ME/CFS Common Data Elements Working Group

The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Elements (or ME/CFS CDE) project is part of the National Institute of Neurological Disorders and Stroke (NINDS) Common Data Elements project, which involves research into many neurological diseases. https://www.commondataelements.ninds.nih.gov/MECFS.aspx#tab=Data_Standards

CDE Working Groups
There are 11 subgroups focusing on identifying and defining the common data elements in ME/CFS:

Baseline/Covariate

Fatigue

Post-Exertional Malaise

Sleep

Pain

Neurologic/Cognitive/CNS Imaging

Autonomic

Neuroendocrine

Immune

QOL/Functional Status/CPET/Activity

Biomarkers

Notable people

 * Ron Davis
 * Lily Chu

Online presence

 * PubMed
 * Twitter
 * Facebook
 * Website
 * YouTube

Learn more

 * Wikipedia
 * Institution