User talk:Samsara/todolist

http://www.prohealth.com/search/results.cfm?searchText=ME/CFS%20Advocate&site=articles&page=1&start=0&restart=true
 * Add page for The Blue Ribbon Foundation
 * Add page for Blue Ribbon for the Awareness of ME
 * Brief description: BRAME was launched to create awareness and understanding that ME is a very real and debilitating illness and to highlight the consequences of living with ME.
 * Blue ribbons; blue flowers
 * Expand page: The Young ME Sufferers Trust (TYMES)
 * Website: http://www.tymestrust.org/. Brief description: This is a national charity dedicated to supporting young people with ME, their families and professionals.
 * Expand page: 25 Percent ME Group
 * Brief description: This group is a unique and independent support group set up to help people who suffer from severe ME and to break the isolation that it brings to their lives. Their twice yearly magazine contains a wealth of information, support and practical tips. Upon subscribing you receive a full contact list of all other members.
 * Add page for Stonebird
 * Brief description: Stonebird is a web resource that seeks to share some of the experience of living with ME. The ‘Stonebird’ represents the idea that you don’t have to do anything to be of beauty and value in the world. The site has information and comment about matters relating to severe ME
 * Add http://cfsknowledgecenter.ning.com/
 * Oneclick group - defunct??
 * Add Get Well From ME blog
 * Add page for Salus Fatigue Foundation
 * Salus Fatigue Foundation – At Salus we take a self –management approach, providing support, advice and education for people affected by CFS. All our services are free within our specialised centre based in the West Midlands, providing educational workshops, counselling, pacing groups, relaxation, yoga, Qi gong. We offer a closed Facebook page allowing remote support and for people who live outside the Birmingham area to have access to positive support. The Salus team, through their own personal experiences with recovery from CFS are here to inspire and share their knowledge to help you improve your health and wellbeing.
 * Facebook group (closed)
 * Create page for Eileen Holderman
 * http://www.prohealth.com/library/showarticle.cfm?libid=14719
 * https://thoughtsaboutme.com/2014/06/16/my-june-2014-cfsac-testimony/
 * http://www.wmcactionnews5.com/story/1039636/chronic-fatigue-syndrome http://www.walb.com/story/1038594/progress-with-chronic-fatigue-syndrome
 * http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study
 * M.E. Society of America - defunct.
 * The ME Society of America is a research-information website that was run by Maryann Spurgin PhD until her retirement in 2007. In 2013 the website was archived and can no longer be found in a usual internet search. This statement appears on the Home Page of the Society's website:
 * The M.E. Society of America is an organization that seeks to promote understanding of the disease known as myalgic encephalomyelitis (ME/CFS), a multi-system disease adversely affecting the cellular mitochondria and the heart, brain, neuroendocrine, immune, and circulatory systems. M.E. was first described in the 1950’s following the recognition of many cases around the world, including a number of cases at the Royal Free Hospital in England. Many different viruses, bacteria, or toxins in combination with genetic factors may be involved in the etiology of the disease, which usually begins in childhood or early adulthood with an acute infection. Studying research-based subsets is the key to scientific progress in this area of investigation. In a number of publications, Dr. A. Melvin Ramsay outlined a definitional framework for M.E. that described abnormal muscle metabolism, circulatory impairment, and cerebral involvement.
 * Add relevant books
 * Add relevant local groups somehow