Solve ME/CFS Initiative

The Solve ME/CFS Initiative (SMCI) is a not-for-profit organization in the United States started in 1987, aimed at ending ME/CFS. Originally the organization was named the CFIDS Association of America. Carol Head serves as President and CEO and Zaher Nahle serves as Research Director.

Biobank
The Solve ME/CFS Initiative operates the SolveCFS BioBank & Patient Registry.

Funding
100% of their funding comes from individuals — patients and their loved ones. The Solve ME/CFS Initiative has a program called Team Resolve, which is a grassroots community fundraising program for those interested in fundraising on a smaller local level using innovative ideas such as sponsoring a pancake breakfast, hosting a party, or turning a hobby into a way to fundraise.

Public awareness campaign

 * Times Square Public Awareness Ad, Sept 1, 2016

Notable people

 * Zaher Nahle (Research Director)
 * Carol Head (President and CEO)

History
Formerly named the Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) Association of America or CFIDS Association of America, for short.

Newsletters

 * Spring 2016 Topics include: New In-House Research Program Launched, NIH Provides Details on New Intramural Study, New Research Advisory Council Announced; New Research Grants Program Announced; Research Program Overview; BioBank and Patient Registry Research Update; SMCI Receives Award from Robert Wood Johnson Program; Solve ME/CFS Initiative Meets with NIH & Congress;Report Card on Revised CFSAC Responses Updated; Dr. Zaher Nahle Serves on CDC Workgroup; Carol Head Joins CFSAC Subcommittee on Centers of Excellence

Webinars online

 * Sep 1, 2016 Webinar with [[Maureen Hanson], Ph.D., "Current and Previous Research on ME/CFS at Cornell University"]
 * May 19, 2016 Webinar with [[Jarred Younger], Ph.D. "Chronic Fatigue Syndrome and Myalgic Encephalomyelitis: Can we find answers in the brain?"]
 * April 21, 2016 Webinar with [[Avindra Nath], MD, "Post Infectious Myalgic Encephalomyelopathy/Chronic Fatigue Syndrome"]
 * March 17, 2016 [[Susan Levine], MD, "The Future of ME CFS"]
 * Nov 19, 2015 Dane B. Cook, PhD, "Deciphering Post-Exertion Malaise: The Intersection of Biology and Behavior"
 * Oct 15, 2015 Dr. [[Alan Light] "New Developments in ME/CFS Research"]
 * Aug 3, 2015 Dr. [[Zaher Nahle], Vice President of Research and Scientific Programs at the Solve ME/CFS Initiative]
 * Jul 16, 2015 [[Peter Rowe], MD, "Inducing Post-Exertional Malaise in ME/CFS: A Look at the Research Evidence"]
 * Jun 18, 2015 [[Lily Chu], MD, MS, "Post-Exertional Malaise: History, Characteristics, Evidence"]
 * Apr 17, 2015 [[Lucinda Bateman], MD, "Will SEID Diagnostic Criteria Improve Diagnosis and Treatment?"]
 * Dec 16, 2014 [[Carol Head] and Suzanne Vernon, PhD, "ME/CFS Research Year-End Summary"]
 * Nov 14, 2014 [[Lucinda Bateman], MD, "Can ME CFS and Fibromyalgia Research Help You Sleep?"]
 * Oct 23, 2014 [[Peter Rowe], MD, "Neuromuscular Strain in ME/CFS"]
 * Oct 1, 2014 Derya Unutmaz, MD, "Decoding the Human Immune Response"
 * Sept 18,2014 Dane B. Cook, PhD, "Deciphering Post-Exertional Malaise"
 * Aug 21, 2014 [[Patrick O. McGowan], PhD, "Epigenetics of ME/CFS"]
 * Jul 31, 2014 [[Suzanne Vernon], PhD, "Research Institute Without Walls: Progress & Promise"]

Webinars newsletters with links to download slides

 * 2016 Webinar Series
 * 2015 Webinar Series
 * 2014 Webinar Series

Online presence

 * YouTube
 * Web site
 * Facebook
 * Twitter

Learn more

 * Wikipedia - Solve ME/CFS Initiative
 * 2016, Introducing the seed grant Ramsay award program
 * 2016, SMCI engaged with NIH officials to further appropriate MECFS funding