Sophia Mirza



Sophia Mirza (8 August 1973-15 November 2005) was a woman in the United Kingdom who suffered from myalgic encephalomyelitis. She has been referred to as the first patient in the UK to have CFS (ME) listed as a cause of her death, however a letter to New Scientist magazine suggested there had been a previous death attributed to the disease.

Life
Sophia joined "Woodcraft" and enjoyed weekly groups as well as camping. She was involved in the eco movement and recycling. Her art was incorporated into organic foods, yoga, camping, cycling and music.

Illness
Sophia suffered two car crashes as a teenager and was hospitalized with meningitis. At age 19, she had multiple vaccinations before traveling to Africa for work, where she twice had malaria. She fell ill with ME after an apparent flu-like illness.

Death
Her death came not long after a forced entry into her mother's home and being sectioned and taken to a mental hospital in 2003. An independent Neuropathologist found Sophia's spine contained massive infection.

Inquest
Summary by: Invest in ME Dr. O’Donovan, one of the neuro-pathologists who had examined Sophia's spinal cord testified at the inquest he would not support the term ME as CFS is the modern term and he hadn't seen evidence of muscle inflammation (which they didn't look for.)
 * Jun 13, 2006, The Inquest in the Death of Sophia Mirza

Sophia's November 25, 2005 death certificate verdict: "SHE DIED AS A RESULT OF ACUTE RENAL FAILURE ARISING FROM THE EFFECTS OF CHRONIC FATIGUE SYNDROME"; previous meningitis; high body mass index, dorsal root ganglionitis; and hepatic steatosis were also listed. Doctors Abhijit Chaudhuri, a Neurologist and Dominic O’Donovan, a Neuropathologist, examined spinal tissue from Sophia Mirza prior to the inquest into her death and found changes to her spinal cord.
 * Jun 16, 2006, First official UK death from chronic fatigue syndrome

TV news coverage
itv Meridian Tonight


 * "Late M.E. sufferer Sophia Mirza"


 * Video 1


 * Video 2


 * "UK: Psychiatric Industry Victim (Part2)"


 * Video 3

Written media

 * Jun 16, 2006, "I never imagined my sister would die"

"BEFORE MY sister Sophia got Myalgic Encephalomyelitis (ME), I had subconsciously developed a disparaging view of the disease. The little I knew about ME at the turn of the century was from how it had been portrayed in the tabloid press."

"The coroner ruled that the 32-year-old had died of complications due to myalgic encephalomyelitis, a landmark verdict in the UK. A neuropathologist told the court that Sophia’s spinal cord was inflamed, with three quarters of her sensory cells displaying significant abnormalities. Yet, as Sophia’s treatment by the medical establishment had underlined – she was forcibly sectioned for a spell in 2003 – many doctors handle ME (also known as postviral or chronic fatigue syndrome), as if it were a mental condition."
 * May 15, 2010, 'She went into a hellhole': A mother's candid account of her daughter's battle with ME
 * Jan 24, 2012, First official UK death from chronic fatigue syndrome

"Chronic fatigue syndrome has been given as an official cause of death for the first time in the UK. CFS, which is also known as myalgic encephalomyelitis (ME), has occasionally been recorded on death certificates in the US and Australia but it is far from being accepted as an organic disease."

Website commemoration

 * Sophia and M.E. Site created by Sophia's mother to commemorate her daughter's life, illness, and passing.