MEpedia:Contents: Difference between revisions

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===Herbs, Supplements and Nutraceuticals===
===Herbs, Supplements and Nutraceuticals===


'''[[:Category:Supplements|Supplements]]:''' [[Probiotics]], [[AHCC]], [[CoQ10]], [[L-carnitine]], [[MitoQ]], [[NADH]], [[PrescriptAssist]], [[Mutaflor]], [[GcMAF]], [[Colostrum]], [[Transfer factors]], [[Fish oil]], [[EPA]], [[DHA]], [[Taurine]], [[L-Glutamine]], [[Glutathione]], [[Niacinamide]], [[B Vitamin Complex]], [[Adaptogens]] ([[Eleuthro]], [[Ginseng]], [[Ashwaganda]], [[Rhodiola]], [[Licorice]]), [[Mangosteen]], [[Vegan/non-whey Protein Powders with Amino Acid Complex]], [[Greens Powders]], [[D-Ribose]], [[Quercetin]], [[Nexavir]], [[5-Hydroxytryptophan]], [[Melatonin]], [[L-arginine]], [[L-citrulline]], [[n-acetylcysteine]]
'''[[:Category:Supplements|Supplements]]:''' [[Probiotics]], [[AHCC]], Magnesium Malate, [[CoQ10]], [[L-carnitine]], [[MitoQ]], [[NADH]], [[PrescriptAssist]], [[Mutaflor]], [[GcMAF]], [[Colostrum]], [[Transfer factors]], [[Fish oil]], [[EPA]], [[DHA]], [[Taurine]], [[L-Glutamine]], [[Glutathione]], [[Niacinamide]], [[B Vitamin Complex]], [[Adaptogens]] ([[Eleuthro]], [[Ginseng]], [[Ashwaganda]], [[Rhodiola]], [[Licorice]]), [[Mangosteen]], [[Vegan/non-whey Protein Powders with Amino Acid Complex]], [[Greens Powders]], [[D-Ribose]], [[Quercetin]], [[Nexavir]], [[5-Hydroxytryptophan]], [[Melatonin]], [[L-arginine]], [[L-citrulline]], [[n-acetylcysteine]]


'''[[:Category:Supplement sources|Supplement sources]]:''' [[Pure Formulas]], [[Be Well By Dr Frank Lipman]], [[Seeking Health]], [[MITOQ]], [[Aloha]], [[ProHealth]], [[Thrive Marketplace]], [[HolisticHeal]], [[Vitacost.com]]
'''[[:Category:Supplement sources|Supplement sources]]:''' [[Pure Formulas]], [[Be Well By Dr Frank Lipman]], [[Seeking Health]], [[MITOQ]], [[Aloha]], [[ProHealth]], [[Thrive Marketplace]], [[HolisticHeal]], [[Vitacost.com]]

Revision as of 09:43, November 25, 2017

We are crowd-sourcing a knowledge base on the history, science and medicine of ME and CFS around the world. MEpedia is a patient community project being built by patients, founded by #MEAction. Read more about MEpedia and its principles.

Want to take a look around? See our most popular pages, check our newest pages, or visit a random page. You can also browse a list of all pages or see a condensed version of this page.

Primers[edit | edit source]

Choose a Primer to learn about the disease Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.


Please contribute[edit | edit source]

Anyone can create pages, write content, add links/citations, fact-check, or even just fix typos. Get involved and help the patient community identify all of the best and most important resources for our disease and its research, treatment and history. Start now, read our Editorial Guidelines and how to contribute. Please join the MEpedia online forum, Facebook group, follow us on Twitter and subscribe to us on Reddit.

Pages that are a red link have not been created yet and need to be populated. Pages that have been created (blue links) but need to be expanded are marked as stubs - a full list of all stubs (currently over 170 pages) can be found here. We also have a list of priority pages for expansion.

Pages that have problems such as incorrect information, formatting issues, or a lack of citations are marked with a cleanup note. A full list of pages requiring cleanup can be found here.

All of our MEpedia editing guidelines can be found here.

Five minute tasks[edit | edit source]

Only have a five minute spoon to give? Here is a list of small tasks you can help us with in roughly one to ten minutes of time.

Priority pages for expansion[edit | edit source]

Science: Citric acid cycle, Mitochondria, Exercise, Natural killer cell, Central nervous system, Nitric oxide hypothesis, Brain, Brain imaging, Microbiome hypothesis, Primer for journalists (Prognosis section), PACE trial

A note on ME v. CFS[edit | edit source]

We have separate pages for Myalgic Encephalomyelitis, ME/CFS and Chronic Fatigue Syndrome as well as SEID. The convention is that the terminology used in an ME-pedia article should match the terminology used in the underlying source. Where there is a tension between the term used in the source and the definition (e.g., ME defined by the Oxford criteria or CFS defined by the Canadian Consensus Criteria), it may be useful for clarity to mention the definition used.

The Disease[edit | edit source]

Infectious agents: Aerobic bacteria, Babesia, Bacterial infection, Bartonella, Borrelia burgdorferi, Brucella, Candida albicans, Chlamydia pneumoniae, Clostridium difficile, Coxiella burnetii, Coxsackie A virus, Coxsackie B virus, Cyanobacteria, Cytomegalovirus, Echovirus, Enterovirus, Enterovirus B, Epstein-Barr virus, Escherichia coli, Fungal infection, Giardia, Herpes simplex virus, Herpesviruses, Human herpesvirus 6, Human herpesvirus 7, Human papillomavirus, Human T-lymphotropic virus, Infection, Influenza A virus subtype H1N1, List of chronic diseases linked to infectious pathogens, Mycoplasma, Parvovirus B19, Pathogen, Persistent infection, Poliovirus, Ross River virus, Severe acute respiratory syndrome coronavirus, Severe acute respiratory syndrome coronavirus 2, Staphylococcus, Staphylococcus aureus, Staphylococcus xilosus, Streptococcus, Varicella zoster virus, Xenotropic murine leukemia virus-related virus, Category:Bacteria, Category:Coronaviruses, Category:Enteroviruses, Category:Fungal infections, Category:Funguses, Category:Herpesviruses, Category:Influenza viruses, Category:Parasites, Category:Viruses

, Brucella, Coxsackie A, Fungal infection,Giardia lamblia, Human T-lymphotropic virus, Influenza, Ross River Virus,

