ME/CFS Priority Setting Partnership

The ME/CFS Priority Setting Partnership or ME/CFS PSP is a United Kingdom research initiative to engage ME/CFS patients in collaboratively deciding research priorities.

Deciding research priorities
Patients helped decide research priorities by:
 * online survey
 * paper form, after contacting the email address or phone number
 * people with visual impairment can request a large print form

The process was faciltated by the James Lind Alliance, based on participant by three key groups:
 * ME/CFS patients
 * Carers of ME/CFS patients
 * Health professionals

Top 10+ Priorities

 * ME/CFS Top 10+ Priorities - published in May 2022

Notable people

 * Sonya Chowdhury, PSP Lead, Chief Executive of Action for M.E.

Notable publications

 * May 2022, Defining future ME/CFS research (final report)

Funding
The funding was provided by the UK's National Institute for Health Research, the Scottish Government Chief Scientist Office and the Medical Research Council to Action for ME for "administrative, communications and coordination support", and facilitated by James Lind Allianc, a non-profit organisation.

Contact details
Email: questions@psp-me.co.uk Phone: 0117 927 9551

Online presence

 * Twitter
 * Facebook
 * Website
 * YouTube

Learn more

 * ME/CFS Priority Setting Partnership
 * Top 10+ Priorities - James Lind Alliance