Talk:Primer for patients

Moved these RE templates here for now.--DxCFS (talk) 18:49, 26 March 2017 (PDT)

Better way to maintain 5 primers?
There are 5 primers, and I see that most of the material is the same in each primer. I wonder if there is a better way to maintain the 5 primers, other than making the same change in all 5 primers. Would it make sense to put all the common material into a single Template, and have each of the 5 primers implement the common Template? Do we need to rethink the purpose of the five primers, and maybe reduce them to a more manageable 3 primers? All ideas welcome! Thanks! Pyrrhus (talk) 17:26, 26 February 2019 (EST)


 * No. I hate using main pages/templates and only use them when a page becomes so long that you just cannot edit on it anymore. I want to see everything on one page. I broke up the Fibromyalgia page because it could not be edited and was very, very long. I did the same with the ME and PACE trial pages because they could not be edited anymore. PACE trial Trial By Error section was given a main page since it already existed and no one was keeping up the articles on the PACE trial page.


 * Thanks for the feedback! I think you misunderstand- Templates have nothing to do with 'Main Pages' and have nothing to do with breaking up a long page into smaller pages.  Templates provide a way to make your edit on only one page and have it automatically be changed in all 5 primers.  For more info, see https://www.mediawiki.org/wiki/Help:Templates
 * Pyrrhus (talk) 18:00, 12 March 2019 (EDT)

ME/CFS is not contagious - not enough evidence to say this -- notjusttired (talk) 11:15, June 19, 2019 (EDT)
So little is known about how ME/CFS is caused and developed that we cannot claim it's not contagious. The two main sources here are very weak and don't meet MEpedia Science guidelines, especially the ProHealth blog. The sentences I have issues with are in bold: ME/CFS is not contagious There is no evidence that ME/CFS patients are contagious.[39] Initial infectious triggers have led to outbreaks over the years and 72% of ME/CFS patients report an onset of a viral or bacterial infection.[40] Families, partners, and friends do not report contracting ME/CFS from someone with the disease ME/CFS nor do patients report passing it on to others.[41] Because ME/CFS can run in families, a genetic link is a recommended line of research by the CDC.[42] Extensive look at charity FAQs, books and research found only a handful of references, as below. notjusttired (talk) 11:15, June 19, 2019 (EDT) E.g. ME Association, MEAction, Emerge, Invest in ME Research - just literally not there on their website.
 * 1) Blood donation - No longer allowed, abnormalities found in red blood cells, some white blood cells (PMCs), and Fluge et al. (163) also demonstrated in vitro that serum transferred from patients' bodies adversely affected the function of healthy, cultured muscle cells. https://www.frontiersin.org/articles/10.3389/fped.2019.00012/full Fluge Ø, Mella O, Bruland O, Risa K, Dyrstad SE, Alme K, et al. Metabolic profiling indicates impaired pyruvate dehydrogenase function in myalgic encephalopathy/chronic fatigue syndrome. JCI Insight (2016) 1:e89376. doi: 10.1172/jci.insight.89376
 * 2) OMF - We can't be sure yet if it's an infectious disease. Michael Sikora, in collaboration with Mark Davis, PhD, Lars Steinmetz, PhD, and Ron Davis, PhD, at Stanford University, will examine the role of T cells and immune-related genes in ME/CFS. This may help address the outstanding question of whether ME/CFS is an autoimmune or infectious disease, or simply an activation of the immune system (but is handwashing etc suggested to avoid passing infections on the pwME?
 * 3) Underhill's study on unrelated housebound members - Underhill concluded that close household contact and genetics were both risk factors for CFS, finding 32% of spouses/partners of those with CFS also had the illness.https://www.tandfonline.com/doi/abs/10.1300/J092v13n01_02 (Full text) This was a higher prevalence than all genetic relatives except children.
 * 4) Charities don't mention precautions to avoid catching the illness from others