Triggers and risk factors: Arsenic, Bacterial disease onset, Bacterial infection, Blood donation, Borna disease virus, Brucellosis, Candidiasis, Chickenpox, Chlamydia pneumoniae, Chronic ciguatera fish poisoning, Chronic epipharyngitis, COVID-19, Coxiella burnetii, Coxsackie A virus, Coxsackie B virus, Coxsackievirus, Cytomegalovirus, Ebola virus disease, Echovirus, Enterovirus, Enterovirus B, Epstein-Barr virus, Female predominant diseases, Flu-like illness, Fungal infection, Genetics of chronic fatigue syndrome, Giardia, Giardiasis, Gluten, Hepatitis B vaccine, Hepatitis C, Herpes simplex virus, Herpesviruses, HPV vaccine, Human herpesvirus 6, Human herpesvirus 7, Human T-lymphotropic virus, Infection, Infectious disease, Influenza, Influenza A virus subtype H1N1, Influenza B, Ionizing radiation, Meningitis, Menstrual cycle, Mercury, Mold, Mononucleosis, Mycoplasma, Non-cytolytic enterovirus, Nutcracker phenomenon, Organophosphate, Parvovirus B19, Pathogen, Pesticide exposure link to ME/CFS, Picornavirus, Poliovirus, Pregnancy, Q fever, Ross River virus, Severe acute respiratory syndrome, Severe acute respiratory syndrome coronavirus, Severe acute respiratory syndrome coronavirus 2, Sinusitis, Stress, Trauma, Tung oil, Vaccine, Varicella zoster virus, Viral infection, Viral onset hypothesis, Category:Bacterial diseases, Category:Coronaviruses, Category:Enteroviruses, Category:Herpesviruses, Category:Infectious agents, Category:Influenza viruses, Category:Parasites, Category:Parasitic diseases, Category:Picornaviruses, Category:Vaccines, Category:Viral diseases, Category:Viruses

, Candidiasis, Bacterial disease onset, Fungal disease onset

Signs and symptoms: Abdominal pain, Alcohol intolerance, Allodynia, Anaphylaxis, Anorexia (appetite loss), Anxiety, Aphasia, Arrhythmia, Arthralgia, Ataxia, Attention deficit, Auditory sequencing problems, Aural problems, Balance problems, Basilar invagination, Blackouts, Bladder dysfunction, Bloating, Body temperature, Bradycardia, Brain fog, Breathing problems in ME/CFS, Capillary fragility, Cardiovascular problems in ME/CFS, Carpal tunnel syndrome, Cerebral hypoperfusion, Chemical sensitivities, Chest pain, Chronic fatigue, Chronic pain, Chronotropic incompetence, Cocktail party phenomena, Cognitive dysfunction, Cognitive overload, Cold hands and feet, Common symptoms in ME/CFS, Confusion, Constipation, Costochondritis, Cough, Daytime sleepiness, Delayed onset of post-exertional symptoms, Depression, Diarrhea, Difficulty comprehending social cues, Difficulty learning new information, Difficulty processing information, Difficulty thinking, Digestive problems, Distractability, Dizziness, Dry eye syndrome, Dry mouth, Dysbiosis, Dyscalculia, Dysgeusia, Dyslexia, Dysmenorrhea, Dysphagia, Dysphasia, Dyspnea, Ear pain, Emotional dysfunction, Emotional liability, Encephalitis, Endothelial dysfunction, Excessive irritability, Excessive sweating, Executive function problems, Eye pain, Fatigue, Fever, Fingerprint change, Floaters, Flu-like symptoms, Fluctuating illness, Food sensitivities, Formication, Gas, Hair loss, Headache, Heart palpitation, Heart rate variability, Heartburn, Hot flushes, Hyperalgesia, Hyperesthesia, Hypersensitivity, Hypersomnia, Hyperthermia, Hypokalemic periodic paralysis, Hypotension, Impaired depth perception, Inflammation, Insomnia, Interstitial cystitis, Intestinal permeability, Irregular menstrual cycles, Irritable bowel syndrome, Joint hypermobility, Light-headedness, List of abnormal findings in chronic fatigue syndrome and myalgic encephalomyelitis, List of symptoms in ME CFS, Low blood volume, Low motivation, Low-grade fever, Malaise, Marked, rapid physical and/or cognitive fatigability in response to exertion, Medicine sensitivities, Memory problems, Menstrual problems in ME/CFS, Migraine, Mood swings, Multi-tasking problems, Talk:Multiple chemical sensitivity, Muscle atrophy, Muscle fasciculations, Muscle fatigability, Muscle spasm, Muscle strain, Muscular problems, Myalgia, Myoclonus, Nausea, Neck pain, Nerve pain, Neuralgia, Neurally mediated hypotension, Neuroendocrine symptoms, New allergies and intolerances, Night sweat, Nocturia, Non-celiac gluten sensitivity, Nonepileptic seizure, Nonexudative pharyngitis, Numbness, Odor sensitivities, Oral problems, Orientation in space problems, Orthostatic hypotension, Orthostatic intolerance, Pain, Pallor, Panic attack, Paralysis, Paresis, Paresthesia, Parosmia, Pathological inability to produce sufficient energy on demand with prominent symptoms primarily in the neuroimmune regions, Periodic paralysis, Personality change, Photophobia, Planning problems, Post-exertional exhaustion: immediate or delayed, Post-exertional malaise, Post-exertional symptom exacerbation, Postural hypotension, Postural orthostatic tachycardia syndrome, Premenstrual syndrome, Rare and uncommon symptoms, Rash, Receptive language problems, Recovery period is prolonged, usually taking 24 hours or longer, Respiratory depression, Scotomata, Seizure, Short QT interval, Sinusitis, Skin itch, Skin rash, Sleep dysfunction, Slowed thought, Small heart syndrome, Small intestinal bacterial overgrowth, Somnolence, Sore throat, Spatial disorientation, Speech difficulties, Sprain, Subnormal body temperature, Substantial reduction or impairment in the ability to engage in pre-illness levels of occupational, educational, social, or personal activities, Susceptibility to viruses, Swollen lymph nodes, Tachycardia, Telomere shortening, Temporomandibular joint disorder, Tinnitus, Tired all the time, Tremor, Unrefreshing sleep, Urinary frequency, Urinary urgency, Urticaria, Visual dysfunction, Vomiting, Weather sensitivity, Weight change, Weight gain, Weight loss, Word-finding problems

, Auditory sequencing problems, Balance problems, Difficulty comprehending social cues, Dyslexia, Executive function problems, Food intolerance, Hypermobility, Low motivation, Orientation in space problems, Planning problems, Receptive language problems, Slowed thought

Medical hypotheses: Acquired immune and mitochondrial dysfunction hypothesis, Amygdala hypothesis*, Autoimmune hypothesis, Encephalitis, Autoimmune encephalitis, Cell danger response, Fatty acid hypothesis, Hygiene hypothesis*, Hypercoagulation hypothesis, Immune exhaustion hypothesis*, Infectious disease hypothesis, Ken Lassesen's model, Methylation cycle hypothesis, Microbiome hypothesis, Mold hypothesis*, Nitric oxide hypothesis, Omega 3 fatty acid hypothesis, Patricia Kane protocol, Vagus nerve hypothesis, Viral onset hypothesis,

