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== Medical Journals & Science blogs== === Funding === '''Update: New, if Belated, Gov't Interest in CFS Encourages Patients'''<ref>{{citation |last = Firth|first = Shannon | date = 2 January 2016 | title = Update: New, if Belated, Gov't Interest in CFS Encourages Patients|url= http://www.medpagetoday.com/Neurology/GeneralNeurology/55489|newspaper= MedPage Today|location= New York|access-date= }}</ref> ''MedPage Today: Neurology'' By: Shannon Firth. (02 Jan 2016) "In February, the National Academy of Medicine published a report attempting to better define the condition known as chronic fatigue syndrome, also called myalgic encephalomyelitis; in September, we reported that advisers to the Department of Health and Human Services recommended increasing funding for research into the condition.The following is a look at what has happened since that story." '''NIH to double funding for chronic fatigue syndrome, but patient distrust remains'''<ref>{{citation |last = Wadman | first = Meredith | date = 10 November 2016 | title = NIH to double funding for chronic fatigue syndrome, but patient distrust remains|url= http://www.sciencemag.org/news/2016/11/nih-double-funding-chronic-fatigue-syndrome-patient-distrust-remains|newspaper= Science magazine|location= Washington, D.C.|access-date= }}</ref> ''Science magazine'' By: Meredith Wadman. (10 Nov 2016) "The most anticipated speaker late last month at an international conference devoted to the mysterious malady commonly known as chronic fatigue syndrome (CFS) was not a scientist with a hot new finding—although there was excitement about new research in the air. Rather, it was a [[National Institutes of Health]] (NIH) official bearing good news to a community that has long existed on the margins of the biomedical research establishment. [[Vicky Whittemore]], the agency's CFS point person in Bethesda, Maryland, delivered on a promise that NIH Director [[Francis Collins]] made last year by announcing that NIH spending for research on the poorly understood disease should rise to roughly $15 million in 2017, doubling the estimated $7.6 million handed out in 2016." '''Biological underpinnings of chronic fatigue syndrome begin to emerge'''<ref>{{citation |last = Maxmen | first = Amy | date = 28 March 2017 | title = Biological underpinnings of chronic fatigue syndrome begin to emerge|url= http://www.nature.com/news/biological-underpinnings-of-chronic-fatigue-syndrome-begin-to-emerge-1.21721|newspaper= Nature|location= London|access-date= }}</ref> ''Nature'' By: Amy Maxmen. (28 Mar 2017) "Before his 33-year-old son became bedridden with chronic fatigue syndrome, biochemist Ronald Davis created technologies to analyse genes and proteins faster, better and more cheaply. Now he aims his inventions at a different target: the elusive inner workings of his son’s malady." === PACE trial === '''How a study about Chronic Fatigue Syndrome was doctored, adding to pain and stigma'''<ref>{{citation |last = Lubet | first = Steven | date = 22 March 2017 | title = How a study about Chronic Fatigue Syndrome was doctored, adding to pain and stigma |url= https://theconversation.com/how-a-study-about-chronic-fatigue-syndrome-was-doctored-adding-to-pain-and-stigma-74890|newspaper= The Conversation|location= Boston, MA|access-date= }}</ref> ''The Conversation'' By: [[Steven Lubet]] (22 Mar 2017) "The public relies on scientists to report their findings accurately and completely, but that does not always happen. Too often, researchers announce only their most favorable outcomes, while keeping more disappointing results well out of sight." ===PACE trial data release=== [[Virology blog]] by [[Vincent Racaniello]] has covered the PACE trial extensively. [[David Tuller]] has written most of these articles. A list of links can be found on Virology Blog [http://www.virology.ws/mecfs/ here]. The article that has a link to the RAW DATA at Reference 10. '''No ‘Recovery’ in PACE Trial, New Analysis Finds''' ''Virology blog'' By: Vincent Racaniello "Last October, Virology Blog posted David Tuller’s 14,000-word investigation of the many flaws of the PACE trial (link to article), which had reported that cognitive behavior therapy and graded exercise therapy could lead to “improvement” and “recovery” from ME/CFS. The first results, on “improvement,” were published in The Lancet in 2011; a follow-up study, on “recovery,” was published in the journal Psychological Medicine in 2013. The investigation by Dr. Tuller, a lecturer in public health and journalism at UC Berkeley, built on the impressive analyses already done by ME/CFS patients; his work helped demolish the credibility of the PACE trial as a piece of scientific research. In February, Virology Blog posted an open letter (link) to The Lancet and its editor, Richard Horton, stating that the trial’s flaws “have no place in published research.” Surprisingly, the PACE authors, The Lancet, and others in the U.K. medical and academic establishment have continued their vigorous defense of the study, despite its glaring methodological and ethical deficiencies."