File:Rosa SEID.JPG

TITLE: Rosa age 25 in 1986, when she believes she would have met the SEID criteria developed in 2015.

Source: Image and information contributed by Rosa

Author: Friend of Rosa

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Rosa age 25 in 1986, when she believes she would have met the Systemic Exertion Intolerance Disease (SEID) criteria developed in 2015. She became worse over the years and in 2003 was diagnosed and disabled with chronic fatigue syndrome (CFS). She now meets the Canadian Consensus Criteria (CCC) criteria with PEM "option". ME/CFS onset was age 17 and fibromyalgia since puberty.

In 2015 the SEID criteria were released. Rosa read about PEM and how it is delayed and makes ME/CFS symptoms like CF, OI, and cognition worse. Her life since age 17 fell into place as she never connected her worsening symptoms with increased physical or mental activity 24-72 hours prior. She believes not understanding PEM made her condition worsen over the years and is now disabled meeting the CCC with PEM "option"

She believes not understanding PEM made her condition worsen over the years and is now disabled.