Associació Catalana D'Afectats Per La Síndrome De Fatiga Crónica/Encefalomielitis Miálgica

ACSFCEM or Associació Catalana D'Afectats Per La Síndrome De Fatiga Crónica/Encefalomielitis Miálgica was the first Association of People Affected by Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (CFS / ME) in Spain.

It was founded in 1999 by a group of patients and since then, it has been working continuously, caring for the sick, their family and friends, wherever they are, and actively participating in everything that comes in. within our goals. It is a non-profit organization. Its partners belong mainly to Barcelona, Catalonia and Spain.

Aims

1. to provide a support and guidance service to patients 2. to give visibility to these diseases, promoting the necessary actions to achieve medical, institutional and social recognition, and the adequate medical and health care of those affected and working to make them occupy the place they deserve.

Activities and events

Among the various actions carried out by the Association are:

-Workshops led by professional therapists, such as:

Microgymnastics, Acupuncture, Music Therapy, the Therapeutic Group, Sophrology ..., which help to improve their quality of life and, above all, to alleviate some of the effects of the disease.

-Talks / Conferences, open to everyone. -Round tables with patients and doctors. -Publications in various media. -The presence on social networks

Online presence

• Website
• Twitter
• Facebook page
• YouTube channel
• Instagram
• LinkedIn

See also

• Spain

Learn more

• Website

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.