Body systems: Adaptive immune system, Adrenal gland, Autoantibody, B cell, Blood, Cardiovascular system, Central nervous system, Central sensitization, Chemokine, Cytokine, Dorsal root ganglion, Electrolyte, Endocrine system, Fibrin, Gastric acid, Gastrointestinal system, Glial cell, Gut-brain axis, Hippocampus, Hypothalamic-pituitary-adrenal axis, Hypothalamic-pituitary-gonadal axis, Immune system, Inflammation, Innate immune system, Interferon, Interleukin 1, Interleukin 1 alpha, Interleukin 1 beta, Interleukin 10, Interleukin 11, Interleukin 12, Interleukin 13, Interleukin 15, Interleukin 16, Interleukin 17, Interleukin 18, Interleukin 2, Interleukin 23, Interleukin 28, Interleukin 29, Interleukin 3, Interleukin 4, Interleukin 5, Interleukin 6, Interleukin 7, Interleukin 7 receptor, Interleukin 8, Interleukin 9, Ion transportation, Leaky brain, Leucocyte, Lymphocyte, Lymphotoxin-alpha, Macrophage, Microbiome, Microgenderome, Microglia, Mucosal immune system, Muscle, Musculoskeletal system, Natural killer cell, Natural killer T cell, Nervous system, Neuroendocrine system, Neurogenesis, Neuroinflammation, Neutrophil, Occipital cortex, Olfactory bulb, Parasympathetic nervous system, Red blood cell, Regulatory T cell, Ribonuclease L, RNA, Skeletal muscle, Spinal cord, Sympathetic nervous system, T cell, T helper cell, Thrombosis, Thymus, Thyroid gland, Tumor necrosis factor alpha, Vagus nerve, Vitamin D receptor, Zonulin, Category:Anatomy, Category:Blood components, Category:Cardiology, Category:Digestive system, Category:Endocrine system, Category:Energy system, Category:Immunology, Category:Neurology, Category:Reproductive system

, Tumor necrosis factors, VEGF, Leaky gut, Antibody, Autoantibody, Chemokine, Glutamate excitotoxicity, IL-2, IL-10,IL-17, Interleukin 18, Leaky brain, Macrophage

Tests: Ancestry DNA, Autopsy in Myalgic Encephalomyelitis, Bell CFIDS disability scale, Body mass index, Brief Fatigue Inventory, CDC 2005 Symptom Inventory for CFS, Diagnostic biomarker, Energy Index Point Score, Erythrocyte sedimentation rate, Euroqol 5D, Fatigue Severity Scale, Genetic testing, Grabb-Oakes measurement, Hospital Anxiety and Depression Scale, Infectious disease testing, Lactulose breath test, List of tests for diagnosis and treatment, Muscle biopsy, NASA 10-minute lean test, National Centre for Neuroimmunology and Emerging Diseases, PROMIS F-SF, Questionnaires and tools to assess ME/CFS symptoms or severity, Short Form 36-Item Health Survey, Six-minute walk test, SpO2, VO2 Max, Whole genome sequencing, Category:Health measures, Category:Laboratory test equipment, Category:Medical tests, Category:Symptom scales

, qEEG/LORETA, Erythrocyte sedimentation rate, MRI, Natural Killer Cell (NKC) Function, infectious diseases

Citizen science: 23andMe, American Gut, Any Treatment, British Gut Project,Mendus, Phoenix Rising, UBiome, Know Your Genetics: Dr. Amy Yasko, WellnessFX, CH3Nutrigenomics; Dr. Amy Yasko, MTHFR.net, Genetic Genie, LiveWello

Biochemistry and cell biology: Acetyl coenzyme A, Acid sensing ion channel 3, ADAM metallopeptidase with thrombospondin type 1 motif 19, Adenosine diphosphate, Adenosine monophosphate deaminase, Adenosine triphosphate, Adrenergic receptor, Alpha 2-adrenergic receptor, Alpha-lipoic acid, AMP-activated protein kinase, Anaerobic and aerobic metabolism, Ankyrin Repeat And Death Domain Containing 1B, Antioxidant, Argonaute RISC catalytic component 2, Armadillo Like Helical Domain Containing 4, ATP-Dependent RNA Helicase DDX51, B vitamin, Beta 2-adrenergic receptor, Beta adrenergic receptor, Beta-oxidation, BLLF3, Brain-derived neurotrophic factor, BRRF1, Calcitonin gene-related peptide, Carbohydrate, Carnitine, CCL2, CCL3, CCL4, CCL7, Cell danger response hypothesis, Cell membrane, Cell signaling, Cellular respiration, Channelopathy, Choline, Citric acid cycle, Cobalamin, Coenzyme Q10, Collagen, Complement C4a, Complexin 2, Connective tissue growth factor, Corticotropin-releasing factor receptor type 2, Creatine, Creatine kinase, CXCL1, CXCL5, CXCL9, Cytochrome P450 2D6, Cytotoxic T-lymphocyte associated protein 4, D-lactic acid, Docosanoid, Elastin, Electrolyte, Endocannabinoid, Epstein-Barr virus induced gene 2, Fibroblast, G protein-coupled bile acid receptor 1, Gene expression, Glucocorticoid, Glucose, Glutathione, Glycolysis, Histamine, Hydroxyproline, Hypothalamic-pituitary-gonadal axis, Immunoglobulin A, Immunoglobulin D, Immunoglobulin E, Immunoglobulin G, Immunoglobulin M, Indole, Interleukin, Interleukin 1, Interleukin 1 alpha, Interleukin 1 beta, Interleukin 10, Interleukin 11, Interleukin 12, Interleukin 13, Interleukin 15, Interleukin 16, Interleukin 17, Interleukin 18, Interleukin 2, Interleukin 23, Interleukin 28, Interleukin 29, Interleukin 3, Interleukin 4, Interleukin 5, Interleukin 6, Interleukin 8, Interleukin 9, Intravenous immunoglobulin, Ion transportation, Kynurenine, Kynurenine pathway, Lipid raft, Lysozyme, M6A, Mast cell, Matrix metalloproteinase, Methyl-CpG binding protein 2, Methylation cycle, Mineral, Mitochondrion, MTHFR, Muscarinic acetylcholine receptor, Myelin, Myelin basic protein, Neopterin, Neuroendocrine system, Neurotransmitter, Nicotinamide adenine dinucleotide, Nitric oxide, NTRK, Nuclear receptor subfamily 3 group C member 1, Organic anion transporting polypeptide 1B1, Oxidative phosphorylation, Oxygen, Peripheral blood mononuclear cell, Peroxisome, Peroxynitrite, Phosphatidylcholine, Phospholipid, Plasma, Procollagen-proline dioxygenase, Proline-rich transmembrane protein 4, Protein tyrosine phosphatase non-receptor type 22, Purinergic P2X 4 receptor, Purinergic P2X 5 receptor, Receptor for advanced glycosylation end-product, Red blood cell, Regulated upon activation, normally T-expressed, and presumably secreted, Resolvin, Serine Protease 56, Single nucleotide polymorphism, Small intestine, Sodium–hydrogen antiporter 1, Stomatocyte, Tetrahydrobiopterin, Transient receptor potential, Transient receptor potential melastatin 2, Transient receptor potential melastatin 3, Transient receptor potential melastatin 7, Transient receptor potential vanilloid receptor 1, Tryptase, Tryptase alpha/beta 1, Tryptophan, Tubulin polymerization promoting protein, Tyrosine, Valyl-tRNA synthetase 2, mitochondrial, Vascular endothelial growth factor, VO2 Max, Wiskott-Aldrich Syndrome Protein Family Member 3, Category:Amino acids, Category:Blood components, Category:Channelopathy, Category:Chemical elements, Category:Coenzymes, Category:Cofactors, Category:Corticosteroids, Category:Cytokines, Category:Eicosanoids, Category:Electrolytes, Category:Enzymes, Category:Glycolipids, Category:Hormones, Category:Indoles, Category:Lipids, Category:Metabolic pathways, Category:Methylation, Category:Minerals, Category:Neurotransmitters and hormones, Category:Organelles, Category:Peptides, Category:Protein receptors, Category:Proteins, Category:Sugars

