Tymes Trust
The Tymes Trust (The Young ME Sufferers Trust) is a British patient charity providing support to children and young people who have myalgic encephalomyelitis (ME) and their families. It is the longest established national UK service for children and young people with ME and their families.[1] The Trust is a member of the Forward-ME group[2] and the All-Party Parliamentary Group on Myalgic Encephalomyelitis.[3]
Aims
Tymes Trust aims to help children and young people with myalgic encephalomyelitis (ME) through the provision of appropriate support, advice and information. They also work to advance the education of the public and professionals concerned with the education or care of children and young people in all aspect of ME/CFS.[4]
Some of the services Tymes Trust provide include the Tymes magazine, an advice line service, and a professionals referral service. They also provide The Tymes Trustcard to children for use in schools.[5]
Notable people
- Jane Colby is the executive director of Tymes Trust.
Patrons
History
Tymes Trust began in 1989 in the form of the Tymes Magazine, which was published by two young people with ME. The trust became a registered charity in June 2000 and now offers a range of services. In 2010 Tymes Trust received the Queen’s Award for Voluntary Service for pursuing the educational rights of children with ME and advancing their care.
Funding
Funding is almost entirely raised by member donations, with occasional grants for specific projects.[6] Tymes Trust acquired charitable status in June 2000.[5] Its charity number is 1080985.[4]
