Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Zaher Nahle
(section)
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit
Edit source
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
==National committees and advocacy== *Oct 2016 - present β Member of [[Centers for Disease Control and Prevention|CDC]] Technical Development Working Group *Jan 2017 - present β Member of the Baseline/Covariate Working Group and the Neurologic/Cognitive/CNS Imaging Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the [[National Institute of Neurological Disorders and Stroke]] and the [[Centers for Disease Control and Prevention]].<ref>{{Cite web|url=https://www.commondataelements.ninds.nih.gov/Myalgic%20Encephalomyelitis/Chronic%20Fatigue%20Syndrome#pane-138 | title = Complete Myalgic Encephalomyelitis/Chronic Fatigue Syndrome CDE Roster | last= | first = | author-link =| date = |website=NIH|archive-url=|archive-date=|url-status=|access-date=2019-10-11}}</ref> This working group reviewed data collection instruments widely used by investigators in the [[ME/CFS]] field, and either recommended their use unchanged or (more often) proposed some modifications.<ref>https://www.commondataelements.ninds.nih.gov/Doc/MECFS/Baseline_Covariate_Information_Subgroup_Summary.pdf</ref> *Mar 8, 2017 β Written Public Testimony from the [[Solve ME/CFS Initiative]] to the House Committee on Appropriations, Subcommittee on Labor Health & Human Services *May 17, 2017 β Rare Disease Legislative Advocates (RDLA), EveryLife Foundation legislative meeting in Washington, DC β Ensuring [[NIH]] Funding Benefits Science and Discovery in Rare and Neglected Diseases *May 18, 2017 β Congressional Briefing on [[ME/CFS]] - [https://www.youtube.com/watch?v=Najd5O7usnQ/ Recording of Congressional Briefing on ME/CFS] - [http://solvecfs.org/wp-content/uploads/2017/05/InvisibleCrisis_wide_051817-print.pdf/ (Slides of briefing)] * Aug 2019, Editorial: Advances in ME/CFS Research and Clinical Care<ref>{{Cite journal | last = Friedman | first = Kenneth | authorlink = Kenneth Friedman | last2 = Bateman | first2 = Lucinda | author-link2 = Lucinda Bateman | last3 = Bested | first3=Alison C. | author-link3 = Alison Bested | last4 = Nahle | first4 = Zaher | author-link4 = Zaher Nahle | date = Aug 2019 | title = Editorial: Advances in ME/CFS Research and Clinical Care|url=https://www.frontiersin.org/articles/10.3389/fped.2019.00370/full|journal=Frontiers in Pediatrics|volume=|issue=|pages=|doi=10.3389/fped.2019.00370|pmc=|pmid=|access-date=|quote=|via=}}</ref> - [https://www.frontiersin.org/articles/10.3389/fped.2019.00370/full (Full text)]
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs