Craig W. Maupin

Craig W. Maupin (Oct 21, 1969–Aug 7, 2019) was an American myalgic encephalomyelitis patient and a long-time advocate for people with ME. Maupin developed ME at the age of 17 and died on August 7, 2019, at the age of 49.

Advocacy
In 2012, Craig Maupin completed a year-long investigation into Freedom of Information Act (FOIA) compliance with chronic fatigue syndrome programs within the National Institutes of Health. His FOIA requests were denied numerous times on the basis that records were "not found," but laid the groundwork for a successful challenge in 2014.

Maupin was also instrumental in using a FOIA to a copy of a letter written by Stephen Straus (NIAID) to Keiji Fukuda (CDC) after he authored the 1994 Fukuda criteria, a letter in which Dr. Straus stated his belief that the "notion" of chronic fatigue syndrome as a discrete fatiguing illness would evaporate, and that he hoped this would happen.

Articles

 * 2014, More than just “fatigue.” - Craig Maupin
 * 2015, IOM Report Hits The Mark, By Emphasizing the Hallmark Symptom of This Disease - Craig Maupin

Online presence

 * CFS Report (archive) - Website

Learn more

 * Craig Maupin: Obituary - Dignity Memorial
 * Burmeister wins lawsuit: Court rules government must produce IOM documents