25 Percent ME Group: Difference between revisions

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[[File:25 Percent ME Group logo.jpg|right|thumb]]
[[File:25 Percent ME Group logo.jpg|right|thumb]]


The [http://www.25megroup.org/home.html 25% ME Group] is a UK support group set up to care for the most severely affected ME patients.<ref>{{Cite web|url=https://25megroup.org/|title=25% M.E. Group - Supporting Those With Severe M.E.|website=25% M.E. Group|language=en-US|access-date=2019-07-16}}</ref> They also founded the annual [[Severe ME Awareness Day]] on August 8th.<ref>http://www.25megroup.org/campaigning_Severe_ME_Day.html</ref>
The [https://25megroup.org 25% ME Group] is a UK support group set up to care for the most severely affected ME patients.<ref>{{Cite web | url = https://25megroup.org/ | title = 25% M.E. Group - Supporting Those With Severe M.E. | website = 25% M.E. Group|language=en-US | access-date = 2019-07-16}}</ref> They also founded the annual [[Severe ME Awareness Day]] on August 8th.<ref>{{Cite web | url = https://25megroup.org/download/1798/?v=2880 | title = Severe Myalgic Encephalomyelitis Day of Understanding and Rememberance Day (8th August) | last = | first = | author-link = | date = | website = 25% ME Group| archive-url = | archive-date = |url-status = | access-date=}}</ref>


== Aims ==
== Aims ==
The 25% M.E. Group exists to support all who have the severe form of M.E. and those who care for them. This includes people who are housebound, bedbound and wheelchair users.<ref>http://www.25megroup.org/aboutGroup.html</ref>
The 25% M.E. Group exists to support all who have the severe form of M.E. and those who care for them. This includes people who are housebound, bedbound and wheelchair users.<ref>{{Cite web | url = https://25megroup.org/about-us | title = About Us | website = 25% M.E. Group|language=en-US | access-date = 2020-10-31}}</ref>


== Funding ==
== Funding ==
The group relies on funding through individual donations.<ref>http://www.25megroup.org/fundraising.html</ref> It is a registered charity (#SC034265) with the Scottish Charity Regulator.
The group relies on funding through individual donations.<ref>{{Cite web | url = https://25megroup.org/fundraising | title = Fundraising | website = 25% M.E. Group|language=en-US | access-date = 2021-03-01}}</ref> It is a registered charity (#SC034265) with the Scottish Charity Regulator.


== Notable people ==
== Notable people ==
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*Dr [[Vance Spence]] is scientific advisor
*Dr [[Vance Spence]] is scientific advisor
*Prof [[Malcolm Hooper]] is MCS scientific advisor
*Prof [[Malcolm Hooper]] is MCS scientific advisor
*Dr [[Betty Dowsett]] was formerly medical advisor<ref>http://www.25megroup.org/advisors.html</ref>
*Dr [[Betty Dowsett]] was formerly medical advisor<ref>{{Cite web | url = https://25megroup.org/patrons-trustees-advisers | title = Patrons, Trustees, Advisers | website = 25% M.E. Group|language=en-US | access-date = 2021-03-01}}</ref>


== History ==
== History ==
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==Notable articles ==
==Notable articles ==
* [https://25megroup.org/download/2527/ KNOWLEDGE IN THE HOPE OF PROTECTING M.E. SUFFERERS FROM UNNECESSARY SECTIONING]<ref name="PreventUnnecessarySectioning">{{Cite web|url=https://25megroup.org/download/2527/|title=KNOWLEDGE IN THE HOPE OF PROTECTING M.E. SUFFERERS FROM UNNECESSARY SECTIONING|last2=25% ME Group|first2=|author-link2=25 Percent ME Group|last=The Grace Charity for M.E.|first=|authorlink=The Grace Charity for M.E.|date=Jan 2019|website=|archive-url=|archive-date=|dead-url=|access-date=2019-07-12}}</ref> - Preventing the unnecessary forced mental health sectioning of severely ill patients - [[The Grace Charity for M.E.]] with 25% ME Group
* [https://25megroup.org/download/2527/ KNOWLEDGE IN THE HOPE OF PROTECTING M.E. SUFFERERS FROM UNNECESSARY SECTIONING]<ref name="PreventUnnecessarySectioning">{{Cite web | url = https://25megroup.org/download/2527/ | title = KNOWLEDGE IN THE HOPE OF PROTECTING M.E. SUFFERERS FROM UNNECESSARY SECTIONING | last2 = 25% ME Group | first2 = | author-link2 = 25 Percent ME Group | last = The Grace Charity for M.E. | first = | author-link = The Grace Charity for M.E. | date = Jan 2019 | website = |archive-url=|archive-date=|url-status= | access-date = 2019-07-12}}</ref> - Preventing the unnecessary forced mental health sectioning of severely ill patients - [[The Grace Charity for M.E.]] with 25% ME Group
* [https://25megroup.org/me/symptoms Severe ME symptoms]
* [https://25megroup.org/me/symptoms Severe ME symptoms]- The 25% ME Group


== Online Presence ==
== Online presence ==
*[http://www.25megroup.org/home.html Website]
*[https://25megroup.org Website]
* Address: 
:PO Box 8620   
:Troon   
:Ayrshire   
:KA10 9BL


== See also ==
== See also ==
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== References ==
== References ==
{{Reflist}}


[[Category:Patient groups]]
[[Category:Patient groups]]
[[Category:British patient groups]]
[[Category:British patient groups]]
<references />
[[Category:Scottish patient groups]]

Latest revision as of 18:55, April 1, 2023

25 Percent ME Group logo.jpg

The 25% ME Group is a UK support group set up to care for the most severely affected ME patients.[1] They also founded the annual Severe ME Awareness Day on August 8th.[2]

Aims[edit | edit source]

The 25% M.E. Group exists to support all who have the severe form of M.E. and those who care for them. This includes people who are housebound, bedbound and wheelchair users.[3]

Funding[edit | edit source]

The group relies on funding through individual donations.[4] It is a registered charity (#SC034265) with the Scottish Charity Regulator.

Notable people[edit | edit source]

History[edit | edit source]

PACE Trial[edit | edit source]

On February 10, 2016 an open letter was submitted to Queen Mary University London requesting compliance with Freedom of Information request for release of PACE trial data.[6]

Notable articles[edit | edit source]

Online presence[edit | edit source]

PO Box 8620
Troon
Ayrshire
KA10 9BL

See also[edit | edit source]

References[edit | edit source]

  1. ↑ "25% M.E. Group - Supporting Those With Severe M.E." 25% M.E. Group. Retrieved July 16, 2019.
  2. ↑ "Severe Myalgic Encephalomyelitis Day of Understanding and Rememberance Day (8th August)". 25% ME Group.
  3. ↑ "About Us". 25% M.E. Group. Retrieved October 31, 2020.
  4. ↑ "Fundraising". 25% M.E. Group. Retrieved March 1, 2021.
  5. ↑ "Patrons, Trustees, Advisers". 25% M.E. Group. Retrieved March 1, 2021.
  6. ↑ Open Letter - TO: QMUL RE: PACE Trial DATE: February 10, 2016
  7. ↑ The Grace Charity for M.E.; 25% ME Group (January 2019). "KNOWLEDGE IN THE HOPE OF PROTECTING M.E. SUFFERERS FROM UNNECESSARY SECTIONING". Retrieved July 12, 2019.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.

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