, Endocannabinoid, Glucocorticoid, Nitric oxide, Oxidative phosphorylation, Phenylalanine

Nutrients: B vitamin, Bile salt, Biotin, Calcium, Calicitriol, Carnitine, Choline, Chromium, Cobalamin, Coenzyme Q10, Copper, Creatine, Deadlock quartet, Dr Lapp's supplement recommendations, Electrolyte, Fluoride, Folate, Iodine, Magnesium, Malic acid, Manganese, Mineral, Molybdenum, Myers' Cocktail, Niacin, Pantothenic Acid, Phosphorus, Potassium, Pyridoxal-5'-phosphate, Riboflavin, Selenium, Sodium, Thiamine, Trimethylglycine, Vitamin A, Vitamin C, Vitamin D, Vitamin E, Vitamin K, Zinc, Category:Electrolytes, Category:Minerals, Category:Vitamins

, Deadlock quartet, Sam-e, TMG

Neurotransmitters and hormones: Acetylcholine, Alpha-Melanocyte-stimulating hormone, Calicitriol, Calcidiol, Cortisol, Dopamine, Endorphin, Estriadol, Epinephrine, Estrogen, Glucocorticoid, Glutamate, Histamine, Hormones, Leptin, Melatonin, Neurotransmitters, Norepinephrine, Oxytocin, Progesterone, Prolactin, Prostaglandins, Serotonin, Testosterone, Vasopressin, Thyroid, MSH, HGH

Blood donation

Disease Names & Definitions[edit | edit source]

No pages meet these criteria.


Research[edit | edit source]

Researchers

Research initiatives

Studies, biobanks, registries, mailing lists

Disclaimer: The following is a range of some of the interventions (including anecdotal) that have been used by patients to try to treat both individual symptoms and the disease as a whole, some of which have been researched and many which have not. The vast majority lack ANY reliable evidence of efficacy. Many carry significant side-effects and risks. This content is provided for information ONLY. MEpedia is not to be used to diagnose or treat any illness. Patients must consult a clinician before embarking on treatment.

Pharmaceuticals[edit | edit source]

Anti-fungal drugs: Fluconazole, Itraconazole

Other drug treatments: Chelation, Cyclophosphamide, Prednisone, Trazodone, Tramadol

B-cell depletion: Rituximab

Immunomodulators and immunostimulants: Ampligen, Low dose naltrexone, Intravenous immunoglobulin, Staphylococcal vaccine, Interferon

Antivirals: Valganciclovir, Famciclovir, Valaciclovir, Acyclovir

Anti-inflammatory drugs: Sulfasalazine

Herbs, Supplements and Nutraceuticals[edit | edit source]

Supplements: Probiotics, AHCC, Magnesium Malate, CoQ10, L-carnitine, MitoQ, NADH, PrescriptAssist, Mutaflor, GcMAF, Colostrum, Transfer factors, Fish oil, EPA, DHA, Taurine, L-Glutamine, Glutathione, Niacinamide, B Vitamin Complex, Adaptogens (Eleuthro, Ginseng, Ashwaganda, Rhodiola, Licorice), Mangosteen, Vegan/non-whey Protein Powders with Amino Acid Complex, Greens Powders, D-Ribose, Quercetin, Nexavir, 5-Hydroxytryptophan, Melatonin, L-arginine, L-citrulline, n-acetylcysteine

Supplement sources: Pure Formulas, Be Well By Dr Frank Lipman, Seeking Health, MITOQ, Aloha, ProHealth, Thrive Marketplace, HolisticHeal, Vitacost.com

Herbs: Medical marijuana, Kampo, Equilibrant

Immunovir, Medicinal mushrooms

Alternative interventions[edit | edit source]

Diets: GAPS diet, Ketogenic diet, Low FODMAP Diet, Low Histamine Diet, Paleo diet, RPAH Elimination Diet, Specific carbohydrate diet, Vegan diet, Vegetarian diet, Fasting

Foods: Cocoa (Dark chocolate)

Uncategorized interventions: Traditional Chinese medicine, Cold immersion, Fecal matter transplant/Faecal bacteriotherapy, Helminthic therapy, Pacing, Energy envelope, Hyperbaric oxygen, Exercise, Vagus nerve stimulation, Exercise based on 2-day CPET

Category page: Potential treatments

Clinicians[edit | edit source]

Australia: Amy Wallis, Donald Lewis, Greg Emerson, Henry Butt, John Whiting, Jonathan Turtle, Katherine Rowe, Mark Donohoe, Michael Oldmeadow, Peter Smith, Rashmi Cabena, Richard Kwiatek, Richard Schloeffel, Sarah Knight, Sonya Marshall-Gradisnik

, John Whiting

Belgium: Annemie Uyttersprot, Boudewijn Van Houdenhove, Elke Van Hoof, Els Tobback, Jo Nijs, Kenny De Meirleir, Michael Maes

, Annemie Uyttersprot (GP)

