UK ME/CFS Biobank: Difference between revisions
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The '''UK ME/CFS biobank''' or '''UKMEB''' collects samples from [[ME/CFS]] patients in the [[UK]]. | The '''UK ME/CFS biobank''' or '''UKMEB''' is a disease-specific biobank that collects biological samples from [[ME/CFS]] patients in the [[UK]] for use in biomedical research into ME/CFS. | ||
==History == | |||
The UK ME/CFS Biobank was established in 2011 with joint grant from the UK charities [[ME Association]], [[ME Research UK]], and [[Action for ME]], plus private donors. The ME Association's Ramsay Research Fund provides ongoing funding, with MEB aiming be financially self-sustaining by 2021.<ref name="MEA-projects">https://meassociation.org.uk/research/research-projects/</ref><ref name="PMC6288193" /> | |||
By 2018, the UK ME/CFS Biobank held samples from 600 donors classified into the following groups: | |||
* 350 patients with [[myalgic encephalomyelitis]] | |||
* Patients with [[multiple sclerosis]], acting as a comparison group | |||
* Healthy controls<ref name="PMC6288193">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6288193/</ref> | |||
==Severely ill patients == | ==Severely ill patients == | ||
Patients with [[Severe and very severe ME|severe and very severe ME]] can receive home visits in order to donate samples to the biobank, but must live in England close to the biobank. | Patients with [[Severe and very severe ME|severe and very severe ME]] can receive home visits in order to donate samples to the biobank, but must live in England close to the biobank. | ||
==UK Biobank== | |||
The UK ME/CFS Biobank should not be confused with the much larger UK Biobank or '''UKB''', which is not focused on ME/CFS and was established by the UK's [[Medical Research Council]] and the Wellcome Trust.<ref name="UKB">https://www.ukbiobank.ac.uk/learn-more-about-uk-biobank/about-us</ref> | |||
==Notable studies == | ==Notable studies == | ||
==Online presence== | |||
*Twitter | |||
*Facebook | |||
*[https://cureme.lshtm.ac.uk/the-uk-mecfs-biobank/ Website] | |||
*YouTube | |||
==See also == | ==See also == | ||
* [[Luis Nacul]] | * [[Luis Nacul]] | ||
*[[Karl Morten]] | * [[Karl Morten]] | ||
* [[CureME]] | * [[CureME]] | ||
* [[London School of Hygiene and Tropical Medicine]] (LSHTM) | * [[London School of Hygiene and Tropical Medicine]] (LSHTM) | ||
==Learn more == | |||
*[https://cureme.lshtm.ac.uk/the-uk-mecfs-biobank/ The UK ME/CFS Biobank] | |||
*[https://meassociation.org.uk/research/research-projects/uk-mecfs-biobank/ The ME Biobank] - The ME Association | |||
==References == | |||
{{Reflist}} | |||
[[Category:Biobanks & patient registries]] | [[Category:Biobanks & patient registries]] | ||
Revision as of 23:27, September 7, 2021
 | This article is a stub. |
The UK ME/CFS biobank or UKMEB is a disease-specific biobank that collects biological samples from ME/CFS patients in the UK for use in biomedical research into ME/CFS.
History[edit | edit source]
The UK ME/CFS Biobank was established in 2011 with joint grant from the UK charities ME Association, ME Research UK, and Action for ME, plus private donors. The ME Association's Ramsay Research Fund provides ongoing funding, with MEB aiming be financially self-sustaining by 2021.[1][2]
By 2018, the UK ME/CFS Biobank held samples from 600 donors classified into the following groups:
- 350 patients with myalgic encephalomyelitis
- Patients with multiple sclerosis, acting as a comparison group
- Healthy controls[2]
Severely ill patients[edit | edit source]
Patients with severe and very severe ME can receive home visits in order to donate samples to the biobank, but must live in England close to the biobank.
UK Biobank[edit | edit source]
The UK ME/CFS Biobank should not be confused with the much larger UK Biobank or UKB, which is not focused on ME/CFS and was established by the UK's Medical Research Council and the Wellcome Trust.[3]
Notable studies[edit | edit source]
Online presence[edit | edit source]
- Website
- YouTube
See also[edit | edit source]
Learn more[edit | edit source]
- The UK ME/CFS Biobank
- The ME Biobank - The ME Association
