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==Difficult relationship with ME/CFS communities== Patients, advocates, and physicians affiliated with ME/CFS have had a cautious, and at times fractured, relationship with the CDC. After the [[1984 Incline Village chronic fatigue syndrome outbreak]] of ME/CFS, the CDC was dismissive to the clinical findings of Dr. [[Daniel Peterson]] and the afflicted patients. [[Hillary Johnson]] wrote her renowned book, ''[[Osler's Web]]'', about this frustrating period. During this time the CDC coined the trivializing name, "chronic fatigue syndrome."<ref>Hillary Johnson. (1996). ''Osler's web: inside the labyrinth of the chronic fatigue syndrome epidemic.'' Crown Publishers.</ref> ===Diverted research funding=== In 1999, Senator Harry Reid requested the Justice Department start a criminal investigation into the diversion of research funds at the CDC that was earmarked for chronic fatigue syndrome. The [[U.S. Department of Health and Human Services]] (HHS) reported that the agency misspent millions of dollars appropriated by Congress for research on chronic fatigue syndrome. According to an article in the ''Las Vegas Sun'': "An inspector general reported in May that only $9.8 million of the $22.7 million Congress set aside to study chronic fatigue syndrome from 1995 to 1998 was actually spent on the illness. At least $8.8 million was spent on other research, including measles and polio. But government auditors said they could not determine what happened to an additional $4.1 million and the CDC has not explained where the money went."<ref>Jansen, B. (n.d.). Nevada senator calls for criminal investigation of CDC over misspent money. Retrieved July 16, 2016, from lasvegassun.com/news/1999/nov/11/nevada-senator-calls-for-criminal-investigation-of/</ref> ===Dr. William Reeves=== Another piece to explain the difficult relationship between the CDC and the CFS community was the leadership of Dr. [[William Reeves]], the CFS Research Chief. The [[Solve ME/CFS Initiative |CFIDS Association of America]], the [[IACFS/ME |International Association of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] and [[CFSAC]] all criticized Dr. Reeves for his autocratic research style and his lack of collaboration. According to [[Cort Johnson]]: "Dr. Reeves started out with a disorder that few researchers at the CDC took seriously. Ironically even as his CDC prevalence and economic studies demonstrated it was a serious disorder, he seemed to take it less seriously in the end calling it ‘unwellness’ and referring to a broad range of triggering factors (obesity, inactivity, alcoholism, mood disorders, etc.) which ME/CFS professionals felt leery about."<ref>{{Cite news |url = http://phoenixrising.me/archives/1224 | title = A Look Back at Dr. Reeves - CDC | last = Johnson | first = Cort | date = Jul 30, 2010|work=Phoenix Rising|access-date=2018-09-07| archive-url = | archive-date = |url-status = | language=en-US}}</ref> In the aftermath, Jeffrey Koplan, the CDC Director from 1998 to 2002, placed the chronic fatigue syndrome programs on budgetary probation and announced mandatory legal training for all budget managers.{{Citation needed}} ===Fake CDC Letter=== In [[1986 Fake CDC letter|1986, a fake letter]] posted on a CDC bulletin board was discovered and copied by Hillary Johnson in her book, illustrating the belittling attitude the CDC staff had towards the patient population.<ref>''Osler's web: inside the labyrinth of the chronic fatigue syndrome epidemic'', Hillary Johnson - Crown Publishers - 1996</ref><ref>{{Cite web | url = http://cfstreatment.blogspot.com/p/october-5-1986-center-of-diseased.html | title = CDC Spoof of ME/CFS | last = | first = | date = | website = cfstreatment.blogspot.com| publisher = Onward Through the Fog| archive-url = | archive-date = |url-status = | access-date=2018-09-07}}</ref>
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