<ref>[http://www.virology.ws/2016/09/21/no-recovery-in-pace-trial-new-analysis-finds/ No ‘Recovery’ in PACE Trial, New Analysis Finds]</ref> '''Bad science has misled millions with chronic fatigue, court order reveals'''<ref>{{citation |last = Crew|first = Bec | date = 23 September 2016 | title = Bad science has misled millions with chronic fatigue, court order reveals|url= http://www.sciencealert.com/bad-science-has-misled-millions-with-chronic-fatigue-court-order-reveals|newspaper= ScienceAlert|location= Canberra|access-date= }}</ref> ''ScienceAlert'' By: Bec Crew. (23 Sep 2016) "Up to 1 million Americans and 2.6 percent of the global population are estimated to have chronic fatigue syndrome, and for decades, the illness has been trivialised due to a lack of scientific evidence supporting its diagnosis. But for those living with the disorder, the effects can be profound, and now an investigation into the two most commonly prescribed treatments - psychotherapy and exercise (seriously) - has found that they’re being recommended based on some seriously shoddy science." '''Independent investigation reveals NICE approved treatment only a fraction as effective as experts claim it is.'''<ref>{{citation |last = Burne | first = Jerome | date = 26 September 2016 | title = Independent investigation reveals NICE approved treatment only a fraction as effective as experts claim it is.|url= http://healthinsightuk.org/2016/09/26/independent-investigation-reveals-nice-approved-treatment-only-a-fraction-as-effective-as-experts-claim-it-is/|newspaper= HealthInsightUK|location= London|access-date= }}</ref> ''HealthInsightUK'' By: Jerome Burne. (29 Sep 2016) "Would any doctor continue to prescribe a drug which they had been told would benefit 20 percent of patients with a specific illness, once the truth was revealed to be around 7 percent, only one percent better than no treatment at all? You’d have to hope not and that concerned and angry doctors would then shout loudly that they had been lied to and that patients had endured years of pointless treatment." === Research === '''2015 Recap: Call for Real Answers to Chronic Fatigue Syndrome'''<ref>{{citation |last = Firth|first = Shannon | date = 2 January 2016 | title = 2015 Recap: Call for Real Answers to Chronic Fatigue Syndrome|url= http://www.medpagetoday.com/Neurology/PainManagement/55487|newspaper= MedPage Today|location= New York|access-date= }}</ref> ''MedPage Today: Neurology'' By: Shannon Firth. (02 Jan 2016) "In 1996, Judith Curren, 42, took her own life with help from Jack Kevorkian, MD. Curren was thought to have [[chronic fatigue syndrome]] (CFS), an illness associated with immune and neurologic symptoms that remains difficult to diagnose. A medical examiner questioned whether Curren was ever sick, according to The New York Times." '''Chronic Fatigue Syndrome is Not Merely Dysbiosis'''<ref>{{citation |last = Henderson | first = Theodore | date = 2 September 2016 | title = Chronic Fatigue Syndrome is Not Merely Dysbiosis|url= http://www.psychiatryadvisor.com/opinion/chronic-fatigue-syndrome-is-not-merely-dysbiosis/article/520401/|newspaper= Psychiatry Advisor|location= New York|access-date= }}</ref> ''Psychiatry Advisor'' By: Theodore Henderson. (02 Sep 2016) "The Times heralds that this article “proves” that ME/CFS is not a psychological illness as it has long been scornfully conceptualized by doctors and the medical world. This is a good thing, I suppose… because it once again emphasizes that ME/CFS is a biological condition and once again emphasizes that infectious agents cause ME/CFS. Unfortunately, it takes the medical care of ME/CFS in the wrong direction. The cited article by [[Ludovic Giloteaux|Giloteaux]] and colleagues, Reduced diversity and altered composition of the gut microbiome in individuals with myalgic encephalomyelitis/chronic fatigue syndrome,2 seems to ignore the extensive research demonstrating a viral etiology for ME/CFS." '''NIH Gears Up for First-Ever Chronic Fatigue Study – Patients' advocates share concerns about trial protocol, bias'''<ref>{{citation |last = Firth|first = Shannon | date = 17 March 