Staci Stevens

Staci R. Stevens, MA in exercise physiology. Founder and Director of Workwell Foundation, Ripon, California, US. She serves as Co-Vice President of the Board of Directors and Chair of the Membership Committee of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis. She served a term on the Chronic Fatigue Syndrome Advisory Committee from 2003 - 2006. Stevens is one of the authors of the 2011 case definition, International Consensus Criteria.

Stevens had (in her own words) a very well-controlled case of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) for greater than 20 years, which motivates her high commitment to advancing understanding of the illness and helping other patients.

Boards and committees

 * 2003-2006, member of the Chronic Fatigue Syndrome Advisory Committee for the Department of Health and Human Services


 * 2011, member of the writing committee for the case definition, International Consensus Criteria


 * 2014-2018, Co-Vice President of the Board of Directors and Chair of the Membership Committee of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
 * 2018, member of the Quality of Life/Functional Status (CPET)/Activity Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the National Institute of Neurological Disorders and Stroke and the Centers for Disease Control and Prevention

Talks and Interviews

 * 2009, Staci Steven speaking to CFSAC meeting
 * 2010, Slide presentation to CFSAC
 * 2011, "Effective Management of Activity Intolerance" - Staci R. Stevens, MA at the 10th International IACFSME Conference, Patient Agenda
 * 2012, MECFS Alert Episode 32: Staci Stevens, Director of the Pacific Fatigue Lab
 * 2012, Top 10 Things You Should Know About Post-Exertional Relapse
 * 2015, Video: Post-exertional malaise: How to do more with less, Staci Stevens, Vancouver BC Canada, May 2015

Research studies

 * 2001, Assessment of Functional Impairment by Cardiopulmonary Exercise Testing in Patients with Chronic Fatigue Syndrome
 * 2001, Chronic Fatigue Syndrome, Ampligen, and Quality of Life: A Phenomenological Perspective (Abstract)
 * 2005, Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)
 * 2007, Legal and Scientific Considerations of the Exercise Stress Test
 * 2007, Diminished Cardiopulmonary Capacity During Post-Exertional Malaise
 * 2010, Post-exertional malaise in women with chronic fatigue syndrome
 * 2010, Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
 * 2011, Diagnostic accuracy of symptoms characterising chronic fatigue syndrome
 * 2012, A double-blind, placebo-controlled, randomized, clinical trial of the TLR-3 agonist rintatolimod in severe cases of chronic fatigue syndrome (Full Text)
 * 2013, Discriminative validity of metabolic and workload measurements to identify individuals with Chronic Fatigue Syndrome (Full Text)
 * 2018, Editorial - Checking our blind spots: current status of research evidence summaries in ME/CFS. (Introduction)
 * 2018, Cardiopulmonary Exercise Test Methodology for Assessing Exertion Intolerance in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Abstract)
 * 2019, Chronotropic Intolerance: An Overlooked Determinant of Symptoms and Activity Limitation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome? (Full text)
 * 2019, Whole blood human transcriptome and virome analysis of ME/CFS patients experiencing post-exertional malaise following cardiopulmonary exercise testing (Full text)