List of news articles on ME and CFS

By: Patients and Patient Advocates
'''I'm disabled. Can NIH spare a few dimes?'''

Washington Post: To Your Health section reprints Open Letter By: Brian Vastag.

"Three years ago, a sudden fever struck me on a blue-sky Wisconsin morning. I've been sick ever since. On my third “illiversary,” I presented an opportunity to Francis Collins, the head of the NIH:"

Huddersfield woman Nathalie Wright talks about the misery of living with ME

The Huddersfield Daily Examiner By: Nathalie Wright

"In this thought provoking first person feature Huddersfield 22-year-old Nathalie Wright reveals how her life has been devastated by the crippling illness ME. Nathalie grew up in Pole Moor above Slaithwaite, went to Wilberlee Primary School, Crossley Heath School in Halifax and then Greenhead College. Day and night became indistinguishable"

Hope For Chronic Fatigue Syndrome

SLATE: Health and Science Section By: Julie Rehmeyer

"The debate over this mysterious disease is suddenly shifting."

'No one chooses to have ME - everything changed when I became ill'

Independent.IE: Life Health Features Section By: Tom Kindlon

"As a new study suggests that ME can be beaten through therapy and exercise, long-term sufferer Tom Kindlon says it's not that simple"

What it's like to live with severe ME

The Telegraph By: Naomi Whittingham

"Ordinarily, illness is measured in days or weeks; and for the unfortunate months or even years. Then there are those of us for whom illness, pain and suffering is measured in decades. This is my twenty-fifth year of being ill: a quarter of a century spent mostly in housebound, bed-bound isolation."

Viewpoint: Telling the hidden story of chronic fatigue syndrome

USA Today: College By: Ryan Prior

"Seven months ago I wrote a story for USA TODAY College that changed the direction of my life.

I wrote of my six-year struggle with a little-known illness called Chronic Fatigue Syndrome (also called Myalgic Encephalomyelitis)."

Favourite place: Reminder never to take health for granted

Leamington Observer By: Laura Kearns

"MY FAVOURITE place isn’t particularly awe-inspiring, or even beautiful, but to me it is a reminder never to take your health for granted.

It is a small field behind my house on the outskirts of Nuneaton, not much bigger than half a football pitch.

But after months of being stuck in the house – which felt more like a prison – this field was the first place I visited, and where I felt my health was turning for the better."

A disease that causes debilitating exhaustion affects more than a million Americans, and no one's addressing it

Business Insider STAT By: Rivka Solomon

"It started with a bout of mononucleosis. Two college roommates and I got it at the same time. They felt better after a month. I didn’t."

By: Advocates
A job for a lone Congress member: Speak up for a forgotten disease

The Hill Congress Blog By: Llewellyn King

"The cause is research on Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome -- and often known by both sets of initials as ME/CFS. It's a disease I know quite a lot about because I've been writing and broadcasting about it for the last five years."

Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped at 14,000 Words-Enough Was Enough

California Magazine: By: David Tuller

"Years ago, I never thought to myself, ‘Hey, I’ve gotta be the guy who writes about chronic fatigue syndrome.’ I mean, why would I? It just sort of happened. When research suggested in 2010 that the illness might be linked to a mouse retrovirus, I wrote a piece about it for The New York Times.

After that I wrote another story, and then more stories, and then a few more—probably a dozen or so in all. But within a couple of years the mouse retrovirus hypothesis fell apart. And media interest in the illness vanished."

ME – the truth about exercise and therapy

The Guardian: By: Jane Colby "However, in the latest study of GET and Cbt for people with chronic fatigue syndrome, researchers concluded that the treatment resulted in worse physical function and bodily pain scores (Clinical Rheumatology, 15 January 2011)."

About ME/CFS and Patients
Is This Why You're Still So Tired?

"O" Magazine By: Cheryl Platzman Weinstock

"Chronic Fatigue Syndrome finally gets its due."

Chronic fatigue syndrome recognized at last

San Francisco Chronicle By: Rivka Solomon

"After 30 years of neglect, the federal government promised late last month to bolster research on myalgic encephalomyelitis/chronic fatigue syndrome — the equivalent of promising to help multiple sclerosis or Parkinson’s, two other important neurological diseases with no known cause or cure."

The Tragic Neglect of Chronic Fatigue Syndrome

The Atlantic By: Olga Khazan

"It leaves people bed-bound and drives some to suicide, but there's little research money devoted to the disease. Now, change is coming, thanks to the patients themselves."

With his son terribly ill, a top scientist takes on chronic fatigue syndrome

The Washington Post Health & Science By: Miriam E. Tucker

"Before he got sick, Whitney Dafoe was an award-winning photographer and a world traveler. He’d helped build a nunnery in India, ridden a motorcycle in the Himalayas and visited all 50 American states.

