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{{NeedsImage}} The '''British Association for CFS/ME''' (BACME) is a multidisciplinary organisation for professionals in the [[UK]] who are "involved in the evidence-based management of patients with [[CFS/ME]]".<ref>{{Cite web | url = http://www.bacme.info | title = BACME | last = | first = | author-link = | date = | website = bacme.info| archive-url = | archive-date = |url-status = | access-date=}}</ref> BACME has a close relationship with the [[UK CFS/ME Research Collaborative|UK CMRC]].<ref name=":0" /> ==Aims== BACME states that its purpose is to "promote and support the delivery of evidence-based treatment for children, young people, and adults with CFS/ME in the UK". ==BACME Executive == The BACME Executive included the following members in 2018 * [[Gabrielle Murphy]] (Chair), [[Christine Oliver]] (Treasurer), [[Zoe Clyde]], [[Kelly Morris]], [[Jenny McClure]], [[Susan Brennan]], [[Caroline Day]], [[Tessa Carder]], [[Mike Nutt]], [[Ceri Rutter]], [[Deb Roberts]], [[George Hampson]], [[Helen Ayres]], [[Sara Young]], [[Kirsty Northcot]], [[Charlie Adler]], [[Debbie Smith]], [[Colette Foster]], [[Anne McArdle]], [[Gina Wall]], [[Nicola Dawson]], [[Amy Smith]], [[Rachael Rogers]], [[Mandy Neophytou]], [[Vikki Eglinton]], [[Natalie Gadsby]], [[Nicky Patterson]], [[Lynsey Cobane]], [[Sheena Spence]], [[Anne Abey]], [[Deborah Renwick]], [[Lynsey Woodman]], [[Anne Cossins]], [[Helen Clucas]], [[Wilma Hudson]], [[Nikki Perry]], [[Jo Robert]], [[Claire Moss]], [[Mike Beadsworth]].<ref name="AGM2018">{{Cite web | url = https://www.bacme.info/system/files/members/news/BACME%20AGM%20minutes%20150318.docx | title = BRITISH ASSOCIATION FOR CFS/ME (BACME) Minutes of General Meeting, Liverpool. 15th March 2018 | last = | author-link = |url-access=limited | date = Apr 2018|access-date= | website = bacme.info | first = |archive-url=|archive-date=|url-status=}}</ref> The BACME Executive aims to have representatives from each of the following professions: *clinical psychologists *dieticians *GPs *liaison psychiatrists *doctors *nurses *occupational health practitioners * occupational therapists *physiotherapists * or other primary care workers<ref name="constitution">{{Cite web | title = The Constitution of the British Association for Chronic Fatigue Syndrome/ME (BACME) | date = Oct 2013 | url = https://www.bacme.info/sites/bacme.info/files/pdf/bacme-constitution.pdf | access-date=2018-01-24 | last = | website = bacme.info | first = | author-link = |archive-url=|archive-date=|url-status=}}</ref> According to the constitution, the BACME aims to have representatives in each of the following areas: Northern, North, East & West Yorkshire, Liverpool & Mersey, Greater Manchester, South Yorkshire & North Derbyshire, East Midlands, West Midlands & Birmingham, East Anglia, North London & Essex & Sussex & Hertfordshire, South West London & Surrey (Sutton), Dorset & Hampshire & Isle of Wight, Avon & Wiltshire & Somerset, South-West Peninsula (Cornwall and Devon).<ref name="constitution" /> ==BACME Members== In 2018, BACME reported that it had 131 members.<ref name=":1">{{Cite web | url = https://www.bacme.info/system/files/members/news/BACME%20AGM%20minutes%20150318.docx | title = Minutes of General Meeting, Liverpool. 15th March 2018, 12.30 P.M. | last = | first = | author-link = | date = | website = bacme.info|url-access=limited| archive-url = | archive-date = |url-status = | access-date=Jan 9, 2019}}</ref> The current Chair of BACME is [[Gabrielle Murphy]]. Other notable members include [[Esther Crawley]], who both presented at the BACME 2018 annual conference, [[PACE trial]] author [[Lucy Clark|Lucy V Clark]], and [[NICE guidelines]] review committee members [[Gabrielle Murphy]] and [[Mike Beadsworth]].<ref name=":1" /> Membership is open to clinicians and researchers, including psychologists, medical doctors, managers, students and physiotherapists.<ref name=":0">{{Cite web | url = https://www.bacme.info/sites/bacme.info/files/file-attachments/Master%20Membership%20form_2018_YOURNAME.doc | title = BACME membership form | last = | first = | author-link = | date = | website = bacme.info| archive-url = | archive-date = |url-status = | access-date=2019-01-13}}</ref> ==BACME influence on NHS and NICE== The BACME were stakeholders in the 2007 and 2017 [[NICE guidelines]] consultations. The Guideline Development Group (GDG) that produced the 2007 NICE guidelines included [[Esther Crawley]], who was BACME Chair. The current NICE guidelines review group, due to publish the revised guidelines in 2021, includes BACME executive member [[Mike Beadsworth]] and current Chair [[Gabrielle Murphy]], and may include other BACME members. == Biopsychosocial model == BACME promotes the controversial [[NICE guidelines]], which strongly recommend [[Cognitive behavioral therapy|Cognitive Behavioural Therapy (CBT)]] and [[Graded exercise therapy|Graded Exercise Therapy (GET)]] based on the biopsychosocial model of [[ME/CFS]], both these treatments are very unpopular with patients and patient groups.