Mary Dimmock

Mary Dimmock worked in the pharmaceutical industry but later became a patient advocate after her son, Matthew Lazell-Fairman, became sick in 2010.

Thirty Years of Disdain
In 2015, Mary published an extensively referenced advocacy paper with her son, documenting the history of the disease since the 1980s, "Thirty Years of Disdain: How HHS and A Group of Psychiatrists Buried Myalgic Encephalomyelitis."

Full version (283 pages) of "Thirty Years of Disdain," updated Dec, 2015

Summary version (161 pages) of "Thirty Years of Disdain," updated Dec, 2015

Studies

 * 2016, Estimating the disease burden of ME/CFS in the United States and its relation to research funding "'Abstract: At the National Institutes of Health (NIH), burden of disease is an important factor in funding decisions along with such factors as scientific opportunity, the quality of the science, and the interest of researchers. Recent studies have quantified the burden for a number of diseases in the United States and the NIH has used that information to analyze how its own funding patterns correspond to disease burden. However, the burden of disease has not been quantified for myalgic encephalomyelitis, also called chronic fatigue syndrome (ME/CFS) and is often underestimated due to a lack of research and the misperceptions about the nature of the disease...Even given the limitations arising from sparse data, this analysis demonstrates that federal research funding for this disease is far less than what would be expected by the burden of the disease. We conclude that the annual research funding for ME/CFS would need to increase twenty-five fold or more to be commensurate with disease burden. This level of funding would best leverage the growing interest of researchers and the significant scientific opportunities that exist to understand the pathology of this disease and to advance diagnostics and treatments.'"

Talks & interviews

 * 2016, [[ME/CFS Alert] Episode 78 - Mary Dimmock]
 * 2015, White House Chronicle, 7044 - [[Llewellyn King] interviews Mary Dimmock]

HHS/CFSAC Testimony

 * CFSAC Public Testimony at May 2016 CFSAC Meeting
 * CFSAC Public Testimony at Dec 2014 CFSAC Meeting
 * CFSAC Public Testimony at Jun 2014 CFSAC Meeting
 * CFSAC Public Testimony at Dec 2013 CFSAC Meeting
 * CFSAC Public Testimony at May 2013 CFSAC Meeting
 * CFSAC Public Testimony at Nov 2011 CFSAC Meeting

Online presence

 * Twitter
 * Facebook
 * LinkedIn
 * Website/Blog
 * YouTube

Learn more

 * 2016, Is chronic fatigue syndrome finally being taken seriously?