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Jane Colby
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[[File:Jane Colby.png|200px|thumb|right|Source:www.tymestrust.org]] '''Jane Colby''' is a British advocate for paediatric patients and formerly had severe [[myalgic encephalomyelitis]] (ME) triggered by a viral infection. (Colby sometimes refers to the virus as "polio-like" or "related to polio"<ref>{{Cite web | url = https://www.methenewplague.net/About-Jane.html | title = ME - The New Plague 2 - About Jane|website=ME - The New Plague 2|access-date=2020-02-14}}</ref> and sometimes as [[coxsackie B]]).<ref>http://www.tymestrust.org/pdfs/mecfsseidintro.pdf</ref> She is a former head teacher and a member of the National Association of Educational Inspectors, Advisors, and Consultants.<ref>{{Cite web | url = http://www.investinme.org/IIMEC1.shtml#presenters | title = IIMEC1 | website = [[Invest in ME Research]]|access-date=2020-02-14}}</ref> She is the Executive Director of [[Tymes Trust]], the longest established national UK service for children and young people with ME and their families.<ref>{{Cite web | url = https://www.tymestrust.org/aboutus.htm | title = Tymes Trust - About Us | website = tymestrust.org|access-date=2020-02-14}}</ref> ==Books== *1996, ''[[ME - The New Plague]]'', about the connection between ME and poliomyelitis.<ref>''ME: the new plague'', Jane Colby - First and Best in Education - 1996 ISBN-10: 1860832156, ISBN-13: 978-1860832154</ref> *1999, ''[[Zoe's Win]]'', a book for children with ME<ref>{{Cite book | title = Zoe's win|isbn=0-9537330-0-9 | url = https://www.worldcat.org/oclc/45820439 | date = 1999|publisher=Dome Vision | last = Colby, Jane.|oclc=45820439|location=Fyfield, Essex}}</ref> *2013, ''ME - The New Plague 2: Reclaiming the Patient's Voice''<ref>{{Cite web | url = http://home.html/ | title = ME - The New Plague 2 - Home|website=ME - The New Plague 2|access-date=2020-02-14}}</ref> ==Notable studies == * 1996, Long-term sickness absence due to ME/CFS in UK schools; an epidemiological study with medical and educational implications.<ref name="Dowsett, Colby, 1996">{{Cite journal | last1 = Dowsett | first1 = Elizabeth G. | authorlink1 = Elizabeth Dowsett | last2 = Colby | first2 = Jane | authorlink2 = Jane Colby | title = Long-Term Sickness Absence Due to ME/CFS in UK Schools: An Epidemiological Study with Medical and Educational Implications | journal = Journal of Chronic Fatigue Syndrome | volume = 3 | issue = 2 | pages = 29-42 | date = 1996 | doi = 10.1300/J092v03n02_04 | url = http://www.tymestrust.org/pdfs/dowsettcolby.pdf }}</ref> - [https://www.tymestrust.org/pdfs/dowsettcolby.pdf (Full text)] *2007, Special problems of children with [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] and the enteroviral link<ref>{{Cite journal | date = Feb 2007 | title = Special problems of children with myalgic encephalomyelitis/chronic fatigue syndrome and the enteroviral link | url =https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1860612/|journal=Journal of Clinical Pathology|volume=60|issue=2|pages=125–128|doi=10.1136/jcp.2006.042606|issn=0021-9746|pmc=1860612|pmid=16935964}}</ref> - [http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1860612/ (Abstract)] ==Tymes Trust publications== The following [http://www.tymestrust.org/tymespublications.htm educational materials] for children living with ME and their parents and schools are written by Jane Colby and available through the [[Tymes Trust]]: *[http://www.tymestrust.org/pdfs/mecfsseidintro.pdf The T Rex in the Room] *[http://www.tymestrust.org/pdfs/mecfsseid.pdf