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Ethical issues
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==Prevalence of false child abuse allegations== In the [[United Kingdom]], a small survey of children with [[ME/CFS]] found that 25% of children had bee a doctor or another professional that their parents/carers were the cause of their illness; some of these had children protection/safeguarding issues raised as a result of their illness.<ref name="ourneedsourlives">{{Cite web| url = http://www.tymestrust.org/pdfs/ourneedsourlives.pdf | title=Our Lives Our Needs | last = Tymes Trust | first = | authorlink = Tymes Trust | date = 2003 | website = |archive-url=|archive-date=|url-status=|access-date=}}</ref> A survey after a 1999 UK documary also revealed that many parents or carers had been suspected or accused of intentionally fabricating their child's illness, 4% of families who responded to the survey reported a parent being labeled as having [[Munchausen syndrome by proxy]] (Fabricated Induced Illness).<ref name="panorama">{{Cite news |url =http://news.bbc.co.uk/2/hi/events/panorama/506549.stm | title = Panorama {{!}} Sick and Tired | last = BBC News | first = | authorlink = Sick and Tired - BBC | date = Nov 8, 1999 | website = BBC News|archive-url=|archive-date=|url-status=|access-date=2019-02-12}}</ref> ===Research ethics complaints === A number of high profile researchers and some journals have faced compliants and investigations for research ethical violations, including: * [[PACE trial]] researchers for failing to declare their conflicts of interest to patients as part of the "informed consent" process, and failing to declare that the trial was partly funded by the UK's [[Department for Work and Pensions]], which has responsibility for assessing disability entitlement * The [[University of Bristol]] announced that Professor [[Esther Crawley]] is being investigated for using research ethics exemption obtained for a single trial (offering treatment to school children with [[ME/CFS]]) for multiple unrelated research publications, including a systematic review of adults' ME/CFS treatment outcomes.{{citation needed}} * Refusing to release anonymous research data from [[PACE trial|controversial trials]] for re-analysis, or only allowed selected researchers access to that data, which avoids independent re-analysis or scrutiny, as happened with the [[PACE trial]] data. The PACE trial data - including the original primary outcome data - was only released after a lengthy battle and a hearing on front of a judge resulted in the UK's Information Commissioner Office ordering [[Queen Mary University of London|Queen Mary University]] to release the data under the [[Freedom of Information Act]] law.<ref name="Geraghty2016" /> * Patient data was stolen during the [[PACE trial]] ===Lack of informed consent === [[Keith Geraghty]] has highlighted the lack of informed consent to treatment experienced by many patients with [[ME/CFS]], particularly involving failing to inform patients of previously known potential harms that may result from [[graded exercise therapy]] and [[cognitive behavioral therapy]], and how likely these are.<ref name="BleaseGeraghty2016a" />
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