Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Workwell Foundation
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit
Edit source
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
Workwell Foundation was founded by [[Staci Stevens]] and is based in Ripon, California, US. It specialises in [[two-day cardiopulmonary exercise test]] (2-day CPET) for people with [[ME/CFS]], [[Fibromyalgia]] and other fatiguing illnesses. ==Notable people== *[[Staci Stevens]]: Founder *[[Christopher Snell]]: Scientific Advisory Committee Chair *[[Daniel Peterson]]: Medical Supervisor *[[Mark VanNess]]: Scientific Advisory Committee Member *[[Todd Davenport]]: Scientific Advisory Committee Member ==Notable studies== *2013, [http://ptjournal.apta.org/content/early/2013/06/26/ptj.20110368.short Discriminative validity of metabolic and workload measurements to identify individuals with Chronic Fatigue Syndrome]<ref name="Snell2013" /> *2011, [http://www.ncbi.nlm.nih.gov/pubmed/21208154 Diagnostic accuracy of symptoms characterising chronic fatigue syndrome]<ref name="Davenport2011" /> *2010, [http://www.ncbi.nlm.nih.gov/pubmed/20095909 Post-exertional malaise in women with chronic fatigue syndrome]<ref name="VanNess2010" /> *2010, [http://ptjournal.apta.org/content/90/4/602.full Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]<ref name="Davenport2010" /> *2005,[http://iv.iiarjournals.org/content/19/2/387.full.pdf Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)]<ref name="Snell2005" /> *2003, Subclassifying Chronic Fatigue Syndrome through Exercise Testing<ref name="VanNess2003">{{cite journal | last=VanNess | first=J. Mark | authorlink = J. Mark VanNess | last2 = Snell | first2=Christopher R. | authorlink2 = Christopher Snell | last3 = Strayer | first3=David R. | authorlink3= David Strayer | last4 = Dempsey | first4 = Line | author-link4 = | last5 = Stevens | first5 = Staci R. | authorlink5 = Staci Stevens | title=Subclassifying Chronic Fatigue Syndrome through Exercise Testing | url = https://doi.org/10.1249%2F01.mss.0000069510.58763.e8 |journal=Medicine & Science in Sports & Exercise | volume=35 | issue=6 | year=2003 | issn=0195-9131 | doi=10.1249/01.mss.0000069510.58763.e8 | pages=908β913}}</ref> ==Exercise recommendations for [[ME/CFS]]== Workwell Foundation recommends short periods (eg: 30 seconds) of analeptic exercise, with periods of rest which are 3-6 times longer than the period of exercise. The amount of exercise that the individual undertakes should be guided by VO2 max testing (or a safe heart rate threshold (generally 60% of maximum heart rate)), and the use of a heart rate monitor (both during exercise and to help with [[pacing]]) is recommended to ensure that the individual doesn't exceed their capacity. The Foundation also advises against aerobic exercise for people with [[ME/CFS]].<ref name="Workwell201404rae" /><ref name="Workwell201404wwodwo" /><ref name="Workwell201512foar" /> This approach to exercise differs from [[graded exercise therapy]] (GET) in several important ways: *There is no claim that the exercise program will cure the condition. The aim is to increase functional strength and flexibility, and to improve quality of life<ref name="Workwell201404wwodwo" /> *This program is based on a deep understanding of [[Post-exertional malaise]] (PEM), and the importance of staying within the [[energy envelope]] in order to not trigger [[PEM]]<ref name="Workwell201404rae" /> *There is a recognition that any approach to exercise with people with [[ME/CFS]] must be carefully tailored to the individual. There is no one-size fits all<ref name="Workwell201404wwodwo" /> *This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual<ref name="Workwell201512foar" /> ==COVID-19 rehabilitation information== * May 2020, [https://www.physiosforme.com/covid-19 Post Covid-19 Rehabilitation]<ref name="PhysiosforME-COVID19">{{Cite web|url=https://www.physiosforme.com/covid-19 | title = Post Covid-19 Rehabilitation | last =Physio for ME | first = |authorlink=Physios for ME | last2 = Workwell Foundation | first2= | authorlink2 = Workwell Foundation | date = May 2020 | website = Physiosforme|language=en|archive-url=|archive-date=|url-status=|access-date=2020-05-02 | last3 = ME Association | author-link3 = ME Association}}</ref> - [[Physios for ME]], Workwell Foundation, and [[ME Association]] ==Open