2016 | title = NIH Gears Up for First-Ever Chronic Fatigue Study – Patients' advocates share concerns about trial protocol, bias |url= http://www.medpagetoday.com/Neurology/GeneralNeurology/56772|newspaper= MedPage Today|location= New York|access-date= }}</ref> ''MedPage Today: Neurology'' By: Shannon Firth. (17 Mar 2016) "The National Institutes of Health gave the green light for a novel study of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), but the news elicited mixed reactions from patient advocates." '''Biomarker Research Advances in 'Chronic Fatigue Syndrome''''<ref>{{citation |last = Tucker | first = Miriam E. | date = 8 November 2016 | title = Biomarker Research Advances in 'Chronic Fatigue Syndrome'|url= http://www.medscape.com/viewarticle/871552|newspaper= Medscape|location= New York|access-date= }}</ref> ''Medscape'' By: Miriam E. Tucker. (08 Nov 2016) "New research adds to growing evidence that the illness commonly known as chronic fatigue syndrome is biologically based, researchers report here at the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFSME) research and clinical conference. Some of the abnormalities identified suggest potential clinical diagnostic tests and targeted treatments." '''NIH Program Director Talks Team Work to Tackle ME-CFS'''<ref>{{citation |last = Firth|first = Shannon | date = 15 November 2016 | title = NIH Program Director Talks Team Work to Tackle ME-CFS|url= http://www.medpagetoday.com/Neurology/GeneralNeurology/61447|newspaper= MedPage Today|location= New York|access-date= }}</ref> ''MedPage Today: Neurology'' By: Shannon Firth. (15 Nov 2016) "For decades, those in the myalgic encephalomyelitis-chronic fatigue syndrome (ME-CFS) community have faced an uphill battle, getting the government, and the medical community in general, to take their condition seriously." '''Metabolic switch may bring on chronic fatigue syndrome'''<ref>{{citation |last = Coghlan | first = Andy | date = 13 February 2017 | title = Metabolic switch may bring on chronic fatigue syndrome|url= https://www.newscientist.com/article/2121162-metabolic-switch-may-bring-on-chronic-fatigue-syndrome/#.WKHkr44tfK0.twitter|newspaper= New Scientist|location= London|access-date= }}</ref> ''New Scientist'' By: Andy Coghlan. (13 Feb 2017) "It’s as if a switch has been flicked. Evidence is mounting that chronic fatigue syndrome (CFS) is caused by the body swapping to less efficient ways of generating energy." '''Moving Toward Answers in ME/CFS'''<ref>{{citation | last1 = Koroshetz | first1 = Walter | last2 = Collins | first2 = Francis | date = 21 March 2017 | title = Moving Toward Answers in ME/CFS|url= https://directorsblog.nih.gov/2017/03/21/moving-toward-answers-in-mecfs/|newspaper= NIH Director's Blog|location= Bethesda, MD|access-date= }}</ref> ''NIH Director's Blog'' By: Dr. Walter Koroshetz and Dr. Francis Collins. (21 Mar 2017) "Imagine going to work or school every day, working out at the gym, spending time with family and friends—basically, living your life in a full and vigorous way. Then one day, you wake up, feeling sick. A bad cold maybe, or perhaps the flu. A few days pass, and you think it should be over—but it’s not, you still feel achy and exhausted. Now imagine that you never get better— plagued by unrelenting fatigue not relieved by sleep. Any exertion just makes you worse. You are forced to leave your job or school and are unable to participate in any of your favorite activities; some days you can’t even get out of bed. The worst part is that your doctors don’t know what is wrong and nothing seems to help." '''Biological evidence of 'atypical' chronic fatigue syndrome discovered by scientists'''<ref>{{citation | author = <!--Staff writer(s); no by-line.--> | title = Biological evidence of 'atypical' chronic fatigue syndrome discovered by scientists|url= https://www.sciencedaily.com/releases/2017/04/170404104832.htm|newspaper= Science Daily |location= | date = Apr 4, 2017|access-date= }}</ref> ''Science Daily'' (4 Apr 2017) "Scientists at the Center for Infection and Immunity (CII) at Columbia University's Mailman School of Public Health are the first to report immune signatures differentiating two subgroups of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): "classical" and "atypical." This complex, debilitating disease is characterized by symptoms ranging from extreme fatigue after exertion to difficulty concentrating, headaches, and muscle pain." ===Brain imaging=== '''Chronic Fatigue Patients Suffer 3 Major Brain Abnormalities; Findings May Lead To Clearer Diagnosis.'''