ACT UP

ACT UP, an acronym for AIDS Coalition to Unleash Power, is an international direct action advocacy group dedicated to ending AIDS. Its role in the transformation of HIV/AIDS research and treatment is often cited as a potential advocacy model for ME/CFS. ME patient-advocate Terri Wilder was an activist with ACT UP in New York before her ME diagnosis in 2016. Journalist and public health expert David Tuller, DPH, also has a background as an ACT UP activist, including being among those arrested at the first Wall Street ACT UP action in 1987.

Online presence

 * Current website
 * Historical website

Learn more

 * How to Survive a Plague (book and 2012 documentary)
 * Wikipedia article on direct action