, 2017 - [http://www.oatext.com/the-effects-of-therapies-for-myalgic-encephalomyelitis-and-chronic-fatigue-syndrome-should-be-assessed-using-objective-measures.php 'The effects of therapies for Myalgic Encephalomyelitis and chronic fatigue syndrome should be assessed using objective measures']
==See also==
*[[PACE trial]]
*[[PACE trial documents]]
*[[Intimidation and bullying of PACE trial critics]]
*[[Open letter to the Lancet]]
*[[An open letter to Psychological Medicine about “recovery” and the PACE trial]]
*[[Action for ME]]
*[[Cochrane]]
*[[Cognitive behavioral therapy]]
*[[Graded exercise therapy]]
*[[FINE trial]]
*[[Journal of Health Psychology, Special Issue: The PACE Trial]]
*[[NICE guidelines]]
*[[PACE Trial Management Group]]
*[[PACE Trial Steering Committee]]
*[[:Category:PACE trial critics|PACE trial critics]]
*[[:Category:Psychological paradigm proponents|Proponents of the psychological theory of ME/CFS]]
*[[:Category:Psychological paradigm critics|Psychological paradigm critics]]
*[[The Lancet]]
*[[The Lancet Psychiatry]]


==References==
==References==

Revision as of 12:13, August 1, 2022

Follow the release of the PACE trial data and subsequent reanalysis, there was extensive coverage in the media, scientific journals, and other outlets. The following includes a list of coverage:

General media coverage


Queen Mary University of London/Student Union - The Print Newspaper


Blogs


Media Response by PACE authors


Scientific Journals

Some of the PACE authors had a 'Response to the editorial' in January 2017 which in turn led to over a dozen responses in the Journal of Health Psychology.

See also[edit | edit source]

References[edit | edit source]

  1. Retraction Watch (August 17, 2016), UK tribunal orders release of data from controversial chronic fatigue syndrome study
  2. http://sci-hub.cc/doi/10.1136/bmj.i4614
  3. iNews UK; Felicity Morse (August 19, 2016), Chronic Fatigue Syndrome sufferers have just had a small victory, archived from the original on August 15, 2019
  4. iNews UK; Paul Gallagher (August 19, 2016), Chronic Fatigue Syndrome: tribunal orders data from controversial trial to be released
  5. What Doctors Don't Tell You (website) (August 22, 2016), Researchers who claimed chronic fatigue is “all in the mind” forced to disclose data
  6. Edwards, Jonathan CW (August 27, 2016), "Tribunal was right to order release of chronic fatigue trial data", The Conversation (UK)
  7. Anderssen, Alex (August 17, 2016), "QMUL "studying" PACE data-release ruling", #MEAction
  8. https://twitter.com/pathcath/status/812439470586953728?ref_src=twsrc%5Etfw
  9. https://twitter.com/pathcath/status/819232955155488769
  10. https://www.newscientist.com/letter/mg23331141-000-6-we-can-share-data-only-when-rules-are-respected/ We can share data only when rules are respected
  11. http://www.observantonline.nl/Home/Artikelen/articleType/ArticleView/articleId/12101/Myth-busting-a-myth-busting
  12. https://medicalxpress.com/news/2017-03-chronic-fatigue-syndrome-doctored-adding.html
  13. http://bigstory.ap.org/article/2c3a7208dd8140e0ae725006377ef245/how-study-about-chronic-fatigue-syndrome-was-doctored
  14. Gelman, Andrew (July 9, 2017), "A Memoir of Chronic Fatigue Illustrates the Failures of Medical Research", New Yorker (US)
  15. https://www.youtube.com/watch?v=g8x-VBLcRuA
  16. https://www.nature.com/articles/d41586-018-01285-x
  17. https://www.nature.com/articles/d41586-018-03055-1
  18. https://www.ncbi.nlm.nih.gov/pubmed/27654128#cm27654128_30328