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James Strazza
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{{NeedsImage}} '''Chronic fatigue sufferer: 'Life was kicked out from under me like a skateboard''''. February 2022. '''James Strazza''' is an American independent music professional, musician and poet with very severe [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]].<ref name="fb">{{Cite web | url = https://www.facebook.com/jamesstrazzapoetry/ | title = James Strazza | last = | first = | date = |website=Facebook|language=en|archive-url=|archive-date=|url-status=|access-date=2022-06-12}}</ref><ref name="QA2022" /> Strazza developed CFS in 2008, which became severe in 2000. He has been totally [[Severe_and_very_severe ME#veryservere|bedbound]] for years and is cared for by his mother, [[Galen Warden]].<ref name="kicked2022">{{Cite web | url = https://www.northjersey.com/videos/news/health/2022/02/06/chronic-fatigue-sufferer-life-kicked-out-under-me-like-skateboard/6664016001/ | title = Chronic fatigue sufferer: 'Life was kicked out from under me like a skateboard' | last = Burkhart | first = Richard | authorlink= | date = 2022-02-06 | website = North Jersey Media Group|language=en-US|archive-url=|archive-date=|url-status=|access-date=2022-06-12}}</ref><ref name="QA2022">{{Cite web | url = https://www.northjersey.com/story/news/2022/02/06/chronic-fatigue-system-q-a-new-jersey-rockaway-james-strazza/6674765001/ | title = 'It has taken everything from me': Q&A with former NJ man with chronic fatigue syndrome | last = Myers | first = Gene | date = 2022-02-06 | website = North Jersey Media Group|language=en-US|access-date=2022-06-12}}</ref> He published his first book of poetry, ''Lyrical'', in 2020.<ref name="website">https://www.jamesstrazza.com</ref> ==History == Strazza developed chronic fatigue syndrome after developing [[mononucleosis]] from the [[Epstein-Barr virus]] in 2008.<ref name="EBV2022">{{Cite web | url = https://www.northjersey.com/story/news/health/2022/02/06/epstein-barr-chronic-fatigue-syndrome-montclair-nj/9291538002/ | title = Trapped in the dark: How chronic fatigue syndrome derailed a NJ musician's life | last = Myers | first = Gene|website=North Jersey Media Group | date = 2022-02-06|language=en-US|access-date=2022-06-12}}</ref> He struggled to get a diagnosis and was advised to keep [[pushing through symptoms]] his symptoms, which resulted in his ME/CFS becoming very severe.<ref name="QA2022" /> ==CFS symptoms == Strazza's neurological symptoms include severe [[photophobia]], [[noise sensitivity]], and [[allodynia]] and lives in almost total darkness, with [[noise canceling headphones]] and a minimum of touch to avoid increasing his waves of severe [[chronic pain]]. His noise intolerance has forced him to give up playing music.<ref name="EBV2022" /><ref name="QA2022" /> He has profound and debilitating [[fatigue]] and his limbs are too heavy to lift.<ref name="kicked2022" /> {{Quote|text=I had a friend who became severe and he told me "James, this is the worst day of my life, and I can still get up to use the bathroom and use a wheelchair, how do you do it?" It puts you in a position where you feel like [[suicide]] is the only way out. Every day is the worst day of your life, and the scary part is it can always get worse.<ref name="QA2022"/> | author = James Strazza}} Galen Warden, Strazza's mother and full-time carer states: <blockquote>"It's like a frog being dropped in cold water and then you gradually raise the heat. At first these things didn't raise huge alarm," said Warden, 64. "There was nothing out there that talks about this, so we didn't have a reference of any kind. We kept telling him shake it off. You can do it. [[Exercise]] more." - Galen Warden<ref name="QA2022" /></blockquote> ==Advocacy == Strazza has featured in a number of interviews, raising awareness of ME/CFS and the lack of medical knowledge in particular. His songs from when he his ME/CFS was less severe, and his recent poetry raise awareness of what it is like for him. Strazza is critical of the lack of funding for medical research into ME/CFS, and of the extremely low [[disability]] payments made in the [[United States]] to those have been ill since [[Pediatric myalgic encephalomyelitis/chronic fatigue syndrome|childhood]], adolescence or as a young adult.<ref name="QA2022" /> {{Quote|text=The second thing I want people to know is how little the government and medical industry cares for people with ME and [[chronic illness]] in general. It took me eight years and thousands of dollars to get a diagnosis. The dozens of doctors I saw in that time gave me advice that has ruined my life; I blame their ignorance for my severity that is potentially permanent. Most doctors don't know anything about ME, and the few who do [[Biopsychosocial model|think it's a psychological illness]]. It is unbelievably difficult to find help.<ref name="QA2022"/> | author = James Strazza}} ==Talks and interviews== * Video: 2022, [https://www.northjersey.com/videos/news/health/2022/02/06/chronic-fatigue-sufferer-life-kicked-out-under-me-like-skateboard/6664016001/ Chronic fatigue sufferer: 'Life was kicked out from under me like a skateboard'] - Richard Burkhart ::For the last two years, musician James Strazza has been experiencing a debilitating form of chronic fatigue. Still, he says he tries to create beauty in the darkness. * 2022, [https://northjersey.com/story/news/2022/02/06/chronic-fatigue-system-q-a-new-jersey-rockaway-james-strazza/6674765001/ 'It has taken everything from me': Q&A with former NJ man with chronic fatigue syndrome] - Gene Myers - NorthJersey.com * 2022, [https://www.northjersey.com/story/news/health/2022/02/06/epstein-barr-chronic-fatigue-syndrome-montclair-nj/9291538002/ Trapped in the dark: How chronic fatigue syndrome derailed a musician's life] - Gene Myers - NorthJersey.com * Aug 8, 2020, [https://www.meaction.net/2020/08/08/let-us-honor-the-most-severe-in-our-community-today/ Let Us Honor the Most Severe in our Community Today!] - MEAction == Books and music == * 2020, Lyrical: Poems that will blow you a kiss or punch you in the stomach. ::ISBN-10 [[Tel:1735971804|1735971804]], ISBN-13 978-1735971803. ==Online presence== * [https://www.twitter.com/strazzajames Twitter] * [https://www.facebook.com/jamesstrazzapoetry/ Facebook] * [https://instagram.com/james_strazza Instagram] * [https://www.linkedin.com/in/james-strazza-09769235 LinkedIn] * [http://www.jamesstrazza.com/ Website] * [https://www.patreon.com/jslyrical Patreon] * [https://m.youtube.com/user/strazza555 YouTube] * [https://jamesstrazza.bigcartel.com/product/lyrical-signed Lyrical book, signed] *[https://www.gofundme.com/f/treatment-for-james GoFundme] ==See also== * [[Severe ME Awareness Day]] * [[ME Awareness Day]] * [[Severe and very severe ME]] * [[Depression]] * [[Suicide]] * [[Primer for family, friends and care providers]] ==Interviews and articles== *2022, [https://northjersey.com/story/news/2022/02/06/chronic-fatigue-system-q-a-new-jersey-rockaway-james-strazza/6674765001/ 'It has taken everything from me': Q&A with former NJ man with chronic fatigue syndrome] - Gene Myers - NorthJersey.com ==Learn more== ==References== {{reflist}} [[Category:People with ME, CFS, and/or FMS]] [[Category:Advocates or allies]] [[Category:American advocates or allies]] [[Category:Psychological paradigm critics]]
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