ME/cvs Vereniging

The ME/ cvs Vereniging is a Dutch association for and by those suffering from ME/CFS and their close ones. The small letters for "CVS" in its name underpins that the association wishes the medical world to stop using the name Chronic Fatigue Syndrome, which it considers stigmatizing. ("CVS" is the dutch abbreviation for Chronic Fatigue Syndrome.) In 2019 the association released a report summarizing the results of a 2017 patient survey. This report only included responses from patients who met the SEID diagnostic criteria, as these diagnostic criteria were considered consistent with reports by the Gezondheidsraad.

Aims
The association's objective is:


 * To inform and raise awareness

History
The ME/cvs Vereniging is a continuation of the ME en CVS Vereniging which was founded 15 April 2005, later renamed to ME/CVS Vereniging. When in 2011 the decision was made to disband the ME/CVS Vereniging and found the ME Vereniging Nederland in its stead, some members and former members lead by Rob Wijbenga did not agree. In a separate meeting they chose to continue some of the old association's activities and to relax the membership requirements. In contrast to the ME Vereniging Nederland and its predecessor, the ME/cvs Vereniging believes that the IOM-criteria for SEID are ME-criteria.

Funding
Their funding comes from individual donations.

Online presence

 * ME/cvs Vereniging Website
 * ME/cvs Vereniging Facebook page
 * ME/cvs Vereniging Twitter
 * ME/cvs Vereniging YouTube channel
 * Their 'Science for Patients' YouTube channel