<ref>[http://privatehealthcarereports.com/chronic-fatigue-patients-suffer-3-major-brain-abnormalities-findings-may-lead-to-clearer-diagnosis/ Chronic Fatigue Patients Suffer 3 Major Brain Abnormalities; Findings May Lead To Clearer Diagnosis. - Private Health Care]</ref> ''Private Health Care'' "The incessant fatigue characterized by chronic fatigue syndrome (CFS) that affects between one and four million Americans is often quite difficult to diagnose. But a new study, which found three distinct differences between the brains of patients with CFS and those of healthy people, promises to revolutionize diagnosis and provide insight into the underlying mechanisms of the condition." === Chemical signature in blood === '''Researchers Identify Characteristic Chemical Signature for Chronic Fatigue Syndrome'''<ref>{{citation |last = LaFee | first = Scott | date = 29 August 2016 | title = Researchers Identify Characteristic Chemical Signature for Chronic Fatigue Syndrome|url= https://health.ucsd.edu/news/releases/Pages/2016-08-29-chemical-signature-for-chronic-fatigue-syndrome-identified.aspx|newspaper= UC San Diego Health|location= |access-date= }}</ref><ref>{{citation | author = <!--Staff writer(s); no by-line.--> | title = Characteristic chemical signature for chronic fatigue syndrome identified | url = https://www.sciencedaily.com/releases/2016/08/160829163253.htm|newspaper= Science Daily|location= Rockville, MD | date = 29 August 2016|access-date= }}</ref><ref>{{citation | author = <!--Staff writer(s); no by-line.--> | title = Researchers identify characteristic chemical signature for chronic fatigue syndrome|url= https://www.eurekalert.org/pub_releases/2016-08/uoc--ric082516.php|newspaper= EurekAlert!|location= Washington, D.C. | date = 29 August 2016|access-date= }}</ref> ''UC San Diego Health'' and ''EurekAlert!'' and ''Science Daily'' By: Scott LaFee. (29 August 2016) "Chronic fatigue syndrome (CFS) is a mysterious and maddening condition, with no cure or known cause. But researchers at the University of California San Diego School of Medicine, using a variety of techniques to identify and assess targeted metabolites in blood plasma, have identified a characteristic chemical signature for the debilitating ailment and an unexpected underlying biology: It is similar to the state of dauer, and other hypometabolic syndromes like caloric restriction, diapause and hibernation." '''Chronic Fatigue Syndrome: Characteristic Chemical Signature Identified For Debilitating Ailment'''<ref>{{citation |last = Varandani|first = Suman | date = 29 August 2016 | title = Chronic Fatigue Syndrome: Characteristic Chemical Signature Identified For Debilitating Ailment|url= http://www.medicaldaily.com/chronic-fatigue-syndrome-characteristic-chemical-signature-identified-396234|newspaper= Medical Daily|location= New York|access-date= }}</ref> ''Medical Daily: The Grapevine'' By: Suman Varandani. (29 Aug 2016) "Chronic fatigue syndrome (CFS) is a debilitating and complex disorder that causes severe fatigue that is worsened by physical or mental activity and not improved by bed rest. While there is no cure or known cause for the debilitating ailment, researchers at the University of California San Diego School of Medicine have identified a characteristic chemical signature." '''Chronic Fatigue Syndrome May Leave a 'Chemical Signature' in the Blood'''<ref>{{citation |last = Rettner | first = Rachael | date = August 30, 2016 | title = Chronic Fatigue Syndrome May Leave a 'Chemical Signature' in the Blood | url = http://www.livescience.com/55940-chronic-fatigue-syndrome-chemical-signature.html|newspaper= Live Science|location= New York|access-date= }}</ref> ''Live Science: Health'' By: Rachael Rettner. (30 Aug 2016) "People with chronic fatigue syndrome (CFS) can wait years before being diagnosed with the condition, and there is no single test for it. But a new study may have found a "chemical signature" for the condition — a set of molecules in the blood that's unique to people with CFS." '''Association of biomarkers with health-related quality of life and history of stressors in myalgic encephalomyelitis/chronic fatigue syndrome patients'''<ref>{{Cite journal | last = Fenouillet | first = Emmanuel | last2 = Vigouroux | first2 = Aude | last3 = Steinberg | first3 = Jean Guillaume | last4 = Chagvardieff | first4 = Alexandre | last5 = Retornaz | first5 = Frédérique | last6 = Guieu | first6 = Regis | last7 = Jammes | first7 = Yves | date = 2016-08-31 | title = Association of biomarkers with health-related quality of life and history of stressors in myalgic encephalomyelitis/chronic fatigue syndrome patients|url=https://doi.org/10.1186/s12967-016-1010-x|journal=Journal of Translational Medicine|volume=14|issue=1|pages=251|doi=10.1186/s12967-016-1010-x|issn=1479-5876|pmc=5006431|pmid=27580693}}</ref> ''Journal of Translational Medicine'' "Conclusion: In ME/CFS patients, severe alterations of the muscle excitability, the redox status, as well as the CD26-expression level are correlated with a marked impairment of the quality-of-life. They are particularly significant when infectious stressors are reported in the medical history." '''Chronic fatigue syndrome appears to leave a 'chemical signature' in the blood - And it's similar to that of hibernating species.'''