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Blue Ribbon Awareness for ME
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{{stub}} The '''Blue Ribbon for the Awareness of M.E.''' (BRAME) is a voluntary organisation for people with Myalgic Encephalomyelitis in the UK. BRAME was founded by, and is run by, [[Tanya Harrison]], who has [[Severe and very severe ME|severe Myalgic Encephalomyelitis]], and [[Christine Harrison]], her 24/7 carer.<ref name=":0">{{Cite web | url = http://www.brame.org/about.html | title = About BRAME | website = brame.org | access-date = 2018-10-21}}</ref><ref>{{Cite web | url = http://www.brame.org | title = BRAME Home | website = brame.org | access-date = 2018-10-21}}</ref> ==Aims== * To create awareness and understanding that ME/CFS is a very real, and for many, a very debilitating illness. * To publicise and create awareness of the severity and widespread nature of the illness. * To publicise and create awareness of the consequences of living with ME/CFS for the sufferer, carer and the whole family unit and to highlight their needs. * To generally offer support, understanding and friendship to those affected by ME/CFS. * Through publicity reach as many sufferers and carers of ME/CFS as possible, as they often feel quite isolated by the debilitation of the ME/CFS, and the scepticism they often face. * To stimulate discussion and subsequent understanding of ME/CFS. * To increase awareness of ME/CFS amongst ** members of the medical profession ** educationalists ** employers ** politicians ** society in general * To promote the international links with individuals, groups, medical professionals and researchers in ME/CFS or ME/CFS linked illnesses. * To support, help and develop the BRAME campaign around the world using the Blue Ribbon and BRAME enamel badge as universal symbols to create a greater awareness and understanding of ME/CFS.<ref name=":0" /> ==Services== ==Notable people== * [[Tanya Harrison]] * [[Christine Harrison]] ===Patrons=== * [[Countess of Mar]] ===Medical advisors=== ==Advocacy== [[Tanya Harrison]] was part of the [[NICE guidelines]] review in 2007. She resigned from the review committee shortly before the controversial guidelines were published, stating she felt unable to agree with them.<ref>{{Cite web | url = http://www.brame.org/contact2.html | title = Personal response to the NICE guidelines, BRAME | last = Harrison | first = Tanya | author-link = Tanya Harrison | date = 2008 | website = | archive-url = | archive-date = |url-status = | access-date=}}</ref> ==Research/Notable studies== ==History== BRAME was founded in 1995. ==Funding== ==Interviews and articles== ==Online presence== * [http://www.brame.org Website] *Twitter *Facebook (group/page) *YouTube channel *Instagram *LinkedIn ==See also== * [[Severe and very severe ME]] * [[NHS]] * [[:Category:British patient groups|British patient groups]] ==Learn more== *Wikipedia ==References== {{Reflist}} [[Category:Patient groups]] [[Category:British patient groups]]
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