Paediatric ME, CFS, SEID for Families and their GPs] *[http://www.tymestrust.org/pdfs/falseallegations.pdf False Allegations of Child Abuse in Cases of Childhood Myalgic Encephalomyelitis (ME)] *[http://www.tymestrust.org/pdfs/meawareness2015.pdf ME Awareness 2015: Equality and ME] *[http://www.tymestrust.org/pdfs/explainyourabilities.pdf Explain Your Abilities] (co-authored by Naomi Burgess) *[http://www.tymestrust.org/pdfs/dietinme.pdf Diet in ME - is it such a big deal?] (compiled with advice from Dr Alan Franklin and [[Elizabeth Dowsett | Elizabeth G Dowsett]]) *[http://www.tymestrust.org/pdfs/childprotectionissues.pdf A Presentation to the All Party Parliamentary Group on ME] (co-authored by Joanna Smith) *[http://www.tymestrust.org/pdfs/gpguidev2.pdf A Good Practice Guide to Education for Children with ME for GPs, Schools and Families] *[http://www.tymestrust.org/pdfs/teacherinfo2.pdf Teacher Information on ME, Some children may be diagnosed as 'CFS'] ===Posters=== *[http://www.tymestrust.org/pdfs/ttbannedfromsleeping.pdf Banned from Sleeping Poster] *[http://www.tymestrust.org/pdfs/tthomeedhelps.pdf Why home-based education helps Poster] (co-authored by Lord Clement-Jones CBE) *[http://www.tymestrust.org/pdfs/tt25years.pdf 25 years of trusting TYMES Poster] ===Professional guides=== *[http://www.tymestrust.org/pdfs/metheillness.pdf ''Professional Guides'' ME - The Illness and Common Misconceptions: Abuse, Neglect, Mental Incapacity] *[http://www.tymestrust.org/pdfs/backtoschool.pdf ''Professional Guides'' Back to School?] *[http://www.tymestrust.org/pdfs/pushingtheboundaries.pdf ''Professional Guides'' Pushing the Boundaries in ME/CFS] *[http://www.tymestrust.org/pdfs/senco.pdf ''Professional Guides'' The SENCO’s Key Role in Supporting Pupils With CFS/ME] *[http://www.tymestrust.org/tymespublications.htm ''Professional Guides'' Physios Urged to Go Cautiously] *[http://www.tymestrust.org/pdfs/implicationsforschools.pdf ''Professional Guides'' Implications for Schools of the Chief Medical Officer’s Working Group Report on CFS/ME] *[http://www.tymestrust.org/pdfs/edpsychguide.pdf ''Professional Guides'' ME/CFS Guidelines for Educational Psychologists] (co-authored by Naomi Burgess) ==Talks and interviews== *2006 - Speaker at the 1st [[Invest in ME International ME Conference]] on ''Children and Education: Incidence, clusters and specific problems of youngsters with M.E.''<ref>{{Cite web | url = http://www.investinme.org/IIMEC1.shtml#agenda | title = IIMEC1 | website = [[Invest in ME Research]]|access-date=2020-02-14}}</ref> - [https://www.youtube.com/watch?v=n4vFhLJRH8o (Video)] *May 6, 2018 - Interviewed on [[The ME Show]] podcast by [[Gary Burgess]] about the [[Tymes Trust]] charity.<ref>{{Cite web | url = https://www.buzzsprout.com/172265/711412-episode-four | title = The ME Show with Gary Burgess - Jane Colby | last = | first = | authorlink = | date = May 28, 2018 | website = buzzsprout.com|archive-url=|archive-date=|url-status=|access-date=}}</ref> [https://www.buzzsprout.com/172265/711412-episode-four Episode link] ==Online presence== *[https://twitter.com/JaneCColby Twitter] *[https://www.methenewplague.net/blog.html Stripey socks blog] *[https://www.methenewplague.net/ Website] * ==See also== *[[Tymes Trust]] *[[ME - The New Plague]] == Learn more == * [https://www.tymestrust.org/ Tymes Trust website] ==References== {{reflist}} [[Category:People with ME, CFS, and/or FMS]] [[Category:Advocates or allies]] [[Category:British advocates or allies]] [[Category:Authors]] [[Category:Researchers]] [[Category:UK researchers]]
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