Severe ME - Featuring: "Justice for Karina Hansen"
|Subject||Carer's guide, patient guide|
|Media type||print & digital|
Publisher's synopsis[edit | edit source]
(This synopsis was provided by the publisher for promotional purposes. For book reviews, please see Links section below.)
This is the second edition of Greg's book, previously entitled "Care for Someone with Severe Myalgic Encephalomyelitis." Greatly expanded and updated it features voices from all around the world. Contributors include Natalie Boulton, Dr John L Whiting, Martin Walker, Dr Mary Schweitzer, Catherine Ashenfelter, Simon Lawrence, Dr Raymond Perrin, Carrigon, Liisa Priyanka Lugus, Laura Brown, Rob Wijbenga, Rebecca Hansen, Diane, Pixi and Michael Evison. "Breathtaking, impressive, touching and practical." Rob Wijbenga (Holland) "It will help you understand what the person with Severe ME is going through, better than any other book I know of, and help enable you to cope with such a terrible situation in the most helpful and constructive way possible." Natalie Boulton, maker of Voices From the Shadows.
Links[edit | edit source]
- Severe ME - Featuring: "Justice for Karina Hansen" - Amazon (US) (Kindle)
- Severe ME - Featuring: "Justice for Karina Hansen" - Amazon (UK) (Kindle)
- Severe ME - Featuring: "Justice for Karina Hansen" - Lulu.com (Paperback)
- Severe ME - Featuring: "Justice for Karina Hansen" - Goodreads
References[edit | edit source]
myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.