The MEAction Network

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#MEAction (The Myalgic Encephalomyelitis Action Network) is a worldwide ME/CFS patient advocacy group co-founded May 12, 2015 by Jennifer Brea and Beth Mazur.

Its focus is on empowering patients to take action to improve the research and treatment situation, through local affiliate groups in countries around the world. #MEAction runs special interest groups focused on science & research, public education and press relations.

History[edit | edit source]

On July 24, 2016, #MEAction made a policy change where they would adopt ME for the name for future communications about the disease except where the name CFS needs to be mentioned.[1]

Notable projects[edit | edit source]

The Millions Missing protests were created by MEAction.

MEpedia was launched by MEAction.

CFSAC[edit | edit source]

MEAction became a non-voting liaison representative to the Chronic Fatigue Syndrome Advisory Committee (CFSAC) for the term June 2017 to June 2019. CFSAC, an advisory committee to the US Office of the Assistant Secretary for Health, allots three seats to patient advocacy groups.

Actions[edit | edit source]

PACE trial[edit | edit source]

US Congressional Outreach[edit | edit source]

Tools[edit | edit source]

Petitions[edit | edit source]

Organization[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

Online presence[edit | edit source]

References[edit | edit source]

The information provided at this site is not intended to diagnose or treat any illness.

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history