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Beth Mazur
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{{NeedsImage}} [[Beth Mazur]] (1976-2023) was an American patient advocate and co-founder of #[[MEAction]] with [[Jennifer Brea]], and HealClick, a website for patients with chronic illnesses. Beth Mazur died suddenly on December 22nd, 2023, at the age of 47, while visiting close friend and patient advocate [[Julie Rehmeyer]].<ref name="honoringBeth">{{Cite web| url = https://virology.ws/2023/12/24/trial-by-error-julie-rehmeyer-on-the-heartbreaking-loss-of-beth-mazur/ | title = Trial By Error: Julie Rehmeyer on the Heartbreaking Loss of Beth Mazur | website = [[Virology blog]] | first = Julie Rehmeyer | authorlink = Julie Rehmeyer | first2 = David | last2 = Tuller | authorlink2 = David Tuller | date = 24-12-2023}}</ref> She had previously taken a leave of absence due to her health. ==Education== Mazur attended [[MIT]], earning a Bachelor’s in Computer Science and Electrical Engineering.<ref name=":0">{{Cite web|url=https://www.meaction.net/about/board/|title=#MEAction Board & Advisors|website=#MEAction Network|language=en-US|access-date=2023-12-22}}</ref> ==Career== Mazur was a technologist for non-profits and start-ups.<ref name=":0" /> Prior to developing [[myalgic encephalomyelitis|ME]] and [[postural orthostatic tachycardia syndrome|POTS]], she worked as a developer and technical product manager for organizations including HealClick, Grameen Foundation, and Jaspersoft.<ref name=":0" /> She served on San Francisco’s Voting Systems Task Force, advising the city on its voting system.<ref name=":0" /> ==ME/CFS== Beth Mazur developed M.E. in the late 2000s, when she was in her early 30s. She tried hundred of different treatments to try to cure her illness or to improve her symptoms and quality of life, and was described as having an unsurpassed level of scientific understanding of ME by fellow patient advocate Julie Rehmeyer. Beth had profound [[cognitive dysfunction]] and neurocognitive symptoms, and she found all speech, listening, and thinking extremely difficult. Beth Mazur lived with ME for fifteen years, and developed secondary [[depression]] and [[anxiety]], which she also had treatment for, in addition to both ME and POTS. Beth passed away by [[suicide]] in December 2023, and was reported to have planned her passing long before that, but without sharing her plans.<ref name="honoringBeth"/> ==Writing== • With [[Brian Vastag]]. [https://www.washingtonpost.com/health/could-covid-19-cause-long-term-chronic-fatigue-and-illness-in-some-patients/2020/05/29/bcd5edb2-a02c-11ea-b5c9-570a91917d8d_story.html "Researchers warn covid-19 could cause debilitating long-term illness in some patients"]. ''The Washington Post''. May 30, 2020. ==Online presence== *[https://www.linkedin.com/in/beth-mazur-b45367 LinkedIn] (PSA the LinkedIn will be removed since they do NOT keep nonliving profiles in their database, so please take a screenshot if Beth's online presence meant a lot to you!) ==News articles and blogs== * Dec 22, 2023, [https://www.meaction.net/2023/12/22/sad-news-from-our-community/ Sad News From Our Community — Content Warning] - #MEAction ==Obituary == * [https://www.meaction.net/2024/01/10/beth-mazur-celebration-of-life-service/ Beth Mazur - Memorial Service and Obituary] - [[Brian Vashtag]] * Dec 24, 2023, [https://virology.ws/2023/12/24/trial-by-error-julie-rehmeyer-on-the-heartbreaking-loss-of-beth-mazur/ Trial By Error: Julie Rehmeyer on the Heartbreaking Loss of Beth Mazur] - by [[Julie Rehmeyer]] and [[David Tuller]] ==Resources == * [https://www.meaction.net/support-and-crisis-resources/ NEED HELP? Support and Crisis Resources] - MEAction ==References== {{Reflist}} [[Category:People with ME, CFS, and/or FMS]] [[Category:Advocates or allies]] [[Category:Deceased people with ME, CFS, and/or FMS]]
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