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Fatigatio e.V.
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The '''Fatigatio''' is a [[Germany|German]] patient organization. It was founded in 1993 and is located in Berlin.<ref>{{Cite web | url = https://www.fatigatio.de/ | title = Bundesverband Chronisches Erschöpfungssyndrom - Fatigatio e.V. | website = fatigatio.de|language=de|access-date=2019-08-15}}</ref> == Aims == == Controversy == * When an alliance of all German patient groups protested the guideline "tiredness" (which includes a chapter on ME/CFS and recommends [[Graded exercise therapy|GET]] and [[Cognitive behavioral therapy|CBT]]) in 2011, Fatigatio publicly quit the alliance and opposed its criticism of the guideline.<ref>{{Cite web | url = http://www.cfs-aktuell.de/september11_3.htm#Fatigatio_steigt_aus_der_Protestaktion_gegen_neue_DEGAM-Leitlinien_M%C3%BCdigkeit_aus_ | title = September11_3 | website = cfs-aktuell.de|access-date=2020-07-07}}</ref> * During the latest revision process of the guideline "tiredness" in 2018, the then Fatigatio chairwoman [https://web.archive.org/web/20180207211115/http://www.degam.de/files/Inhalte/Leitlinien-Inhalte/Dokumente/DEGAM-S3-Leitlinien/053-002%20Leitlinie%20Muedigkeit/Methodenreport/053-002_Methodenreport_30.01.18.pdf wrote to the guideline commission] (see page 94 in the linked guideline report), claiming, among other things, that ME/CFS was rare, patients should be activated and made derogatory comments about the "CFS scene".<ref name="degam">{{Cite web | url = https://web.archive.org/web/20180207211115/http://www.degam.de/files/Inhalte/Leitlinien-Inhalte/Dokumente/DEGAM-S3-Leitlinien/053-002%20Leitlinie%20Muedigkeit/Methodenreport/053-002_Methodenreport_30.01.18.pdf | title=AWMF-Register-Nr. 053-002 DEGAM-Leitlinie Nr. 2 | date =2018-02-07 | website = web.archive.org|access-date=2019-08-15}}</ref> This statement was published in the official guideline report.<ref name="degam"/> When members and the patient community criticized it, Fatigatio claimed it was a "private letter" and asked the guideline commission to delete it from the report.<ref>{{Cite web | url = https://www.fatigatio.de/fileadmin/user_upload/07/01_dokumente/01_offizielle_entschuldigung_degam.pdf | title=Entschuldigung DEGAM | last = | first = | authorlink = | date = | website = |archive-url=|archive-date=|access-date=}}</ref> Afterwards Fatigatio published [https://www.fatigatio.de/fileadmin/user_upload/07/01_dokumente/09_Persoenlichkeitsrechtsverletzung_Rechtliche_Grundlagen.pdf a letter by a lawyer] on its website to threaten critics with legal action<ref>{{Cite web | url = https://www.fatigatio.de/fileadmin/user_upload/07/01_dokumente/09_Persoenlichkeitsrechtsverletzung_Rechtliche_Grundlagen.pdf | title=Persönlichkeitsrechtsverletzung/ Rechtliche Grundlagen | last = | first = | authorlink = | date = | website = |archive-url=|archive-date=|access-date=}}</ref> and [https://web.archive.org/web/20180322151559/https://www.fatigatio.de/fileadmin/user_upload/07/01_dokumente/02_prof_stark_stellungnahme.pdf a letter by a psychiatrist] to defend the remark, that bedridden people with ME should be activated.<ref>{{Cite web | url = https://www.fatigatio.de/fileadmin/user_upload/07/01_dokumente/02_prof_stark_stellungnahme.pdf | title=Stellungnahme Prof. Stark | last = | first = | authorlink = | date = | website = |archive-url=|archive-date=|access-date=}}</ref> * While all other German patient groups cooperated, Fatigatio was the only organization that didn't participate in the German [[Millions Missing protests|#MillionsMissing]] protests 2018<ref>{{Cite web | url = https://www.millionsmissing.de/2018/07/13/internationaler-me-cfs-tag-am-12-05-2018-millionsmissing/ | title = Internationaler ME/CFS Tag am 12.05.2018 – #MillionsMissing | date = 2018-05-12 | website = #MillionsMissing Deutschland|language=de-DE|access-date=2019-08-15}}</ref> and 2019<ref>{{Cite web | url = https://www.mecfs.de/int-me-cfs-tag-millionsmissing-2019/ | title = Int. ME/CFS-Tag {{!