Donna Pearson

Donna M. Pearson is a patient and an advocate from Holland, Massachusetts. She became ill with ME in 2003 following the flu, that in her words, "was far  worse  than  anything  I  had  ever  experienced." Prior to becoming ill she worked as the Vice President for a real estate syndication firm, established her own management company, raised a family, and led a full and active life.

She is an officer of the Massachusetts CFIDS/ME & FM Association, a large and respected patient advocacy group.

She serves as a voting member of the HHS's Chronic Fatigue Syndrome Advisory Committee (CFSAC) for the term: 06/16/14 to 06/16/18 and chairs the IOM/P2P Working Group for CFSAC.

Questions to NIH during Advocacy Call

 * 2 Nov 2016, NIH ME/CFS Advocacy Call with Dr. Walter Koroshetz, Dr. [[Vicky Whittemore], Dr. Joseph Breen, and Dr. Avindra Nath - Recorded call and Transcript] During the question and answer session, Pearson challenges Dr. Koroshetz's statements that the illness needed champions. She started that we do have champions. And they’ve been working for years and that we needed the NIH to become our champion.

Talks & Interviews

 * Testimony before CFSAC Meeting