<ref>{{Cite web | url = https://www.bacme.info/sites/bacme.info/files/file-attachments/BACME%20Therapy%20&%20Symptom%20Management%20Guide.pdf | title=Therapy and Symptom Management Guide | last = | first = | author-link = | date = | website = bacme.info| archive-url = | archive-date = |url-status = | access-date=2019-01-13}}</ref> A patient survey commissioned by NICE in 2019 found very few patients improved with [[graded exercise therapy]], and more patients found it harmful than neutral or helpful. The same patient survey found that most patients found CBT ineffective, some found it harmful and only a minority of patients found it helpful.<ref name="OxfordBrookesSurvey">{{Cite web |url = https://www.meassociation.org.uk/wp-content/uploads/NICE-Patient-Survey-Outcomes-CBT-and-GET-Final-Consolidated-Report-03.04.19.pdf | title =Evaluation of a survey exploring the experiences of adults and children with ME/CFS who have participated in CBT and GET interventional programmes. FINAL REPORT | last = Oxford Clinical Allied Technology and Trials Services Unit (OxCATTS)|location=Oxford Brookes University | date = Feb 27, 2019}}</ref> <ref>{{Cite web | url = https://meassociation.org.uk/2019/04/forward-me-and-oxford-brookes-university-announce-results-of-patient-survey-on-cbt-and-get-in-me-cfs-03-april-2019/ | title = Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | last = The ME Association | first = | author-link = ME Association | date = April 3, 2019 | website = ME Association|language=en-GB| archive-url = | archive-date = |url-status = | access-date=2020-10-27}}</ref> Previous patient surveys have found similar results.<ref name="Nodecisions">{{Cite web | url = http://www.meassociation.org.uk/wp-content/uploads/2015-ME-Association-Illness-Management-Report-No-decisions-about-me-without-me-30.05.15.pdf | title=ME/CFS Illness Management Survey Results - βNo decisions about me without meβ Part 1 | last = | first = | date = May 2015 | website = meassociation.org| publisher = ME Association| archive-url = | archive-date = |url-status = | access-date=}}</ref> ==ME/CFS position statement== BACME unexpectedly released a ME/CFS position paper in October 2020, shortly before the publication of the draft of the UK's revised NICE guidelines.<ref name=Oct2020>{{Cite web |url = https://www.bacme.info/sites/bacme.info/files/BACME%20Position%20Paper%20on%20the%20Management%20of%20ME-CFS%20October%202020.pdf | date = Oct 2020 | last = BACME | title = Position Paper on the management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)}}</ref> This position statement announced that BACME no longer supported the [[deconditioning]] theory of ME/CFS, which is part of the [[biopsychosocial model]] and is widely regarded as the primary justification for [[graded exercise therapy]] and CBT.<ref name=Oct2020 /> {{Quote frame | title = |source =ME/CFS Position Paper on the Management of Myalgic Encephalomyelitis/<wbr>Chronic Fatigue Syndrome (October 2020) | author = BACME|quote=BACME does not support the deconditioning model of ME/CFS as a primary cause for the condition. It is recognised that deconditioning may be, for some, an additional complicating factor of living with any disabling chronic health condition.}} ==Contact details == * [http://www.bacme.info Website] ==Learn more == * [https://www.bacme.info/sites/bacme.info/files/BACME%20Position%20Paper%20on%20the%20Management%20of%20ME-CFS%20October%202020.pdf ME/CFS Position Paper (Oct 2020)] - BACME *[https://www.bacme.info/sites/bacme.info/files/file-attachments/BACME%20Therapy%20&%20Symptom%20Management%20Guide.pdf Therapy and Symptom Management Guide] - BACME ==See also == * [[National Health Service |NHS]] * [[NICE guidelines]] * [[Cognitive behavioral therapy]] * [[Graded exercise therapy]] ==References == {{Reflist}} [[Category:Organizations]] [[Category:Organizations based in the United Kingdom]]
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