}} #MillionsMissing 2019 | date = 2019-05-12 | website = Deutsche Gesellschaft für ME/CFS|access-date=2019-08-15}}</ref>. * Fatigatio uses the term "Chronisches Erschöpfungssyndrom" (chronic exhaustion syndrome) in its name "Bundesverband Chronisches Erschöpfungssyndrom CFS/CFIDS/ME" (federal alliance chronic exhaustion syndrome).<ref>{{Cite web | url = https://www.fatigatio.de/ | title = Bundesverband Chronisches Erschöpfungssyndrom - Fatigatio e.V. | website = fatigatio.de|language=de|access-date=2019-09-01}}</ref> Patients critizise the use of the trivialising and unofficial term "exhaustion syndrome". Also that the Fatigatio uses the terms [[Chronic fatigue syndrome|CFS]] and [[CFS/ME]] instead of [[Myalgic encephalomyelitis|ME]] or [[ME/CFS]] is criticized. * Media articles with the Fatigatio mostly focus on tiredness, psychological problems, thinking positive and staying active.<ref>{{Cite web | url = https://www.t-online.de/-/76808686 | title = Wenn Schlaf keine Erholung mehr bringt | website = t-online.de|language=de|access-date=2019-09-01}}</ref><ref>{{Cite web | url = https://www.msn.com/de-de/gesundheit/medizinisch/chronisches-ersch%C3%B6pfungssyndrom-wenn-man-immer-m%C3%BCde-ist/ar-AABduEn | title = Chronisches Erschöpfungssyndrom: Wenn man immer müde ist | website = msn.com|access-date=2019-09-01}}</ref> In an article, the then chairwoman proposed as solution to sometimes skip ironing clothes.<ref>{{Cite web | url = https://www.merkur.de/leben/gesundheit/dauermuede-mit-chronischer-erschoepfung-leben-zr-6030050.html | title = Mit chronischer Erschöpfung leben | date = 2016-01-13 | website = merkur.de|language=de|access-date=2019-09-01 | last = | first = | authorlink = |archive-url=|archive-date=}}</ref> * Fatigatio promoted unscientific theories and programs like [[Gupta programme|Gupta]] (it was forbidden to critizise Gupta in the member forum [the forum doesn't exist anymore]). == Events == Fatigatio organizes a yearly conference.<ref>{{Cite web | url = https://www.fatigatio.de/cfs-me-fachtagung-2019-des-fatigatio-ev/ | title = CFS / ME - Fachtagung 2019 des Fatigatio e.V. - Fatigatio e.V. | website = fatigatio.de|language=de|access-date=2019-08-31}}</ref> == Interviews and articles == * "Mit chronischer Erschöpfung leben"<ref>{{Cite web | url = https://www.merkur.de/leben/gesundheit/dauermuede-mit-chronischer-erschoepfung-leben-zr-6030050.html | title = Mit chronischer Erschöpfung leben | date = 2016-01-13 | website = merkur.de|language=de|access-date=2019-08-31 | last = | first = | authorlink = |archive-url=|archive-date=}}</ref> * "Wenn Schlaf keine Erholung bringt"<ref>{{Cite web | url = https://www.t-online.de/-/76808686 | title = Wenn Schlaf keine Erholung mehr bringt | website = t-online.de|language=de|access-date=2019-09-01}}</ref> * "Chronisches Erschöpfungssyndrom: Wenn man immer müde ist"<ref>{{Cite web | url = https://www.msn.com/de-de/gesundheit/medizinisch/chronisches-ersch%C3%B6pfungssyndrom-wenn-man-immer-m%C3%BCde-ist/ar-AABduEn | title = Chronisches Erschöpfungssyndrom: Wenn man immer müde ist | website = msn.com|access-date=2019-09-01}}</ref> == Online presence == * [https://www.fatigatio.de/ Website] * [https://www.facebook.com/fatigatio/?ref=br_rs Facebook] * [https://twitter.com/FatigatioeV Twitter] * [https://www.youtube.com/channel/UC8eFBrwILKRmbLgvtVxXAFg YouTube] == See also == * [[Deutsche Gesellschaft für ME/CFS]] * [[Lost Voices Stiftung]] * [[MillionsMissing Deutschland|#MillionsMissing Deutschland]] == References == {{reflist}} [[Category:Patient groups]] [[Category:German patient groups]]
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