Systemic Exertion Intolerance Disease

The IOM Was Asked To Examine the Evidence Base For ME/CFS
In 2014, the Department of Health and Human Services, the National Institutes of Health, the Agency for Healthcare Research and Quality, the Centers for Disease Control and Prevention, the Food and Drug Administration, and the Social Security Administration asked the Institute of Medicine (IOM) to convene an expert committee to examine the evidence base for ME/CFS. In Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness, the committee proposes new diagnostic criteria that will facilitate timely diagnosis and care and enhance understanding among health care providers and the public. These criteria, based on expert analysis and the most up-to-date scientific literature, are streamlined for practical use in the clinical setting. The IOM committee also recommends that the name of the disease be changed—from ME/CFS to systemic exertion intolerance disease (SEID)—to more accurately capture the central characteristics of the illness.

The proposed name was to hone in on key aspects of ME/CFS: "Systemic" would give credence to the disease being body wide. "Exertion Intolerance" would key doctors into understanding that the patient CANNOT tolerate exertion. (Intolerance is well understood in the clinical world in that there is a disease at hand as other diseases such as glucose intolerance is a serious medical issue and glucose CANNOT be consumed.) "Disease" gave the self explanatory label of being a biologic disease.

February 10, 2015, the Institute Of Medicine (IOM) released a Clinicians Guide
The IOM proposed the name of Systemic Exertion Intolerance Disease (SEID) and Diagnostic Criteria.

The National Academies of SCIENCES-ENGINEERING-MEDICINE and Institute Of Medicine Report
Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness

REPORT AT A GLANCE

ME/CFS Clinicians’ Guide (PDF) Report Brief (PDF) Key Facts (PDF) Diagnostic Algorithm (HTML) Proposed-Diagnostic-Criteria (HTML) Presentation (PDF)

Also with an official video presentation.

New Clinical Definitions for ME/CFS - Dr. Lucinda Bateman
Bateman Horne Center Video

SMCI IOM Briefing in Washington, D.C. Full Coverage
Carol Head of Solve ME/CFS, Dr. Ellen Wright Clayton and Morgan Fairchild at the SMCI IOM Briefing

SolveCFS Video

REFERENCES