Caring for ME
|Jul 1, 2018|
Publisher's synopsis[edit | edit source]
If you have the privilege to care for someone with ME, then you really do need to be the best carer you possibly can be. You have to develop an extra special level of awareness, one that requires commitment and boldness of heart.
Caring in this situation is highly skilled, challenging, demanding and never necessarily straightforward. It requires self- reflection and understanding to keep growing and to keep going. You cannot afford to be complacent, otherwise you risk becoming part of the problem.
This book is a short course, with reflective questions, punctuated with pictures and information about ME, to enable you to think more deeply about your role, your knowledge, your beliefs and your particular skills as a carer.
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myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.