<ref>{{citation |last = Hrala | first = Josh | date = 31 August 2016 | title = Chronic fatigue syndrome appears to leave a 'chemical signature' in the blood |url= http://www.sciencealert.com/chronic-fatigue-syndrome-is-similar-to-entering-hibernation-study-finds|newspaper= ScienceAlert|location= Canberra|access-date= }}</ref> ''ScienceAlert'' By: Josh Hrala. (31 Aug 2016) "Researchers have uncovered a chemical signature for chronic fatigue syndrome (CFS), and found that the condition shares certain hallmarks with a type of hibernation that certain species undergo to survive environmental stress." '''Biological evidence of chronic fatigue syndrome found in sufferers’ blood'''<ref>{{citation | author = <!--Staff writer(s); no by-line.--> | title = Biological evidence of chronic fatigue syndrome found in sufferers’ blood | url = http://www.sciencemag.org/news/sifter/biological-evidence-chronic-fatigue-syndrome-found-sufferers-blood|newspaper= Science magazine|location= Washington, D.C. | date = August 30, 2016|access-date= }}</ref> ''Science magazine''. (30 Aug 2016) "Chronic fatigue syndrome (CFS) affects 2.5 million Americans, often leaving them unable to think or move." '''Metabolomic Deficiencies Characteristic of Chronic Fatigue Syndrome'''<ref>{{citation |last = Lampner | first = Cindy | date = 10 November 2016 | title = Metabolomic Deficiencies Characteristic of Chronic Fatigue Syndrome|url= http://www.clinicalpainadvisor.com/chronic-pain/metabolic-features-of-chronic-fatigue-syndrome/article/525141/|newspaper= Clinical Pain Advisor|location= New York|access-date= }}</ref> ''Clinical Pain Advisor'' By: Cindy Lampner. (10 Nov 2016) "In a study designed to test the utility of targeted metabolomics in the diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), researchers identified a unique chemical signature that differentiates affected patients from healthy individuals." === Advocacy === '''Chronic Fatigue Patients Take to the Streets – Global protest highlights demands for more research, physician education'''<ref>{{citation |last = Firth|first = Shannon | date = 31 May 2016 | title = Chronic Fatigue Patients Take to the Streets – Global protest highlights demands for more research, physician education | url = http://www.medpagetoday.com/Neurology/GeneralNeurology/58241|newspaper= MedPage Today|location= New York|access-date= }}</ref> ''MedPage Today: Neurology'' By: Shannon Firth. (31 May 2016) "The chronic fatigue syndrome community demanded stronger investment in scientific research, and greater accountability from public agencies to address their illness, at the recent "Millions Missing: A Global Day of Protest for ME/CFS."' === Post-exertional Malaise === '''Postexertion 'Crash,' not Fatigue per se, Marks Syndrome'''<ref>{{citation |last = Tucker | first = Miriam E. | date = 4 November 2016 | title = Postexertion 'Crash,' not Fatigue per se, Marks Syndrome|url= http://www.medscape.com/viewarticle/871482|newspaper= Medscape|location= New York|access-date= }}</ref> ''Medscape'' By: Miriam Tucker. (04 Nov 2016) "New research focused on the phenomenon of [[post-exertional malaise]] (PEM) is shedding light on the etiology of the illness that has been known as chronic fatigue syndrome, but is now increasingly termed myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)." ===Advances in understanding ME=== '''Chronic fatigue syndrome: Gradually figuring out what’s wrong'''<ref name="HarvHealth20191114">{{Cite web|url=https://www.health.harvard.edu/blog/chronic-fatigue-syndrome-gradually-figuring-out-whats-wrong-2019111418224 | title = Chronic fatigue syndrome: Gradually figuring out what’s wrong|last = Komaroff|first = Anthony | authorlink = Anthony Komaroff | date = 2019-11-14 | website = Harvard Health Blog|language=en-US|archive-url=|archive-date=|url-status=live|access-date=2019-12-28}}</ref> ''HARVARD HERALD LETTER'' By: [[Anthony Komaroff]], Editor in Chief. (14-Nov-2019)
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