Talk:Myalgic encephalomyelitis

This article was copied and pasted from an old disapedia article. It will probably need to be edited for length, with the introductory section moved later so that the table of contents is closer to the top of the page. It also has no citations. Some citations can be found at the bottom of this page: http://arainbowatnight.com/whatisme/ Still other facts are probably not cited at all. Lastly, other paradigms of what ME is will need to be incorporated. Its relationship to CFS will need to be described. --JenB (talk) 16:30, 30 November 2015 (PST)

Useful? http://www.meaction.net/2015/12/10/norwegian-researchers-ask-what-exactly-is-m-e/ Olliec (talk) 03:31, 13 December 2015 (PST)


 * I think it's time to overhaul this page. I know if I do it I will wipe it and start very fresh and that probably won't be popular so I will leave it to others.  But it's time.--DxCFS (talk) 14:53, 8 August 2016 (PDT)


 * I don't think it's a horrible start. It could use some cleanup and citations, but I don't find it terrible as is. If we do make radical changes to it, I think we need to keep it free from CFS based research as much as possible. Analogue (talk) 18:49, 8 August 2016 (PDT)


 * I can barely understand it and I have had the disease for decades. Plus when people are sick and first learning it isn't an easy read.  Then there are journalists and caretakers who don't really want to sit there and read and read.  There are no links for the citations because it was a cut and paste.  I agree, it has to stay just ME without CFS because the CFS and ME/CFS pages take care of that.  Just a notation of CFS and its relationship to ME being described as Jen stated above is fine and would take just a couple of sentences.  They are both seriously marginalized diseases which usually come on with a viral/bacterial event or mono/mumps so that is one way it could be explained how they relate to one another as well as defining symptoms of PEM. Outside of that the reader can be given the list of criteria to see what the criteria are looking to diagnose. But I don't know if I am the one to take it on because I really pretty much would wipe it clean and start over and take a few days/weeks bringing it together. All the information we need is already on MEpedia under the Disease History and the Primers and so on it is a matter of bringing it together in an easily readable format.--DxCFS (talk) 19:56, 8 August 2016 (PDT)

Cut to find a better place to include this information. Because immune-related symptoms are common, the immune system was suspected of being dysfunctional or responding inappropriately to specific viruses, leading to the proposal of the alternative name, “Chronic Fatigue Immune Dysfunction Syndrome” (CFIDS).--DxCFS (talk) 10:51, 15 December 2016 (PST)

I have not found anything to support this statement even though a citation is indicated and if buried in a PDF document should really have Pg. number indicated:

The initial acute phase illness most often occurs in summer with a 3-5 day incubation period and during this period is said to be highly infectious (3).--DxCFS (talk) 11:27, 15 December 2016 (PST)

Sensory issues included this line: which has been termed “The Mall Effect” due to its particular provocation by the stimulus of a busy shopping mall. It's a nice line but I have not found any researchers describing sensory overload like this.--DxCFS (talk) 11:50, 15 December 2016 (PST)