Institute of Medicine report

The National Academy of Medicine (known as the Institute of Medicine or IOM until June 2015) is an American non-profit, non-governmental organization.

The U.S. Department of Health and Human Services (HHS), the National Insti­tutes of Health, the Agency for Healthcare Research and Quality, the Centers for Disease Control and Prevention, the Food and Drug Administration, and the Social Security Administration asked the Institute of Medicine (IOM) to convene an expert committee to examine the evidence base for ME/CFS.

On February 10 2015 the Institute of Medicine released its report.

Read or Download

 * Read a four page report brief
 * Read the full 282 page report online
 * Download full report
 * Diagnostic Algorithm Chart
 * Proposed Diagnostic Criteria Chart

Recommendations
Recommendation 1: "Physicians should diagnose myalgic encephalomyelitis/chronic fatigue syndrome if diagnostic criteria are met following an appropriate history, physical examination, and medical work-up. A new code should be assigned to this disorder in the International Classification of Diseases, Tenth Revision (ICD-10), that is not linked to “chronic fatigue” or “neurasthenia.”"

Recommendation 2: "The Department of Health and Human Services should develop a toolkit appropriate for screening and diagnosing patients with myalgic encephalomyelitis/chronic fatigue syndrome in a wide array of clinical settings that commonly encounter these patients, including primary care practices, emergency departments, mental/behavioral health clinics, physical/occupational therapy units, and medical subspecialty services (e.g., rheumatology, infectious diseases, neurology)."

Recommendation 3: "A multidisciplinary group should reexamine the diagnostic criteria set forth in this report when firm evidence supports modification to improve the identification or care of affected individuals. Such a group should consider, in no more than 5 years, whether modification of the criteria is necessary. Funding for this update effort should be provided by nonconflicted sources, such as the Agency for Healthcare Research and Quality through its Evidence-based Practice Centers process, and foundations."

Recommendation 4: "The committee recommends that this disorder be renamed “systemic exertion intolerance disease” (SEID). SEID should replace myalgic encephalomyelitis/chronic fatigue syndrome for patients who meet the criteria set forth in this report."

Criticisms
Peter White, a British psychiatrist and co-author of the PACE trial, criticised the report.

Per Fink, a Danish psychiatrist wrote a letter of complaint.

Press conference
Watch a recording of the report launch event.

Researchers and clinicians

 * Institute of Medicine report - Review (Peter White, 8 December 2015)
 * What's in a name? Systemic exertion intolerance disease (The Lancet, 21 February 2015)
 * Derek Enlander comment on Institute of Medicine report (19 February 2015, see also Derek Enlander)

Panel members

 * Ellen Wright Clayton (Chair)
 * Margarita Alegría
 * Lucinda Bateman
 * Lily Chu
 * Charles Cleeland
 * Ronald Davis
 * Betty Diamond
 * Theodore Ganiats
 * Betsy Keller
 * Nancy Klimas
 * A Martin Lerner
 * Cynthia Mulrow
 * Benjamin Natelson
 * Peter Rowe
 * Michael Shelanski

Learn more

 * 2015, Chronic fatigue syndrome is a physical disorder, not a psychological illness, panel says