He also worked on Barack Obama’s 2008 presidential campaign, and although he was already ill by January 2009, pushed himself to travel to Washington from his California home to photograph the inauguration."

Jennifer Brea ’05: Shooting Pain - Struggling to capture life with chronic fatigue [sic] on film in Canary in a Coal Mine

Princeton Alumni Weekly By: Dorian Rolston '10

"One warm day last March, Jennifer Brea ’05 rose from her bed, walked out onto her deck, and lay down. It was a modest outing for someone who had been confined indoors for five months. Brea suffers from Myalgic Encephalomyelitis, a form of chronic fatigue that is inexplicably crippling and easily exacerbated. To capture what life is like for those with the disease, she is directing Canary in a Coal Mine, a feature-length documentary that is scheduled to be released in 2017."

Why it will take more than exercise and a positive attitude to help people with Chronic Fatigue Syndrome

Belfast Telegraph: By Kerry McKittrick

"After a psychiatrist sparked controversy by suggesting exercise and a positive attitude could help people recover from this chronic condition, two sufferers explain why it will take more than that."

ME is often dismissed – but sufferers like Emily Collingridge are dying

The Guardian: Opinion By: Scott Jordan Harris

"How many young people have to die before 'chronic fatigue syndrome' merits properly funded biomedical research?"

Laura Hillenbrand releases new book while fighting chronic fatigue syndrome

The Washington Post By: Monica Hesse

"Then there are the more recent wins. The time she managed to take an entire shower standing up. The time she and her husband, Borden Flanagan, drove to the alley at the end of their block so she could see something other than the cemetery behind their yard, and the time, a few weeks later, that they drove all the way to Starbucks. Sat in the parking lot. Drove home."

The Unbreakable Laura Hillenbrand

The New York Times By: Wil S. Hylton

"Since 1987, Hillenbrand has been sick with chronic fatigue syndrome, which has mostly confined her indoors for the last quarter century."

It's time for doctors to apologize to their ME patients - For too long the medical community has dismissed 'Chronic Fatigue Syndrome' as a mental illness which can be cured with therapy and exercise

The Telegraph By: Dr. Charles Shepherd

"The mud from the BMJ stuck. Like most doctors at the time, I left medical school believing that ME was not a real disease and I would probably never see a case. I was wrong."

Dear Graham Norton: I have M.E. and can't stop being jealous of friends

The Telegraph By: Graham Norton

"I’m sure you are getting the medical treatment you need but depression can often be associated with conditions such as yours, so make sure you are talking to someone about that alongside your M.E."

Finanacial hardships of chronic illness

The Dominion Post By: Caitlin Slater

"In 1983, when Coddington was a high-achieving university student, she was struck down by a sudden flu-like illness. Years later she is still suffering. Her condition is called myalgic encephalomyelitis (ME) which followed a viral infection. Like Fibromyalgia, there is no cure for ME and no universally effective treatment."

I've gone from a super-fit party girl to being almost bedridden at 33

Liverpool Echo News By: Dawn Collinson

"Just 18 months ago, Faye Dempsey had a career, ran up to eight miles a day and loved a night out with friends. Now, she says, she's like a prisoner in her own body, wracked with pain so badly there are days when she is virtually bedridden."

ME/CFS is 'poor relation' of other neurological conditions say Worcestershire campaigners

Worcester News By: James Connell

"A DEBILITATING condition which feels like 'permanent flu' is being treated as 'the poor relation' of other neurological conditions say frustrated sufferers in Worcestershire."

‘Chronic Fatigue Syndrome isn’t What You Think it is, it’s Much Worse’

Huffpost Healthy Living By: Stephanie Land

"I found out recently an old friend of mine, Whitney Dafoe, has a severe disease. He’d posted on his website that he was sick, but when he’d said “Chronic Fatigue Syndrome,” I thought that meant normal or mundane tasks overly exhausted him and that was the end of his affliction. I thought he’d get over it, eventually. The last message I’d received from him said, “Can’t type,” and from that point he sent little red hearts and links to songs by John Prine. That was Thanksgiving of 2014."

Is chronic fatigue syndrome finally being taken seriously?

The Guardian By: David Cox

"CFS is believed to affect around 1 million Americans and approximately 250,000 people in the UK. The effects can be devastating."

Fatigue illness inspires documentary by filmmaker from Warner Robins

The Telegraph By: Michael W. Pannell

"While some still imagine the disease is "all in your head," Prior and others know otherwise. He said some cope with a measure of their former lives intact, but others enter a hidden existence of desperation and suffering."

