United Kingdom

Demographics
The British National Health Service estimates that 250,000 people in the United Kingdom have myalgic encephalomyelitis. This represents a prevalence of around 0.4% of the UK population.

Doctor Luis Nacul and colleagues found prevalence in some regions of England to be around 0.2% using the 1994 Fukuda criteria, and 0.11% using the stricter Canadian Consensus Criteria.

Research

 * Medical Research Council (MRC)
 * National Institute for Health Research (NIHR)

Medical guidelines

 * National Institute for Health and Care Excellence (NICE, England & Wales)

CBT/GET

 * Cognitive behavioral therapy
 * Graded exercise therapy
 * PACE trial

Social security and disability benefits

 * Department for Work and Pensions (DWP)

National Health Service
How many hospitals&doctors, which diagnose and treat M E (estimate): Rehabilitation offers for ME sufferers:


 * National Health Service (NHS)

Private health insurance

 * UNUM

Politics

 * All-Party Parliamentary Group on Myalgic Encephalomyelitis
 * Chief Medical Officer Report 2002
 * Secret files
 * In the Expectation of Recovery report by The Centre for Welfare Reform

Media

 * Science Media Centre (SMC)
 * Sense About Science

Scotland

 * NHS Scotland

Patient charities
Action for ME, Invest in ME, Change For M.E. Change For Us, Norfolk & Suffolk ME, ME Association, Tymes Trust, MEActionUK, Forward-ME, Hope 4 ME & Fibro NI, Welsh Association of ME & CFS Support, Sussex & Kent ME/CFS Society, Association of Young People with ME, Tyne & Wear ME/CFS Support Group, Edinburgh MESH, Leeds ME Network, The York ME Community, 25 Percent ME Group, The Grace Charity for M.E.

Research
Government-funded research is limited. Patient Graham McPhee created a video explanation examining UK government funding of ME/CFS research.

Researchers

 * Melvin Ramsay
 * Donald Acheson
 * Gordon Parish
 * Jonathan Kerr
 * Amolak Bansal
 * Julia Newton
 * Elizabeth Dowsett
 * Simon Carding
 * James Mowbray
 * John Richardson
 * Luis Nacul
 * Derek Pheby
 * Jonathan Edwards
 * Geraldine Cambridge
 * George Davey Smith
 * Neil Harrison
 * Fane Mensah

Clinicians
Amolak Bansal, Peter Behan, Breakspear Medical, Gabrielle Murphy, Sarah Myhill, Charles Shepherd, Nigel Speight, William Weir

Notable patients
Vicky Beeching, Jane Colby, Shirley Conran, L.A. Cooper, Robert Courtney, Clark Ellis, Catherine Hale, Nasim Marie Jafry, Peter Kemp, Countess of Mar, Tanya Marlow, Graham McPhee, Giles Meehan, Stuart Murdoch, Ean Proctor, Charles Shepherd, Valerie Eliot Smith, Jessica Taylor, Claire Wade, Naomi Whittingham, Doctor Speedy

Deceased patients
Oliver Coles, Emily Collingridge, Victoria Elsbury-Legg, Lynn Gilderdale, Sophia Mirza

Learn more

 * The Hidden Battle For The Rights Of Chronic Fatigue Syndrome Sufferers