Caroline Kingdon

Caroline C. Kingdon, RN, is the Research Fellow and Biobank Coordinator at the CureME research group at the London School of Hygiene and Tropical Medicine, UK. As a registered nurse she is responsible for recruiting for the UK ME/CFS CureME Biobank and coordinating applications for the use of the Biobank data and samples. In 2019, Caroline Kingdon was appointed to the Guideline Development Group for the development of UK's new ME/CFS NICE guidelines.

Notable studies

 * 2017, How have selection bias and disease misclassification undermined the validity of myalgic encephalomyelitis/chronic fatigue syndrome studies? (Full text)


 * 2017, Editorial - Differing case definitions point to the need for an accurate diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (Full text)


 * 2017, Prevalence of and risk factors for severe cognitive and sleep symptoms in ME/CFS and MS (Full text)


 * 2017, The UK ME/CFS Biobank for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis (Full text)


 * 2017, Using a participatory approach to develop and implement the UK ME/CFS Biobank (Full text)


 * 2018, Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls (Full text)


 * 2018, The UK ME/CFS Biobank: A Disease-Specific Biobank for Advancing Clinical Research Into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Full text)
 * 2018, Hand Grip Strength as a Clinical Biomarker for ME/CFS and Disease Severity (Full text)


 * 2019, Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study. (Full text)

Talks and interviews

 * Feb 11, 2019 - Guest on The ME Show with Gary Burgess. Talked about her work at biobanks in the UK, United States and Middle East

Online presence

 * PubMed


 * Researchgate


 * Twitter


 * Facebook


 * YouTube


 * Website

Learn more

 * LSHTM bio