Sweden

Sweden

Research

 * 2018, De måste åtminstone tro oss: En enkätstudie om hur personer med ME/CFS blir bemötta i primärvården (They must at least believe us: A survey of how people with ME/CFS are treated in primary care) - by Annika Nylund, The Swedish Red Cross University College


 * Blomberg et al (2018) Infection Elicited Autoimmunity and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An Explanatory Model


 * Theorell et al (2017) Unperturbed Cytotoxic Lymphocyte Phenotype and Function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients


 * Gottfries et al (2015) Response to Vitamin B12 and Folic Acid in Myalgic Encephalomyelitis and Fibromyalgia


 * Blomberg et al (2013) Epitopes of Microbial and Human Heat Shock Protein 60 and Their Recognition in Myalgic Encephalomyelitis


 * Natelson, Bergquist et al (2011) Distinct Cerebrospinal Fluid Proteomes Differentiate Post-Treatment Lyme Disease from Chronic Fatigue Syndrome


 * Zachrisson et al (2004) Immune modulation with a staphylococcal preparation in fibromyalgia/chronic fatigue syndrome: relation between antibody levels and clinical improvement


 * Gottfries et al (2002) Treatment with staphylococcus toxoid in fibromyalgia/chronic fatigue syndrome--a randomised controlled trial

Noted people

 * Anders Rosén
 * Anders Österberg
 * Anne Örtegren
 * Birgitta Evengård
 * Carl-Gerhard Gottfries
 * Jonas Blomberg
 * Jonas Bergquist
 * Olof Zachrisson
 * Per Julin
 * Robert Olin
 * Sten Helmfrid
 * Sven Britton

Medical guidelines
There are currently no national clinical guidelines for ME/CFS.

Access to care
How many hospitals & doctors, which diagnose and treat ME (estimate): Rehabilitation offers for ME sufferers:


 * Stora Sköndal ME/CFS-mottagning
 * Bragee Kliniker

Surveys and reports on patient experiences

 * Thurén (2014) Faran med aktivitetsökning vid ME/CFS: ME/CFS-sjukas erfarenheter av aktivitetsökning.
 * Riksföreningen för ME-patienter (2008) ...som något katten släpat in: Om att leva med ME/CFS (Kroniskt Trötthetssyndrom) och om mötet med den svenska sjukvården.

Links

 * 1177 Vårdguiden: ME/CFS
 * Viss.nu, Stockholms läns landsting: ME/CFS
 * Riksföreningen för ME-patienter, RME
 * How to order the book "Trött är fel ord – Om att leva med den osynliga sjukdomen ME/CFS" by Britt-Marie Thurén (editor)
 * ME i maj (advocacy/community)
 * ME/CFS-nyheter — Nyhetsbrev via mejl och på webben (ME/CFS newsletter in Swedish)
 * Wikipedia: Kroniskt trötthetssyndrom