The MEAction Network

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Jump to: navigation, search
Meaction logo red.png
#MEAction (The Myalgic Encephalomyelitis Action Network) is a worldwide ME/CFS patient advocacy group co-founded May 12, 2015 by Jennifer Brea and Beth Mazur.

Its focus is on empowering patients to take action to improve the research and treatment situation, through local affiliate groups in countries around the world. #MEAction runs special interest groups focused on science & research, public education and press relations.

History

On July 24, 2016, #MEAction made a policy change where they would adopt ME for the name for future communications about the disease except where the name CFS needs to be mentioned.[1]

Notable projects

The Millions Missing protests were created by MEAction.

MEpedia was launched by MEAction.

CFSAC

MEAction became a non-voting liaison representative to the Chronic Fatigue Syndrome Advisory Committee (CFSAC) for the term June 2017 to June 2019. CFSAC, an advisory committee to the US Office of the Assistant Secretary for Health, allots three seats to patient advocacy groups.

Actions

PACE trial

US Congressional Outreach

Tools

Petitions

Organization

Learn more

See also

Online presence

References


The information provided at this site is not intended to diagnose or treat any illness.

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history