MillionsMissing Deutschland

MillionsMissing Deutschland (MillionsMissing Germany) was founded in 2018. It's a German affiliate group of The MEAction Network and partner of the German Association for ME/CFS. MillionsMissing Germany is run by a network of dedicated volunteers.

Aims
Its aim is to work towards health equity for people with Myalgic Encephalomyelitis (ME).

Events
In May 2018 MillionsMissing Germany organized #MillionsMissing protests in Berlin and Gütersloh and supported a third one, hosted by the Lost Voices Foundation in Hannover.

In May 2019 MillionsMissing Germany organized #MillionsMissing protests in Berlin, Munich and Halle (Saale). Later that month a protest in front of the German Bundestag (national parliament) took place.

MillionsMissing Germany organized a Kudoboard for the health policy spokeswoman of the Green Party Maria Klein-Schmeink, who made an inquiry about ME/CFS in the Bundestag. The Kudoboard contained over 150 messages from pwME and was presented in printed form in the Bundestag.

Together with the German Association for ME/CFS and MP Martina Stamm-Fibich, MillionsMissing Germany organized the first Parliamentary Expert Discussion on ME/CFS in the Bundestag in March 2020.

Due to the corona crisis in 2020, MillionsMissing Germany had to cancel the #MillionsMissing visibility actions in nine cities and organized a postcard campaign to health minister Jens Spahn and other politicians instead.

MillionsMissing Germany organizes screenings of the documentary Unrest together with the German Association for ME/CFS.

Interviews and articles

 * May 2020, Tagesspiegel: "Jens Spahn, Sie haben Post!"
 * May 2019, List of media reports about the #MillionsMissing events in Germany
 * June 2018, BR: "Myalgische Enzephalomyelitis: Wenn die Grippe einfach nicht weggeht"
 * May 2018, rbb: "Chronisches Erschöpfungssyndrom anerkennen"

Videos

 * May 2020, MillionsMissing Germany Trailer 2020
 * August 2019, "Eine Krankheit im Verborgenen"
 * May 2019, Protest in front of the German Bundestag
 * May 2019, #MillionsMissing visibility actions in Berlin, Halle and Munich
 * May 2019, MillionsMissing Germany Trailer 2019
 * May 2018, #MillionsMissing visibility actions in Berlin and Gütersloh

Photos

 * May 2019, Protest in front of the German Bundestag
 * May 2019, #MillionsMissing visibility actions in Berlin, Munich and Halle
 * May 2018, #MillionsMissing visibility actions in Berlin, Gütersloh and Hannover
 * Ongoing campaign: "Ich will mein Leben zurück" (I want my life back)

Online presence

 * Website


 * Facebook page
 * Facebook group


 * Twitter


 * YouTube channel
 * Instagram


 * flickr