Guido den Broeder

Guido den Broeder (b.1957) is a Dutch writer, econometrician, politician and chess player. He is a myalgic encephalomyelitis patient (since 1987) and advocate. He lives in Rotterdam, the Netherlands.

Career
Den Broeder gained international fame with the development of the macro-econometric model AMO-K, which for some 15 years was used to study a number of strategic policy scenarios for The Netherlands. From 1990-1995, he was a member of the Economic Committee of the Dutch political party GroenLinks. He was a representative in Rotterdam from 1994 to 2002.

An accomplished chess player, he gained the title of FIDE Master and became champion of the Rotterdam region on two occasions. He finished second in the Dutch Correspondence Chess championship of 1980/81, and authored a number of tournament books.

On 1 April 2015, as a protest move, he declared his Rotterdam home as part of a micronation, Paraduin. This was after The Netherlands denied him welfare and the Dutch court refused to hear his case leaving him without means to survive.

He wrote several science fiction and fantasy stories and one novel, Bellerophon. He executive-produced the action thriller The Russian Bride and has played various roles as a background actor.

Advocacy
On May 12, 1987, Den Broeder fell ill with myalgic encephalomyelitis, and never recovered. In 2004 he was one of the leaders of a patient revolt against the board of the government-subsidized ME/CVS-Stichting Nederland, which denied ME and CFS patients influence on the foundation's positions and activities. To give patients a voice and counter the foundation's propaganda of CBT/GET, he co-founded the ME en CVS Vereniging in 2015, later renamed to ME/CVS Vereniging. During the years that followed, he educated patients and doctors about the difference between ME and Chronic Fatigue Syndrome. He criticised the publications of the Dutch Health Council, and the decision of the Dutch minister of health to spend the entire budget for CFS research on cognitive behavioral therapy and graded exercise therapy.

When in 2011 the International Consensus Criteria for ME were published and CFS got classified away from ME in the ICD10-CM (published in 2015), the decision was made to disband the ME/CVS Vereniging. Den Broeder founded the ME Vereniging Nederland, the national patient organization for ME in the Netherlands. He has served as chairman until this day. Also in 2011, he founded and became president of the Stichting ME Research, a foundation whose purpose is to conduct, promote and interpret research into myalgic encephalomyelitis.

Den Broeder is a basic income advocate, and served as a board member of the Vereniging Basisinkomen for 13 years. On several occasions he has suggested that ME patients would profit from the introduction of a basic income, leaving behind the unfavorable lottery that the current system for disability benefits has to offer. Findings by the Stichting ME Research indicate that half of the ME patients in The Netherlands have no or insufficient income.

Myalgic encephalomyelitis

 * 2006 "Zorgindicatie", Lees ME 1, December, p50-51
 * 2007 "Richtlijnen en Knelpunten voor ME/CVS", Lees ME 2, May, p10-15
 * 2007 "De ontwikkeling van een Multidisciplinaire Richtlijn ME/CVS", Lees ME 3, October, p12-14
 * 2008 "Richtlijn in beslissend stadium", Lees ME 4, March, p11-14
 * 2008 "Richtlijn loopt vast, kerngroep vervangen", Lees ME 5, July, p11
 * 2008 "Testen op ME/CVS. Deel 1: de klachten", Lees ME 5, July, p37-41
 * 2008 "Testen op ME/CVS. Deel 2: de ziekte", Lees ME 6, December, p28-31
 * 2009 "Onderzoek NIVEL legt tekortschieten zorg bloot", Lees ME 7, April, p16-19
 * 2009 "Petitie Myalgische Encefalomyelitis aan de vaste commissie VWS van de Tweede Kamer", ErkenME, 12 May
 * 2009 "Petitie Myalgische Encefalomyelitis aan de vaste commissie VWS van de Tweede Kamer", speech, ErkenME, 12 May
 * 2009 "Smurf!", LeesME 9, December, p13-15
 * 2010 "Ervaringen met behandelingen bij ME/CVS", presentation, Landelijke ME informatiedag, Amersfoort, 8 September
 * 2010 "De boom valt en niemand luistert", column, Lees ME 11, October
 * 2011 "Keuringspraktijk UWV. Inspectie Werk en Inkomen: bandbreedte in claimbeoordeling", Lees ME 12, February, p11-13
 * 2011 "Knelpunten in de zorg voor ME-patiënten", presentation, Landelijke ME informatiedag, Driebergen, 12 May
 * 2014 "Doorlopende Enquête Patiёntenperspectief 2012-2013", Stichting ME Research, 8 February
 * 2014 "De postvirale hersenaandoening Myalgische Encefalomyelitis. Stand van zaken 2014", ME Vereniging Nederland, 29 March
 * 2014 "Preconcept Multidisciplinaire Richtlijn ME", presentation, Landelijke ME informatiedag, Utrecht, 12 May
 * 2015 "Tips voor nieuwe ME-patiënten", ME Vereniging Nederland, 27 January
 * 2015 "Doorlopende Enquête Patiёntenperspectief 2012-2014", Stichting ME Research, 9 September
 * 2015 "Myalgische Encephalomyelitis (ME)", De Hersenen, MediaPlanet, 16 September
 * 2016 "Gezondheidsraad - hoe anders", presentation, Landelijke ME informatiedag, Den Haag, 12 May
 * 2018 "Gezondheidsraad zet ME-patiënten op zijspoor", SeniorenWijzer, Spring
 * 2019 "Blijft de ziekte ME een ondergeschoven kindje?", SeniorenWijzer, Summer, p24-25

Chronic Fatigue Syndrome

 * 2006 "Advies inzake het ZonMW-Onderzoeksprogramma Chronisch Vermoeidheids Syndroom", ME/CVS Vereniging,
 * 2006 "E. van de Putte, 'Exploring Chronic Fatigue Syndrome in Adolescents' (proefschrift)", book review, Lees ME 1, December, p42-45
 * 2007 "Gezondheidsraad, 'Verzekeringsgeneeskundig protocol Chronische-vermoeidheidssyndroom'", book review, LeesME 2, May, p44-45
 * 2007 "Advies aan ZonMw inzake de tweede ronde van het Onderzoeksprogramma CVS", May
 * 2007 "NICE Guideline", review, Lees ME 3, October, p32-35
 * 2009 "Chronischevermoeidheidssyndroom: een psychoneuro-immunologisch perspectief", comments, Tijdschrift voor Psychiatrie, October, p786-787
 * 2010 "Het chronisch vermoeidheidssyndroom. De beoordeling door verzekeringsartsen", included comments, Inspectie Werk en Inkomen, Ministerie van Sociale Zaken en Werkgelegenheid, November
 * 2012 "Commentaar op het concept van de CBO-richtlijn CVS", ME Vereniging Nederland, 12 April

Patient advocacy

 * 2003 "Van willekeur naar basisinkomen", Attac-lecture, Den Haag, 25 February
 * 2010 "De ME/CVS Vereniging", LeesME 10, May, p8-10
 * 2012 "Samenwerkingsovereenkomst Samenwerkingsverband Pijnpatiënten naar één stem", December
 * 2013 "Een meedenkende patiënt is een goedkope(re) patiënt", Manifest aan de Tweede Kamer, 15 October
 * 2015 "Vrijheid in solidariteit. Een basisinkomen voor chronisch zieken en mensen met een beperking", Sociaal Bestek, June, p34-36
 * 2017 "De stem van de patiënten en hun organisaties gehoord. Drie pleidooien aan de politiek van ruim 5 miljoen mensen met een aandoening", PatiëntenPerspectief 2021, 21 February

Interviews

 * 2013 ME Vereniging Nederland, 21 June
 * 2016 Gezond en Wel, GL8 media, 18 November
 * 2018 "ME-patiënt Guido kritisch over erkenning ziekte: 'Nieuwe criteria onbekend'", RTL Nieuws, 19 maart

Online Presence

 * ME Vereniging Nederland
 * Stichting ME Research
 * DossierME (YouTube)
 * IMDb
 * LinkedIn
 * Wikisage
 * Paraduin
 * Bellerophon