Talk:Netherlands

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2018 needs description -- notjusttired (talk) 20:29, September 12, 2019 (EDT)[edit source | reply | new]

See learn more link for report. Twisk's article may be helpful. notjusttired (talk) 20:29, September 12, 2019 (EDT)

That's just one source, there is more. Guido den Broeder (talk) 21:02, September 12, 2019 (EDT)

Foreigners?[edit source | reply | new]

Do we include foreign researchers and clinicians who work in the Netherlands, like Maes? Guido den Broeder (talk) 08:40, September 13, 2019 (EDT)

Researchers and clinicians are cataloged by where they work, not their nationality. Where they work may inform their research more than where they originated. Kmdenmark (talk) 12:20, September 13, 2019 (EDT)
Excellent. Guido den Broeder (talk) 13:33, September 13, 2019 (EDT)

Some characteristics of Dutch patient groups[edit source | reply | new]

Name Type Patients Accepts Voting Target Actual Connected Main medical Gov funding
Groep ME-Den Haag petitioners 101 n.a. unknown ME ME none n.a. none
ME Vereniging Nederland association 250 ME only members ME ME DBC, GAME, STMER CVS/ME Medisch Centrum none
Stichting ME-de-patiënten foundation 11 n.a. board ME n.a. EMEA unknown none
ME/cvs Vereniging association 3001 all sympathetic members SEID ('ME/cfs') SEID none Stichting Cardiozorg none2
Steungroep ME en Arbeidsongeschiktheid foundation 5001 all sympathetic board SEID ('ME and CFS') CFS none n.a. UWV (projects)
ME/CVS-Stichting Nederland foundation 15001 all sympathetic board SEID ('ME/CFS') CFS/CF Pijn, VK Vermoeidheid Kliniek3 annual subsidy

Notes[edit source | reply | new]

  1. estimate
  2. received a project subsidy for Science for Patients
  3. previous main medical: Nederlands Kenniscentrum Chronische Vermoeidheid

All groups are national. Guido den Broeder (talk) 08:46, September 14, 2019 (EDT)