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Chronic Fatigue Syndrome - Newsweek (1990)
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== Patient interviews == *[[Nancy Kaiser]] is an active 38-year-old woman becoming so ill she believed she was dying. "She was weak, profoundly tired and plagued by constant bladder infections." Muscles aching and mood shifting unpredictably she believed that she was having menopause and it being worse than she could have imagined. She went on to have a hysterectomy. Her health didn't improve and her physicians referred her to psychiatrists "who announced she was mourning her lost uterus. One suggested she have an affair." She saw 212 different experts. Her eyesight began to fail and was having a dozen minor seizures every day. Her concentration and memory were so impacted she could not get through a TV show and her IQ dropped by 22 points. She finally found relief with an experimental AIDS drug, [[Ampligen]]. *Gino Olivieri was a police officer in Rochester NY who had been a canine handler, SWAT team member, and a field training officer. After falling into an ice-covered pond during a late-night burglary chase and being treated for hypothermia he developed bronchitis. He did not recover and began to experience unending flu. Three years later he has not been able to return to work. He developed a fatigue which went deep into his muscles and bones as well as several eye problems. Olivieri is lightheaded and has body wide lymph node swelling, nausea, and experiences confusion and tremendous insomnia. *Chris Spalding and her two children came down with intestinal flu. Her daughter recovered but she and her son remained unwell. Her son kept falling asleep through homework and even while looking for a T-shirt in a drawer and petting the dog. She felt reducing his school hours was a sensible step but the "Truant officers dropped by regularly to lecture him on responsibility. His teachers thanked him sarcastically when he made it to class. The other kids taunted him in the hallways, calling out, 'He has AIDS.' At one point last year, Hoben talked about suicide. But nowadays he feels physically better. 'I never feel energetic and ready to conquer the world,' he says. 'I just know I can survive.' This year, as he entered the eighth grade, school officials flatly refused to let him attend half days. They said that unless he learned to handle full days he would never succeed in high school or a job. Eventually they relented. But, says Hoben's mother, 'they still believe it's an attitude, not an illness.'" *Gloria Baker suffered from CFS. Her dog Murphy also became sick two years after she did. Eventually, he had to be put to sleep. Murphy tested positive for HHV-6, the same virus Baker was also fighting. Although there may be nothing to such stories but many patients say they also have sick pets. Dr. Paul Cheney has conducted a survey to gauge the phenomenon. "He will discuss his findings this month at a CFS conference in Charlotte, N.C. In Britain, a wave of bovine spongiform encephalopathy, better known as mad-cow disease, has led patients to wonder whether CFS is somehow related to that phenomenon. Most experts doubt that a single infectious agent is making people and animals sick; viruses tend to be highly adapted to one species or another. But because the illness is still such an enigma, the possibility can't yet be ruled out." *Marc Iverson is president of [[CFIDS Association of America]] and has CFS. "Suddenly, in the fall of 1979, his energy evaporated. He got vertigo. He couldn't remember things. All that came of four trips to the Mayo Clinic and a month in a psychiatric ward was a mountain of medical bills." (At the time there were CFIDS Association and San Francisco-based CFIDS Foundation which have now become [[Solve ME/CFS Initiative]].) *Dr. William Harvey, a specialist in aerospace medicine and a seasoned pilot, suddenly experienced an inability to make sense of commands from the control tower and said it was as if he were dyslexic. 2 weeks later it happened again and he knew he could no longer fly. Dr. Harvery worsened and could no longer work. This began in 1988 but by 1990 he could begin working again although still suffering from muscle pain and persistent bladder problems. He regained vision and clarity of mind.
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