Derek Pheby

Dr. Derek F. H. Pheby, BSc, MB, BS, LLM, MPhil, FFPH, is a Visiting Professor of Epidemiology, Buckinghamshire New University, Wycombe, England, United Kingdom. He served as the Project Coordinator of the National ME Observatory, a collaborative project involving three universities, aiming to fill gaps in research knowledge. He was a former member of the Chief Medical Officer’s Working Group on CFS/ME and former trustee of Action for ME.

Pheby initiated the establishment of the ME/CFS Disease Register in the UK by using a READ-code based algorithm on Electronic Medical Records which conformed to certain case definitions for ME/CFS. The ME/CFS Disease Register is used to recruit participants with ME/CFS in an unbiased way from a large population base. Likewise, he is establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome.

EUROMENE
In 2001, Dr. Pheby was responsible for the establishment of the European ME/CFS research network (EUROMENE), a European Union COST Action CA15111 not-for-profit research organization committed to tackling the cause and treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome He now leads the EUROMENE Socio-economics working group, whose objective is to estimate the burden of ME/CFS to society and provide long-term trend estimates for societal impact.

Studies related to ME/CFS

 * 2004, Risk Factors for the Development of Severe ME/CFS — A Pilot Study (Abstract)
 * 2005, Chronic Fatigue Syndrome: a survey of GPs' attitudes and knowledge (Full Text)
 * 2007, The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Abstract)
 * 2009, Risk factors for severe ME/CFS (Full Text)
 * 2010, Severe ME/CFS in Adults-A report from the CHROME Database (Full Text)
 * 2011, A Disease Register for ME/CFS: Report of a Pilot Study (Full Text)
 * 2011, Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care (Full Text)
 * 2011, Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis (Full Text)
 * 2011, The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers (Full Text)
 * 2012, Severe ME/CFS in Adults - A report from the CHROME Database (Full Text)
 * 2014, Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol (Full Text)
 * 2014, Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME (Abstract)
 * 2018, Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review (Full text)
 * 2020, Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology - (Full text)

Talks and interviews

 * 2007, Speaker at the 2nd Invest in ME International ME Conference - Epidemiology of ME/CFS - DVD available
 * 2013, Action for ME AGM 2013 part three - Research

Online Presense

 * Derek Pheby Linkedin
 * EUROMENE CV