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CDC Multi-site Clinical Assessment of CFS
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The '''CDC Multi-site Clinical Assessment of CFS''' is a research study that began in 2012, led by Dr. [[Elizabeth Unger]] at the [[Centers for Disease Control]] (CDC). It aims to recruit 450 patients aged 18-70 years old from seven clinical sites in the United States with a diagnosis of [[chronic fatigue syndrome]] (CFS), post-infective fatigue or [[myalgic encephalomyelitis]](ME).<ref name=":0">{{Cite web | url = https://www.cdc.gov/me-cfs/programs/multi-site-clinical-assessment.html | title = Multi-site Clinical Assessment of CFS {{!}} Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | date = 2017-07-14 | website = [[Centers for Disease Control and Prevention]]|language=en-us | access-date = 2018-09-07}}</ref> ==Selection criteria== The study's criteria are described as: <blockquote>Any patient (aged 18 β 70 years) that is managed or diagnosed with CFS, post-infective fatigue (PIF) or myalgic encephalomyelitis (ME) at any of the seven participating clinical sites is eligible for participation in this study. Clinicians from each participating clinical site will determine whether a patient has CFS based on their clinical experience and expertise in CFS.<ref>{{Cite web | url = https://www.cdc.gov/me-cfs/programs/multi-site-clinical-assessment.html | title = Multi-site Clinical Assessment of CFS {{!}} Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | date = 2017-07-14 | website = [[Centers for Disease Control and Prevention]]|language=en-us | access-date = 2018-09-07 | last = | first = | archive-url = | archive-date = |url-status = | at=What case definition was used for determining CFS cases?}}</ref></blockquote> Compliance with a specific case definition, such as [[Fukuda criteria]] or [[Canadian Consensus Criteria]] is not necessary. The participating physician may use his or her best judgement as to whether a patient meets the diagnosis. In doing so, the study hopes to be able to identify a consensus about a case definition based on biologic measures, as well as sub-sets of the illness which can individualized treatments.<ref>{{Cite news |url =http://phoenixrising.me/archives/22889 | title = CDC Multi-site Study β An interview with Beth Unger | last = | first = | date = Jan 31, 2014|work=Phoenix Rising | access-date = 2018-09-07| archive-url = | archive-date = |url-status = | language=en-US}}</ref> ==Participating clinical sites== *Pain and Fatigue Study Center, NY - Dr. [[Benjamin Natelson]], Director *Center for Neuro-Immune Disorders, FL (now called [[Institute for Neuro Immune Medicine]]) - Dr. [[Nancy Klimas]], Director *Open Medicine Institute (OMI) consortium **Open Medicine Clinic, CA - Dr. [[Andreas Kogelnik]], Director **Sierra Internal Medicine Associates, NV - Dr. [[Daniel Peterson]], Director **Fatigue Consultation Clinic, UT (now called the [[Bateman Horne Center]]) - Dr. [[Lucinda Bateman]], Medical Director **Hunter-Hopkins Center, NC - Dr. [[Charles Lapp]], Director **Richard Podell Clinic, NJ - Dr. [[Richard Podell]], Director<ref name=":0" /> ==Preliminary data== At the CDC Grand Rounds event in February 2016 Doctor [[Elizabeth Unger]] showed the following slide summarizing the function of the study's patient group. The red markers show normal values for healthy people. The blue boxes represent the range for study participants, with the diamonds showing the study participants' average score. The chart demonstrates near-normal mental health and emotional role functioning, but very poor physical function.<ref>{{Cite web | url = https://www.youtube.com/watch?v=0SnJy5AOSd8 | title = Chronic Fatigue Syndrome: Advancing Research and Clinical Education | last = | first = | date = Feb 19, 2016 | website = YouTube| publisher = Centers for Disease Control and Prevention (CDC)| archive-url = | archive-date = |url-status = | access-date=}}</ref><ref>{{Cite web | url = https://www.cdc.gov/grand-rounds/pp/2016/20160216-presentation-chronic-fatigue-H.pdf | title=CDC PUBLIC HEALTH GRAND ROUNDS Chronic Fatigue Syndrome: Advancing Research and Clinical Education | last = Unger | first = Elizabeth | date = 2016 | website = | publisher = Centers for Disease Control and Prevention| archive-url = | archive-date = |url-status = | access-date=}}</ref> [[File:2016 CDC multi-center study slide.jpg|center]] ==Notable people== *[[Elizabeth Unger]] ==Learn more== * [http://www.cdc.gov/cfs/programs/clinical-assessment/ Centers for Disease Control - Multi-site Clinical Assessment of CFS] * 2013, [http://www.cortjohnson.org/blog/2013/05/11/first-fruits-of-cdc-chronic-fatigue-syndromemulti-clinic-study/ Redefining ME/CFS? CDC Chief Reveals First Fruits of Multi-Center Doctor Study at FDA Stakeholder Meeting] * 2014, [http://solvecfs.org/CDC-Provides-Status CDC Provides Status Updates on ME/CFS Work] * 2014, [http://phoenixrising.me/archives/22889 CDC Multi-site Study β An interview with Beth Unger] *2014, [https://www.youtube.com/watch?v=Ulkc_GKtxhI Methodology for the CDC Multi-site Clinical Study] *2014, [http://www.cfscentral.com/2014/07/is-cdc-out-to-bury-pem.html Is CDC Out to Bury PEM?] ([[Mindy Kitei]]) *2014, [http://simmaronresearch.com/2014/11/going-grassroots-dr-unger-cdcs-chronic-fatigue-syndrome-multisite-studies/ The CDCβs Chronic Fatigue Syndrome Multisite Studies] *2016, [http://www.shoutoutaboutme.com/symptoms/cdc-study-finds-cfs-is-physical-not-mental/ CDC study finds CFS is physical, not mental] *2016, [http://simmaronresearch.com/2016/02/hear-more-on-tuesday-about-nih-study-during-cdcs-grand-rounds/ Hear More on Tuesday about NIH study during CDCβs Grand Rounds] ==See also== *[[Centers for Disease Control and Prevention]] *[[NIH Post-Infectious ME/CFS Study]] ==References== {{Reflist}} [[Category:Notable studies]]
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