Canada: A C Peter Powles, Alison Bested, Anil Kumar Jain, Bruce Hoffman, Byron Hyde, Eleanor Stein, Ian Hyams, Jeffrey Sherkey, Morris Duhaime, Pierre Flor-Henry, Pradip Joshi, Ric Arseneau, Category:Clinicians by Canadian province


Chile: Ismael Mena


Denmark: Jesper Mehlsen


Finland: Olli Polo, Ville Valtonen


Germany: Anna Dorothea Hoeck, Carmen Scheibenbogen, Courtney Craig, Uta Behrends, Wilfried Bieger


Ireland: Austin Darragh


Italy: Eligio Pizzigallo, Lorenzo Lorusso, Nicoletta Carlo-Stella, Umberto Tirelli

, Lorenzo Lorusso, Eligio Pizzigallo, Umberto Tirelli

Japan: Kunihisa Miwa, Teruhisa Miike


New Zealand: Peter Grahame Snow, Rosamund Vallings


Norway: Arnold Berstad, Barbara Baumgarten-Austrheim, Dag Sulheim, Harald Nyland, Knut-Arne Wensaas, Live Landmark, Olav Mella, Peter Johnsen, Øystein Fluge


South Africa: Alexia van der Velde, Cecile Jadin, Peter Tarbleton

, Peter Tarbleton

South Korea: Daehyun Jo


Sweden: Björn Bragée, Carl-Gerhard Gottfries, Olli Polo


United Kingdom: Abhijit Chaudhuri, Alan Carson, Alan Stanton, Alastair Miller, Alessandra Borsini, Alicia Deale, Amberly Brigden, Amolak Bansal, Andrew Wright, Anne Gerken, Anne MacIntyre, Anthony Cleare, Anthony Pelosi, Arlene Gallagher, Ashok Gupta, Basant Puri, Ben Goldacre, Carmine Pariante, Carolyn Chew-Graham, Charles Shepherd, Chris Ponting, Christopher Burton, Clare Gerada, Daniel Forton, Derek Pheby, Diane Cox, Dietrich Klinghardt, Donald Acheson, Elena Garralda, Esther Crawley, Farhad Dalal, Francis Creed, Gabrielle Murphy, Gavin Spickett, Graham Foster, Harvey Marcovitch, Hazel O'Dowd, Ilora Finlay, Irving Spurr, James Mowbray, Jean Monro, Jo Daniels, Joan Crawford, Joanne Bond-Kendall, John Richardson, Jonathan Brostoff, Jonathan Tobias, Julia Newton, Leone Ridsdale, Leslie Findley, Lucy Clark, Matthew Hotopf, Maurice Murphy, Max Pemberton, Melvin Ramsay, Michael Prendergast, Mike Beadsworth, Naghmeh Nikkheslat, Natalie Moll, Neil Harrison, Nicola Clague-Baker, Nigel Speight, Nilay Hepgul, Nina Muirhead, Peter Barry, Peter Behan, Phil Hammond, Raymond Perrin, Richard Edwards, Rosemary Underhill, Sarah Myhill, Simon Wessely, Susan Watson, Terry Mitchell, Theo Anbu, Tim Peto, Tony Crouch, Trudie Chalder, Valeria Mondelli, Vinod Patel, William Weir, Zuzanna Zajkowska

, Breakspear Medical, Vinod Patel, Raymond Perrin, Andrew Wright

United States:

  • California:

Amy Yasko, Andreas Kogelnik, Bela Chheda, David Kaufman, Eric Gordon, Erich Ryll, Hector Bonilla, Jane Norris, John Chia, Jon Kaiser, Jose Montoya, Kent Holtorf, Lily Chu, Phillipe Bottello

, Phillipe Bottello, Kent Holtorf, Open Medicine Foundation, Amy Yasko, Holtorf Medical Group

  • Colorado:

Lisa Corbin, Nelson Gantz


  • Connecticut:

Morris Papernik

  • Florida:

Alison Bested, Daniel Dantini, Irma Rey, Jane Fitzpatrick, Maria Vera, Michael Antoni, Nancy Klimas, Roland Staud, Rosemary Underhill

, Daniel Dantini

  • Georgia:

Holtorf Medical Group

  • Hawaii:

Jacob Teitelbaum


  • Illinois:

Katie Brown, Kristine Healy


  • Iowa:

Arthur Hartz


  • Louisiana :

Adrian Casillas


  • Maryland:

Alan Pocinki, Alan Weiss, Jacqueline Rose, Peter Rowe, Rebecca Patterson Collier, Ritchie Shoemaker, Stephen Straus

, Alan Weiss

  • Massachusetts:

Alan Gurwitt, Anthony Komaroff, David Systrom, Jordan Dimitrakoff, Ronald Tompkins


  • Michigan:

A Martin Lerner, Alisa Koch, Daniel Clauw, Edward Conley

  • Minnesota:

Ann Vincent, Elizabeth L. Maloney

  • Mississippi:

Gailen Marshall

  • Missouri:‎

Joseph Brewer

  • Nevada:

Daniel Peterson, Kenny De Meirleir, Robert Fredericks

‎, Robert Fredericks

  • New Jersey:

James Oleske, Malcolm Schwartz, Richard Podell


  • New York:

Benjamin Natelson, Derek Enlander, Gudrun Lange, Jesse Stoff, Julian Stewart, Lawrence Afrin, Maureen Hanson, Patricia Fennell, Peter Manu, Susan Levine


  • North Carolina:

Charles Lapp, Laura Black, Paul Cheney, Vincent Hillman


Adrian Casillas


  • Utah:

Lucinda Bateman, Nathan Holladay


  • Virginia:

Gary Kaplan


  • Washington:

David Buscher, Dedra Buchwald


Management guides: Taming the Gorilla (Action for ME), Notes for Carers (Greg Crowhurst), The Purple Booklet (ME Association), Spoon theory, Dental Leaflet for ME Sufferers (The Grace Charity for M.E.), CFS - A Roadmap for Testing and Treatment, Information for Patients and Hospital Staff Regarding Treatment of Patients with M.E. (The Grace Charity for M.E.)

