An open letter to Psychological Medicine about “recovery” and the PACE trial

An open letter to Psychological Medicine about “recovery” and the PACE trial is a letter dated March 13, 2017 written to Dr. Robin Murray and Dr. Kenneth Kendler and Psychological Medicine, Cambridge University Press about the paper Recovery from chronic fatigue syndrome after treatments given in the PACE trial which states there is a recovery for patients with Chronic fatigue syndrome (CFS) utilizing Graded Exercise Therapy (GET) and Cognitive behavioral therapy (CBT).

The letter concludes:


 * To protect patients from ineffective and possibly harmful treatments, White et al.’s recovery claims cannot stand in the literature. Therefore, we are asking Psychological Medicine to retract the paper immediately. Patients and clinicians deserve and expect accurate and unbiased information on which to base their treatment decisions. We urge you to take action without further delay.

Signatories

 * Dharam Ablashi, DVM, MS, Dip Bact
 * James Baraniuk, MD
 * Lisa Barcellos, MPH, PhD
 * Lucinda Bateman, MD
 * Alison Bested, MD, FRCPC
 * Molly Brown, PhD
 * John Chia, MD
 * Todd Davenport, PT, DPT, MPH, OCS
 * Ronald Davis, PhD
 * Simon Duffy, PhD, FRSA
 * Jonathan Edwards, MD
 * Derek Enlander, MD
 * Meredyth Evans, PhD
 * Kenneth Friedman, PhD
 * Robert Garry, PhD
 * Keith Geraghty, PhD
 * Ian Gibson, PhD
 * Rebecca Goldin, PhD
 * Ellen Goudsmit, PhD, FBPsS
 * Maureen Hanson, PhD
 * Malcolm Hooper, PhD
 * Leonard Jason, PhD
 * Michael Kahn, MD
 * Jon Kaiser, MD
 * David Kaufman, MD
 * Betsy Keller, PhD
 * Nancy Klimas, MD
 * Andreas Kogelnik, MD, PhD
 * Eliana Lacerda, MD, MSc, PhD
 * Charles Lapp, MD
 * Bruce Levin, PhD
 * Alan Light, PhD
 * Vincent Lombardi, PhD
 * Alex Lubet, PhD
 * Steven Lubet
 * Sonya Marshall-Gradisnik, PhD
 * Patrick McKnight, PhD
 * Jose Montoya, MD, FACP, FIDSA
 * Zaher Nahle, PhD, MPA
 * Henrik Nielsen, MD
 * James Oleske, MD, MPH
 * Elisa Oltra, PhD
 * Richard Podell, MD, MPH
 * Nicole Porter, PhD
 * Vincent Racaniello, PhD
 * Arthur Reingold, MD
 * Anders Rosén, MD
 * Peter Rowe, MD
 * William Satariano, PhD
 * Ola Didrik Saugstad, MD, PhD, FRCPE
 * Charles Shepherd, MB, BS
 * Christopher Snell, PhD
 * Donald Staines, MBBS, MPH, FAFPHM, FAFOEM
 * Philip Stark, PhD
 * Eleanor Stein, MD, FRCP(C)
 * Staci Stevens, MA
 * Julian Stewart, MD, PhD
 * Leonie Sugarman, PhD
 * John Swartzberg, MD
 * Ronald Tompkins, MD, ScD
 * David Tuller, DrPH
 * Rosemary Underhill, MB, BS, MRCOG, FRCSE
 * Rosamund Vallings, MNZM, MB, BS
 * Michael VanElzakker, PhD
 * Mark VanNess, PhD
 * Mark Vink, MD
 * Frans Visser, MD
 * Tony Ward, MA (Hons), PhD, DipClinPsyc
 * William Weir, FRCP
 * John Whiting, MD
 * Carolyn Wilshire, PhD
 * Michael Zeineh, MD, PhD
 * Marcie Zinn, PhD
 * Mark Zinn, MM

ME/CFS Patient Organizations

 * 25 Percent ME Group
 * UK


 * Emerge Australia
 * Australia


 * European ME Alliance


 * Belgium ME/CFS Association
 * Belgium


 * ME Foreningen
 * Denmark


 * Suomen CFS-Yhdistys
 * Finland


 * Fatigatio e.V.
 * Germany


 * Het Alternatief
 * Netherlands


 * Icelandic ME Association
 * Iceland


 * Irish ME Trust
 * Ireland


 * Associazione Malati di CFS
 * Italy


 * Norges ME-forening
 * Norway


 * Liga SFC
 * Spain


 * Riksföreningen för ME-patienter
 * Sweden


 * Verein ME/CFS Schweiz
 * Switzerland


 * Invest in ME Research
 * UK


 * Hope 4 ME & Fibro NI
 * UK


 * Irish ME/CFS Association
 * Ireland


 * Massachusetts CFIDS/ME & FM Association
 * USA


 * ME Association
 * UK


 * ME/cvs Vereniging
 * Netherlands


 * National ME/FM Action Network
 * Canada


 * New Jersey ME/CFS Association
 * USA


 * Pandora Org
 * USA


 * Phoenix Rising
 * International membership representing many countries


 * Solve ME/CFS Initiative
 * USA


 * Tymes Trust (The Young ME Sufferers Trust)
 * UK


 * Wisconsin ME/CFS Association
 * USA