Association of Young People with ME

The Association of Young People with ME (AYME) is a UK national charity supporting children and young people affected by ME/CFS. It is based in and the Chief Executive Officer is Mary-Jane Willows. The charity is involved in the All-Party Parliamentary Group on Myalgic Encephalomyelitis     (APPG) and the UK CFS/ME Research Collaborative (CMRC)

The association's lead medical advisor is Doctor Esther Crawley, a proponent of the psychosocial model of chronic fatigue syndrome. She is lead investigator of the SMILE trial to assess use of the Lightning Process as a treatment for the disease in children.

AYME have been participants in Dr Crawley's paediatric trials including the FITNET online Cognitive Behavioural therapy study to "help inform patients" and gave evidence in support of SMILE during the study's ethical procedures.

PACE trial data release
The charity has made positive statements about the PACE trial.

In early 2016 AYME was asked by patients, including Clark Ellis, to support the release of the PACE trial study data. AYME responded by saying it did not support release of the data.

Notable people

 * Mary-Jane Willows (Chief Executive)
 * Esther Crawley (Lead Medical Advisor)
 * Nigel Speight (former Medical Advisor]]

Online presence

 * Twitter
 * Facebook
 * Website