ME Vereniging Nederland

The ME Vereniging Nederland (ME Association Netherlands) is the national association of people with myalgic encephalomyelitis in the Netherlands. Its goal is to "improve the living conditions and health of ME patients and reduce social exclusion". The association is a member of the Dutch Brain Council and the Patiëntenfederatie Nederland. Its position is that ME is unrelated to CFS and SEID.

Activities
The ME Vereniging Nederland irregularly publishes a digital newslettter called MEling.

Several projects are carried out by the Stichting ME Research:
 * Doorlopende Enquête Patiëntenperspectief (Continuous Patient Perspective Survey)
 * Richtlijn voor Myalgische Encefalomyelitis (Guideline for Myalgic Encephalomyelitis)
 * Wetenschap voor Patiënten (Science for Patients)

The association has on various occasions occupied a boot as part of the Hersenstraat (brain street), a joint activity by member organizations of the Dutch Brain Council to present themselves at events.

Funding
The association doesn't receive any funding from the Dutch government.

Notable people

 * Guido den Broeder (Founder)

The association doesn't reveal the membership status of ME patients other than its chair, in order to prevent harassment and potential loss of benefits.

Online presence

 * Website
 * Facebook
 * Twitter

History
The organization has rejected the 2018 advice of the Dutch Health Council. It states that the council erred by attaching the wrong terminology to SEID criteria, and has failed to produce an advice on ME.

Learn more

 * Wikisage - ME Vereniging Nederland