Anne Örtegren

Anne Örtegren (d. 2018) developed ME in 2001, after a major respiratory disease infection from which she never recovered.

Anne was a Swedish patient and advocate for ME/CFS, and spent 16 years with severe and very severe ME before dying by assisted suicide in 2018.

Advocacy
Anne advocated for improved medical care, especially for those with severe and very severe ME, and criticized what she called the "erroneous psychosocial model", stating that it had caused her harm to her and others.

Anne wanted greater funding for biomedical research in order to raise the standard of treatment and medical care for ME to a similar level to that of others illnesses.

Myalgic Encephalomyelitis
Anne suffered from myalgic encephalomyelitis for 16 years, with the disease becoming increasingly severe, and developing increasing medical complications. She wanted people to know that she did not develop depression and that mental illness was not a factor in her decision. She went through many medical assessments, which took years, before being approved for assisted suicide.

Writing

 * 2013, Articles by Anne Örtegren - Health Rising

Memorial lecture
The Anne Örtegren Memorial Lecture is an annual lecture held at the Invest in ME Research conference in memory of Anne.
 * 2019, Dr Stuart Bevan

Learn more

 * Website ME/CFS Nyheter (ME/CFS news - in Swedish)