Severe and very severe ME

About 25% of people with Myalgic Encephalomyelitis have severe M.E., typically needing to use a wheelchair, unable to work or study, and often unable to do basic self-care activities unaides.

There is no generally agreed upon description of severe or very severe Myalgic Encephalomyelitis, but different clinical scales can be used to measure the degree of disability. Very little research has described the symptoms and experiences of patients with severe M.E. or very severe M.E., much of what is known comes from patient and advocacy groups.

Learn more

 * |Stonebird - the lived experience of severe M.E.


 * |25 Percent Group


 * Comprehensive M.E. Symptoms List - The Hummingbirds Foundation