ME/cvs Vereniging

The ME/ cvs Vereniging is a Dutch association for and by those suffering from ME/CFS and their close ones. The small letters for "CVS" in its name underpins that the association wishes the medical world to stop using the name Chronic Fatigue Syndrome, which it considers stigmatizing. ("CVS" is the Dutch abbreviation for Chronic Fatigue Syndrome.)

Aims
The association's objective is:


 * To inform and raise awareness

History
The ME/cvs Vereniging is a continuation of the ME en CVS Vereniging which was founded on April 15, 2005, later renamed to ME/CVS Vereniging.

Funding
Their funding comes from individual contributions and donations.

Patient survey
In 2019, the association released a report summarizing the results of a 2017 patient survey. This report only included responses from patients who met the SEID diagnostic criteria, as these diagnostic criteria were considered consistent with reports by the Gezondheidsraad (Dutch Health Council).

Online presence
The ME/cvs Vereniging has a significant following on the social media, resulting in lively discussions.


 * ME/cvs Vereniging Website
 * ME/cvs Vereniging Facebook page
 * ME/cvs Vereniging Twitter
 * ME/cvs Vereniging YouTube channel
 * Their 'Science for Patients' YouTube channel

Learn more

 * Zorg voor betere behandeling bij ME - 2017 patient survey