Access to benefits
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
 | This article is a stub. |
Access to disability benefits can be difficult for patients with ME/CFS. This is due to a range of factors including discrimination, poor public understanding, and the fluctuating nature of the condition.
UK[edit | edit source]
- A report by Action for ME found that despite 97% of patients experiencing difficulty with two or more daily activities listed in the Care Act 2014 for England, only 16% had received social care assessments, and only 6% had been awarded a care package.[1]
- "Barriers to self-referral and fair assessment included:
- lack of clear information about social care process and entitlements (58% of respondents)
- cognitive and communication difficulties preventing engagement with social care processes (47% of respondents)
- social care processes ill-adjusted to the very poor stamina of people with M.E./CFS
- misunderstanding, misinformation and stigma surrounding the label of M.E./CFS acted as a deterrent to asking for help for 38% of respondents and was also perceived to impact on the fairness of assessments and the type of support provided."[2]
USA[edit | edit source]
Learn more[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
- ↑ https://www.actionforme.org.uk/uploads/pdfs/close-to-collapse-report-UPDATED.pdf
- ↑ https://www.actionforme.org.uk/uploads/pdfs/close-to-collapse-report-UPDATED.pdf
- ↑ Silver, Lily (April 17, 2017). "The Sleepy Girl Guide to Social Security Disability (U.S.)". #MEAction. Retrieved February 2, 2019. Cite has empty unknown parameter:
|dead-url=(help)
