Science for ME

Science for ME is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."

It was announced that the forum had reached 400 members on 18th November 2017, and 500 members on December 17th 2017.

Notable Members

 * Professor Jonathan Edwards
 * Tom Kindlon
 * Carly Maryhew
 * Simon McGrath
 * Carolyn Wilshire

Researcher Interaction

 * Written Q&A with Professor Chris Ponting, June 2018.
 * Science for ME video Q&A with Dr Jose Montoya, January 2018
 * Q&A with team members of the UK ME/CFS biobank, December 14th 2017.

Forum Member Advocacy Projects

 * Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire
 * Open letter to NICE concerning the Guideline Committee for ME/CFS
 * Briefing document - The PACE Trial Controversy: A Summary

Publicly Visible Forums

 * Home
 * ME/CFS News and Research
 * Other News and Research
 * Advocacy
 * Symptoms
 * Treatments
 * Doctors and Diagnostics
 * Missed, Alternative or Co-existing Diagnoses
 * Living with ME/CFS

Online presence

 * Website
 * Twitter
 * Facebook
 * YouTube