Psychological Paradigm[edit | edit source]

Psychological paradigm, mind-body approaches and related interventions: FINE trial, PACE trial, Graded Exercise Therapy, Cognitive Behavioral Therapy, Biopsychosocial model, Deconditioning, Mickel therapy, Lightning Process, Reverse therapy, Gupta programme, Psychoneuroimmunology, Meditation, Bodily distress syndrome, Functional somatic syndrome, Psychosomatic illness, Neurasthenia, Medically unexplained symptoms

Psychological paradigm proponents: Alicia Deale, Anna Katharina Schaffner, Anthony Cleare, Anthony David, Anthony Johnson, Anthony Pelosi, Arlene Gallagher, Ben Goldacre, Boudewijn Van Houdenhove, Brian Angus, Brian Walitt, Carolyn Chew-Graham, Chantal Bleeker-Rovers, Clare Gerada, Colin McEvedy, Cuno Uiterwaal, David Wilks, Diane Cox, Edward Shorter, Elise van de Putte, Esther Crawley, Francis Creed, Gabrielle Murphy, Gijs Bleijenberg, Hazel O'Dowd, Hugo Critchley, Isaac Marks, Jan Kimpen, Jeannine Hautvast, Jessica Bavinton, Jim Bolton, Jo Daniels, Jos van der Meer, Julia DeCesare, Kate Kelland, Kimberley Goldsmith, Korine Scheeres, Laura Potts, Leone Ridsdale, Leorey Saligan, Leszek Borysiewicz, Lieke de Jong, Lillebeth Larun, Loudy Priesterbach, Lucy Clark, Maja Stulemeijer, Mansel Aylward, Mary Burgess, Max Pemberton, Michael Sharpe, PACE Trial Management Group, Paul McCrone, Per Fink, Peter Manu, Peter White, Rebecca Walwyn, Richard Edwards, Rod Liddle, Rona Moss-Morris, Royal College of General Practitioners, Sanne Nijhof, Sean Lynch, Sense About Science, Sigrid Hoogveld, Simon Collin, Simon Wessely, Suzanne O'Sullivan, Theo Fiselier, Tim Peto, Tom Feilden, Trudie Chalder, Wessely school, William Beard, William Reeves, Category:PACE trial proponents


Psychological paradigm critics: Alan Gurwitt, Alan Light, Alem Matthees, Alice Hattrick, Alison Bested, Andrew Bretherton, Angela Kennedy, Anil van der Zee, Arthur Reingold, Baroness Scott of Needham Market, Betsy Keller, Brian Hughes, Brian Vastag, Bruce Levin, Carly Maryhew, Caroline Struthers, Carolyn Wilshire, Catherine Hale, Charles Lapp, Charles Shepherd, Christopher Snell, David Bell, David Black, David Kaufman, David Marks, David Tuller, Derek Enlander, Dharam Ablashi, Donald Acheson, Donald Staines, Eleanor Stein, Elisa Oltra, Ellen Goudsmit, Frank Twisk, Frans Visser, Fred Friedberg, Gordon Broderick, Graham McPhee, Hillary Johnson, Ian Gibson, James Baraniuk, James Coyne, James Oleske, James Strazza, Jesper Mehlsen, Joan Crawford, John Chia, John Peters, Jonathan Edwards, Julie Rehmeyer, Katrina Berne, Keith Geraghty, Keith Kahn-Harris, Keith Laws, Kelly Ickmans, Kenneth Friedman, Leonard Jason, Lily Chu, Lisa Barcellos, Lubov Nathanson, Lucinda Bateman, Malcolm Hooper, Marcie Zinn, Mark Vink, Mark Zinn, Mary Ann Fletcher, Maureen Hanson, Michael Maes, Michael VanElzakker, Mike Godwin, Molly Brown, Nancy Klimas, Nicola Clague-Baker, Nigel Speight, Nina Muirhead, Peter Rowe, Philip Lee, Richard Podell, Robert Courtney, Robin Brown, Ronald Davis, Ronald Tompkins, Rosamund Vallings, Rosemary Underhill, Sally Burch, Sam Carter, Sarah Myhill, Sonya Marshall-Gradisnik, Staci Stevens, Steve Topple, Steven Lubet, Susan Levine, Terry Mitchell, Vincent Lombardi, Vincent Racaniello, Warren Tate, William Weir, Zaher Nahle, Category:PACE trial critics


Patient mental health

By country: Diagnosis, treatments, insurance, disability, etc.[edit | edit source]

  • Africa:

Kenya, Nigeria, Sierra Leone, South Africa, Category:Kenya, Category:Nigeria, Category:Outbreaks in Sierra Leone, Category:Outbreaks in the Republic of South Africa, Category:Sierra Leone, Category:South Africa


  • Asia:

China, India, Indonesia, Iran, Israel, Japan, Russia, South Korea, Category:China, Category:Hong Kong, Category:India, Category:Indonesia, Category:Iran, Category:Israel, Category:Japan, Category:Philippines, Category:Russia, Category:South Korea


  • Europe:

Austria, Belarus, Belgium, Bulgaria, Croatia, Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Iceland, Ireland, Italy, Latvia, Lithuania, Netherlands, Norway, User:Notjusttired, Poland, Portugal, Romania, Russia, Serbia, Slovakia, Slovenia, Spain, Sweden, Switzerland, Ukraine, United Kingdom, Category:Austria, Category:Belarus, Category:Belgium, Category:Bulgaria, Category:Croatia, Category:Czech Republic, Category:Estonia, Category:European research initiatives, Category:Latvia, Category:Lithuania, Category:Netherlands, Category:Russia


  • Oceania:

Australia, New Zealand, Category:Australia, Category:New Zealand


  • North America:

Belize, Canada, Mexico, United States, Category:Belize, Category:Canada, Category:Central America, Category:Cuba, Category:Dominican Republic, Category:Mexico, Category:The Caribbean, Category:United States


  • South America:

Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, French Guiana, Guyana, Paraguay, Peru, Suriname, Uruguay, Venezuela, Category:Argentina, Category:Bolivia, Category:Brazil, Category:Chile, Category:Colombia, Category:Ecuador, Category:Guyana, Category:Paraguay, Category:Peru, Category:Spanish-language articles, Category:Suriname, Category:Uruguay, Category:Venezuela


History[edit | edit source]

Important events timeline

Historical records: Osler's Web, Thirty Years of Disdain

Outbreaks: Outbreaks: Akureyri; Los Angeles 1934; 1937 - Erstfeld, Switzerland; 1937 - St. Gallen, Switzerland; 1939 - Degersheim, St. Gallen, Switzerland; Adelaide 1949; 1953 - Rockville, Maryland, USA; 1954 - Seward, Alaska; 1954 - Dalston, Cumbria, England; Royal Free Hospital 1955; 1955 - Durban and Durban City, South Africa; 1956 - Punta Gorda, Florida, USA; 1958 - Athens, Greece; 1970-71 - London, England; Sacramento 1975; Ayrshire 1980; 1984 - Tapanui & West Otago, New Zealand; Incline Village 1984; 1984 - Chapel Hill, North Carolina, USA; 1985 - Lyndonville, New York, USA; Bergen Norway 2004

