Merryn Crofts

Merryn Crofts was a young woman with Very Severe Myalgic encephalomyelitis and also had suspected Ehlers-Danlos syndrome and Mast Cell Activation in the later years of her illness. She died on 23rd May 2017, 10 days after her 21st birthday. An inquest into her death is being held in May 2018 in which her family hope to have ME noted as her cause of death.

Her story was featured in the BBC Newsbeat documentary M.E. and Me.

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 * 'Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture'