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FITNET trial
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== GP and pediatrician flyer information == FITNET-NHS provide information to GPs and pediatricians about how to refer children with ME/CFS to the FITNET-NHS trial, and some general information about the research trial. ===Most recover with specialist treatment claim === Both the FITNET-NHS posters for GPs and pediatricians include the unreferenced claim that "most" children recover within 6 months after "specialist treatment", but that "less than 10%" of children who did not attend a specialist center recovered in that time.<ref name="flyer-pediatrician">{{Cite web | url=http://www.bristol.ac.uk/media-library/sites/ccah/cfsme/study-docs/Flyer%20for%20paediatricians_v2.0.pdf | title=FITNET-NHS Paediatrician referral flyer | last = University of Bristol | first = | authorlink = University of Bristol | last2 = Royal University Hospitals Bath NHS Foundation Trust | first2 = | authorlink2 = Royal University Hospitals Bath NHS Foundation Trust|website=|archive-url=|archive-date=|url-status=|access-date=2019-02-12|quote=<strong >Treatment now available for children with CFS/ME</strong><br >1% of secondary school children miss 20% of school because of CFS/ME<br >Most will recover at 6 months with specialist treatment but less than 10% will recover without it<br >Specialist treatment is now available at home for teenagers aged 11 to 17 years with CFS/ME as part of a research study | last3 = FITNET-NHS | authorlink3 = FITNET-NHS}}</ref><ref name="flyer-GP">{{Cite web | url=http://www.bristol.ac.uk/media-library/sites/ccah/cfsme/study-docs/Flyer%20for%20GPs_v3.0.pdf | title=FITNET-NHS Flyer for GPs | last = University of Bristol | first = | authorlink = University of Bristol | last2 = Royal University Hospitals Bath NHS Foundation Trust | first2 = | authorlink2 = Royal University Hospitals Bath NHS Foundation Trust|website=|archive-url=|archive-date=|url-status=|access-date=2019-02-12|quote=<strong >Treatment now available for children with CFS/ME</strong><br >1% of secondary school children miss 20% of school because of CFS/ME<br >Most will recover at 6 months with specialist treatment but less than 10% will recover without it<br >Specialist treatment is now available at home for teenagers aged 11 to 17 years with CFS/ME as part of a research study | last3 = FITNET-NHS | authorlink3 = FITNET-NHS}}</ref> However, this claim may be based on a single study of FITNET in the Netherlands, so the figures many not be accurate for children in the UK being treated by the [[National Health Service|NHS]]. ===Recovery did not mean a return to their previous level of health === Recovery in the FITNET trial was not the rate of returning to full health; and the rate of over 60% recovery in the Dutch FITNET trial has been disputed. FITNET's trial "recovery" standard was met when the child's health was within 2 standard deviations of the norm for healthy children, this dropped to 36% of children if recovery was being within one standard deviation of the norm.<ref name="2012effective" /> FITNET's 6 month assessment period was also criticized as being too short, given that some patients have a relapsing and remitting course of illness, in which there may be some periods without symptoms before the illness returns; however longer term follow up studies have since been published.<ref name="2013followup" /> ===Patient flyer === The flyer for patients did not mention any likely rates for recovery from "specialist treatment" or without treatment. <ref name="flyer-patient">{{Cite web | url=http://www.bristol.ac.uk/media-library/sites/ccah/cfsme/study-docs/FITNET-NHS%20Poster%20Flyer%20for%20patients_v1%202018-07-12.pdf | title=FITNET-NHS poster flyer for patients | last = University of Bristol | first = | authorlink = University of Bristol | last2 = Royal University Hospitals Bath NHS Foundation Trust | first2 = | authorlink2 = Royal University Hospitals Bath NHS Foundation Trust | date = 2018-07-12 | website = |archive-url=|archive-date=|url-status=|access-date=2019-02-12|quote=Home treatment for young people with CFS/ME<br >Young people (aged 11-17) with CFS/ME can now access specialist treatment at home as part of a research study | last3 = FITNET-NHS | authorlink3 = FITNET-NHS}}</ref> ===Treatment available without joining the research trial === All these flyers mentioned that home based treatment was available for ages 11-17 "as part of a research study", none mentioned that some out of area or home based support was already able without needing to join a research trial.<ref name="flyer-pediatrician" /><ref name="flyer-patient" /><ref name="whatweoffer">{{Cite web |url = http://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/what_we_offer.asp | title = What we offer|quote =Treatment for those referred from further away<br >Out of our region, we may offer an original face-to-face assessment if possible, and we will then help the young person set up a rehabilitation plan. We support the child's local team in providing rehabilitation. Individuals can either be assessed as outpatients or, if they are severely affected, at home. It may not always be necessary to attend appointments in person as some may be suitable for treatment via Skype.<br >Out of region patients can also be referred for consideration and eligibility assessment for treatment at home via the FITNET-NHS trial. | last = Royal University Hospitals Bath NHS Foundation CFS/ME}}</ref>
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