letters== *2018, [https://www.meassociation.org.uk/2018/05/me-awareness-week-workwell-foundation-graded-exercise-for-me-cfs-is-detrimental-to-the-health-of-patients-and-should-not-be-recommended-07-may-2018/ The Workwell Foundation release an open letter to healthcare providers, detailing their concerns about GET.] *2020, [[Opposition to Oxford Health NHS Foundation Trust: "Coping with Coronavirus: Fatigue"]] - joint letter with over 20 UK organisations, professionals and politicians ==Funding== ==Talks and interviews== *[http://youtu.be/XFz4CK0Js1M Video: Post-exertional malaise: How to do more with less], ''Staci Stevens, Vancouver BC Canada, May 2015''<ref name="Stevens20150524video" /> *[http://youtu.be/q_cnva7zyKM Video: A Realistic Approach to Exercise and Rehabilitation in ME/CFS], ''Mark VanNess, Bristol UK, Feb 2014''<ref name="VanNess20140205video" /> *[http://youtu.be/xIDFahiCySw Video: Cardio-Pulmonary Exercise Test (CPET)], ''Workwell Foundation, Mar 2014''<ref name="Workwell20140317video" /> ==Online presence== *PubMed *[https://twitter.com/4WorkWell Twitter] *Facebook *[http://www.workwellfoundation.org Website] *YouTube ==Learn more== *[http://www.cortjohnson.org/blog/2013/07/30/busted-exercise-study-finds-energy-production-system-is-broken-in-chronic-fatigue-syndrome/ Busted! Exercise study finds exercise production system is broken in Chronic Fatigue Syndrome], ''Cort Johnson, Jul 2013''<ref name="JohnsonC20130730busted" /> *[http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf Functional outcomes of anaerobic rehabilitation in a patient with Chronic Fatigue Syndrome: Case report with 1-year follow up], ''Workwell Foundation, Dec 2015''<ref name="Workwell201512foar" /> *[http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf When working out doesn't work out], ''Workwell Foundation, Apr 2014''<ref name="Workwell201404wwodwo" /> *[http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf A realistic approach to exercise for CFS patients], ''Workwell Foundation, Apr 2014''<ref name="Workwell201404rae" /> ==See also== *[[Two-day cardiopulmonary exercise test]] *[[Post-exertional malaise]] *[[Exercise]] *[[Mark Vink]] ==References== <references> <ref name="Davenport2010">{{citation | last1 = Davenport | first1 = Todd E | authorlink1 = Todd Davenport | last2 = Stevens | first2 = Staci R | authorlink2 = Staci Stevens | last3 = VanNess | first3 = J Mark | authorlink3 = Mark VanNess | last4 = Snell | first4 = Christopher R | authorlink4 = Christopher Snell | last5 = Little | first5 = Tamara | authorlink5 = Tamara Little | title = Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis | journal = Physical Therapy (APTA) | volume = 90 | issue = 4 | page = 602-614 | date = 31 Mar 2010 | pmid = 20185614 | doi = 10.2522/ptj.20090047 | url = http://ptjournal.apta.org/content/90/4/602.full }}</ref> <ref name="Davenport2011">{{citation | last1 = Davenport | first1 = Todd E | authorlink1 = Todd Davenport | last2 = Stevens | first2 = Staci R | authorlink2 = Staci Stevens | last3 = Baroni | first3 = Katie | authorlink3 = Katie Baroni | last4 = VanNess | first4 = J Mark | author-link4 = Mark VanNess | last5 = Snell | first5 = Christopher R | authorlink5 = Christopher Snell | title = Diagnostic accuracy of symptoms characterising chronic fatigue syndrome | journal = Disabil Rehabil | volume = 33 | issue= 19-20 | page = 1768-75 | date = 6 Jan 2011 | pmid = 21208154 | doi = 10.3109/09638288.2010.546936 | url = http://www.tandfonline.com/doi/abs/10.3109/09638288.2010.546936 }}</ref> <ref name="JohnsonC20130730busted">{{citation | last1 = Johnson | first1 = Cort | authorlink1 = Cort Johnson | title = Busted! Exercise Study Finds Energy Production System is Broken in Chronic Fatigue Syndrome | date = 30 Jul 2013 | url = http://www.cortjohnson.org/blog/2013/07/30/busted-exercise-study-finds-energy-production-system-is-broken-in-chronic-fatigue-syndrome/ }}</ref> <ref name="Snell2005">{{citation | last1 = Snell | first1 = Christopher R | authorlink1 = Christopher Snell | last2 = VanNess | first2 = J Mark | author-link2 = Mark VanNess | last3 = Strayer | first3 = David R | authorlink3 = David Strayer | last4 = Stevens | first4 = Staci R | authorlink4 = Staci Stevens | title = Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS) | journal = In Vivo | volume = 19 | issue =2 |page = 387-390 | date = 2005 | pmid = 15796202 | url = http://iv.iiarjournals.org/content/19/2/387.full.pdf }}</ref> <ref name="Snell2013">{{citation | last1 = Snell | first1 = Christopher R | authorlink1 = Christopher Snell | last2 = Stevens | first2 = Staci R | authorlink2 = Staci Stevens | last3 = Davenport | first3 = Todd E | authorlink3 = Todd Davenport | last4 = VanNess | first4 = J Mark | author-link4 = Mark VanNess | title = Discriminative Validity of Metabolic and Workload Measurements for Identifying People With Chronic Fatigue Syndrome | journal = Physical Therapy (APTA) | volume = 93 | issue = 11 | page = 1484-1492 | date = 31 Oct 2013 | pmid = 23813081 | doi = 10.2522/ptj.20110368 | url = http://ptjournal.apta.org/content/93/11/1484 }}</ref> <ref name="Stevens20150524video">{{citation | last1 = Stevens | first1 = Staci R | authorlink1 = Staci Stevens | last2 = ME/FM Society of British Columbia (Canada) | title = Video: Post-exertional malaise: How to do more with less | date = 24 May 2015 | place = Vancouver, BC, Canada | url = http://youtu.be/XFz4CK0Js1M }}</ref> <ref name="VanNess2010">{{citation | last1 = VanNess | first1 = J Mark | author-link1 = Mark VanNess | last2 = Stevens | first2 = Staci R | authorlink2 = Staci Stevens | last3 = Bateman | first3 = Lucinda | authorlink3 = Lucinda Bateman | last4 = Stiles | first4 = Travis L | authorlink4 = Travis Stiles | last5 = Snell | first5 = Christopher R | authorlink5 = Christopher Snell | title = Post-exertional malaise in women with chronic fatigue syndrome | journal = J Womens Health (Larchmt) | volume = 19 | issue = 2 | page = 239-244 | date = 4 Jan 2010 | pmid = 20095909 | doi = 10.1089/jwh.2009.1507 | url = http://online.liebertpub.com/doi/abs/10.1089/jwh.2009.1507 }}</ref> <ref name="VanNess20140205video">{{citation | last1 = VanNess | first1 = J Mark | author-link1 = Mark VanNess | title = Video: A Realistic Approach to Exercise and Rehabilitation in ME/CFS | date = 5 Feb 2014 | place = Bristol Watershed, UK | url = https://www.youtube.com/watch?v=q_cnva7zyKM }}</ref> <ref name="Workwell20140317video">{{citation | author = Workwell Foundation | title = Video: Cardio-Pulmonary Exercise Test (CPET) | date = 17 Mar 2014 | url = http://youtu.be/xIDFahiCySw }}</ref> <ref name="Workwell201404rae">{{citation | last1 = VanNess | first1 = J Mark | author-link1 = Mark VanNess | last2 = Snell | first2 = Christopher R | authorlink2 = Christopher Snell | last3 = Stevens | first3 = Staci R | authorlink3 = Staci Stevens | title = A Realistic Approach to Exercise for CFS Patients | journal = The CFS Research Review | date = 2000 | volume = 1 | issue = 4 | pages = 3-8 | url = http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf }}</ref> <ref name="Workwell201404wwodwo">{{citation | last1 = Snell | first1 = Christopher R | authorlink1 = Christopher Snell | last2 = VanNess | first2 = J Mark | author-link2 = Mark VanNess | last3 = Stevens | first3 = Staci R | authorlink3 = Staci Stevens | title = When Working Out Doesn't Work Out | journal = The CFIDS Chronicle | volume = 17 |issue = 3 | pages = 6 | date = 2004 | url = http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf }}</ref> <ref name="Workwell201512foar">{{citation | last1 = Stevens | first1 = Staci R | authorlink1 = Staci Stevens | last2 = Davenport | first2 = Todd E | authorlink2 = Todd Davenport | display-authors = | title = Functional Outcomes of Anaerobic Rehabilitation in a Patient with Chronic Fatigue Syndrome: case report with 1-year follow-up | journal = Bulletin of the IACFS/ME | volume = 18 | issue = 3 | page = 93-98 | date = 2010 | url = http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf }}</ref> </references> [[Category:Research initiatives]] [[Category:American research initiatives]] [[Category:Clinics]] [[Category:American clinics]] [[Category:California clinics]]
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Templates used on this page:
Template:Citation
(
edit
)
Template:Cite journal
(
edit
)
Template:Cite web
(
edit
)
Module:Citation/CS1
(
edit
)
Module:Citation/CS1/COinS
(
edit
)
Module:Citation/CS1/Configuration
(
edit
)
Module:Citation/CS1/Date validation
(
edit
)
Module:Citation/CS1/Identifiers
(
edit
)
Module:Citation/CS1/Utilities
(
edit
)
Module:Citation/CS1/Whitelist
(
edit
)
Module:No globals
(
edit
)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs