Trans-NIH ME/CFS Working Group

October 29, 2015, the Director of the National Institutes of Health, Francis Collins, announced a Trans-NIH Working Group on ME/CFS.

NIH press release
NIH takes action to bolster research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Formation announcement
NIH announces new effort to tackle chronic fatigue syndrome

Washington Post To Your Health Section By: Lenny Bernstein

" ...the mysterious, debilitating condition that disables many of its more than 1 million Americans who have it."

A Boost for Chronic Fatigue Syndrome Research

The Atlantic By: Olga Khazan

" ...strengthen its efforts to find the roots of a mysterious disorder known as Chronic Fatigue Syndrome, or Myalgic Encephalomyelitis."

NIH refocuses research into chronic fatigue syndrome

AAAS-Science Insider By: Jon Cohen

"The attitude among many researchers has been “maybe this is an unsolvable problem, let’s just work on something else,” Collins says. “I’m happy to say we’re countering that attitude rather strongly here.”'

Charlie Rose Interview with Dr. Francis Collins - Video

Charlie Rose Show

Dr. Francis Collins, director of the National Institutes of Health, discusses the Precision Medicine Initiative and the BRAIN Initiative. (CFS discussion begins at 16:00)

Dr. Francis Collins' CFS comments Transcribed By: Russel Flemming Firestormmer on Twitter

Chronic fatigue syndrome recognized at last

San Francisco Chronicle By: Rivka Solomon

"After 30 years of neglect, the federal government promised late last month to bolster research on myalgic encephalomyelitis/chronic fatigue syndrome — the equivalent of promising to help multiple sclerosis or Parkinson’s, two other important neurological diseases with no known cause or cure. Thanks to years of prodding by patient advocates, the National Institutes of Health now understands myalgic encephalomyelitis is a serious disease that brings significant functional impairment."

Notable people

 * Walter Koroshetz (Chair)
 * Vicky Whittemore (NIH Representative to HHS CFS Advisory Committee)
 * Harvey Alter (NIH Clinical Center)

Online presence

 * Trans-NIH Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Working Group

Learn more

 * 2016, NINDS to consider recommendations from ME/CFS advocates
 * Working group members