Severe and very severe ME

Severe and very severe M.E. affects about 25% of people with Myalgic Encephalomyelitis (ME), with patients being housebound or bedbound at some point in their illness, typically needing to use a wheelchair, unable to do any kind of work or study, and often unable to do basic self-care activities unaided. Some people have died of M.E., including Sophia Mirza and Merryn Crofts.

There is no generally agreed upon description of severe or very severe ME, but different clinical scales can be used to measure the degree of disability. Very little research has described the symptoms and experiences of patients with severe M.E. or very severe M.E., much of what is known comes from patient and advocacy groups.

Severity Scales for M.E.
Substantial impairment and disability in adults can be measured using the following scales:
 * Work and Social Adjustment Scale (WSAS)
 * Energy index score - Treatment center for CFS

Learn more

 * Stonebird


 * 25 Percent ME Group


 * Comprehensive M.E. Symptoms List
 * My life stopped - severe M.E report