Deceased patients: Sophia Mirza, Thomas Hennessy, Jr., Vanessa Li, Lynn Gilderdale, Emily Collingridge, Chardale Dotson Irvine, Oliver Coles, Brynmor John, Victoria Elsbury-Legg, Roger Cicero, Jodi Bassett, Memorial Lists

Major developments/controversies: PACE trial, XMRV

ME and CFS in popular culture

Psychosomatic explanations for disease - History of misdiagnosis of illnesses [[1]]

Patient Advocacy[edit | edit source]

Patient groups

How To Advocate: Community and System Change

Advocacy/Fundraising Initiatives:

Famous people with ME, CFS, and/or FMS: Alan W. Lear, Alice Hattrick, Amy Peterson, Ann Bannon, Anne Örtegren, Blake Edwards, Brenton Brown, Brynmor John, Casey Stoner, Charles Darwin, Cher, Claire Jones, Clare Francis, David Provan, David Puttnam, Elizabeth Barrett Browning, Emma Blackery, Flea, Florence Nightingale, Frank Carrone, Frida Kahlo, Gary Burgess, Glenn Beck, Henry Percy, 11th Duke of Northumberland, Howard Bloom, Jacqueline Ko, Jennie Jacques, John Rutter, Jonathan Ansell, Julie Rehmeyer, Katie Flynn, Keith Jarrett, Lady Gaga, Laura Hillenbrand, Laurie Walker, Leila Pahlavi, List of famous people with ME, CFS, and/or FMS, Marcie Zinn, Margaret of Mar, 31st Countess of Mar, Marie Curie, Martin Lev, Martin Phillips, Martine McCutcheon, Michael Crawford, Michael Mayne, Michelle Akers, Miriam Defensor Santiago, Morgan Fairchild, Neil Codling, Nicola Blackwood, Olaf Bodden, Oriah Mountain Dreamer, Paul Atherton, Peter Marshall, Randy Newman, Rich Carson, Richie Barnett, Rivka Solomon, Roger Cicero, Sabine Moussier, Sarah Storey, Shirley Conran, Stevie Nicks, Stuart Murdoch, Susan Blackmore, Susan Harris, Tom Clarke, Toni Bernhard, Vicky Beeching, Yvette Cooper, Category:Famous people with ME, CFS, and/or FMS by country


Notable people with ME, CFS, and/or FMS: Karina Hansen, Joanne, Sophia Mirza, Thomas Hennessy, Jr., Vanessa Li, Lynn Gilderdale, Emily Collingridge, Whitney Dafoe, Tom Kindlon, Graham McPhee, Jennie Spotila, Naomi Whittingham, Jane Colby, Countess of Mar, Margaret Williams, Brian Vastag, Jennifer Brea, Ryan Prior, Hillary Johnson, Julie Rehmeyer, Leonard Jason, Charles Shepherd, Nasim Marie Jafry, Ken Lassesen, Cort Johnson, Valerie Eliot Smith, Doctor Speedy, Tanya Marlow, Deborah Waroff, Catherine Hale, Mary Schweitzer, Toni Bernhard, Guido den Broeder, Frank Twisk, Steven Lubet, Giada Da Ros, Roberta Pelletta, Carol Head, Ean Proctor, Jessica Taylor, Clark Ellis, Alem Matthees, Peter Kemp, Mindy Kitei, Jeannette Burmeister, Giles Meehan, Erik Johnson, Lisa Petrison, Mary Ann Kindel, Gabby Klein, Eileen Holderman, Susan Kreutzer, Maryann Spurgin, Wendy Boutilier, L.A. Cooper, Donna M. Pearson, Mary Gelpi

Notable advocates: Angela Kennedy, Carol Head, Mary Dimmock, Greg Crowhurst, Malcolm Hooper, Nicole Castillo, Llewellyn King, Erica Verrillo, Tom Whittingham, Mike Harley, Ian Gibson, Scott Ludlam, Linda Tannenbaum, Don Tannenbaum, Jon Campling, Charmian Proskauer, Courtney Miller

Notable Quotes: List of Quotes, Individual Quotes

Illuminated landmarks

Journals, TV, Articles, Books, Film, Interviews, Blogs, Discussion Forums[edit | edit source]

Journals: Diagnostics, Fatigue: Biomedicine, Health & Behavior, Journal of Chronic Fatigue Syndrome, Journal of Nuclear Medicine, PLOS ONE, The BMJ, The Journal of Nuclear Medicine, The Lancet, The Lancet Psychiatry, Category:Journal editors, Category:Journals with all articles using CC licenses, Category:Journals with other licenses, Category:Journals with some articles using CC licenses


TV: Afflicted, Chronic Fatigue: Missing Millions (Carte Blanche DSTV), House, I Remember Me, Inside Out: Six years in bed, List of television segments on ME and CFS, Sick and Tired - BBC, Sick and Tired - Incline Village Outbreak, Susan Harris, The Golden Girls, The Middle, Toxic Tiredness, Unrest


Articles: List of news articles on ME and CFS, In the Expectation of Recovery

Books (Deutsch): ME - Myalgische Enzephalomyelitis vs. Chronic Fatigue Syndrom - Fakten Hintergründe Forschung


