UK ME/CFS Biobank: Difference between revisions

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The '''UK ME/CFS biobank''' or '''UKMEB''' is a disease-specific biobank that collects biological samples from [[ME/CFS]] patients in the [[UK]] for use in biomedical research into ME/CFS.
The '''UK ME/CFS biobank''' or '''UKMEB''' is a disease-specific biobank that collects biological samples from [[ME/CFS]] patients in the [[UK]] for use in biomedical research into ME/CFS.<ref>{{Cite web|url=https://cureme.lshtm.ac.uk/the-uk-mecfs-biobank/|title=The UK ME/CFS Biobank – CureMe|last=|first=|authorlink=|last2=|first2=|authorlink2=|date=|website=[[London School of Hygiene and Tropical Medicine]]|language=en|archive-url=|archive-date=|url-status=|access-date=2021-09-07}}</ref><ref name="PMC6288193" />


==History ==
==History ==
The UK ME/CFS Biobank was established in 2011 with joint grant from the UK charities [[ME Association]], [[ME Research UK]], and [[Action for ME]], plus private donors. The ME Association's Ramsay Research Fund provides ongoing funding, with MEB aiming be financially self-sustaining by 2021.<ref name="MEA-projects">https://meassociation.org.uk/research/research-projects/</ref><ref name="PMC6288193" />
The UK ME/CFS Biobank was established in 2011 with joint grant from the UK charities [[ME Association]], [[ME Research UK]], and [[Action for ME]], plus private donors. The ME Association's Ramsay Research Fund provides ongoing funding, with MEB aiming be financially self-sustaining by 2021.<ref name="MEA-projects">{{Cite web|url=https://meassociation.org.uk/research/research-projects/|title=Research Projects|last=|first=|authorlink=|last2=|first2=|authorlink2=|date=2015-11-17|website=[[The ME Association]]|language=en-GB|archive-url=|archive-date=|url-status=|access-date=2021-09-07}}</ref><ref name="PMC6288193" />


By 2018, the UK ME/CFS Biobank held samples from 600 donors classified into the following groups:
By 2018, the UK ME/CFS Biobank held samples from 600 donors classified into the following groups:
* 350 patients with [[myalgic encephalomyelitis]]
* 350 patients with [[myalgic encephalomyelitis]]
* Patients with [[multiple sclerosis]], acting as a comparison group  
* Patients with [[multiple sclerosis]], acting as a comparison group  
* Healthy controls<ref name="PMC6288193">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6288193/</ref>
* Healthy controls<ref name="PMC6288193">{{Cite journal|last=Lacerda|first=Eliana M.|author-link=Eliana Lacerda|last2=Mudie|first2=Kathleen|author-link2=|last3=Kingdon|first3=Caroline C.|author-link3=Caroline Kingdon|last4=Butterworth|first4=Jack D.|author-link4=Jack Butterworth|last5=O'Boyle|first5=Shennae|author-link5=|last6=Nacul|first6=Luis|author-link6=Luis Nacul|date=2018-12-04|title=The UK ME/CFS Biobank: A Disease-Specific Biobank for Advancing Clinical Research Into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6288193/|journal=Frontiers in Neurology|volume=9|issue=|pages=|doi=10.3389/fneur.2018.01026|issn=1664-2295|pmc=6288193|pmid=30564186|access-date=|quote=|via=}}</ref>


==Severely ill patients ==
==Severely ill patients ==
Patients with [[Severe and very severe ME|severe and very severe ME]] can receive home visits in order to donate samples to the biobank, but must live in England close to the biobank.
Patients with [[Severe and very severe ME|severe and very severe ME]] can receive home visits from UKMEB staff in order to donate samples to the biobank, but must live in England close to the biobank.


==UK Biobank==
==UK Biobank==
The UK ME/CFS Biobank should not be confused with the much larger UK Biobank or '''UKB''', which is not focused on ME/CFS and was established by the UK's [[Medical Research Council]] and the Wellcome Trust.<ref name="UKB">https://www.ukbiobank.ac.uk/learn-more-about-uk-biobank/about-us</ref>
The UK ME/CFS Biobank should not be confused with the much larger '''UK Biobank''' or '''UKB''', which is not focused on ME/CFS and was established by the UK's [[Medical Research Council]] and the Wellcome Trust.<ref name="UKB">https://www.ukbiobank.ac.uk/learn-more-about-uk-biobank/about-us</ref>


==Notable studies ==
==Notable studies ==

Revision as of 23:47, September 7, 2021

The UK ME/CFS biobank or UKMEB is a disease-specific biobank that collects biological samples from ME/CFS patients in the UK for use in biomedical research into ME/CFS.[1][2]

History[edit | edit source]

The UK ME/CFS Biobank was established in 2011 with joint grant from the UK charities ME Association, ME Research UK, and Action for ME, plus private donors. The ME Association's Ramsay Research Fund provides ongoing funding, with MEB aiming be financially self-sustaining by 2021.[3][2]

By 2018, the UK ME/CFS Biobank held samples from 600 donors classified into the following groups:

Severely ill patients[edit | edit source]

Patients with severe and very severe ME can receive home visits from UKMEB staff in order to donate samples to the biobank, but must live in England close to the biobank.

UK Biobank[edit | edit source]

The UK ME/CFS Biobank should not be confused with the much larger UK Biobank or UKB, which is not focused on ME/CFS and was established by the UK's Medical Research Council and the Wellcome Trust.[4]

Notable studies[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]