All-Party Parliamentary Group on Myalgic Encephalomyelitis

The All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG) is a British group of backbench members of parliament, from. all political parties and from Houses of Commons and Lords, who meet to discuss ME. We have minutes from the ME APPG dating from 2001, with references to the existence of an earlier APPG chaired by Tony Wright MP .. It ran for many years.

Carol Monaghan MP revived the APPG on ME in February 2020; it had previously closed in 2017 due to lack of interest, “momentum” & the charities providing joint secretariat deciding that the time was better spent elsewhere“.

APPG Focus
The APPG for ME agreed to focus on the following key topics: In addition:
 * Access to healthcare
 * Access to financial support and welfare benefits
 * Protection for children with ME
 * Biomedical research spending by the Medical Research Council and the National Institute for Health Research
 * Economic and societal impact of ME as a justification for additional spending
 * Medical diagnosis
 * Producing a key report on issues impacting ME sufferers

APPG members
The first meeting since the 2019 general election was held in February 2020, and arranged by Carol Monaghan MP.

Officer's Roles

 * Carol Monaghan, MP (SNP) - Chair
 * Sharon Hodgson, MP (Labour, Washington and Sunderland West) - Co-Chair
 * Stephen Metcalfe, MP (Conservative, South Basildon and East Thurrock) - Co-Chair
 * Ben Lake, MP (Plaid Cymru, Ceredigion) - Vice Chair
 * Hywel Williams, MP/AS (Plaid Cymru, Arfon) - Secretary
 * Olivia Blake, MP (Labour, Sheffield Hallam) - Treasurer

The following people were also reported as attending the first meeting:


 * Deidre Brock, MP (SNP, Edinburgh North and Leith)
 * Fiona Bruce, MP (Conservative, Congleton)
 * Wayne David, MP (Labour, Caerphilly)
 * James Davies, MP (Conservative, Vale of Clwyd)
 * Mary Glindon, MP (Labour, North Tyneside)
 * Robert Goodwill, MP (Conservative, Scarborough and Whitby)
 * Margaret Greenwood, MP (Labour, Wirral West)
 * Dame Diana Johnson, MP (Labour, Kingston upon Hull North)
 * Sally-Ann Hart, MP (Conservative, Hastings and Rye)
 * Kerry McCarthy, MP (Labour, Bristol East)
 * Navendu Mishra, MP (Labour, Stockport)
 * Gavin Newlands, MP (SNP, Paisley &amp; Renfrewshire North)
 * Jonathan Reynolds, MP (Labour, Stalybridge and Hyde)
 * Alex Sobel, MP (Labour, Leeds North West)
 * James Sunderland, MP (Conservative, Bracknell)
 * Stephen Timms, MP (Labour, East Ham)
 * Michael Tomlinson, MP (Conservative, Mid Dorset and North Poole)
 * Liz Twist, MP (Conservative, Blaydon), MP
 * Charles Shepherd, ME Association

Other members
APPG members who did not attend the first meeting include:
 * Louise Haigh, MP (Labour)

A list of APPG members has not been published yet.

Previous APPG members
All APPGs need to be restarted parliament is dissolved for a general election, and must be restarted after; meaning that the groups change after every election.


 * From 2015 - 2017, the group was chaired by Sir Peter Bottomley MP. The group was supported by Action for ME, the ME Association, ME Research UK, Association of Young People with ME, Tymes Trust, the ME Trust, reMEmber, the 25% ME Group, Invest in ME, and Blue Ribbon Awareness for ME (BRAME). Secretariat was provided by Action for ME and the ME Association.

Officers

 * Lady Countess of Mar, Co-chair
 * Kerry McCarthy, Co-Chair
 * Julian Sturdy, Co-Chair
 * Carol Monaghan, Co-Chair
 * Mark Tami, Vice Chair
 * Daniel Zeichner, Secretary

Members

 * Peter Aldous


 * Heidi Alexander


 * Hannah Bardell


 * Graham Brady


 * Tom Brake


 * Richard Burden


 * Alex Chalk


 * Yvette Cooper


 * Geraint Davies


 * Michael Gapes


 * Ben Howlett


 * Seema Kennedy


 * Ian Liddell-Grainger


 * Caroline Lucas


 * Anne Main


 * Steve McCabe


 * Kerry McCarthy


 * Ian Murray


 * Stephen Pound


 * Jeremy Quin


 * Jacob Rees-Mogg


 * Sir Nicholas Soames


 * Keir Starmer


 * Dr Philippa Whitford


 * Hywel Williams

Minutes & reports
There is apparently no central place where the minutes of the past decade are held. There has been no published APPG minutes or reports in 2021 although there have been meetings. There is a central site holding all minutes & reports from the first decade of the century. The newly reformed APPG discuss areas of interest going forward “ Welfare support, Scientific Research and NHS Service Provision needed to be kept under continuous review” Presentation by Professor Stephen Holgate, Chair of Medical Research Council (MRC) Expert Group on M.E. Five APPG MPs met researchers who were attending the annual Invest in ME conference Sir John Saville MRC took questions on the 2012 MRC funded studies & resisted charity calls for more ring-fenced funding Mainly about social care & discussion of future activity Mainly about the social care inquiry Due to lack of interest & resources. Forward ME takes on role
 * pre 2010, APPG on ME: All minutes & publications 2001-2009
 * November 2010, minutes of the all party parliamentary group on me 9 november 2010
 * Feb 2011, APPG minutes 16-2-11
 * May 2011, minutes appg on me research meeting 19-may-2011
 * Jan 2012 CHAIR APPROVED APPG ME Minutes 24-01-12
 * 2013, ME APPG minutes, 04/2013 - on severe ME
 * July 2014, minutes of the appg on me meeting and agm held on 1-july-2014
 * March 2016, notes from APPG meeting held on thursday 17-march-2016
 * September 2016, sept 2016 appg agm minutes
 * August 2017 announcement that the appg-on ME was coming to an end
 * 2020, Biomedical research meeting summary

Publications & Announcements

 * 2016, APPG on ME: Supporting your Constituent with ME
 * 2016, APPG on ME: List of Officers and Members
 * 2017, The APPG comes to an end, focus of lobbying will now be via FowardME group

APPG Inquiries & reports
The Inquiry into CFS/ME research was chaired by Dr Ian Gibson MP it was led by the Group on Scientific Research into Myalgic Encephalomyelitis (M.E.) which was made up of parliamentarians (MPs & Lords). It took evidence over a year & published its findings in November 2006. One of its main recommendations was that the MRC put £11m into biomedical research to balance out funding that had gone into CFS biopsychosocial studies. The report made many noteworthy points and recommendations, see page Ian Gibson.
 * 2006, Inquiry into the status of CFS / M.E. and research into causes and treatment

The APPG laid out the basis for their inquiry in 2008. The main recommendations of the report were that the numbers of those with MECFS had to be properly counted; that the recommendations of the 2002 chief medical officers CFS/ME report be implemented; that more was done to ensure proper training of Drs, GPs & the health professionals who staffed fatigue clinics. One of the main focuses of the APPG which formed in 2015 and lasted until 2017 was an inquiry into social care. This was chiefly led by the charity Action for ME who had done their own survey on social care & released a report Close to collapse in 2015.
 * 2010, Inquiry into NHS service provision for ME/CFS which produced a report
 * 2016, Inquiry into social care provision for people with M.E..

Learn more

 * Register Of All-Party Groups - Myalgic Encephalomyelitis (ME)
 * They work for you - Find your MP
 * Action for ME webpage for APPG on ME (includes minutes of meetings)