The MEAction Network

#MEAction (The Myalgic Encephalomyelitis Action Network) is a worldwide ME/CFS patient advocacy group co-founded May 12, 2015 by Jennifer Brea and Beth Mazur.

Its focus is on empowering patients to take action to improve the research and treatment situation, through local affiliate groups in countries around the world. #MEAction runs special interest groups focused on science & research, public education and press relations.

History
On July 24, 2016, #MEAction made a policy change where they would adopt ME for the name for future communications about the disease except where the name CFS needs to be mentioned.

Notable projects
The Millions Missing protests were created by MEAction.

MEpedia was launched by MEAction.

CFSAC
MEAction became a non-voting liaison representative to the Chronic Fatigue Syndrome Advisory Committee (CFSAC) for the term June 2017 to June 2019. CFSAC, an advisory committee to the US Office of the Assistant Secretary for Health, allots three seats to patient advocacy groups.

Centers for Disease Control and Prevention (CDC)

 * Jul 29 2018, CDC Revises its Information on ME Report on the CDC July 2017 and July 2018 website updates. Recommendations for the CDC's ME/CFS page have been created from the feedback of patients about these updates as well as asking for further patient input.

Online presence

 * Website
 * Twitter
 * Facebook