List of news articles on ME and CFS

By: Patients and Patient Advocates
'''I'm disabled. Can NIH spare a few dimes?'''

Washington Post: To Your Health section reprints Open Letter By: Brian Vastag.

"Three years ago, a sudden fever struck me on a blue-sky Wisconsin morning. I've been sick ever since. On my third “illiversary,” I presented an opportunity to Francis Collins, the head of the NIH:"

Huddersfield woman Nathalie Wright talks about the misery of living with ME

The Huddersfield Daily Examiner By: Nathalie Wright

"In this thought provoking first person feature Huddersfield 22-year-old Nathalie Wright reveals how her life has been devastated by the crippling illness ME. Nathalie grew up in Pole Moor above Slaithwaite, went to Wilberlee Primary School, Crossley Heath School in Halifax and then Greenhead College. Day and night became indistinguishable"

Hope For Chronic Fatigue Syndrome

SLATE: Health and Science Section By: Julie Rehmeyer

"The debate over this mysterious disease is suddenly shifting."

'No one chooses to have ME - everything changed when I became ill'

Independent.IE: Life Health Features Section By: Tom Kindlon

"As a new study suggests that ME can be beaten through therapy and exercise, long-term sufferer Tom Kindlon says it's not that simple"

What it's like to live with severe ME

The Telegraph By: Naomi Whittingham

"Ordinarily, illness is measured in days or weeks; and for the unfortunate months or even years. Then there are those of us for whom illness, pain and suffering is measured in decades. This is my twenty-fifth year of being ill: a quarter of a century spent mostly in housebound, bed-bound isolation."

Viewpoint: Telling the hidden story of chronic fatigue syndrome

USA Today: College By: Ryan Prior

"Seven months ago I wrote a story for USA TODAY College that changed the direction of my life.

I wrote of my six-year struggle with a little-known illness called chronic fatigue syndrome (also called myalgic encephalomyelitis)."

By: Advocates
A job for a lone Congress member: Speak up for a forgotten disease

The Hill Congress Blog By: Llewellyn King

"The cause is research on Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome -- and often known by both sets of initials as ME/CFS. It's a disease I know quite a lot about because I've been writing and broadcasting about it for the last five years."

Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped at 14,000 Words-Enough Was Enough

California Magazine: By: David Tuller

"Years ago, I never thought to myself, ‘Hey, I’ve gotta be the guy who writes about chronic fatigue syndrome.’ I mean, why would I? It just sort of happened. When research suggested in 2010 that the illness might be linked to a mouse retrovirus, I wrote a piece about it for The New York Times.

After that I wrote another story, and then more stories, and then a few more—probably a dozen or so in all. But within a couple of years the mouse retrovirus hypothesis fell apart. And media interest in the illness vanished."

About ME/CFS and Patients
Is This Why You're Still So Tired?

"O" Magazine By: Cheryl Platzman Weinstock

"Chronic fatigue syndrome finally gets its due."

Chronic fatigue syndrome recognized at last

San Francisco Chronicle By: Rivka Solomon

"After 30 years of neglect, the federal government promised late last month to bolster research on myalgic encephalomyelitis/chronic fatigue syndrome — the equivalent of promising to help multiple sclerosis or Parkinson’s, two other important neurological diseases with no known cause or cure."

The Tragic Neglect of Chronic Fatigue Syndrome

The Atlantic By: Olga Khazan

"It leaves people bed-bound and drives some to suicide, but there's little research money devoted to the disease. Now, change is coming, thanks to the patients themselves."

With his son terribly ill, a top scientist takes on chronic fatigue syndrome

The Washington Post Health & Science By: Miriam E. Tucker

"Before he got sick, Whitney Dafoe was an award-winning photographer and a world traveler. He’d helped build a nunnery in India, ridden a motorcycle in the Himalayas and visited all 50 American states.

He also worked on Barack Obama’s 2008 presidential campaign, and although he was already ill by January 2009, pushed himself to travel to Washington from his California home to photograph the inauguration."

Jennifer Brea ’05: Shooting Pain - Struggling to capture life with chronic fatigue on film in Canary in a Coal Mine

Princeton Alumni Weekly By: Dorian Rolston '10

"One warm day last March, Jennifer Brea ’05 rose from her bed, walked out onto her deck, and lay down. It was a modest outing for someone who had been confined indoors for five months. Brea suffers from myalgic encephalomyelitis, a form of chronic fatigue that is inexplicably crippling and easily exacerbated. To capture what life is like for those with the disease, she is directing Canary in a Coal Mine, a feature-length documentary that is scheduled to be released in 2017."

Why it will take more than exercise and a positive attitude to help people with Chronic Fatigue Syndrome

Belfast Telegraph: By Kerry McKittrick

"After a psychiatrist sparked controversy by suggesting exercise and a positive attitude could help people recover from this chronic condition, two sufferers explain why it will take more than that."

ME is often dismissed – but sufferers like Emily Collingridge are dying

The Guardian: Opinion By: Scott Jordan Harris

"How many young people have to die before 'chronic fatigue syndrome' merits properly funded biomedical research?"

Laura Hillenbrand releases new book while fighting chronic fatigue syndrome

The Washington Post By: Monica Hesse

"Then there are the more recent wins. The time she managed to take an entire shower standing up. The time she and her husband, Borden Flanagan, drove to the alley at the end of their block so she could see something other than the cemetery behind their yard, and the time, a few weeks later, that they drove all the way to Starbucks. Sat in the parking lot. Drove home."

The Unbreakable Laura Hillenbrand

The New York Times By: Wil S. Hylton

"Since 1987, Hillenbrand has been sick with chronic fatigue syndrome, which has mostly confined her indoors for the last quarter century."

ME/CFS Science
Brains of People With Chronic Fatigue Syndrome Offer Clues About Disorder

New York Times: Well Section By: David Tuller

Brain Scans by Dr. Jose Montoya, Dr. Michael Zeineh and colleagues at Stanford University.

NIH announces new effort to tackle chronic fatigue syndrome

The Washington Post: To Your Health By: Lenny Bernstein

"The National Institutes of Health announced a new initiative Thursday to find the cause and a treatment for chronic fatigue syndrome, the mysterious, debilitating condition that disables many of its more than 1 million Americans who have it."

Unraveling the mystery of chronic fatigue syndrome

Palo Alto Online: By: Sue Dremann

"Researchers are making headway toward finding evidence of chronic fatigue syndrome and how it may change the brain."

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