Books (English): 101 Tips For Coping With M.E., 150 Tips for Everyday Living with ME/CFS, A Beginner's Guide to ME/CFS, A Beginner's Guide to Mold Avoidance, A Companion Volume to Dr. Jay A. Goldstein's Betrayal by the Brain: A Guide for Patients and Their Physicians, A Girl Behind Dark Glasses, A Girl In One Room, A Year Lost and Found, All My Test Results are Normal: A Smart Guide to Testing for Chronic Fatigue Syndrome, America Exhausted: Breakthrough Treatments of Fatigue and Fibromyalgia, America's Biggest Cover-Up, An Introduction to the Lightning Process, Authors of our Own Misfortune? The Problems with Psychogenic Explanations for Physical Illnesses, Back from the Edge, Beating Chronic Fatigue: Your step-by-step guide to complete recovery, Betrayal by the Brain, Body by Science, Can I tell you about ME/Chronic Fatigue Syndrome?, Caring for ME, Caring for the M.E. Patient, CBT: The Cognitive Behavioural Tsunami: Managerialism, Politics and the Corruptions of Science, CFS Unravelled, Chronic Fatigue and its Syndromes, Chronic Fatigue Syndrome (1994 book), Chronic Fatigue Syndrome (1997 book), Chronic Fatigue Syndrome (The Facts), Chronic Fatigue Syndrome M.E.: Symptoms, Diagnosis, Management, Chronic Fatigue Syndrome, ME and Fibromyalgia - The Long Awaited Cure, Chronic Fatigue Syndrome/ME: Support for Family and Friends, Chronic Fatigue Syndrome: A Biological Approach, Chronic Fatigue Syndrome: A Guide to the Homeopathic Treatment of CFS/M.E., Chronic Fatigue Syndrome: A Treatment Guide, Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition, Chronic Fatigue Syndrome: What You Need To Know About CFS/ME, Ciba Foundation Symposium 173 - Chronic Fatigue Syndrome, Classic Pacing for a Better Life with ME, Clinician's Guide To Controversial Illnesses: Chronic Fatigue Syndrome, Fibromyalgia, and Multiple Chemical Sensitivities, Diagnosis and Treatment of Chronic Fatigue Syndrome: It's Mitochondria, Not Hypochondria, Encounters with the Invisible, Enteroviral and Toxin Mediated Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Other Organ Pathologies, Exhaustion: A History, Explaining "Unexplained Illnesses", Fighting Fatigue: Managing the Symptoms of CFS/ME, Finding M.E.: An Alternative Guide to Healing M.E./CFS, From ME to You, With Love, Get Well Soon: Adventures in Alternative Healthcare, Haworth Research Series on Malaise, Fatigue, and Debilitation, How To Be Sick, How To Live Well with Chronic Pain and Illness, I'm Not Crazy, I'm Just a Little Unwell: My Journey Through Chronic Fatigue Syndrome, Ill Feelings: stories of unexplained illness, Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection, It's All in Your Head: True Stories of Imaginary Illness, Life with ME: Words of Warriors, Lightening the Shadow, Lighting Up a Hidden World, Living with ME, Love and Fatigue in America, M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome, M.E., Chronic Fatigue Syndrome and Fibromyalgia - The Reverse Therapy Approach, M.E., Myself and I, Managing Chronic Fatigue Syndrome and Fibromyalgia: Feel Better, Take Charge, Regain Hope, Managing ME/CFS: A guide for young people, Mayo Clinic Guide to Fibromyalgia: Strategies to Take Back Your Life, ME - The New Plague, Missed Diagnoses: Myalgic Encephalomyelitis & Chronic Fatigue Syndrome, My A-Z of M.E. (Myalgic Encephalomyelitis), My Teenage Son Had Chronic Fatigue Syndrome: A Mother's Tale of ME/CFS, Myalgic Encephalomyelitis and Postviral Fatigue States: The Saga of Royal Free Disease, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: History, Diagnostic Criteria, and Prevalence, One Last Goodbye, Osler's Web, Overcoming Chronic Fatigue, Plague, Post-Viral Fatigue Syndrome (book), Ramsay's Disease - Myalgic Encephalomyelitis (ME) and the Unfortunate Creation of 'CFS', Recovery from CFS: 50 Personal Stories, Reviving the Broken Marionette, Running On Empty: The Complete Guide to Chronic Fatigue Syndrome (CFIDS), Science, Politics, .......and ME: A health scandal in our generation, Severe ME - Featuring: "Justice for Karina Hansen", Severe ME/CFS: A Guide to Living, Severe ME: Notes for Carers, Shattered: A Champion's Fight Against a Mystery Illness, Shattered: Life with M.E., SICK: A Long Short Story About M.E., Stranger and stranger, Stricken, Supinely Sublimely, The Chronic Fatigue Syndrome Epidemic Cover-up: How a Little Newspaper Solved the Biggest Scientific and Political Mystery of Our Time, The Clinical and Scientific Basis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, The Deep Places: A Memoir of Illness and Recovery, The Handbook of Chronic Fatigue Syndrome, The LDN Book, The Long Covid Handbook, The Long COVID Survival Guide, The Matzah Ball, The Pocket Guide to Chronic Fatigue Syndrome/ME: Key Facts and Tips for Improved Health, The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole his Son, The Sound of a Wild Snail Eating, The State of Me, The Unpredictable Journey: A Survivor's Success Story, The Why: The Historic ME/CFS Call To Arms, Thirty Years of Disdain, Thorsons Health - M.E.: Chronic Fatigue Syndrome: A Practical Guide, Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand, Tickle ME - Stories Of A Brain Fogged Girl, Understanding M.E. - A Guide For Friends, Family & Carers, What Is M.E.?, What Is M.E.? A Guide For Children, What Is Wrong with ME, When Force Meets Fate: A Mission to Solve an Invisible Illness, Why am I So Exhausted? understanding Chronic Fatigue Syndrome, Why ME, Within These Four Walls, Zoe's Win


Books (Italiano): Stanchi: Vivere con la Sindrome da Fatica Cronica


Books (Nederlands): Heden ik, Nooit Meer Moe


Books (Norsk): Classic Pacing for a Better Life with ME, De Bortgjemte, ME en sykdom i tiden


Books (Suomi): CFS:n ja fibromyalgian hoito


Books (Svenska): Trött är fel ord: Om att leva med den osynliga sjukdomen ME/CFS


Film: Afflicted, Dialogues for a neglected illness, Forgotten Plague, I Remember Me, Invisible Illness - Stories of Chronic Fatigue Syndrome, Living with M.E., M.E. and Me, ME The Hidden Truth, Perversely Dark, Safe, The Last Great Medical Cover Up, Unrest, Voices from the Shadows, What About ME, Wild Horses


Interviews: ME/CFS Alert, Science for Patients

Blogs: 25pillsaday, A Dream Deferred, A Journey Through The Fog, A Life Hidden, Aroga Yoga, Blonde Voyage, Cell Fatigue, CFS Central, CFS Patient Advocate, CFS Remission, CFSGraphics, Chronic Fatigue Survivor's Blog, Chronically Hopeful, ChronicallyME, Constant F****** S***, Courtney Craig, Disabled in Tory Britain, Get Well From ME, Health Rising, Holistic Myalgic Encephalomyelitis, Intelligent Medicine, Jamison Writes, JayTay, Just ME, Limited Capability, Living With Chronic Fatigue Syndrome, ME/CFS Ghost, MEadvocacy, My World, Nice guidelines blog, Occupy M.E., Onward Through the Fog, Paolo Maccallini, Phoenix Rising, Quixotic My ME Blog, Rag and Bone Shop of the Heart: E.M. and M.E., Shoutout About ME, Spoonie Radio, Spoonseekerdotcom, Stonebird, The Blue Ribbon Fellowship, The Blue Ribbon Foundation, The MEAction Network, The Self-Taught Author, The World of One Room, Thoughts About M.E., Trial By Error, Utting-Wolff Spouts, Valerie Eliot Smith Blog, Verywell FMS/CFS, Virology blog


Discussion forums: CFS Reddit, Health Rising, MDJunction, ME/CFS Forums, MEAction Reddit, Phoenix Rising, ProHealth, Science for ME


Open Letters[edit | edit source]