Access to benefits: Difference between revisions

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Access to disability benefits can be difficult for patients with [[ME/CFS]]. This is due to a range of factors including discrimination, poor public understanding, and the fluctuating nature of the condition.
'''Access to disability benefits''' can be difficult for patients with [[ME/CFS]]. This is due to a range of factors including discrimination, poor public understanding, and the fluctuating nature of the condition.


==UK==
==UK==

Revision as of 22:51, February 2, 2019

Access to disability benefits can be difficult for patients with ME/CFS. This is due to a range of factors including discrimination, poor public understanding, and the fluctuating nature of the condition.

UK[edit | edit source]

  • A report by Action for ME found that despite 97% of patients experiencing difficulty with two or more daily activities listed in the Care Act 2014 for England, only 16% had received social care assessments, and only 6% had been awarded a care package.[1]
  • "Barriers to self-referral and fair assessment included:
    • lack of clear information about social care process and entitlements (58% of respondents)
    • cognitive and communication difficulties preventing engagement with social care processes (47% of respondents)
    • social care processes ill-adjusted to the very poor stamina of people with M.E./CFS
    • misunderstanding, misinformation and stigma surrounding the label of M.E./CFS acted as a deterrent to asking for help for 38% of respondents and was also perceived to impact on the fairness of assessments and the type of support provided."[2]

USA[edit | edit source]

Preparing For Your Social Security Disability Hearing: What To Expect By Michles Booth (2015)

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]