Luis Nacul

Dr Luis Nacul is a lecturer and researcher at the London School of Hygiene and Tropical Medicine in London, United Kingdom. He leads the Cure ME project and its biobank. He serves as a Member Substitute for EUROMENE, an international not-for-profit organization for ME/CFS research.

Notable studies and writings related to ME/CFS

 * 2018, Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls (Full Text)
 * 2017, Public Review - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials by David Cella, PhD (Chair), Mary Dimmock, Fred Friedberg, PhD, Jin-Mann Sally Lin, PhD, Luis Nacul, MD, PhD, and Leorey Saligan, RN, PhD
 * 2017, Editorial - Using a participatory approach to develop and implement the UK ME/CFS Biobank
 * 2011, Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis."'CONCLUSIONS: Changes in attitudes of health practitioners, policy makers and general public and more flexibly organised health and social care provision are needed to address equity issues in support needs expressed by people with CFS/ME, to be underpinned by research-based knowledge and communication, for public and professional education. Policy development should include shared decision-making and coordinated action across organizations working for people with CFS/ME, human rights and disadvantaged groups. Experiences of people with CFS/ME can usefully inform an understanding of equity in their health and social care.'"
 * 2007, The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"Abstract - An epidemiological case-definition was developed to distinguish myalgic encephalomyelitis/chronic fatigue syndrome from other chronic fatiguing conditions by evaluating the discriminatory potential of different criteria from previous definitions. A two-part model was derived using consensus and discriminant analytic approaches. The optimal discriminators for the first part were severe debilitating fatigue affecting physical and mental functioning, a reduction in activity to less than 50% of the patient's premorbid activity level, and muscle discomfort (sensitivity 92%, specificity 66%). The variables for the second part included a reduction in activity to less than 50% of the patient's premorbid activity, myalgia, generalized muscle weakness, migratory arthralgia, and swollen lymph nodes (sensitivity 77%, specificity 88%)."

Talks and Interviews

 * 2015, Speaker at the 10th Invest in ME International ME Conference - DVD available Speech title - Incidence and Prevalence of ME