ME/CVS-Stichting Nederland

ME/CVS-Stichting Nederland is a ME/CFS patient group and charity in the Netherlands.

ME, CFS and SEID
Although the foundation uses a combination concept of ME/CFS in their name in order to be relevant to many doctors and patients, the charity produced a 2018 policy document, entitled “Beleidsvisie ME in Nederland” (“Policy vision, ME in the Netherlands”), which describes "CFS" as a stigmatizing term and recommends "ME" as the future term to be used.

The policy document further recommended using the SEID diagnostic criteria for clinical use, but did not recommend any specific criteria for research use.

Notable people

 * Otto Albrecht - Director
 * Caroline Nouwen - office staff

Board members

 * Theo Kuiphof - President
 * Jaap Jan Pieterman - general board member
 * Pieter Miedema - Treasurer
 * Ronnie Schuurbiers - Secretary

History
ME/CVS-Stichting Nederland was founded in 1987.

Funding
ME/CVS-Stichting Nederland receives modest government funding as a result of being recognized as the national ME/CFS patient organization for the Netherlands.

Online presence

 * Website
 * Twitter
 * Facebook page
 * YouTube channel
 * LinkedIn