Chronic Fatigue Syndrome (ME/CFS): Uncovering a Mystery

Healthy Magazine - Lifestyle - Wellness By: Michael Richardson

"When the media talks about a mystery illness, it’s often in reference to some obscure disease with a horrific symptom. But there is an elusive, misunderstood illness that affects more than a million Americans of all ages, and researchers are hustling to get a grip on it, to create better pathways of care."

Be Aware and Beware: Chronic Fatigue Syndrome Is an Equal Opportunity Disease

HuffPost - Healthy Living By: Maureen Hanson

"Two notorious outbreaks in the mid-1980s each affected hundreds of people. One was in a prosperous community at the edge of Lake Tahoe and another in a less affluent farming community near Lake Ontario. Most victims near Lake Tahoe were adults; most near Lake Ontario were children. Today, while some of the children have recovered to some degree, many of the adults remain very ill 30 years later."

Declan Vallance’s desperate search for a cure to mystery illness

Geelong Advertiser By: Bethany Tyler

"A MISUNDERSTOOD illness has progressively crippled a young Barwon Heads man who has spent the past four years searching for a cure.

The extreme pain and fatigue started when Declan Vallance was at university, and has gradually robbed movement from the 24-year-old by sapping energy from his arms, legs and now his vocal chords."

The puzzle solver - A researcher changes course to help his son

Stanford Medicine By: Tracie White

"For three years, Whitney Dafoe’s world has been a darkened room at the end of a hallway in the back of his childhood home. An insidious disease, one with no known cause or cure, has slowly stolen his life from him, turning his body into a prison."

ME/CFS Science
Brains of People With Chronic Fatigue Syndrome Offer Clues About Disorder

New York Times: Well Section By: David Tuller

Brain Scans by Dr. Jose Montoya, Dr. Michael Zeineh and colleagues at Stanford University.

NIH announces new effort to tackle chronic fatigue syndrome

The Washington Post To Your Health By: Lenny Bernstein

"The National Institutes of Health announced a new initiative Thursday to find the cause and a treatment for chronic fatigue syndrome, the mysterious, debilitating condition that disables many of its more than 1 million Americans who have it."

Unraveling the mystery of chronic fatigue syndrome

Palo Alto Online By: Sue Dremann

"Researchers are making headway toward finding evidence of chronic fatigue syndrome and how it may change the brain."

Patients, Scientists Fight Over Research-Data Access

Wall Street Journal By: Amy Dockser Marcus

"A controversy surrounding a study of chronic fatigue syndrome is prompting some scientists to push back against demands that they make medical research data more widely available to other researchers and patients."

Chronic fatigue syndrome: new diagnostic tool to speed up treatment and reduce stigma

ABC Gold Coast - Australia By: Damien Larkins

"Griffith University has developed a tool to diagnose CFS faster and hopes it will reduce the stigma around the disorder. Professor of Immunology Sonja Marshall-Gradisnik headed the research to develop the new screening tool."

The Misleading Research at the Heart of Disability Cuts

Huff Post - Politics - UK By: Dr. Simon Duffy

"Unfortunately it turns out that this research is often deeply flawed. For instance, the Centre for Welfare Reform has just published a report by George Faulkner which suggests that, on the basis of its published results, many of its claims cannot be validated."

Medical Journals
2015 Recap: Call for Real Answers to Chronic Fatigue Syndrome

MedPage Today Neurology By: Shannon Firth

"In 1996, Judith Curren, 42, took her own life with help from Jack Kevorkian, MD.

Curren was thought to have chronic fatigue syndrome (CFS), an illness associated with immune and neurologic symptoms that remains difficult to diagnose. A medical examiner questioned whether Curren was ever sick, according to The New York Times."

Update: New, if Belated, Gov't Interest in CFS Encourages Patients

MedPage Today Neurology By: Shannon Firth

"In February, the National Academy of Medicine published a report attempting to better define the condition known as chronic fatigue syndrome, also called myalgic encephalomyelitis; in September, we reported that advisers to the Department of Health and Human Services recommended increasing funding for research into the condition.The following is a look at what has happened since that story."

NIH Gears Up for First-Ever Chronic Fatigue Study - Patients' advocates share concerns about trial protocol, bias

MedPage Today Neurology By: Shannon Firth

"The National Institutes of Health gave the green light for a novel study of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), but the news elicited mixed reactions from patient advocates."

Chronic Fatigue Patients Take to the Streets - Global protest highlights demands for more research, physician education

MedPage Today Neurology By: Shannon Firth

"The chronic fatigue syndrome community demanded stronger investment in scientific research, and greater accountability from public agencies to address their illness, at the recent "Millions Missing: A Global Day of Protest for ME/CFS."'