Deutsche Gesellschaft für ME/CFS

The Deutsche Gesellschaft für ME/CFS (German Association for ME/CFS) is a non-profit organization. It was founded in 2016 and is located in Hamburg. The German Association is run by dedicated volunteers.

Aims
Its goals are rising awareness, educating and to gain medical and social recognition of ME/CFS in Germany. The organization works closely together with the university hospital Charité in Berlin, the Lost Voices Foundation in Hannover and is official partner and supporter of MillionsMissing Germany. The German Association publishes monthly updates about international news and scientific studies about ME/CFS.

Events
The German Association organized the German #MillionsMissing events in 2016, 2017 and partnered with MillionsMissing Germany for the protests in 2018 and 2019. It also hosts Unrest screenings in Germany.

The German Association organized its first ME/CFS conference (accredited for CME) in Hamburg 2019.

Notable projects
The German Association successfully lodged a complaint against the serious methodological shortcomings of the German "guideline tiredness" that includes a chapter on ME/CFS. They were able to prevent the guideline from issuing binding treatment recommendations with no scientific evidence (GET and CBT) for ME/CFS.

Interviews and articles

 * May 2019, "Mit 19 Jahren Pflegefall", ARD
 * May 2019, "Fragen und Antworten: Permanent erschöpft – warum?", Tagesschau
 * June 2018, "Myalgische Enzephalomyelitis: Wenn die Grippe einfach nicht weggeht" (radio feature and article), BR
 * September 2018, "CFS: Keine eingebildete Krankheit", WDR

Videos

 * May 2019, talks by chairmen Daniel Hattesohl and Sebastian Musch at #MillionsMissing in Berlin
 * May 2019, talk by chairman Sebastian Musch at #MillionsMissing in Munich
 * May 2018, talk by chairman Daniel Hattesohl at #MillionsMissing in Berlin
 * May 2018, talk by chairman Sebastian Musch at #MillionsMissing in Berlin
 * September 2016, #MillionsMissing in Hamburg

Online presence

 * Website
 * Facebook
 * Twitter
 * Instagram
 * Newsletter